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Quality of Life Research
Gepubliceerd in: Quality of Life Research 6/2022

17-09-2021

Patient-level barriers and facilitators to completion of patient-reported outcomes measures

Auteurs: Chao Long, Laura K. Beres, Albert W. Wu, Aviram M. Giladi

Gepubliceerd in: Quality of Life Research | Uitgave 6/2022

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Abstract

Purpose

To identify patient-level barriers and facilitators to completion of patient-reported outcomes measures (PROMs) in a hand and upper extremity clinic in Baltimore, Maryland.

Methods

We conducted 12 h of direct observation of PROM completion (October–November, 2020). Ethnographic observation memos were qualitatively analyzed for barriers and facilitators using rapid thematic analysis. Informed by observation findings, we conducted 17 semi-structured interviews with mixed-literacy patients, caregivers, and clinic staff to understand the patient experience when completing PROMs (November 2020–March 2021). We identified initial themes through inductive and deductive framework analysis and validated findings through subsequent interviews with member-checking.

Results

We identified nine patient-level factors that influence PROM completion: platform design, print literacy, health literacy, technology literacy, language proficiency, physical functioning, vision, cognitive functioning, and time.

Conclusions

There are multiple distinct patient-level factors that affect PROM completion. Failure to consider these factors in PROM design and implementation may lower completion rates or prevent accurate completion, undermining PROM validity. Because certain factors affect minority populations at disproportionate rates, this may also contribute to existing health disparities.
vorige artikel A philosophical perspective on the development and application of patient-reported outcomes measures (PROMs)
volgende artikel Clinicians’ perspectives on the integration of electronic patient-reported outcomes into dermatology clinics: a qualitative study
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Metagegevens
Titel
Patient-level barriers and facilitators to completion of patient-reported outcomes measures
Auteurs
Chao Long
Laura K. Beres
Albert W. Wu
Aviram M. Giladi
Publicatiedatum
17-09-2021
Uitgeverij
Springer International Publishing
Gepubliceerd in
Quality of Life Research / Uitgave 6/2022
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-021-02999-8

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