Overview
- Proposes the conditions needed to address the development of Mad epistemologies
- Presents innovative research methodologies and investigates the conventional hierarchies of methods
- Examines ‘Patient and Public Involvement' (PPI) in research in England as a case study
Part of the book series: The Politics of Mental Health and Illness (PMHI)
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About this book
This book presents a critical examination of the development of user involvement within research, and investigates the issues currently preventing a productive integration of Mad knowledges within research and practice. Drawing on social, linguistic and critical theories, it proposes the conditions needed to address the development of Mad epistemologies.
The author’s unique approach deliberately highlights her own positionality and draws on decades of experience as a service recipient, survivor, activist and researcher to illustrate the structural and symbolic barriers faced. Employing concepts including epistemic injustice, individualization, normalization and structural violence, it suggests a radically new way of articulating ‘what’s the matter with us?’ In doing so, the book itself goes some way towards enacting the radical challenge to academic and epistemic hierarchies which, it is argued, will be required to further advance mad knowledges and user-led research.Crucially, it demonstrates how this approach can be both methodologically and conceptually rigorous.This novel work holds important insights for students and scholars across the humanities and social sciences; particularly those working in the areas of critical psychology, disability studies, Mad studies, feminist studies, critical race theory, and Queer theory.
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Keywords
- Mad Studies
- Madness
- User-led Research
- Disability studies
- psychosocial disabilities
- counter-knowledge
- survivor-led research
- Patient and Public Involvement (PPI)
- critical psychiatry
- Outcome Measures
- participatory research
- Global Mental Health
- epistemic injustice
- Mad epistemologies
- experiential knowledge
- Co-production
- Knowledge-Making
- Women and madness
- feminist therapy
- mental health activism
Table of contents (11 chapters)
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Front Matter
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Setting the Scene
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Front Matter
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User Involvement in Research—England as a Case Study
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Front Matter
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Foundational Categories and User-Led Research
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Front Matter
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Guiding Principles
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Front Matter
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Back Matter
Reviews
“In this book, Diana Rose asks 'what does madness articulate?' Whose voices are heard or silenced, trusted or relegated to symptoms, what counts as evidence, who is a trusted narrator of madness. In short she digs deeply and widely into how knowledge of madness is produced, by whom, in what ways, and to what ends. Her account is both erudite and infused with her own and others' experiences. The reader is recognized and in conversation with the author who anticipates questions and other points of view. Rose attends to language, categories, speakers and those who listen, and who tells what to whom. She speaks for and about the rise of studied resistance to and confrontation with medicalized and psychiatrized knowledge and treatment of madness. In the end, the reader has become acquainted with the polyphonous voices and versions of madness, community, advocacy, peer research, and the social and political landscape within which we find ourselves. I will assign this book to psychiatryresidents and medical students because it will change the way they understand their patients and how they practice medicine.”
—Sue E Estroff, Professor in the Department of Social Medicine, UNC School of Medicine, Chapel Hill, USA
Authors and Affiliations
About the author
Diana Susan Rose retired in 2020 and is now Distinguished Honorary Professor at the Australian National University. She has had two academic careers, interspersed with a period of ‘living in the community’ having been retired from her first position on mental health grounds. She pioneered user-focused research in a London NGO and subsequently worked at King’s College London where she became Professor of User-Led Research in 2013. Her previous works include This is Survivor Research (2009 co-edited with Peter Beresford, Alison Faulkner, Angela Sweeney, and Mary Nettle).
Bibliographic Information
Book Title: Mad Knowledges and User-Led Research
Authors: Diana Susan Rose
Series Title: The Politics of Mental Health and Illness
DOI: https://doi.org/10.1007/978-3-031-07551-3
Publisher: Palgrave Macmillan Cham
eBook Packages: Behavioral Science and Psychology, Behavioral Science and Psychology (R0)
Copyright Information: The Editor(s) (if applicable) and The Author(s), under exclusive license to Springer Nature Switzerland AG 2022
Hardcover ISBN: 978-3-031-07550-6Published: 13 September 2022
Softcover ISBN: 978-3-031-07553-7Published: 14 September 2023
eBook ISBN: 978-3-031-07551-3Published: 12 September 2022
Series ISSN: 2731-5266
Series E-ISSN: 2731-5274
Edition Number: 1
Number of Pages: XXVII, 322
Number of Illustrations: 1 b/w illustrations
Topics: Critical Psychology, Medical Sociology, Clinical Psychology, Psychological Methods/Evaluation, Social Sciences, general