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03-10-2019 | Original Paper | Uitgave 1/2020

Journal of Autism and Developmental Disorders 1/2020

Working with Children with Autism Spectrum Disorder in a Medical Setting: Insights from Certified Child Life Specialists

Tijdschrift:
Journal of Autism and Developmental Disorders > Uitgave 1/2020
Auteurs:
Emily J. Jensen, Cheryl Geisthardt, Pamela A. Sarigiani
Belangrijke opmerkingen
Preliminary findings of this research were reported in a poster presentation at the Society for Research in Child Development Biennial Meeting, March 2019, in Baltimore, Maryland.

Publisher's Note

Springer Nature remains neutral with regard to jurisdictional claims in published maps and institutional affiliations.

Abstract

This study aimed to gain an understanding of Certified Child Life Specialists’ (CCLS) experiences with and suggestions for working with children with autism spectrum disorder (ASD) in a medical setting. Using a mixed-method design, 118 CCLS completed an online survey and 16 participated in follow-up interviews. Participants believed many medical professionals, including CCLS, are not adequately prepared to work with children with ASD, negatively impacting quality of care. Participants emphasized that outcomes are best for children with ASD when parents and medical staff collaborate to meet the unique needs of each child. CCLS reported working with children with ASD can provide insights for enhancing the quality of care for all children. Participants’ suggestions for training and resource development are discussed.

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