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03-07-2018 | Original Paper

Young Adults on the Autism Spectrum: The Struggle for Appropriate Services

Auteurs: Connie Anderson, Catherine Butt

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 11/2018

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Abstract

In the United States, young adults with an autism spectrum disorder (ASD) lose federally mandated supports upon leaving high school. To arrange adult services, families must prove their young adult’s eligibility and find competent service providers. National-level statistics regarding receipt of appropriate adult services are discouraging, but little is known about families’ lived experience with regard to services. Therefore, qualitative interviews focused on the search for and satisfaction with adult services were conducted with parents of young adults with ASD, then analyzed using the constant comparative method. Emergent themes included Bureaucracy and Fighting for Access, Staffing Issues, Program Suitability, and “Doing It Yourself.” The need to improve service access and delivery is discussed, as are issues facing specific ASD subgroups.
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Metagegevens
Titel
Young Adults on the Autism Spectrum: The Struggle for Appropriate Services
Auteurs
Connie Anderson
Catherine Butt
Publicatiedatum
03-07-2018
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 11/2018
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-018-3673-z