Wanda Pratt
Kenton Unruh
Abstract
Integrating personal health information helps people manage their lives and actively participate in their own health care.
- Anhoj, J. and Nielsen, L. Quantitative and qualitative usage data of an Internet-based asthma monitoring tool. Journal of Medical Internet Research 6, 3 (Sept. 3, 2004); www.jmir.org/2004/3/e23/.Google Scholar
Cross Ref
- Arora, N., Johnson, P., Gustafson, D., McTavish, F., Hawkins, R., and Pingree, S. Barriers to information access, perceived health competence, and psychosocial health outcomes: Test of a mediation model in a breast cancer sample. Patient Education and Counseling 47, 1 (May 2002), 37--46.Google ScholarCross Ref
- Auerbach, S. Should patients have control over their own health care? Empirical evidence and research issues. Annals of Behavioral Medicine 22, 3 (Summer 2000), 246--259.Google ScholarCross Ref
- Boardman, R. and Sasse, M. Stuff goes into the computer and doesn't come out: A cross-tool study of personal information management. In Proceedings of the ACM SIGCHI Conference on Human Factors in Computing Systems (Vienna, Austria, Apr. 24--29). ACM Press, New York, 2004, 583--590. Google ScholarDigital Library
- Bruce, H., Jones, W., and Dumais, S. Information behavior that keeps found things found. Information Research: An International Electronic Journal 10, 1 (Oct. 2004); informationr.net/i4/10-1/paper207.html.Google Scholar
- Cimino, J., Patel, V., and Kushniruk, A. The patient clinical information system (PatCIS): Technical solutions for and experience with giving patients access to their electronic medical records. International Journal of Medical Informatics 68, 1--3 (Dec. 18, 2002), 113--127.Google ScholarCross Ref
- Hack, T., Degner, L., and Dyck, D. Relationship between preferences for decisional control and illness information among women with breast cancer: A quantitative and qualitative analysis. Social Science & Medicine 39, 2 (July 1994); 279--289.Google ScholarCross Ref
- Hutchins, E. Cognition in the Wild. MIT Press, Cambridge, MA, 1994.Google Scholar
- Jones, W., Dumais, S., and Bruce, H. Once found, what then? A study of `keeping' behaviors in the personal use of Web information. In the 65th Annual Meeting of the American Society for Information Science and Technology (ASIST 2002) (Philadelphia, PA, Nov.). American Society for Information Science & Technology, 2002, 391--402.Google Scholar
- Laine, C. and Davidoff, F. Patient-centered medicine: A professional evolution. Journal of the American Medical Association 275, 2 (Jan. 10, 1996), 152--156.Google Scholar
- Tang, P., Black, W., Buchanan, J., Young, C., Hooper, D., Lane, S., Love, B., Mitchell, C., Smith, N., and Turnbull, J. PAMFOnline: Integrating EHealth with an electronic medical record system. In Proceedings of the American Medical Informatics Association Annual Symposium (Washington, D.C., Nov. 8--12, 2003), 649--653.Google Scholar
- Unruh, K. and Pratt, W. Patients as actors: The patient's role in detecting, preventing, and recovering from medical errors. International Journal of Medical Informatics (in press).Google Scholar
Index Terms
- Personal health information management
Recommendations
Information attribute motivators of personal health information management activities
ASIST '15: Proceedings of the 78th ASIS&T Annual Meeting: Information Science with Impact: Research in and for the CommunityUnderstanding the motivating factors for personal health information management (PHIM) activities can inform the design of interventions to help people engage in healthful PHIM activities. This paper examines the attributes of health information that ...
Implementing the lifelong personal health record in a regionalised health information system: The case of Lombardy, Italy
Abstract BackgroundThe use of personal health records (PHRs) can help people make better health decisions and improves the quality of care by allowing access to and use of the information needed to communicate effectively with ...
Designing Patient-Centered Personal Health Records (PHRs): Health Care Professionals' Perspective on Patient-Generated Data
Currently, patients not only want access to various medical records their health care providers keep about them, but they also are willing to become active participants in managing their own health information and the health information of the ones they ...
Reviews
Joe L. Podolsky
Health information systems are probably the hottest topic in information systems application research these days, sharing the limelight with security and surveillance work. (I suspect that there are related issues in these applications.) This article focuses on the information problems faced by patients in today's health care environment. The authors use the case of a breast cancer patient to illustrate the confusion, dangers, and economic costs that exist because of the inconsistent coding and lack of connectivity between the various institutions that the patient has to deal with. The players in this drama are obvious. We have the patient, who has to manage her home and work life and her schedules and obligations in each setting. And those have to be coordinated with the various medical and social treatment centers she may be going to. Calendar management is a really tough problem. Plus, of course, there are the financial decisions that have to be made, involving the insurance company and the treatment centers. And the patient is also ultimately responsible for having a sufficient amount of the right information about medical choices and outcomes so that she can be an active and intelligent partner in choosing her therapy. This article points out clearly that in today's systemic babble, the patient has to take the central role, manually coordinating the inconsistent information presentation, even while undergoing treatments. It's really very much like doing surgery on oneself without an anesthetic. The authors state the problems clearly, and point the way to further research. They suggest the need for personal (and portable) health records, but even these will require huge advances in the consistency between the structure and formats of data among very different institutions with varying missions and priorities. The authors include references that can be used for further investigation on the topic, but I think that we will make little progress until dominant governmental health care interests such as the Veteran's Administration and/or the Medicare system take the lead, demanding the standards and consistency that individual institutions are unlikely to craft on their own. We have the technology; successful personal health information management is a problem of political and economic leadership. Online Computing Reviews Service
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