Abstract
Autism research is primarily targeted toward children and at normalizing autistic traits. We conducted a literature review of computing research on adult autism, focusing on identifying research priorities set by autistic adults and their allies, determining participation levels, identifying how autism is conceptualized, and the types of technologies designed and their purposes. We found: 1) that computing research in adult autism is neither representative of older and non-binary adults nor of autistic adults living outside the USA and Europe; 2) a lack of technologies geared towards the priorities set by autistic adults and their allies, and 3) that computing research primarily views adult autism as a medical deficit and builds design solutions and technologies that follow this marginalizing narrative. We discuss the status quo and provide recommendations for computing researchers to encourage research built on user needs and respectful of autistic adults.
- Bury, S.M., R. Jellett, J.R. Spoor, and D. Hedley, “It Defines Who I Am” or “It's Something I Have”: What Language Do [Autistic] Australian Adults [on the Autism Spectrum] Prefer? Journal of Autism and Developmental Disorders, 2020.Google Scholar
- Gernsbacher, M.A., Editorial Perspective: The use of person-first language in scholarly writing may accentuate stigma. Journal of Child Psychology and Psychiatry, 2017. 58(7): p. 859-861.Google Scholar
- Kenny, L., et al., Which terms should be used to describe autism? Perspectives from the UK autism community. Autism, 2016. 20(4): p. 442-462.Google Scholar
- The Parliamntary Office of Science and Technology UK, Autism, in POSTNOTE, M. Laurie and P. Border, Editors. 2020, UK Parliament.Google Scholar
- Durkin, M.S., et al., Autism screening and diagnosis in low resource settings: Challenges and opportunities to enhance research and services worldwide. Autism Research, 2015. 8(5): p. 473-476.Google Scholar
- Laurie, M.H., A. Manches, and S. Fletcher-Watson, Design implications from Cognitive Event Analysis: A case study of digitally mediated interaction in autistic children, in International Conference on Interaction Design and Children. 2019, Association for Computing Machinery: Boise, ID, USA. p. 476–481.Google ScholarDigital Library
- Spiel, K., C. Frauenberger, O. Keyes, and G. Fitzpatrick, Agency of Autistic Children in Technology Research—A Critical Literature Review. ACM Transactions of Computer-Human Interacttion, 2019. 26(6): p. Article 38.Google Scholar
- Williams, R.M., Metaeugenics and Metaresistance: From Manufacturing the ‘Includeable Body’ to Walking Away from the Broom Closet. The Canadian Journal of Children's Rights, 2019. 6(1).Google Scholar
- Frymiare, J., M. Gernsbacher, and B. Harp, Infantilizing Autism. Disability Studies Quarterly, 2011. 31: p. 17.Google Scholar
- Akhtar, N., J. Dinishak, and J.L. Frymiare, Still Infantilizing Autism? An Update and Extension of Stevenson et al. (2011). Autism in Adulthood, 2022. 4(3): p. 224-232.Google Scholar
- Williams, R.M. and J.E. Gilbert, Perseverations of the academy: A survey of wearable technologies applied to autism intervention. International Journal of Human-Computer Studies, 2020. 143: p. 102485.Google ScholarCross Ref
- Singhal, N., et al., An Expert Discussion on Autism in Adulthood in Low- and Middle-Income Countries. Autism in Adulthood, 2019. 1(4): p. 241-247.Google Scholar
- Warner, G., J.R. Parr, and J. Cusack, Workshop Report: Establishing Priority Research Areas to Improve the Physical Health and Well-Being of Autistic Adults and Older People. Autism in Adulthood, 2018. 1(1): p. 20-26.Google Scholar
- Campbell, F.K., Precision ableism: a studies in ableism approach to developing histories of disability and abledment. Rethinking History, 2019. 23(2): p. 138-156.Google Scholar
- Milton, D.E.M., On the ontological status of autism: the ‘double empathy problem’. Disability & Society, 2012. 27(6): p. 883-887.Google Scholar
- Spiel, K. and K. Gerling, The Purpose of Play: How HCI Games Research Fails Neurodivergent Populations. ACM Trans. Comput.-Hum. Interact., 2021. 28(2): p. Article 11.Google Scholar
- Farahar, C. UPDATE: Detailed what IS autism? 2022 [cited 2022 23 May]; Available from: https://soyoureautistic.com/update-detailed-what-is-autism/.Google Scholar
- Botha, M. Dr Monique Botha. 2022 [cited 2022 23 May]; Available from: https://www.moniquebotha.com/.Google Scholar
- Williams, R. Rua M. Williams. 2022 [cited 2022 23 May]; Available from: http://www.ruamae.com/.Google Scholar
- Keyes, O., Automating autism: Disability, discourse, and artificial intelligence. The Journal of Sociotechnical Critique, 2020. 1(1): p. 8.Google Scholar
- Çorlu, D., et al., Involving Autistics in User Experience Studies: A Critical Review, in Conference on Designing Interactive Systems. 2017, Association for Computing Machinery: Edinburgh, United Kingdom. p. 43–55.Google Scholar
- Linxen, S., et al., How WEIRD is CHI?, in Proceedings of the 2021 CHI Conference on Human Factors in Computing Systems. 2021, Association for Computing Machinery. p. Article 143.Google Scholar
- Spiel, K., et al., Nothing About Us Without Us: Investigating the Role of Critical Disability Studies in HCI, in Conference on Human Factors in Computing Systems. 2020, Association for Computing Machinery: Honolulu, HI, USA. p. 1–8.Google Scholar
- Williams, R. and J. Gilbert, “Nothing About Us Without Us” Transforming Participatory Research and Ethics in Human Systems Engineering. 2019. p. 113-134.Google Scholar
- World Health Organization. Disability and health. Fact sheets 2021 [cited 2022 13 September]; Available from: https://www.who.int/news-room/fact-sheets/detail/disability-and-health.Google Scholar
- Global coalition. #WeThe15. 2021 [cited 2021 7 October]; Available from: https://www.wethe15.org/.Google Scholar
- Fletcher-Watson, S. and F. Happéh, Autism: A new introduction to psychological theory and current debate. 2019: Routledge.Google Scholar
- Czech, H., Hans Asperger, National Socialism, and “race hygiene” in Nazi-era Vienna. Molecular Autism, 2018. 9(1): p. 29.Google Scholar
- Lord, C., et al., Austism diagnostic observation schedule: A standardized observation of communicative and social behavior. Journal of Autism and Developmental Disorders, 1989. 19(2): p. 185-212.Google Scholar
- Lord, C., R. Luyster, K. Gotham, and W. Guthrie, ADOS-2. Autism Diagnostic Observation Schedule. 2nd ed. 2012, Torrance, CA: Western Psychological Services.Google Scholar
- Mitra, S. and T. Shakespeare, Remodeling the ICF. Disability and Health Journal, 2019. 12(3): p. 337-339.Google Scholar
- United Nations. Convention on the Rights of Persons with Disabilities. 2006 3 May 2008 [cited 2022 13 September]; Available from: https://www.ohchr.org/en/instruments-mechanisms/instruments/convention-rights-persons-disabilities.Google Scholar
- Singer, J., NeuroDiversity The birth of an idea. 2017: Kindle.Google Scholar
- Singer, J., Reflections on Neurodiversity, in What is ND? 2022, Blogger.Google Scholar
- Bottema-Beutel, K., et al., Avoiding Ableist Language: Suggestions for Autism Researchers. Autism in Adulthood, 2020.Google Scholar
- Ballou, E.P., What the Neurodiversity Movement Does—And Doesn't—Offer, in THINKING PERSON'S GUIDE TO AUTISM. 2018, Blogger.Google Scholar
- Taylor, H., B. Fernandes, and S. Wraight, The Evolution of Complementary Cognition: Humans Cooperatively Adapt and Evolve through a System of Collective Cognitive Search. Cambridge Archaeological Journal, 2021: p. 1-17.Google Scholar
- Taylor, H. and M.D. Vestergaard, Developmental dyslexia: neurodevelopmental disorder or specialisation in Exploration? Frontiers in Psychology, 2022. 13(889245): p. 1-19.Google Scholar
- Hearst, C. Constellation model. 2006 [cited 2022 23 May]; Available from: https://www.autangel.org.uk/resources/#constellationmodel.Google Scholar
- Cuve, H.C., et al., Are Autistic and Alexithymic Traits Distinct? A Factor-Analytic and Network Approach. Journal of Autism and Developmental Disorders, 2022. 52(5): p. 2019-2034.Google Scholar
- Crane, L., L. Goddard, and L. Pring, Sensory processing in adults with autism spectrum disorders. Autism, 2009. 13(3): p. 215-228.Google Scholar
- MacLennan, K., S. O'Brien, and T. Tavassoli, In Our Own Words: The Complex Sensory Experiences of Autistic Adults. Journal of Autism and Developmental Disorders, 2022. 52(7): p. 3061-3075.Google Scholar
- Robertson, A.E. and R.S.R. David, The sensory experiences of adults with autism spectrum disorder: A qualitative analysis. Perception, 2015. 44(5): p. 569-86.Google Scholar
- Cope, R. and A. Remington, The Strengths and Abilities of Autistic People in the Workplace. Autism in Adulthood, 2022. 4(1): p. 22-31.Google Scholar
- Russell, G., et al., Mapping the Autistic Advantage from the Accounts of Adults Diagnosed with Autism: A Qualitative Study. Autism in Adulthood, 2019. 1(2): p. 124-133.Google Scholar
- Bonnel, A., et al., Enhanced Pitch Sensitivity in Individuals with Autism: A Signal Detection Analysis. J. Cognitive Neuroscience, 2003. 15(2): p. 226–235.Google Scholar
- Remington, A. and J. Fairnie, A sound advantage: Increased auditory capacity in autism. Cognition, 2017. 166: p. 459-465.Google Scholar
- Kirchner, J., W. Ruch, and I. Dziobek, Brief Report: Character Strengths in Adults with Autism Spectrum Disorder Without Intellectual Impairment. Journal of Autism and Developmental Disorders, 2016. 46(10): p. 3330-3337.Google Scholar
- Crompton, C.J., et al., Autistic peer-to-peer information transfer is highly effective. Autism, 2020. 24(7): p. 1704-1712.Google Scholar
- Robinson, A., I. Galbraith, and L. Carrick, Practitioner experience of the impact of humanistic methods on autism practice: a preliminary study. Advances in Autism, 2021. 7(2): p. 114-128.Google Scholar
- Hollomotz, A., Disability, Oppression and Violence: Towards a Sociological Explanation. Sociology, 2012. 47(3): p. 477-493.Google Scholar
- Kirby, A.V. and K.E. McDonald, The State of the Science on Autism in Adulthood: Building an Evidence Base for Change. Autism in Adulthood, 2021. 3(1): p. 2-4.Google Scholar
- Geurts, H.M., et al., Ageing and heterogeneity regarding autism spectrum conditions: A protocol paper of an accelerated longitudinal study. BMJ Open, 2021. 11(3).Google ScholarCross Ref
- Howlin, P. and I. Magiati, Autism spectrum disorder: outcomes in adulthood. Current Opinion in Psychiatry, 2017. 30(2): p. 69-76.Google Scholar
- Bennett, M. and E. Goodall, Exploring the Needs of Autistic Seniors, in Addressing Underserved Populations in Autism Spectrum Research. 2022, Emerald Publishing Limited: Bingley, UK. p. 11-25.Google ScholarCross Ref
- den Houting, J. and E. Pellicano, A Portfolio Analysis of Autism Research Funding in Australia, 2008–2017. Journal of Autism and Developmental Disorders, 2019. 49(11): p. 4400-4408.Google Scholar
- Hoekstra, R.A., F. Girma, B. Tekola, and Z. Yenus, Nothing about us without us: the importance of local collaboration and engagement in the global study of autism. BJPsych International, 2018. 15(2): p. 40-43.Google Scholar
- Jones, D.R., et al., An Expert Discussion on Structural Racism in Autism Research and Practice. Autism in Adulthood, 2020. 2(4): p. 273-281.Google Scholar
- Bennett, M. and E. Goodall, Researching African American Autistics, in Addressing Underserved Populations in Autism Spectrum Research. 2022, Emerald Publishing Limited: Bingley, UK. p. 75-97.Google ScholarCross Ref
- Ames, J.L., et al., Racial/Ethnic Differences in Psychiatric and Medical Diagnoses Among Autistic Adults. Autism in Adulthood, 2022.Google Scholar
- Giwa Onaiwu, M., “They Don't Know, Don't Show, or Don't Care”: Autism's White Privilege Problem. Autism in Adulthood, 2020. 2(4): p. 270-272.Google Scholar
- Huang, Y., S.R.C. Arnold, K.-R. Foley, and J.N. Trollor, Diagnosis of autism in adulthood: A scoping review. Autism, 2020. 24(6): p. 1311-1327.Google Scholar
- Murphy, S., R.L. Flower, and R. Jellett, Women seeking an autism diagnosis in Australia: A qualitative exploration of factors that help and hinder. Autism, 2022.Google Scholar
- Harmens, M., F. Sedgewick, and H. Hobson, The Quest for Acceptance: A Blog-Based Study of Autistic Women's Experiences and Well-Being during Autism Identification and Diagnosis. Autism in Adulthood, 2022. 4(1): p. 42-51.Google Scholar
- Davis, A., M. Solomon, and H. Belcher, Examination of Race and Autism Intersectionality Among African American/Black Young Adults. Autism in Adulthood, 2022.Google Scholar
- McDonald, T.A.M., Autism Identity and the “Lost Generation”: Structural Validation of the Autism Spectrum Identity Scale and Comparison of Diagnosed and Self-Diagnosed Adults on the Autism Spectrum. Autism in Adulthood, 2020. 2(1): p. 13-23.Google Scholar
- Cage, E. and Z. Troxell-Whitman, Understanding the Relationships Between Autistic Identity, Disclosure, and Camouflaging. Autism in Adulthood, 2020. 2(4): p. 334-338.Google Scholar
- Leedham, A., A.R. Thompson, R. Smith, and M. Freeth, ‘I was exhausted trying to figure it out’: The experiences of females receiving an autism diagnosis in middle to late adulthood. Autism, 2020. 24(1): p. 135-146.Google Scholar
- Lilley, R., et al., ‘A way to be me’: Autobiographical reflections of autistic adults diagnosed in mid-to-late adulthood. Autism, 2022. 26(6): p. 1395-1408.Google Scholar
- De Broize, M., et al., Exploring the Experience of Seeking an Autism Diagnosis as an Adult. Autism in Adulthood, 2022. 4(2): p. 130-140.Google Scholar
- Evans, K., et al., A Survey of Autistic Adults from New Zealand on the Autism Diagnostic Process During Adolescence and Adulthood. Journal of Autism and Developmental Disorders, 2022. 52(2): p. 771-781.Google Scholar
- Wigham, S., et al., Consensus statements on optimal adult post-autism diagnosis support and services: Delphi process following a UK survey of autistic adults, relatives and clinicians. Autism. 0(0): p. 13623613221097502.Google Scholar
- Kapp, S.K., K. Gillespie-Lynch, L.E. Sherman, and T. Hutman, Deficit, difference, or both? Autism and neurodiversity. Developmental Psychology, 2013. 49(1): p. 59-71.Google Scholar
- Botha, M., B. Dibb, and D.M. Frost, "Autism is me": an investigation of how autistic individuals make sense of autism and stigma. Disability & Society, 2022. 37(3): p. 427-453.Google ScholarCross Ref
- Flett, G.L., et al., The destructiveness and public health significance of socially prescribed perfectionism: A review, analysis, and conceptual extension. Clinical Psychology Review, 2022. 93: p. 102130.Google Scholar
- Gibbs, V., J. Hudson, and E. Pellicano, The Extent and Nature of Autistic People's Violence Experiences During Adulthood: A Cross-sectional Study of Victimisation. Journal of Autism and Developmental Disorders, 2022.Google Scholar
- Perry, E., W. Mandy, L. Hull, and E. Cage, Understanding Camouflaging as a Response to Autism-Related Stigma: A Social Identity Theory Approach. Journal of Autism and Developmental Disorders, 2021.Google Scholar
- Tang, L. and B. Bie, The stigma of autism in china: an analysis of newspaper portrayals of autism between 2003 and 2012. Health Communication, 2016. 31(4): p. 445-452.Google Scholar
- Someki, F., et al., Stigma associated with autism among college students in Japan and the United States: An online training study. Research in Developmental Disabilities, 2018. 76: p. 88-98.Google Scholar
- Han, E., K. Scior, K. Avramides, and L. Crane, A systematic review on autistic people's experiences of stigma and coping strategies. Autism Research, 2022. 15(1): p. 12-26.Google Scholar
- Pearson, A., K. Rose, and J. Rees, ‘I felt like I deserved it because I was autistic’: Understanding the impact of interpersonal victimisation in the lives of autistic people. Autism, 2022.Google Scholar
- Trundle, G., K.A. Jones, D. Ropar, and V. Egan, Prevalence of Victimisation in Autistic Individuals: A Systematic Review and Meta-Analysis. Trauma, Violence, and Abuse, 2022.Google Scholar
- Raymaker, D.M., et al., “Having All of Your Internal Resources Exhausted Beyond Measure and Being Left with No Clean-Up Crew”: Defining Autistic Burnout. Autism in Adulthood, 2020. 2(2): p. 132-143.Google Scholar
- Crane, L., et al., ‘Something needs to change’: Mental health experiences of young autistic adults in England. Autism, 2019. 23(2): p. 477-493.Google Scholar
- Zheng, S., et al., Depression in independent young adults on the autism spectrum: Demographic characteristics, service use, and barriers. Autism, 2021: p. 13623613211008276.Google Scholar
- Hossain, M.M., et al., Prevalence of comorbid psychiatric disorders among people with autism spectrum disorder: An umbrella review of systematic reviews and meta-analyses. Psychiatry Research, 2020. 287: p. 112922.Google ScholarCross Ref
- Smith DaWalt, L., J. Hong, J.S. Greenberg, and M.R. Mailick, Mortality in individuals with autism spectrum disorder: Predictors over a 20-year period. Autism: the international journal of research and practice, 2019. 23(7): p. 1732-1739.Google Scholar
- Cai, R.Y., et al., “Self-compassion changed my life”: The self-compassion experiences of autistic and non-autistic adults and its relationship with mental health and psychological wellbeing. Journal of Autism and Developmental Disorders, 2022.Google Scholar
- Chaplin, E., et al., Self-harm and Mental Health Characteristics of Prisoners with elevated rates of autistic traits. Research in Developmental Disabilities, 2021. 114: p. 103987.Google Scholar
- Cassidy, S. and J. Rodgers, Understanding and prevention of suicide in autism. The Lancet Psychiatry, 2017. 4(6): p. e11.Google ScholarCross Ref
- Hedley, D. and M. Uljarević, Systematic Review of Suicide in Autism Spectrum Disorder: Current Trends and Implications. Current Developmental Disorders Reports, 2018. 5(1): p. 65-76.Google Scholar
- Lever, A.G. and H.M. Geurts, Psychiatric Co-occurring Symptoms and Disorders in Young, Middle-Aged, and Older Adults with Autism Spectrum Disorder. Journal of Autism and Developmental Disorders, 2016. 46(6): p. 1916-1930.Google Scholar
- Brede, J., et al., “We Have to Try to Find a Way, a Clinical Bridge” - autistic adults' experience of accessing and receiving support for mental health difficulties: A systematic review and thematic meta-synthesis. Clinical Psychology Review, 2022. 93: p. 102131.Google Scholar
- Strömberg, M., L. Liman, P. Bang, and K. Igelström, Experiences of Sensory Overload and Communication Barriers by Autistic Adults in Health Care Settings. Autism in Adulthood, 2021. 4(1): p. 66-75.Google Scholar
- Belcher, H.L., On Being Autistic and in Mental Health Crisis Care. Autism in Adulthood, 2022. 4(3): p. 179-182.Google Scholar
- Camm-Crosbie, L., et al., ‘People like me don't get support’: Autistic adults’ experiences of support and treatment for mental health difficulties, self-injury and suicidality. Autism, 2018. 23(6): p. 1431-1441.Google Scholar
- Lipinski, S., et al., A blind spot in mental healthcare? Psychotherapists lack education and expertise for the support of adults on the autism spectrum. Autism, 2022. 26(6): p. 1509-1521.Google Scholar
- Adams, D. and K. Young, A Systematic Review of the Perceived Barriers and Facilitators to Accessing Psychological Treatment for Mental Health Problems in Individuals on the Autism Spectrum. Review Journal of Autism and Developmental Disorders, 2021. 8(4): p. 436-453.Google Scholar
- Baron-Cohen, S., Chapter 11 - Empathizing, systemizing, and the extreme male brain theory of autism, in Progress in Brain Research, I. Savic, Editor. 2010, Elsevier. p. 167-175.Google Scholar
- Haney, J.L., Autism, females, and the DSM-5: Gender bias in autism diagnosis. Social Work in Mental Health, 2016. 14(4): p. 396-407.Google Scholar
- Adamou, M., M. Johnson, and B. Alty, Autism Diagnostic Observation Schedule (ADOS) scores in males and females diagnosed with autism: a naturalistic study. Advances in Autism, 2018. 4(2): p. 49-55.Google Scholar
- Hillier, A., et al., LGBTQ + and autism spectrum disorder: Experiences and challenges. International Journal of Transgender Health, 2020. 21(1): p. 98-110.Google ScholarCross Ref
- Kourti, M. and A. MacLeod, “I Don't Feel Like a Gender, I Feel Like Myself”: Autistic Individuals Raised as Girls Exploring Gender Identity. Autism in Adulthood, 2019. 1(1): p. 52-59.Google Scholar
- Cooper, K., W. Mandy, C. Butler, and A. Russell, The lived experience of gender dysphoria in autistic adults: An interpretative phenomenological analysis. Autism, 2022. 26(4): p. 963-974.Google Scholar
- Steinberg, H., T. Garfield, A. Becker, and L. Shea, What Category Best Fits: Understanding Transgender Identity in a Survey of Autistic Individuals. Autism in Adulthood, 2022.Google Scholar
- Pecora, L.A., et al., Gender identity, sexual orientation and adverse sexual experiences in autistic females. Molecular Autism, 2020. 11(1).Google Scholar
- McAuliffe, C., R.J. Walsh, and E. Cage, “My whole life has been a process of finding labels that fit”: A Thematic Analysis of Autistic LGBTQIA+ Identity and Inclusion in the LGBTQIA+ Community. Autism in Adulthood, 2022.Google Scholar
- Gibbs, V., et al., Experiences of physical and sexual violence as reported by autistic adults without intellectual disability: Rate, gender patterns and clinical correlates. Research in Autism Spectrum Disorders, 2021. 89.Google ScholarCross Ref
- Dike, J.E., et al., A Systematic Review of Sexual Violence Among Autistic Individuals. Review Journal of Autism and Developmental Disorders, 2022.Google Scholar
- Murphy, J., et al., Autism and transgender identity: Implications for depression and anxiety. Research in Autism Spectrum Disorders, 2020. 69.Google ScholarCross Ref
- Barrington, D.J., H.J. Robinson, E. Wilson, and J. Hennegan, Experiences of menstruation in high income countries: A systematic review, qualitative evidence synthesis and comparison to low- and middle-income countries. PLOS ONE, 2021. 16(7): p. e0255001.Google ScholarCross Ref
- Hennegan, J., et al., Women's and girls’ experiences of menstruation in low- and middle-income countries: A systematic review and qualitative metasynthesis. PLOS Medicine, 2019. 16(5): p. e1002803.Google Scholar
- Moseley, R.L., T. Druce, and J.M. Turner-Cobb, ‘When my autism broke’: A qualitative study spotlighting autistic voices on menopause. Autism, 2020. 24(6): p. 1423-1437.Google Scholar
- Groenman, A.P., et al., Menstruation and menopause in autistic adults: Periods of importance? Autism, 2022. 26(6): p. 1563-1572.Google Scholar
- Karavidas, M. and R.O. de Visser, “It's Not Just in My Head, and It's Not Just Irrelevant”: Autistic Negotiations of Menopausal Transitions. Journal of Autism and Developmental Disorders, 2022. 52(3): p. 1143-1155.Google Scholar
- Samuel, P., et al., Sensory challenges experienced by autistic women during pregnancy and childbirth: a systematic review. Archives of Gynecology and Obstetrics, 2022. 305(2): p. 299-311.Google Scholar
- Steward, R., et al., “Life is Much More Difficult to Manage During Periods”: Autistic Experiences of Menstruation. Journal of Autism and Developmental Disorders, 2018. 48(12): p. 4287-4292.Google Scholar
- Sonido, M., S. Arnold, J. Higgins, and Y.I.J. Hwang, Autism in Later Life: What Is Known and What Is Needed? Current Developmental Disorders Reports, 2020. 7(2): p. 69-77.Google Scholar
- Mason, D., G.R. Stewart, S.J. Capp, and F. Happé, Older Age Autism Research: A Rapidly Growing Field, but Still a Long Way to Go. Autism in Adulthood, 2022. 4(2): p. 164-172.Google Scholar
- Edelson, S.M., et al., Strategies for Research, Practice, and Policy for Autism in Later Life: A Report from a Think Tank on Aging and Autism. Journal of Autism and Developmental Disorders, 2021. 51(1): p. 382-390.Google Scholar
- Miller, D., J. Rees, and A. Pearson, “Masking Is Life”: Experiences of Masking in Autistic and Nonautistic Adults. Autism in Adulthood, 2021. 3(4): p. 330-338.Google Scholar
- Pearson, A. and K. Rose, A Conceptual Analysis of Autistic Masking: Understanding the Narrative of Stigma and the Illusion of Choice. Autism in Adulthood, 2021. 3(1): p. 52-60.Google Scholar
- Mantzalas, J., et al., What Is Autistic Burnout? A Thematic Analysis of Posts on Two Online Platforms. Autism in Adulthood, 2021. 4(1): p. 52-65.Google Scholar
- Hayward, S.M., K.R. McVilly, and M.A. Stokes, “I Would Love to Just Be Myself”: What Autistic Women Want at Work. Autism in Adulthood, 2019. 1(4): p. 297-305.Google Scholar
- Nicholas, D.B., et al., An Expert Discussion on Employment in Autism. Autism in Adulthood, 2019. 1(3): p. 162-169.Google Scholar
- Ee, D., et al., Loneliness in Adults on the Autism Spectrum. Autism in Adulthood, 2019. 1(3): p. 182-193.Google Scholar
- Stewart, G.R., et al., Self-harm and Suicidality Experiences of Middle-Age and Older Adults With vs. Without High Autistic Traits. Journal of Autism and Developmental Disorders, 2022.Google Scholar
- Brosnan, M. and S. Adams, The Expectancies and Motivations for Heavy Episodic Drinking of Alcohol in Autistic Adults. Autism in Adulthood, 2020. 2(4): p. 317-324.Google Scholar
- Brosnan, M. and S. Adams, Adapting Drug and Alcohol Therapies for Autistic Adults. Autism in Adulthood, 2022. 4(3): p. 214-223.Google Scholar
- Adams, D., M. Stainsby, and J. Paynter, Autistic Mothers of Autistic Children: A Preliminary Study in an Under-Researched Area. Autism in Adulthood, 2021. 3(4): p. 339-346.Google Scholar
- McDonnell, C.G. and E.A. DeLucia, Pregnancy and Parenthood Among Autistic Adults: Implications for Advancing Maternal Health and Parental Well-Being. Autism in Adulthood, 2021. 3(1): p. 100-115.Google Scholar
- Geurts, H.M., R. Charlton, and L. Bishop, Ageing when Being Autistic, in Handbook on Ageing with Disability. 2021. p. 148-157.Google Scholar
- Crompton, C.J., C. Michael, M. Dawson, and S. Fletcher-Watson, Residential Care for Older Autistic Adults: Insights from Three Multiexpert Summits. Autism in Adulthood, 2020. 2(2): p. 121-127.Google Scholar
- Desideri, L., et al., Assistive Technology for Cognition to Support Executive Functions in Autism: a Scoping Review. Advances in Neurodevelopmental Disorders, 2020. 4(4): p. 330-343.Google Scholar
- Pennington, R.C., Computer-Assisted Instruction for Teaching Academic Skills to Students With Autism Spectrum Disorders: A Review of Literature. Focus on Autism and Other Developmental Disabilities, 2010. 25(4): p. 239-248.Google Scholar
- Wainer, A.L. and B.R. Ingersoll, The use of innovative computer technology for teaching social communication to individuals with autism spectrum disorders. Research in Autism Spectrum Disorders, 2011. 5(1): p. 96-107.Google Scholar
- Wilkenfeld, D.A. and A.M. McCarthy, Ethical Concerns with Applied Behavior Analysis for Autism Spectrum “Disorder”. Kennedy Institute of Ethics Journal, 2020. 30(1).Google Scholar
- Lo, J. Why A European Autism Research Program Has Sparked Fears Of Eugenics. 2018 6 December 2018 [cited 2021 6 August]; Available from: https://theestablishment.co/why-a-european-autism-research-program-has-sparked-fears-of-eugenics/index.html.Google Scholar
- Sandoval-Norton, A.H., G. Shkedy, and D. Shkedy, Long-term ABA Therapy Is Abusive: A Response to Gorycki, Ruppel, and Zane. Advances in Neurodevelopmental Disorders, 2021. 5(2): p. 126-134.Google Scholar
- Leaf, J.B., et al., Concerns About ABA-Based Intervention: An Evaluation and Recommendations. Journal of Autism and Developmental Disorders, 2022. 52(6): p. 2838-2853.Google Scholar
- Begum, M., R.W. Serna, and H.A. Yanco, Are Robots Ready to Deliver Autism Interventions? A Comprehensive Review. International Journal of Social Robotics, 2016. 8(2): p. 157-181.Google Scholar
- Boisvert, M., R. Lang, M. Andrianopoulos, and M.L. Boscardin, Telepractice in the assessment and treatment of individuals with autism spectrum disorders: A systematic review. Developmental Neurorehabilitation, 2010. 13(6): p. 423-432.Google Scholar
- Chia, G.L.C., A. Anderson, and L.A. McLean, Use of Technology to Support Self-Management in Individuals with Autism: Systematic Review. Review Journal of Autism and Developmental Disorders, 2018. 5(2): p. 142-155.Google Scholar
- Ferguson, J., E.A. Craig, and K. Dounavi, Telehealth as a Model for Providing Behaviour Analytic Interventions to Individuals with Autism Spectrum Disorder: A Systematic Review. Journal of Autism and Developmental Disorders, 2019. 49(2): p. 582-616.Google Scholar
- Fletcher-Watson, S., A Targeted Review of Computer-Assisted Learning for People with Autism Spectrum Disorder: Towards a Consistent Methodology. Review Journal of Autism and Developmental Disorders, 2014. 1(2): p. 87-100.Google Scholar
- Sutherland, R., D. Trembath, and J. Roberts, Telehealth and autism: A systematic search and review of the literature. International Journal of Speech-Language Pathology, 2018. 20(3): p. 324-336.Google Scholar
- Valencia, K., C. Rusu, D. Quiñones, and E. Jamet, The Impact of Technology on People with Autism Spectrum Disorder: A Systematic Literature Review. Sensors (Basel, Switzerland), 2019. 19(20): p. 4485.Google ScholarCross Ref
- Walsh, E., J. Holloway, A. McCoy, and H. Lydon, Technology-Aided Interventions for Employment Skills in Adults with Autism Spectrum Disorder: A Systematic Review. Review Journal of Autism and Developmental Disorders, 2017. 4(1): p. 12-25.Google Scholar
- Chen, W., Multitouch Tabletop Technology for People with Autism Spectrum Disorder: A Review of the Literature. Procedia Computer Science, 2012. 14: p. 198-207.Google Scholar
- McGhee Hassrick, E., et al., Benefits and Risks: A Systematic Review of Information and Communication Technology Use by Autistic People. Autism in Adulthood, 2021. 3(1): p. 72-84.Google Scholar
- Michael, C., Is Being Othered a Co-Occurring Condition of Autism? Autism in Adulthood, 2021. 3(2): p. 118-119.Google Scholar
- Page, M.J., et al., The PRISMA 2020 statement: an updated guideline for reporting systematic reviews. BMJ, 2021. 372: p. n71.Google Scholar
- Ouzzani, M., H. Hammady, Z. Fedorowicz, and A. Elmagarmid, Rayyan—a web and mobile app for systematic reviews. Systematic Reviews, 2016. 5(1): p. 210.Google Scholar
- World Health Organization. Adolescent health. 2022 [cited 2022 22 December]; Available from: https://www.who.int/health-topics/adolescent-health#tab=tab_1.Google Scholar
- Arnstein, S.R., A Ladder Of Citizen Participation. Journal of the American Institute of Planners, 1969. 35(4): p. 216-224.Google Scholar
- Roche, L., D. Adams, and M. Clark, Research priorities of the autism community: A systematic review of key stakeholder perspectives. Autism, 2021. 25(2): p. 336-348.Google Scholar
- Elo, S. and H. Kyngäs, The qualitative content analysis process. J Adv Nurs, 2008. 62(1): p. 107-15.Google Scholar
- Banskota, A. and Y.-K. Ng, Recommending Video Games to Adults with Autism Spectrum Disorder for Social-Skill Enhancement, in Conference on User Modeling, Adaptation and Personalization. 2020, Association for Computing Machinery: Genoa, Italy. p. 14–22.Google Scholar
- Begel, A., et al., How a Remote Video Game Coding Camp Improved Autistic College Students' Self-Efficacy in Communication. Sigcse '21, 2021: p. 142–148.Google Scholar
- Boyd, L.E., et al., SayWAT: Augmenting Face-to-Face Conversations for Adults with Autism, in Conference on Human Factors in Computing Systems. 2016, Association for Computing Machinery: San Jose, California, USA. p. 4872–4883.Google Scholar
- Bozgeyikli, L., et al., Vocational Rehabilitation of Individuals with Autism Spectrum Disorder with Virtual Reality. ACM Trans. Access. Comput., 2017. 10(2): p. Article 5.Google Scholar
- Burke, M., R. Kraut, and D. Williams, Social use of computer-mediated communication by adults on the autism spectrum, in Conference on Computer supported cooperative work. 2010, Association for Computing Machinery: Savannah, Georgia, USA. p. 425–434.Google ScholarDigital Library
- Engelhardt, C.R., et al., Effects of Violent-Video-Game Exposure on Aggressive Behavior, Aggressive-Thought Accessibility, and Aggressive Affect Among Adults With and Without Autism Spectrum Disorder. Psychological Science, 2015. 26(8): p. 1187-1200.Google Scholar
- Hong, H., E. Gilbert, G.D. Abowd, and R.I. Arriaga, In-group Questions and Out-group Answers: Crowdsourcing Daily Living Advice for Individuals with Autism, in Conference on Human Factors in Computing Systems. 2015, Association for Computing Machinery: Seoul, Republic of Korea. p. 777–786.Google ScholarDigital Library
- Hong, H., J.G. Kim, G.D. Abowd, and R.I. Arriaga, Designing a social network to support the independence of young adults with autism. 2012, Association for Computing Machinery: Seattle, Washington, USA. p. 627–636.Google ScholarDigital Library
- Hong, H., et al., Investigating the use of circles in social networks to support independence of individuals with autism, in Conference on Human Factors in Computing Systems. 2013, Association for Computing Machinery: Paris, France. p. 3207–3216.Google ScholarDigital Library
- Kaliouby, R.e. and A. Teeters, Eliciting, capturing and tagging spontaneous facialaffect in autism spectrum disorder, in international Conference on Multimodal Interfaces. 2007, Association for Computing Machinery: Nagoya, Aichi, Japan. p. 46–53.Google Scholar
- Lin, T., et al., Empathics system: application of emotion analysis AI through smart glasses, in International Conference on PErvasive Technologies Related to Assistive Environments. 2020, Association for Computing Machinery: Corfu, Greece. p. Article 34.Google Scholar
- Mazurek, M.O., Social media use among adults with autism spectrum disorders. Comput. Hum. Behav., 2013. 29(4): p. 1709–1714.Google Scholar
- Mazurek, M.O., C.R. Engelhardt, and K.E. Clark, Video games from the perspective of adults with autism spectrum disorder. Comput. Hum. Behav., 2015. 51(PA): p. 122–130.Google Scholar
- Morales-Villaverde, L.M., K. Caro, T. Gotfrid, and S. Kurniawan, Online Learning System to Help People with Developmental Disabilities Reinforce Basic Skills, in International ACM SIGACCESS Conference on Computers and Accessibility. 2016, Association for Computing Machinery: Reno, Nevada, USA. p. 43–51.Google ScholarDigital Library
- Morris, M.R., A. Begel, and B. Wiedermann, Understanding the Challenges Faced by Neurodiverse Software Engineering Employees: Towards a More Inclusive and Productive Technical Workforce, in International ACM SIGACCESS Conference on Computers & Accessibility. 2015, Association for Computing Machinery: Lisbon, Portugal. p. 173–184.Google ScholarDigital Library
- Neupane, A., et al., Do Social Disorders Facilitate Social Engineering? A Case Study of Autism and Phishing Attacks, in Computer Security Applications Conference. 2018, Association for Computing Machinery: San Juan, PR, USA. p. 467–477.Google Scholar
- Ramnauth, R., et al., A Social Robot for Improving Interruptions Tolerance and Employability in Adults with ASD. Hri '22, 2022: p. 4–13.Google Scholar
- Salekin, A. and N. Russo, Understanding Autism: The Power of EEG Harnessed by Prototypical Learning. Mcps '21, 2021: p. 12–16.Google ScholarDigital Library
- Zolyomi, A., et al., Managing Stress: The Needs of Autistic Adults in Video Calling. Proc. ACM Hum.-Comput. Interact., 2019. 3(CSCW): p. Article 134.Google ScholarDigital Library
- Zolyomi, A., T. Gotfrid, and K. Shinohara, Socializing via a Scarf: Individuals with Intellectual and Developmental Disabilities Explore Smart Textiles, in Conference on Human Factors in Computing Systems. 2019, Association for Computing Machinery: Glasgow, Scotland Uk. p. Paper LBW0217.Google ScholarDigital Library
- Barbu, E., M.T. Martín-Valdivia, E. Martínez-Cámara, and L.A. Ureña-López, Language technologies applied to document simplification for helping autistic people. Expert Syst. Appl., 2015. 42(12): p. 5076–5086.Google Scholar
- Cassidy, S.A., et al., Expressive visual text-to-speech as an assistive technology for individuals with autism spectrum conditions. Comput. Vis. Image Underst., 2016. 148(C): p. 193–200.Google Scholar
- Eraslan, S., V. Yaneva, Y. Yesilada, and S. Harper, Do Web Users with Autism Experience Barriers When Searching for Information Within Web Pages?, in Conference on The Future of Accessible Work. 2017, Association for Computing Machinery: Perth, Western Australia, Australia. p. Article 20.Google ScholarDigital Library
- Eraslan, S., Y. Yesilada, V. Yaneva, and S. Harper, Autism Detection Based on Eye Movement Sequences on the Web: A Scanpath Trend Analysis Approach. W4a '20, 2020.Google ScholarDigital Library
- Ferrario, M.A., et al., Computing and mental health: intentionality and reflection at the click of a button, in Conference on Pervasive Computing Technologies for Healthcare. 2017, Association for Computing Machinery: Barcelona, Spain. p. 1–10.Google ScholarDigital Library
- Matthews, O., et al., Combining Trending Scan Paths with Arousal to Model Visual Behaviour on the Web: A Case Study of Neurotypical People vs People with Autism, in Conference on User Modeling, Adaptation and Personalization. 2019, Association for Computing Machinery: Larnaca, Cyprus. p. 86–94.Google Scholar
- McGowan, J., G. Leplâtre, and I. McGregor, CymaSense: A Novel Audio-Visual Therapeutic Tool for People on the Autism Spectrum, in International ACM SIGACCESS Conference on Computers and Accessibility. 2017, Association for Computing Machinery: Baltimore, Maryland, USA. p. 62–71.Google ScholarDigital Library
- Shim, L., et al., Evaluating multimodal driver displays of varying urgency for drivers on the autistic spectrum, in International Conference on Automotive User Interfaces and Interactive Vehicular Applications. 2015, Association for Computing Machinery: Nottingham, United Kingdom. p. 133–140.Google ScholarDigital Library
- Simm, W., et al., Anxiety and Autism: Towards Personalized Digital Health, in Conference on Human Factors in Computing Systems. 2016, Association for Computing Machinery: San Jose, California, USA. p. 1270–1281.Google Scholar
- Simm, W., M.A. Ferrario, A. Gradinar, and J. Whittle, Prototyping “clasp”: implications for designing digital technology for and with adults with autism, in Conference on Designing Interactive Systems. 2014, Association for Computing Machinery: Vancouver, BC, Canada. p. 345–354.Google Scholar
- Yaneva, V., L.A. Ha, S. Eraslan, and Y. Yesilada, Adults with High-functioning Autism Process Web Pages With Similar Accuracy but Higher Cognitive Effort Compared to Controls, in Web For All Conference. 2019, Association for Computing Machinery: San Francisco, CA, USA. p. Article 34.Google ScholarDigital Library
- Yaneva, V., et al., Detecting Autism Based on Eye-Tracking Data from Web Searching Tasks, in Internet of Accessible Things. 2018, Association for Computing Machinery: Lyon, France. p. Article 16.Google ScholarDigital Library
- Yaneva, V., I. Temnikova, and R. Mitkov, Accessible Texts for Autism: An Eye-Tracking Study, in International ACM SIGACCESS Conference on Computers & Accessibility. 2015, Association for Computing Machinery: Lisbon, Portugal. p. 49–57.Google ScholarDigital Library
- Rapp, A., et al., Designing an Urban Support for Autism, in International Conference on Human-Computer Interaction with Mobile Devices and Services. 2019, Association for Computing Machinery: Taipei, Taiwan. p. Article 43.Google Scholar
- Tarantino, L., G.D. Gasperis, T.D. Mascio, and M.C. Pino, Immersive applications: what if users are in the autism spectrum?, in Conference on Virtual-Reality Continuum and its Applications in Industry. 2019, Association for Computing Machinery: Brisbane, QLD, Australia. p. Article 32.Google ScholarDigital Library
- Rapp, A., et al., Holistic User Models for Cognitive Disabilities: Personalized Tools for Supporting People with Autism in the City, in Conference on User Modeling, Adaptation and Personalization. 2018, Association for Computing Machinery: Singapore, Singapore. p. 109–113.Google Scholar
- Mauro, N., L. Ardissono, and F. Cena, Personalized Recommendation of PoIs to People with Autism. 2020: p. 163–172.Google Scholar
- Sundberg, M., Online gaming, loneliness and friendships among adolescents and adults with ASD. Comput. Hum. Behav., 2018. 79(C): p. 105–110.Google Scholar
- Shahid, S., J.t. Voort, M. Somers, and I. Mansour, Skeuomorphic, flat or material design: requirements for designing mobile planning applications for students with autism spectrum disorder, in International Conference on Human-Computer Interaction with Mobile Devices and Services Adjunct. 2016, Association for Computing Machinery: Florence, Italy. p. 738–745.Google ScholarDigital Library
- Gentile, V., et al., Touch or touchless? evaluating usability of interactive displays for persons with autistic spectrum disorders, in International Symposium on Pervasive Displays. 2019, Association for Computing Machinery: Palermo, Italy. p. Article 10.Google ScholarDigital Library
- Passerino, L.M. and L.M.C. Santarosa, Autism and digital learning environments: Processes of interaction and mediation. Comput. Educ., 2008. 51(1): p. 385–402.Google Scholar
- Downing, J., Applied or Denied? The eLearning Experience of an Autistic, Mature-Aged University Student. Int. J. Cyber Ethics Educ., 2014. 3(2): p. 1–15.Google Scholar
- Newton, A.T., A.D.I. Kramer, and D.N. McIntosh, Autism online: a comparison of word usage in bloggers with and without autism spectrum disorders, in Conference on Human Factors in Computing Systems. 2009, Association for Computing Machinery: Boston, MA, USA. p. 463–466.Google ScholarDigital Library
- Hong, H., G.D. Abowd, and R.I. Arriaga, Towards designing social question-and-answer systems for behavioral support of individuals with autism, in International Conference on Pervasive Computing Technologies for Healthcare. 2015, ICST (Institute for Computer Sciences, Social-Informatics and Telecommunications Engineering): Istanbul, Turkey. p. 17–24.Google ScholarCross Ref
- Ferrario, M.A., et al., Values-first SE: research principles in practice, in Conference on Software Engineering Companion. 2016, Association for Computing Machinery: Austin, Texas. p. 553–562.Google Scholar
- Dewinter, J., A.I.R. van der Miesen, and L.G. Holmes, INSAR Special Interest Group Report: Stakeholder Perspectives on Priorities for Future Research on Autism, Sexuality, and Intimate Relationships. Autism Research, 2020. 13(8): p. 1248-1257.Google Scholar
- Pellicano, L., A. Dinsmore, and T. Charman, What should autism research focus upon? Community views and priorities from the UK. Autism, 2014. 18(7): p. 756-770.Google Scholar
- Gotham, K., et al., Characterizing the daily life, needs, and priorities of adults with autism spectrum disorder from Interactive Autism Network data. Autism, 2015. 19(7): p. 794-804.Google Scholar
- James Lind Alliance. Autism PSP final report. 2015 [cited 2021 26 July]; Available from: https://www.jla.nihr.ac.uk/priority-setting-partnerships/autism/.Google Scholar
- Benevides, T.W., et al., Listening to the autistic voice: Mental health priorities to guide research and practice in autism from a stakeholder-driven project. Autism, 2020. 24(4): p. 822-833.Google Scholar
- Amaral, D.G., et al., Gaps in Current Autism Research: The Thoughts of the Autism Research Editorial Board and Associate Editors. Autism Research, 2019. 12(5): p. 700-714.Google Scholar
- Caldwell-Harris, C.L. and C.J. Jordan, Systemizing and special interests: Characterizing the continuum from neurotypical to autism spectrum disorder. Learning and Individual Differences, 2014. 29: p. 98-105.Google Scholar
- Sasson, N.J., G.S. Dichter, and J.W. Bodfish, Affective Responses by Adults with Autism Are Reduced to Social Images but Elevated to Images Related to Circumscribed Interests. PLOS ONE, 2012. 7(8): p. e42457.Google ScholarCross Ref
- Hobson, R.P., El autismo y el desarrollo de la mente. 1995, Madrid: Alianza Editorial.Google Scholar
- Attwood, T., The Complete Guide to Asperger's Syndrome. 2007: Jessica Kingsley Publishers.Google Scholar
- Powell, A., Taking Responsibility: Good Practice Guidelines for Services for Adults with Asperger Syndrome. 2002: National Autistic Society.Google Scholar
- Cena, F., et al., Personalized Tourist Guide for People with Autism. UMAP '20 Adjunct, 2020: p. 347–351.Google Scholar
- Strang, J.F., et al., Both sex- and gender-related factors should be considered in autism research and clinical practice. Autism, 2020. 24(3): p. 539-543.Google Scholar
- Malone, K.M., et al., The Scholarly Neglect of Black Autistic Adults in Autism Research. Autism in Adulthood, 2022.Google Scholar
- Cummins, C., E. Pellicano, and L. Crane, Autistic adults’ views of their communication skills and needs. International Journal of Language and Communication Disorders, 2020. 55(5): p. 678-689.Google Scholar
- Pellicano, E., et al., "i Knew She'd Get It, and Get Me": Participants' Perspectives of a Participatory Autism Research Project. Autism in Adulthood, 2022. 4(2): p. 120-129.Google Scholar
- Gillespie-Lynch, K., et al., Whose Expertise Is It? Evidence for Autistic Adults as Critical Autism Experts. Frontiers in Psychology, 2017. 8(438).Google Scholar
- Nicolaidis, C., et al., The AASPIRE practice-based guidelines for the inclusion of autistic adults in research as co-researchers and study participants. Autism, 2019. 23(8): p. 2007-2019.Google Scholar
- Ashworth, M., et al., Toward Empathetic Autism Research: Developing an Autism-Specific Research Passport. Autism in Adulthood, 2021. 3(3): p. 280-288.Google Scholar
- Cascio, M.A., J.A. Weiss, and E. Racine, Person-oriented ethics for autism research: Creating best practices through engagement with autism and autistic communities. Autism, 2020. 24(7): p. 1676-1690.Google Scholar
- Rosqvist, H.B., et al., Being, Knowing, and Doing: Importing Theoretical Toolboxes for Autism Studies. Autism in Adulthood, 2022.Google Scholar
- MacLennan, K., et al., “It Is a Big Spider Web of Things”: Sensory Experiences of Autistic Adults in Public Spaces. Autism in Adulthood, 2022.Google Scholar
- Zheng, L., et al., The use of everyday and assistive technology in the lives of older autistic adults. Autism, 2021. 26(6): p. 1550-1562.Google Scholar
- Jones, S.C., Measuring the Wrong Thing the Right Way? Time to Rethink Autism Research Tools. Autism in Adulthood, 2022. 4(2): p. 104-109.Google Scholar
- Poulsen, R., C. Brownlow, W. Lawson, and E. Pellicano, Meaningful research for autistic people? Ask autistics! Autism, 2022. 26(1): p. 3-5.Google Scholar
- Pukki, H., et al., Autistic Perspectives on the Future of Clinical Autism Research. Autism in Adulthood, 2022. 4(2): p. 93-101.Google Scholar
- Botha, M. and E. Cage, "Autism Research is in Crisis": A mixed method study of researcher's constructions of autistic people and autism research. 2022.Google Scholar
- World Health Organization, International Classification of Functioning, Disability and Health (ICF). 2001, World Health Organization.Google Scholar
- Bölte, S., W.B. Lawson, P.B. Marschik, and S. Girdler, Reconciling the seemingly irreconcilable: The WHO's ICF system integrates biological and psychosocial environmental determinants of autism and ADHD: The International Classification of Functioning (ICF) allows to model opposed biomedical and neurodiverse views of autism and ADHD within one framework. BioEssays, 2021. 43(9).Google Scholar
- Happé, F. and U. Frith, Annual Research Review: Looking back to look forward – changes in the concept of autism and implications for future research. Journal of Child Psychology and Psychiatry and Allied Disciplines, 2020. 61(3): p. 218-232.Google Scholar
- Pellicano, E. and J. den Houting, Annual Research Review: Shifting from ‘normal science’ to neurodiversity in autism science. Journal of Child Psychology and Psychiatry and Allied Disciplines, 2022. 63(4): p. 381-396.Google Scholar
- Wright, B., P. Spikins, and H. Pearson, Should autism spectrum conditions be characterised in a more positiveway in our modern world? Medicina (Lithuania), 2020. 56(5).Google Scholar
- Fletcher-Watson, S., et al., Diversity computing. interactions, 2018. 25(5): p. 28–33.Google Scholar
- Dwyer, P., The Neurodiversity Approach(es): What Are They and What Do They Mean for Researchers? Human Development, 2022. 66(2): p. 73-92.Google Scholar
- Richards, Z. and M. Hewstone, Subtyping and Subgrouping: Processes for the Prevention and Promotion of Stereotype Change. Personality and Social Psychology Review, 2001. 5(1): p. 52-73.Google Scholar
- Ferris, L.J., J. Jetten, M.J. Hornsey, and B. Bastian, Feeling Hurt: Revisiting the Relationship Between Social and Physical Pain. Review of General Psychology, 2019. 23(3): p. 320-335.Google Scholar
- Bertilsdotter Rosqvist, H., et al., Cutting our own keys: New possibilities of neurodivergent storying in research. Autism, 2022. 0(0).Google Scholar
- Hofmann, M., D. Kasnitz, J. Mankoff, and C.L. Bennett, Living Disability Theory: Reflections on Access, Research, and Design, in Conference on Computers and Accessibility. 2020, Association for Computing Machinery. p. 1-13.Google ScholarDigital Library
Index Terms
- Adult Autism Research Priorities and Conceptualization in Computing Research: Invitation to Co-Lead with Autistic Adults
Recommendations
Understanding Neurodiverse Social Play Between Autistic and Non-Autistic Children
CHI '24: Proceedings of the CHI Conference on Human Factors in Computing SystemsSocial play supports children to develop essential life skills and foster friendships. However, autistic and non-autistic children often do not have equal opportunities to engage in social play. Previous research to improve these opportunities tends to ...
Media use and Internet addiction in adult depression
The present case-control study explored tendencies of Internet addiction in a group of depressive patients compared with a control group of healthy persons. Standardized questionnaires were used to assess the extent of Internet addiction (ISS), ...
Squeeze the Ball: Designing an Interactive Playground towards Aiding Social Activities of Children with Low-Function Autism
CHI '20: Proceedings of the 2020 CHI Conference on Human Factors in Computing SystemsMost intervention methods used for social skills training in children with autism are dedicated to high-functioning autism (HFA). However, extensive neurological and developmental disorders of low-functioning autism (LFA) have hampered their adoption. In ...
Comments