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Gepubliceerd in: Quality of Life Research 11/2018

18-08-2018

Variation in the apparent importance of health-related problems with the instrument used to measure patient welfare

Auteurs: Munir A. Khan, Jeff Richardson

Gepubliceerd in: Quality of Life Research | Uitgave 11/2018

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Abstract

Aims

This paper investigates the distributional implications for eight population groups of using six different instruments to measure wellbeing and to prioritise access to health services. Specifically, it examines the importance of different physical and psycho-social problems for the scores obtained using each instrument and whether scores differ because of differences in the concept measured by the instrument or because of the instrument’s construction.

Methods

Patients with seven chronic conditions and a sample of the ‘healthy’ public were administered six instruments: two utility instruments; two self-rating scales; a subjective wellbeing instrument and the ICECAP measure of capability. Scores were regressed upon the subscales of the SF-36 and the AQoL-8D. Each instrument’s ‘problem mix’ was measured by the numerical importance of the subscales for the instrument’s score and compared with the problem mix of patients constructed from all of the instruments.

Results

The apparent importance of different problems varied significantly with the instrument used to assess welfare but not with the chronic conditions. The correspondence between an instrument’s problem mix and the patients’ problem mix was highly variable.

Conclusion

Different instruments give prominence to different physical and psycho-social problems and consequently favour different groups of patients. Budgetary decisions which appear to be based on efficiency criteria such as the cost per quality-adjusted life year (QALY) conceal distributive effects attributable to the instrument used in the analysis. The effects are additional to the ethical questions considered in making an equity–efficiency trade-off as they arise from the measurement of efficiency.
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Literatuur
1.
3.
go back to reference Brazier, J., Jones, N., & Kind, P. (1993). Testing the validity of the Euroqol and comparing it with the SF-36 health survey questionnaire. Quality of Life Research, 2(3), 169–180.CrossRef Brazier, J., Jones, N., & Kind, P. (1993). Testing the validity of the Euroqol and comparing it with the SF-36 health survey questionnaire. Quality of Life Research, 2(3), 169–180.CrossRef
4.
go back to reference McDaid, D., & Cooper, C. L. (2014). Wellbeing: A complete reference guide, volume V, economics of wellbeing. New York: Wiley-Blackwell. McDaid, D., & Cooper, C. L. (2014). Wellbeing: A complete reference guide, volume V, economics of wellbeing. New York: Wiley-Blackwell.
5.
go back to reference Harter, J. K., & Gurley, V. F. (2008). Measuring health in the United States. APS Obs, 21, 23–26. Harter, J. K., & Gurley, V. F. (2008). Measuring health in the United States. APS Obs, 21, 23–26.
6.
go back to reference Seaford, C. (2011). Policy: time to legislate for the good life. Nature, 477, 532–533.CrossRef Seaford, C. (2011). Policy: time to legislate for the good life. Nature, 477, 532–533.CrossRef
7.
go back to reference Gudex, C. (1991, October). Are we lacking a dimensionof energy in the EuroQol instrument. Paper presented at the EuroQol Conference, Lund. Gudex, C. (1991, October). Are we lacking a dimensionof energy in the EuroQol instrument. Paper presented at the EuroQol Conference, Lund.
8.
go back to reference de Vries, M., Emons, W. H. M., Plantinga, A., Pietersma, S., van den Hout, W. B., Stiggelbout, A. M., & Elske van den Akker-van Marle, M. (2016). Comprehensively measuring health-related subjective well-being: Dimensionality analysis for improved outcome assessment in health economics. Value in Health, 19(2), 167–175.CrossRef de Vries, M., Emons, W. H. M., Plantinga, A., Pietersma, S., van den Hout, W. B., Stiggelbout, A. M., & Elske van den Akker-van Marle, M. (2016). Comprehensively measuring health-related subjective well-being: Dimensionality analysis for improved outcome assessment in health economics. Value in Health, 19(2), 167–175.CrossRef
9.
go back to reference Fryback, D. G. (1998). Appendix C Methodological issues in measuring health status and health-related quality of life for population health measures: A brief overview of the “HALY” family of measures. In M. J. Field & M. R. Gold (Eds.), Summarizing population health: Directions for the development and application of population metrics (pp. 39–57). Washington, DC: The National Academies Press. Fryback, D. G. (1998). Appendix C Methodological issues in measuring health status and health-related quality of life for population health measures: A brief overview of the “HALY” family of measures. In M. J. Field & M. R. Gold (Eds.), Summarizing population health: Directions for the development and application of population metrics (pp. 39–57). Washington, DC: The National Academies Press.
10.
go back to reference Greco, G., Lorgelly, P., & Yamabhai, I. (2016). Outcomes in economic evaluations of public health interventions in low- and middle-income countries: Health, capabilities and subjective wellbeing. Health Economics, 25(S1), 83–94.CrossRef Greco, G., Lorgelly, P., & Yamabhai, I. (2016). Outcomes in economic evaluations of public health interventions in low- and middle-income countries: Health, capabilities and subjective wellbeing. Health Economics, 25(S1), 83–94.CrossRef
11.
go back to reference Matza, L. S., Boye, K. S., Stewart, K. D., Curtis, B. H., Reaney, M., & Landrian, A. S. (2015). A qualitative examination of the content validity of the EQ-5D-5L in patients with type 2 diabetes. Health and Quality of Life Outcomes, 13, 192. Matza, L. S., Boye, K. S., Stewart, K. D., Curtis, B. H., Reaney, M., & Landrian, A. S. (2015). A qualitative examination of the content validity of the EQ-5D-5L in patients with type 2 diabetes. Health and Quality of Life Outcomes, 13, 192.
12.
go back to reference Stevens, K. (2015). How well do the generic multi-attribute utility instruments incorporate patient and public views into their descriptive systems? The Patient, 9(1), 5–13.CrossRef Stevens, K. (2015). How well do the generic multi-attribute utility instruments incorporate patient and public views into their descriptive systems? The Patient, 9(1), 5–13.CrossRef
13.
go back to reference Richardson, J., Khan, M. A., Iezzi, A., & Maxwell, A. (2015). Comparing and explaining differences in the content, sensitivity and magnitude of incremental utilities predicted by the EQ-5D, SF-6D, HUI 3, 15D, QWB and AQoL-8D multi attribute utility instruments’. Medical Decision Making, 35(3), 276–291.CrossRef Richardson, J., Khan, M. A., Iezzi, A., & Maxwell, A. (2015). Comparing and explaining differences in the content, sensitivity and magnitude of incremental utilities predicted by the EQ-5D, SF-6D, HUI 3, 15D, QWB and AQoL-8D multi attribute utility instruments’. Medical Decision Making, 35(3), 276–291.CrossRef
14.
go back to reference Sen, A. (2009). The idea of justice. London: Allen Lane. Sen, A. (2009). The idea of justice. London: Allen Lane.
15.
go back to reference Entwistle, V. A., & Watt, I. S. (2013). Treating patients as persons: A capabilities approach to support delivery of person-centered care. American Journal of Bioethics, 13(8), 29–39.CrossRef Entwistle, V. A., & Watt, I. S. (2013). Treating patients as persons: A capabilities approach to support delivery of person-centered care. American Journal of Bioethics, 13(8), 29–39.CrossRef
16.
go back to reference Law, I., & Widdows, H. (2008). Conceptualising health: Insights from the Capability appraoch. Health Care Analysis, 16(4), 303–314.CrossRef Law, I., & Widdows, H. (2008). Conceptualising health: Insights from the Capability appraoch. Health Care Analysis, 16(4), 303–314.CrossRef
17.
go back to reference Coast, J., Smith, R., & Lorgelly, P. (2008). Should the capability approach be applied in health economics? Health Economics, 17(6), 667–670.CrossRef Coast, J., Smith, R., & Lorgelly, P. (2008). Should the capability approach be applied in health economics? Health Economics, 17(6), 667–670.CrossRef
18.
go back to reference Ruger, J. P. (2010). Health capability: Concetualization and operationalization. American Journal of Public Health, 100(1), 41–49.CrossRef Ruger, J. P. (2010). Health capability: Concetualization and operationalization. American Journal of Public Health, 100(1), 41–49.CrossRef
19.
go back to reference Mitchell, P., Al-Janabi, H., Richardson, J., Iezzi, A., & Coast, J. (2015). The relative impacts of disease on health status and capability wellbeing: A multi-country study. PLoS ONE, 10(12), e0143590 doi: 0143510.0141371/journal.pone.0143590.CrossRef Mitchell, P., Al-Janabi, H., Richardson, J., Iezzi, A., & Coast, J. (2015). The relative impacts of disease on health status and capability wellbeing: A multi-country study. PLoS ONE, 10(12), e0143590 doi: 0143510.0141371/journal.pone.0143590.CrossRef
20.
go back to reference Hopper, K. (2007). Rethinking social recovery in schizophrenia: What a capabilities approach might offer. Social Science & Medicine, 65(5), 868–879.CrossRef Hopper, K. (2007). Rethinking social recovery in schizophrenia: What a capabilities approach might offer. Social Science & Medicine, 65(5), 868–879.CrossRef
21.
go back to reference Kahneman, D., Wakker, P., & Sarin, R. (1997). Back to Bentham? Explorations of experienced utility. Quarterly Journal of Economics, 112, 375–405.CrossRef Kahneman, D., Wakker, P., & Sarin, R. (1997). Back to Bentham? Explorations of experienced utility. Quarterly Journal of Economics, 112, 375–405.CrossRef
22.
go back to reference Dolan, P. (2008). Developing methods that really do value the “Q” in the QALY. Health Economics, Policy and Law, 3, 69–77. Dolan, P. (2008). Developing methods that really do value the “Q” in the QALY. Health Economics, Policy and Law, 3, 69–77.
23.
go back to reference Dolan, P., & Kahneman, D. (2008). Interpretations of utility and their implications for the valuation of health. Economic Journal, 118(525), 215–234.CrossRef Dolan, P., & Kahneman, D. (2008). Interpretations of utility and their implications for the valuation of health. Economic Journal, 118(525), 215–234.CrossRef
25.
go back to reference Dolan, P., & Metcalfe, R. (2012). Valuing health: A brief report on subjective well-being versus preferences (pp. 578–582). Jul/Aug: Medical Decision Making. Dolan, P., & Metcalfe, R. (2012). Valuing health: A brief report on subjective well-being versus preferences (pp. 578–582). Jul/Aug: Medical Decision Making.
26.
go back to reference Ng, Y.-K. (1997). A case for happiness, cardinalism and interpersonal comparability. The Economic Journal, 107, 1848–1858.CrossRef Ng, Y.-K. (1997). A case for happiness, cardinalism and interpersonal comparability. The Economic Journal, 107, 1848–1858.CrossRef
27.
go back to reference Kahneman, D., Diener, E., & Schwarz, N. (1999). Well-being: the foundations of hedonic psychology. New York: Russell Sage Foundation. Kahneman, D., Diener, E., & Schwarz, N. (1999). Well-being: the foundations of hedonic psychology. New York: Russell Sage Foundation.
28.
go back to reference Frey, B., & Stutzer, A. (2000). Maximizing happiness? German Economic Review, 1(2), 145–167.CrossRef Frey, B., & Stutzer, A. (2000). Maximizing happiness? German Economic Review, 1(2), 145–167.CrossRef
30.
go back to reference von Neumann, J., & Morgenstern, O. (1944). Theory of games and economical behavior. Princeton: Princeton University Press. von Neumann, J., & Morgenstern, O. (1944). Theory of games and economical behavior. Princeton: Princeton University Press.
31.
go back to reference Richardson, J., Khan, M. A., Iezzi, A., & Maxwell, A. (2012). Cross-national comparison of twelve quality of life instruments: MIC Paper 1: Background, questions, instruments, Research Paper 76. Melbourne: Centre for Health Economics, Monash University. Richardson, J., Khan, M. A., Iezzi, A., & Maxwell, A. (2012). Cross-national comparison of twelve quality of life instruments: MIC Paper 1: Background, questions, instruments, Research Paper 76. Melbourne: Centre for Health Economics, Monash University.
32.
go back to reference Richardson, J., Iezzi, A., Khan, M. A., & Maxwell, A. (2012). Cross-national comparison of twelve quality of life instruments, Research Papers 78, 80–83, 85. MIC Report: 2: Australia; 3: UK; 4: USA; 5: Canada; 6: Norway; 7: Germany. Melbourne: Centre for Health Economics, Monash University. Richardson, J., Iezzi, A., Khan, M. A., & Maxwell, A. (2012). Cross-national comparison of twelve quality of life instruments, Research Papers 78, 80–83, 85. MIC Report: 2: Australia; 3: UK; 4: USA; 5: Canada; 6: Norway; 7: Germany. Melbourne: Centre for Health Economics, Monash University.
33.
go back to reference van Hout, B., Janssen, M. F., Feng, Y., Kohlmann, T., Busschbach, J., Golicki, D., Lloyd, A., Scalone, L., Kind, P., & Pickard, S. (2012). Interim scoring for the EQ-5D-5L: Mapping the EQ-5D-5L to EQ-5D-3L value sets. Value in Health, 15, 708–715.CrossRef van Hout, B., Janssen, M. F., Feng, Y., Kohlmann, T., Busschbach, J., Golicki, D., Lloyd, A., Scalone, L., Kind, P., & Pickard, S. (2012). Interim scoring for the EQ-5D-5L: Mapping the EQ-5D-5L to EQ-5D-3L value sets. Value in Health, 15, 708–715.CrossRef
34.
go back to reference Richardson, J., Elsworth, G., Iezzi, A., Khan, M. A., Mihalopoulos, C., Schweitzer, I., & Herrman, H. (2011). Increasing the sensitivity of the AQoL inventory for evaluation of interventions affecting mental health, Research Paper 61. Melbourne: Centre for Health Economics, Monash University. Richardson, J., Elsworth, G., Iezzi, A., Khan, M. A., Mihalopoulos, C., Schweitzer, I., & Herrman, H. (2011). Increasing the sensitivity of the AQoL inventory for evaluation of interventions affecting mental health, Research Paper 61. Melbourne: Centre for Health Economics, Monash University.
36.
go back to reference Richardson, J., Iezzi, A., & Khan, M. A. (2014). The self time trade-off (TTO) instrument: Reliability and survey results. Research Paper 86. Melbourne: Centre for Health Economics, Monash University. Richardson, J., Iezzi, A., & Khan, M. A. (2014). The self time trade-off (TTO) instrument: Reliability and survey results. Research Paper 86. Melbourne: Centre for Health Economics, Monash University.
38.
go back to reference Al-Janabi, H., Flynn, T., & Coast, J. (2012). Development of a self-report measure of capability wellbeing for adults: The ICECAP-A. Quality of Life Research, 21, 167–176.CrossRef Al-Janabi, H., Flynn, T., & Coast, J. (2012). Development of a self-report measure of capability wellbeing for adults: The ICECAP-A. Quality of Life Research, 21, 167–176.CrossRef
39.
go back to reference Flynn, T. N., Huynh, E., Peters, T. J., Al-Janabi, H., Clemens, S., Moody, A., & Coast, J. (2015). Scoring the Icecap—A capability instrument. Estimation of a UK general population tariff. Health Economics, 24(3), 258–269.CrossRef Flynn, T. N., Huynh, E., Peters, T. J., Al-Janabi, H., Clemens, S., Moody, A., & Coast, J. (2015). Scoring the Icecap—A capability instrument. Estimation of a UK general population tariff. Health Economics, 24(3), 258–269.CrossRef
40.
go back to reference Ware, J., & Sherbourne, D. (1992). The MOS 36-Item Short-Form Health Survey (SF-36). I: Conceptual framework and item selection. Medical Care, 30(6), 473–483.CrossRef Ware, J., & Sherbourne, D. (1992). The MOS 36-Item Short-Form Health Survey (SF-36). I: Conceptual framework and item selection. Medical Care, 30(6), 473–483.CrossRef
42.
go back to reference Pindyck, R. S., & Rubinfield, D. L. (1985). Econometric models and economic forecasts. Signapore: McGraw Hill Book Company. Pindyck, R. S., & Rubinfield, D. L. (1985). Econometric models and economic forecasts. Signapore: McGraw Hill Book Company.
Metagegevens
Titel
Variation in the apparent importance of health-related problems with the instrument used to measure patient welfare
Auteurs
Munir A. Khan
Jeff Richardson
Publicatiedatum
18-08-2018
Uitgeverij
Springer International Publishing
Gepubliceerd in
Quality of Life Research / Uitgave 11/2018
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-018-1956-7

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