Swipe om te navigeren naar een ander artikel
The views expressed in this article are those of the author(s) and do not necessarily represent the views of the Department of Veterans Affairs.
To compare validity including responsiveness, and internal consistency reliability and scaling assumptions of a generic (SF-36) and Parkinson Disease (PD)-targeted (PDQ-39; PDQUALIF) health-related quality of life (HRQOL) measures.
Ninety-six PD patients were administered for all HRQOL measures by telephonic interview at baseline and 18 months. Relative efficiency and responsiveness were compared relative to four external criteria (self-ratings of PD’s daily effects, global Quality of Life, PD symptom severity, and a depression screener). We examined whether PD-targeted measures explained unique variance beyond the SF-36 by regressing criterion variables on HRQOL scales/items. Adequacy of PD-targeted measures’ original scaling was explored by item-scale correlations.
Relative efficiency estimates were similar for generic and PD-targeted measures across all criteria. Responsiveness analyses showed that the SF-36 yielded large (>0.8) effect sizes (ES) for three of eight scales for each of two criterion variables, compared to only one large ES for any scale in either PD-targeted measure. Adjusted R 2 increased from 14 to 27% in regression models that included PD-targeted items compared to models with only SF-36 scales. Item-scale correlations showed significant cross-loading of items across scales of the PD-targeted measures.
SF-36 responsiveness was better than that of two PD-targeted measures, yet those measures had content that significantly explains PD patients’ HRQOL.
Ustun, T. B., Chatterji, S., Bickenbach, J., Kostanjsek, N., & Schneider, M. (2003). The international classification of functioning, disability and health: A new tool for understanding disability and health. Disability and Rehabilitation, 25(11–12), 565–571. PubMed
Ware, J. E. (1993). SF-36 health survey: Manual and interpretation guide. Boston: The Health Institute, New England Medical Center.
Den Oudsten, B. L., Van Heck, G. L., & De Vries, J. (2007). The suitability of patient-based measures in the field of Parkinson’s disease: A systematic review. Movement Disorders, 22(10), 1390–1401. CrossRef
Hays, R. D., Kim, S., Spritzer, K. L., Kaplan, R. M., Tally, S., Feeny, D., et al. (2009). Effects of mode and order of administration on generic health-related quality of life scores. Value Health. doi: 10.1111/j.1524-4733.2009.00566.x.
Movement Disorder Society Task Force on Rating Scales for Parkinson’s Disease. (2003). The unified Parkinson’s disease rating scale (UPDRS): Status and recommendations. Movement Disorders, 18(7), 738–750. CrossRef
Cronbach, L. J. (1951). Coefficient alpha and the internal structure of tests. Psychometrika, 16(3), 297–334. CrossRef
Mosier, C. (1943). On the reliability of a weighted composite. Psychometrika, 8(3), 161–168. CrossRef
Riazi, A., Hobart, J. C., Lamping, D. L., Fitzpatrick, R., Freeman, J. A., Jenkinson, C., et al. (2003). Using the SF-36 measure to compare the health impact of multiple sclerosis and Parkinson’s disease with normal population health profiles. Journal of Neurology, Neurosurgery and Psychiatry, 74(6), 710–714. CrossRef
Nunnally, J. C. (1978). Psychometric theory. New York: McGraw-Hill.
Fayers, P. M., & Hays, R. D. (2005). Assessing quality of life in clinical trials. New York: Oxford University Press.
Lohr, K. N. (2002). Assessing health status and quality-of-life instruments: Attributes and review criteria. Quality of Life Research, 11(3), 193–205. CrossRef
Cohen, J. (1969). Statistical power analysis for the behavioral sciences. London: Academic Press.
Hays, R. D., & Wang, E. (1992). Multitrait scaling program: MULTI. In Proceedings of the seventeenth annual SAS users group international conference (pp. 1151–1156).
Reeve, B. B., Hays, R. D., Bjorner, J. B., Cook, K. F., Crane, P. K., Teresi, J. A., et al. (2007). Psychometric evaluation and calibration of health-related quality of life item banks: Plans for the patient-reported outcomes measurement information system (PROMIS). Medical Care, 45(5 Suppl 1), S22–S31. PubMedCrossRef
- SF-36 includes less Parkinson Disease (PD)-targeted content but is more responsive to change than two PD-targeted health-related quality of life measures
Carlos A. Brown
Eric M. Cheng
Ron D. Hays
Stefanie D. Vassar
Barbara G. Vickrey
- Springer Netherlands