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10-09-2022

Effectiveness of a personalized health profile on specificity of self-management goals among people living with HIV in Canada: findings from a blinded pragmatic randomized controlled trial

Auteurs: Maryam Mozafarinia, Fateme Rajabiyazdi, Marie-Josée Brouillette, Lesley K. Fellows, Bärbel Knäuper, Nancy E. Mayo

Gepubliceerd in: Quality of Life Research | Uitgave 2/2023

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Abstract

Purpose

To estimate among people living with chronic HIV, to what extent providing feedback on their health outcomes will affect the number and specificity of patient-formulated self-management goals.

Methods

A personalized feedback profile was produced for individuals enrolled in a Canadian HIV Brain Health Now study. Goal specificity was measured by total number of specific words (matched to a domain-specific developed lexicon) per person-words using text mining techniques.

Results

Of 176 participants enrolled and randomly assigned to feedback and control groups, 110 responses were received. The average number of goals was similar for both groups (3.7 vs 3.9). The number of specific words used in the goals formulated by the feedback and control group were 642 and 739, respectively. Specific nouns and actionable verbs were present to some extent and “measurable” and “time-bound” words were mainly missing. Negative binomial regression showed no difference in goal specificity among groups (RR = 0.93, 95% CI 0.78–1.10). Goals set by both groups overlapped in 8 areas and had little difference in rank.

Conclusion

Personalized feedback profile did not help with formulation of high-quality goals. Text mining has the potential to help with difficulties of goal evaluation outside of the face-to-face setting. With more data and use of learning models automated answers could be generated to provide a more dynamic platform.
Bijlagen
Alleen toegankelijk voor geautoriseerde gebruikers
Voetnoten
1
To make goal formulation simple, it has been proposed that a good goal should be able to answer “who, will do what, under what condition, how well, and by when.” An approach very close to the SMART approach.
 
2
A multi-site Cohort Multiple Randomized Controlled Trial (cmRCT) (http://​brainhealthnow.​org).
 
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Metagegevens
Titel
Effectiveness of a personalized health profile on specificity of self-management goals among people living with HIV in Canada: findings from a blinded pragmatic randomized controlled trial
Auteurs
Maryam Mozafarinia
Fateme Rajabiyazdi
Marie-Josée Brouillette
Lesley K. Fellows
Bärbel Knäuper
Nancy E. Mayo
Publicatiedatum
10-09-2022
Uitgeverij
Springer International Publishing
Gepubliceerd in
Quality of Life Research / Uitgave 2/2023
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-022-03245-5

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