ABSTRACT
Online health communities (OHCs) provide support across conditions; for weight loss, OHCs offer support to foster positive behavior change. However, weight loss behaviors can also be subverted on OHCs to promote disordered eating practices. Using comments as proxies for support, we use computational linguistic methods to juxtapose similarities and differences in two Reddit weight loss communities, r/proED and r/loseit. We employ language modeling and find that word use in both communities is largely similar. Then, by building a word embedding model, specifically a deep neural network on comment words, we contrast the context of word use and find differences that imply different behavior change goals in these OHCs. Finally, these content and context norms predict whether a comment comes from r/proED or r/loseit. We show that norms matter in understanding how different OHCs provision support to promote behavior change and discuss the implications for design and moderation of OHCs.
- Nazanin Andalibi and Andrea Forte. 2016. Social Computing Researchers, Vulnerability, and Peer Support. In Ethical Encounters in HCI: Research in Sensitive and Complex Settings Workshop at the Conference on Human Factors in Computing Systems.Google Scholar
- Nazanin Andalibi, Pinar Ozturk, and Andrea Forte. 2017. Sensitive Self-disclosures, Responses, and Social Support on Instagram: the case of #depression. In Proceedings of the ACM Conference on Computer Supported Cooperative Work & Social Computing. Forthcoming. Google ScholarDigital Library
- Jaime Arguello, Brian S Butler, Elisabeth Joyce, Robert Kraut, Kimberly S Ling, Carolyn Rosé, and Xiaoqing Wang. 2006. Talk to me: foundations for successful individual-group interactions in online communities. In Proceedings of the SIGCHI conference on Human Factors in computing systems. ACM, 959--968. Google ScholarDigital Library
- American Psychiatric Association and others. 2013. Diagnostic and statistical manual of mental disorders (DSM-5®). American Psychiatric Pub.Google Scholar
- Andrea M Bastiani, Radhika Rao, Theodore Weltzin, and Walter H Kaye. 1995. Perfectionism in anorexia nervosa. International Journal of Eating Disorders 17, 2 (1995), 147--152.Google ScholarCross Ref
- Arpita Bhattacharya, Roger Vilardaga, Julie A Kientz, and Sean A Munson. 2017. Lessons from Practice: Designing Tools to Facilitate Individualized Support for Quitting Smoking. In Proceedings of the 2017 CHI Conference on Human Factors in Computing Systems. ACM, 3057--3070. Google ScholarDigital Library
- Dina LG Borzekowski, Summer Schenk, Jenny L Wilson, and Rebecka Peebles. 2010. e-Ana and e-Mia: A Content Analysis of Pro--Eating Disorder Web Sites. American journal of public health 100, 8 (2010), 1526.Google Scholar
- Amy Bruckman, Catalina Danis, Cliff Lampe, Janet Sternberg, and Chris Waldron. 2006. Managing deviant behavior in online communities. In CHI'06 extended abstracts on Human factors in computing systems. ACM, 21--24. Google ScholarDigital Library
- Susan L Bryant, Andrea Forte, and Amy Bruckman. 2005. Becoming Wikipedian: transformation of participation in a collaborative online encyclopedia. In Proceedings of the 2005 international ACM SIGGROUP conference on Supporting group work. ACM, 1--10. Google ScholarDigital Library
- Benjamin Caballero. 2007. The global epidemic of obesity: an overview. Epidemiologic reviews 29, 1 (2007), 1--5.Google Scholar
- Stevie Chancellor, Yannis Kalantidis, Jessica A Pater, Munmun De Choudhury, and David A Shamma. 2017. Multimodal Classification of Moderated Online Pro-Eating Disorder Content. In CHI '17: Proceedings of the 2017 CHI Conference on Human Factors in Computing Systems. Google ScholarDigital Library
- Stevie Chancellor, Zhiyuan Jerry Lin, and Munmun De Choudhury. 2016a. "This Post Will Just Get Taken Down": Characterizing Removed Pro-Eating Disorder Social Media Content. In Proceedings of the 2016 CHI Conference on Human Factors in Computing Systems. 1157--1162. Google ScholarDigital Library
- Stevie Chancellor, Zhiyuan (Jerry) Lin, Erica Goodman, Stephanie Zerwas, and Munmun De Choudhury. 2016b. Quantifying and Predicting Mental Illness Severity in Online Pro-Eating Disorder Communities. In Proceedings of the 19th ACM Conference on Computer Supported Cooperative Work & Social Computing (CSCW). ACM. Google ScholarDigital Library
- Stevie Chancellor, Tanushree Mitra, and Munmun De Choudhury. 2016c. Recovery amid pro-anorexia: Analysis of recovery in social media. In Proceedings of the 2016 CHI Conference on Human Factors in Computing Systems. ACM, 2111--2123. Google ScholarDigital Library
- Stevie Chancellor, Jessica Pater, Trustin Clear, Eric Gilbert, and Munmun De Choudhury. 2016d. #thyghgapp: Instagram Content Moderation and Lexical Variation in Pro-Eating Disorder Communities. In Proceedings of the 2016 Conference on Computer Supported Cooperative Work & Social Computing(CSCW). ACM. Google ScholarDigital Library
- Eshwar Chandrasekharan, Umashanti Pavalanathan, Anirudh Srinivasan, Adam Glynn, Jacob Eisenstein, and Eric Gilbert. 2018. You Can't Stay Here: The Efficacy of Reddit's 2015 Ban Examined Through Hate Speech. In Proceedings of the 2018 ACM conference on Computer supported cooperative work and social computing. ACM.Google Scholar
- Justin Cheng, Cristian Danescu-Niculescu-Mizil, and Jure Leskovec. 2014. How community feedback shapes user behavior. In ICWSM. 41--50.Google Scholar
- Justin Cheng, Cristian Danescu-Niculescu-Mizil, and Jure Leskovec. 2015. Antisocial Behavior in Online Discussion Communities. In International Conference on Weblogs and Social Media (ICWSM). AAAI.Google Scholar
- Eun Kyoung Choe, Bongshin Lee, Matthew Kay, Wanda Pratt, and Julie A Kientz. 2015. SleepTight: low-burden, self-monitoring technology for capturing and reflecting on sleep behaviors. In Proceedings of the 2015 ACM International Joint Conference on Pervasive and Ubiquitous Computing. ACM, 121--132. Google ScholarDigital Library
- Wen-Ying Sylvia Chou, Yvonne M Hunt, Ellen B Beckjord, Richard P Moser, and Bradford W Hesse. 2009. Social media use in the United States: implications for health communication. Journal of medical Internet research 11, 4 (2009), e48.Google ScholarCross Ref
- Chia-Fang Chung, Elena Agapie, Jessica Schroeder, Sonali Mishra, James Fogarty, and Sean A Munson. 2017. When personal tracking becomes social: Examining the use of Instagram for healthy eating. CHI 2017 (2017). Google ScholarDigital Library
- Robert B. Cialdini, Raymond R. Reno, and Carl a. Kallgren. 1990. A focus theory of normative conduct: Recycling the concept of norms to reduce littering in public places. Journal of Personality and Social Psychology 58, 6 (1990), 1015--1026.Google ScholarCross Ref
- Tiago Oliveira Cunha, Ingmar Weber, Hamed Haddadi, and Gisele L Pappa. 2016. The effect of social feedback in a reddit weight loss community. In Proceedings of the 6th International Conference on Digital Health Conference. ACM, 99--103. Google ScholarDigital Library
- Tiago O Cunha, Ingmar Weber, and Gisele L Pappa. 2017. A Warm Welcome Matters! The Link Between Social Feedback and Weight Loss in/r/loseit. WWW (2017). Google ScholarDigital Library
- Cristian Danescu-Niculescu-Mizil, Michael Gamon, and Susan Dumais. 2011. Mark my words!: linguistic style accommodation in social media. In Proceedings of the 20th international conference on World wide web. ACM, 745--754. Google ScholarDigital Library
- Cristian Danescu-Niculescu-mizil, Robert West, Dan Jurafsky, Jure Leskovec, and Christopher Potts. 2013. No Country for Old Members : User Lifecycle and Linguistic Change in Online Communities. In Proceedings of the 22nd international conference on World Wide Web. 307--318. Google ScholarDigital Library
- Munmun De Choudhury. 2015. Anorexia on tumblr: A characterization study. In Proceedings of the 5th International Conference on Digital Health 2015. ACM, 43--50. Google ScholarDigital Library
- Munmun De Choudhury and Sushovan De. 2014. Mental Health Discourse on reddit: Self-Disclosure, Social Support, and Anonymity.. In ICWSM.Google Scholar
- Munmun De Choudhury and Ingmar Weber. 2017. Computational Approaches Toward Integrating Quantified Self Sensing and Social Media. In CSCW. Google ScholarDigital Library
- Judith S Donath and others. 1999. Identity and deception in the virtual community. Communities in cyberspace 1996 (1999), 29--59.Google Scholar
- Kristina Elfhag and Stephan Rössner. 2005. Who succeeds in maintaining weight loss? A conceptual review of factors associated with weight loss maintenance and weight regain. Obesity reviews 6, 1 (2005), 67--85.Google Scholar
- Daniel A. Epstein, Bradley H. Jacobson, Elizabeth Bales, David W. McDonald, and Sean A. Munson. 2015. From "nobody cares" to "way to go!". Proceedings of the 18th ACM Conference on Computer Supported Cooperative Work & Social Computing - CSCW '15 (2015), 1622--1636. Google ScholarDigital Library
- Gunther Eysenbach, John Powell, Marina Englesakis, Carlos Rizo, and Anita Stern. 2004. Health related virtual communities and electronic support groups: systematic review of the effects of online peer to peer interactions. Bmj 328, 7449 (2004), 1166.Google Scholar
- Christopher G Fairburn and Paul J Harrison. 2003. Eating disorders. The Lancet 361, 9355 (2003), 407--416.Google Scholar
- Casey Fiesler, Pamela Wisniewski, Jessica Pater, and Nazanin Andalibi. 2016. Exploring Ethics and Obligations for Studying Digital Communities. In Proceedings of the 19th International Conference on Supporting Group Work. ACM, 457--460. Google ScholarDigital Library
- JR Firth. 1957. A synopsis of linguistic theory 1930--1955, volume 1952--59. The Philological Society. (1957).Google Scholar
- Jeana H Frost and Michael P Massagli. 2008. Social uses of personal health information within PatientsLikeMe, an online patient community: what can happen when patients have access to one another's data. Journal of medical Internet research 10, 3 (2008).Google ScholarCross Ref
- R Stuart Geiger and David Ribes. 2010. The work of sustaining order in wikipedia: the banning of a vandal. In Proceedings of the 2010 ACM conference on Computer supported cooperative work. ACM, 117--126. Google ScholarDigital Library
- Howard Giles, Donald M Taylor, and Richard Bourhis. 1973. Towards a theory of interpersonal accommodation through language: Some Canadian data. Language in society 2, 2 (1973), 177--192.Google Scholar
- Erving Goffman. 1978. The presentation of self in everyday life. Harmondsworth.Google Scholar
- Amy L Gonzales, Jeffrey T Hancock, and James W Pennebaker. 2010. Language style matching as a predictor of social dynamics in small groups. Communication Research 37, 1 (2010), 3--19.Google ScholarCross Ref
- Jean Harvey-Berino, Stephen Pintauro, Paul Buzzell, Elizabeth Casey Gold, Stephen Pintauro, Paul Buzzell, and Elizabeth Casey Gold. 2004. Effect of internet support on the long-term maintenance of weight loss. Obesity Research 12, 2 (2004), 320--329.Google ScholarCross Ref
- Eric B Hekler, Gaurav Dubey, David W McDonald, Erika S Poole, Victor Li, and Elizabeth Eikey. 2014. Exploring the relationship between changes in weight and utterances in an online weight loss forum: a content and correlational analysis study. Journal of medical Internet research 16, 12 (2014).Google ScholarCross Ref
- Michael A Hogg and Scott A Reid. 2006. Social identity, self-categorization, and the communication of group norms. Communication theory 16, 1 (2006), 7--30.Google Scholar
- Julianne Holt-Lunstad, Timothy B Smith, and J Bradley Layton. 2010. Social relationships and mortality risk: a meta-analytic review. PLoS Med 7, 7 (2010), e1000316.Google ScholarCross Ref
- Yan Hong, Ninfa C Pena-Purcell, and Marcia G Ory. 2012. Outcomes of online support and resources for cancer survivors: a systematic literature review. Patient education and counseling 86, 3 (2012), 288--296.Google Scholar
- Jina Huh and Mark S Ackerman. 2012. Collaborative help in chronic disease management: supporting individualized problems. In Proceedings of the ACM 2012 conference on Computer Supported Cooperative Work. ACM, 853--862. Google ScholarDigital Library
- Kevin O Hwang, Allison J Ottenbacher, Angela P Green, M Roseann Cannon-Diehl, Oneka Richardson, Elmer V Bernstam, and Eric J Thomas. 2010. Social support in an Internet weight loss community. International journal of medical informatics 79, 1 (2010), 5--13.Google ScholarCross Ref
- Berton H Kaplan, John C Cassel, and Susan Gore. 1977. Social support and health. Medical care 15, 5 (1977), 47--58.Google ScholarCross Ref
- Sara Kiesler, Robert Kraut, Paul Resnick, and Aniket Kittur. 2012. Regulating behavior in online communities. Building Successful Online Communities: Evidence-Based Social Design. MIT Press, Cambridge, MA (2012).Google ScholarDigital Library
- Amy Jo Kim. 2000. Community building on the web: Secret strategies for successful online communities. Addison-Wesley Longman Publishing Co., Inc. Google ScholarDigital Library
- Predrag Klasnja, Sunny Consolvo, and Wanda Pratt. 2011. How to evaluate technologies for health behavior change in HCI research. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems. ACM, 3063--3072. Google ScholarDigital Library
- William Labov. 2011. Principles of linguistic change, cognitive and cultural factors. Vol. 3. John Wiley & Sons.Google Scholar
- Wan Shun Eva Lam. 2008. Language socialization in online communities. In Encyclopedia of language and education. Springer, 2859--2869.Google Scholar
- Cliff Lampe and Paul Resnick. 2004. Slash (dot) and burn: distributed moderation in a large online conversation space. In Proceedings of the SIGCHI conference on Human factors in computing systems. ACM, 543--550. Google ScholarDigital Library
- Victor Li, David W McDonald, Elizabeth V Eikey, Jessica Sweeney, Janessa Escajeda, Guarav Dubey, Kaitlin Riley, Erika S Poole, and Eric B Hekler. 2014. Losing it online: characterizing participation in an online weight loss community. In Proceedings of the 18th International Conference on Supporting Group Work. ACM, 35--45. Google ScholarDigital Library
- Diana MacLean, Sonal Gupta, Anna Lembke, Christopher Manning, and Jeffrey Heer. 2015. Forum77: An Analysis of an Online Health Forum Dedicated to Addiction Recovery. In Proceedings of the 18th ACM Conference on Computer Supported Cooperative Work & Social Computing. ACM, 1511--1526. Google ScholarDigital Library
- Lydia Manikonda, Heather Pon-Barry, Subbarao Kambhampati, Eric Hekler, and David W McDonald. 2014. Discourse Analysis of User Forums in an Online Weight Loss Application. Proceedings of the Joint Workshop on Social Dynamics and Personal Attributes in Social Media (2014), 28--32.Google ScholarCross Ref
- Reddit Metrics. 2015. Reddit Metrics. http://redditmetrics.com/. (2015). {Online; accessed 15-September-2016}.Google Scholar
- Tomas Mikolov, Kai Chen, Greg Corrado, and Jeffrey Dean. 2013a. Efficient estimation of word representations in vector space. International Conference on Machine Learning (2013).Google Scholar
- Tomas Mikolov, Ilya Sutskever, Kai Chen, Greg S Corrado, and Jeff Dean. 2013b. Distributed representations of words and phrases and their compositionality. In Advances in neural information processing systems. 3111--3119. Google ScholarDigital Library
- S Anne Moorhead, Diane E Hazlett, Laura Harrison, Jennifer K Carroll, Anthea Irwin, and Ciska Hoving. 2013. A new dimension of health care: systematic review of the uses, benefits, and limitations of social media for health communication. Journal of medical Internet research 15, 4 (2013), e85.Google ScholarCross Ref
- Sean A. Munson, Hasan Cavusoglu, Larry Frisch, and Sidney Fels. 2013. Sociotechnical challenges and progress in using social media for health. Journal of Medical Internet Research 15, 10 (2013), 1--14.Google ScholarCross Ref
- M. Neve, P. J. Morgan, P. R. Jones, and C. E. Collins. 2010. Effectiveness of web-based interventions in achieving weight loss and weight loss maintenance in overweight and obese adults: A systematic review with meta-analysis. Obesity Reviews 11, 4 (2010), 306--321.Google ScholarCross Ref
- Mark W Newman, Debra Lauterbach, Sean A Munson, Paul Resnick, and Margaret E Morris. 2011. It's not that I don't have problems, I'm just not putting them on Facebook: challenges and opportunities in using online social networks for health. In Proceedings of the ACM 2011 conference on Computer supported cooperative work. ACM, 341--350. Google ScholarDigital Library
- Dong Nguyen and Carolyn P Rosé. 2011. Language use as a reflection of socialization in online communities. In Proceedings of the Workshop on Languages in Social Media. Association for Computational Linguistics, 76--85. Google ScholarDigital Library
- Gary M Olson and Judith S Olson. 2000. Distance matters. Human-computer interaction 15, 2 (2000), 139--178. Google ScholarDigital Library
- Sherry Pagoto, Kristin L Schneider, Martinus Evans, Molly E Waring, Brad Appelhans, Andrew M Busch, Matthew C Whited, Herpreet Thind, and Michelle Ziedonis. 2014. Tweeting it off: characteristics of adults who tweet about a weight loss attempt. Journal of the American Medical Informatics Association : JAMIA 21 (2014), 1--6.Google ScholarCross Ref
- John C Paolillo. 2001. Language variation on Internet Relay Chat: A social network approach. Journal of sociolinguistics 5, 2 (2001), 180--213.Google ScholarCross Ref
- Albert Park, Andrea L Hartzler, Jina Huh, David W McDonald, and Wanda Pratt. 2015a. Automatically detecting failures in natural language processing tools for online community text. Journal of medical Internet research 17, 8 (2015).Google ScholarCross Ref
- Albert Park, Andrea L Hartzler, Jina Huh, David W McDonald, and Wanda Pratt. 2015b. Homophily of vocabulary usage: beneficial effects of vocabulary similarity on online health communities participation. In AMIA Annual Symposium Proceedings, Vol. 2015. American Medical Informatics Association, 1024.Google Scholar
- Kunwoo Park, Ingmar Weber, Meeyoung Cha, and Chul Lee. 2016. Persistent sharing of fitness app status on twitter. In Proceedings of the 19th ACM Conference on Computer-Supported Cooperative Work & Social Computing. ACM, 184--194. Google ScholarDigital Library
- Jessica A Pater, Oliver L Haimston, Nazanin Andalibi, and Elizabeth D Mynatt. 2016. "Hunger Hurts but Starving Works": Characterizing the Presentation of Eating Disorders Online. In Proceedings of the 19th ACM conference on Computer Supported Cooperative Work & Social Computing (CSCW). Google ScholarDigital Library
- Jessica Annette Pater, Yacin Nadji, Elizabeth Mynatt, and Amy S Bruckman. 2014. Just Awful Enough: The Functional Dysfunction of the Something Awful Forums. CHI (2014), 2407--2410. Google ScholarDigital Library
- Umashanthi Pavalanathan and Munmun De Choudhury. 2015. Identity management and mental health discourse in social media. In Proceedings of the 24th International Conference on World Wide Web. ACM, 315--321. Google ScholarDigital Library
- James W Pennebaker, Matthias R Mehl, and Kate G Niederhoffer. 2003. Psychological aspects of natural language use: Our words, our selves. Annual review of psychology 54, 1 (2003), 547--577.Google Scholar
- Jeffrey Pennington, Richard Socher, and Christopher Manning. 2014. Glove: Global vectors for word representation. In Proceedings of the 2014 conference on empirical methods in natural language processing (EMNLP). 1532--1543.Google ScholarCross Ref
- Tom Postmes, Russell Spears, and Martin Lea. 2000. The formation of group norms in computer-mediated communication. Human communication research 26, 3 (2000), 341--371.Google Scholar
- Yuqing Ren, F Maxwell Harper, Sara Drenner, Loren Terveen, Sara Kiesler, John Riedl, and Robert E Kraut. 2012. Building member attachment in online communities: applying theories of group identity and interpersonal bonds. MIS Quarterly 36, 3 (2012), 841--864. Google ScholarCross Ref
- SL Saperstein, NL Atkinson, and RS Gold. 2007. The impact of Internet use for weight loss. Obesity reviews 8, 5 (2007), 459--465.Google Scholar
- H Andrew Schwartz, Johannes C Eichstaedt, Margaret L Kern, Lukasz Dziurzynski, Stephanie M Ramones, Megha Agrawal, Achal Shah, Michal Kosinski, David Stillwell, Martin EP Seligman, and others. 2013. Personality, gender, and age in the language of social media: The open-vocabulary approach. PloS one 8, 9 (2013), e73791.Google ScholarCross Ref
- Manya Sleeper, Alessandro Acquisti, Lorrie Faith Cranor, Patrick Gage Kelley, Sean A Munson, and Norman Sadeh. 2015. I Would Like To..., I Shouldn't..., I Wish I...: Exploring Behavior-Change Goals for Social Networking Sites. In Proceedings of the 18th ACM Conference on Computer Supported Cooperative Work & Social Computing. ACM, 1058--1069. Google ScholarDigital Library
- Reddit Loseit Subreddit. 2010. r/loseit. http://www.reddit.com/r/loseit. (2010). {Online; accessed 9-September-2017}.Google Scholar
- Reddit ProED Subreddit. 2015. r/proED. http://www.reddit.com/r/proED. (2015). {Online; accessed 9-September-2017}.Google Scholar
- Acar Tamersoy, Munmun De Choudhury, and Duen Horng Chau. 2015. Characterizing smoking and drinking abstinence from social media. In Proceedings of the 26th ACM Conference on Hypertext & Social Media. ACM, 139--148. Google ScholarDigital Library
- Tatiana A Vlahovic, Yi-Chia Wang, Robert E Kraut, and John M Levine. 2014. Support matching and satisfaction in an online breast cancer support community. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems. ACM, 1625--1634. Google ScholarDigital Library
- Yi-Chia Wang, Robert Kraut, and John M Levine. 2012. To stay or leave?: the relationship of emotional and informational support to commitment in online health support groups. In Proceedings of the ACM 2012 conference on Computer Supported Cooperative Work. ACM, 833--842. Google ScholarDigital Library
- Yi Chia Wang, Robert E. Kraut, and John M. Levine. 2015. Eliciting and receiving online support: Using computer-aided content analysis to examine the dynamics of online social support. Journal of Medical Internet Research 17, 4 (2015), e99.Google ScholarCross Ref
- Diyi Yang, Zheng Yao, and Robert E Kraut. 2017. Self-Disclosure and Channel Difference in Online Health Support Groups.. In ICWSM. 704--707.Google Scholar
- Elad Yom-Tov, Luis Fernandez-Luque, Ingmar Weber, and Steven P Crain. 2012. Pro-anorexia and pro-recovery photo sharing: A tale of two warring tribes. Journal of medical Internet research 14, 6 (2012).Google ScholarCross Ref
Index Terms
- Norms Matter: Contrasting Social Support Around Behavior Change in Online Weight Loss Communities
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