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Gepubliceerd in: Journal of Autism and Developmental Disorders 2/2012

01-02-2012 | Original Paper

Verification of Parent-Report of Child Autism Spectrum Disorder Diagnosis to a Web-Based Autism Registry

Auteurs: Amy M. Daniels, Rebecca E. Rosenberg, Connie Anderson, J. Kiely Law, Alison R. Marvin, Paul A. Law

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 2/2012

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Abstract

Growing interest in autism spectrum disorder (ASD) research requires increasingly large samples to uncover epidemiologic trends; such a large dataset is available in a national, web-based autism registry, the Interactive Autism Network (IAN). The objective of this study was to verify parent-report of professional ASD diagnosis to the registry’s database via a medical record review on a sample of IAN Research participants. Sixty-one percent of families agreed to participate; 98% (n = 116) of whom provided documentation verifying a professionally diagnosed ASD. Results of this study suggest that information collected from parents participating in IAN Research is valid, participants can be authenticated, and that scientists can both confidently use IAN data and recruit participants for autism research.
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Metagegevens
Titel
Verification of Parent-Report of Child Autism Spectrum Disorder Diagnosis to a Web-Based Autism Registry
Auteurs
Amy M. Daniels
Rebecca E. Rosenberg
Connie Anderson
J. Kiely Law
Alison R. Marvin
Paul A. Law
Publicatiedatum
01-02-2012
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 2/2012
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-011-1236-7