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01-06-2013 | Brief Communication

Further evidence of reliability and validity of the Huntington’s disease quality of life battery for carers: Italian and French translations

Auteurs: Aimee Aubeeluck, Julie Dorey, Ferdinando Squitieri, Emilie Clay, Edward J. N. Stupple, Annunziata De Nicola, Heather Buchanan, Tiziana Martino, Mondher Toumi

Gepubliceerd in: Quality of Life Research | Uitgave 5/2013

Abstract

Background

Existing research suggests that family caregivers of persons with Huntington’s disease (HD) face a distinct series of problems, linked to the complex nature of the disease. Aubeeluck and Buchanan (Clin Genet, 71(5):434–445, 2007) developed and validated a disease-specific measure used to explore caregivers quality of life and assess the efficacy of therapeutic interventions. This current study builds on this research through the validation of French and Italian translations of the Huntington’s disease quality of life battery for carers (HDQoL-C).

Method

A total of 301 family carers completed the HDQoL-C. Participants were recruited through the “Euro-HDB” study which is measuring the burden in HD across Europe and the USA.

Results

Factor analysis demonstrated good internal consistency, reliability and congruent validity. Carers who cared for patients with less clinically severe symptoms reported significantly better QoL than carers of patients with more clinically severe symptoms.

Discussion

Findings indicate the HDQoL-C is multi-lingual, multi-cultural and easily applicable in other languages.

vorige artikel Evaluation of a role functioning computer adaptive test (RF-CAT)

volgende artikel Adaptation into Spanish of the Warwick–Edinburgh Mental Well-being Scale (WEMWBS) and preliminary validation in a student sample

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Titel: Further evidence of reliability and validity of the Huntington’s disease quality of life battery for carers: Italian and French translations
Auteurs: Aimee Aubeeluck
Julie Dorey
Ferdinando Squitieri
Emilie Clay
Edward J. N. Stupple
Annunziata De Nicola
Heather Buchanan
Tiziana Martino
Mondher Toumi
Publicatiedatum: 01-06-2013
Uitgeverij: Springer Netherlands
Gepubliceerd in: Quality of Life Research / Uitgave 5/2013
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI: https://doi.org/10.1007/s11136-012-0227-2

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Abstract

Background

Method

Results

Discussion

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