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Journal of Autism and Developmental Disorders
Gepubliceerd in: Journal of Autism and Developmental Disorders 9/2014

01-09-2014 | Original Paper

Validation of the World Health Organization’s Quality of Life Questionnaire with Parents of Children with Autistic Disorder

Auteurs: Latefa A. Dardas, Muayyad M. Ahmad

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 9/2014

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Abstract

The World Health Organization’s Quality of Life Questionnaire-BREF (WHOQOL-BREF) has been used in many studies that target parents of children with Autistic Disorder. However, the measure has yet to be validated and adapted to this sample group whose daily experiences are considered substantially different from those of parents of children with typical development and parents of children with other disabilities. Therefore, this study was designed to examine the psychometric properties and the theoretical structure of the WHOQOL-BREF with a sample of 184 parents of children with Autistic Disorder. The factor structure for the WHOQOL-BREF was examined using exploratory and confirmatory factor analyses. Our analyses provided no evidence of a better model than the original 4-domain model. Nevertheless, some items in the measure were re-distributed to different domains based on theoretical meanings and/or clean loading criteria. The new model structure gained the measure’s required validity with parents of children with Autistic Disorder.
vorige artikel The ABC’s of Teaching Social Skills to Adolescents with Autism Spectrum Disorder in the Classroom: The UCLA PEERS ® Program
volgende artikel Impact of Cognitive Behavioral Therapy on Observed Autism Symptom Severity During School Recess: A Preliminary Randomized, Controlled Trial
Literatuur
Ahmad, M. (2005). Psychometric evaluation of cognitive Appraisal of Health Scale with patients with prostate cancer. Journal of Advanced Nursing, 49, 78–86.PubMedCrossRef
Ahmad, M. (2010). Validation of the Cognitive Appraisal Health Scale with Jordanian patients. Nursing & Health Sciences, 12, 74–79.CrossRef
American Psychiatric Association. (2000). Diagnostic and statistical manual of mental disorders: DSM-IV-TR (fourth edition, text revision). Washington, DC: American Psychiatric Association.
Arbuckle, J. L. (2012). IBM SPSS Amos 21. Amos Development Corporation, Chicago, IL. Conceptualization and Measurement (ed. R. L. Schalock), pp. 105–119. American Association on Mental Retardation, Washington, DC.
Boyd, B. A. (2002). Examining the relationship between stress and lack of social support in mothers of children with autism. Focus on Autism and Other Developmental Disabilities, 17, 208–215.CrossRef
Brown, T. (2006). Confirmatory factor analysis for applied research: Methodology in the social sciences. New York: The Guilford Press.
Browne, M. W., & Cudeck, R. (1989). Single sample cross-validation indices for covariance structures. Multivariate Behavioral Research, 24, 445–455.CrossRef
Dardas, L., & Ahmad, M. (2013a). Coping strategies as mediators and moderatos between stress and quality of life among parents of children with Autistic Disorder. Stress and Health,. doi:10.​1002/​smi.​2513.PubMed
Dardas, L., & Ahmad, M. (2013b). Psychometric properties of the parenting stress index with parents of children with Autistic Disorder. Journal of Intellectual Disability Research,. doi:10.​1111/​jir.​12053.PubMed
Dardas, L., & Ahmad, M. (2014b). Quality of life among parents of children with autistic disorder: A sample from the Arab world. Research in Developmental Disabilities, 35(2), 278–287.PubMedCrossRef
Ericzon, M., Frazee, L., & Stahmer, A. (2005). Stress levels and adaptability in parents of toddlers with and without autism spectrum disorders. Research & Practice for Persons with Severe Disabilities, 30(4), 194–204.CrossRef
Gray, D. (2002). ‘Everybody just freezes. Everybody is just embarrassed’: Felt and enacted stigma among parents of children with high functioning autism. Sociology of Health & Illness, 24(6), 734–749.CrossRef
Higgins, D. J., Bailey, S. R., & Pearce, J. C. (2005). Factors associated with functioning style and coping strategies of families with a child with an autism spectrum disorder. Autism, 9, 125–137.PubMedCrossRef
International Association for the Scientific Study of Intellectual and Developmental Disabilities (IASSID). (2012). Families supporting a child with intellectual or developmental disabilities: the current state of knowledge. Retrieved (2012) from: https://​www.​iassid.​org/​.
March, H. W., Balla, J. R., & Hau, K. (1996). An evaluation of increment fit indices: A clarification of mathematical and empirical properties. In G. A. Marcoulides & R. E. Schumacker (Eds.), Advanced structural equation modeling: Issues and techniques (pp. 315–353). Mahwah, NJ: Lawrence Erlbaum.
Maslow, A. H. (1987). Motivation and personality. New York: Harper & Row.
McClintock, K., Hall, S., & Oliver, C. (2003). Risk markers associated with challenging behaviors in people with intellectual disabilities: A meta-analytic study. Journal of Intellectual Disability Research, 47(6), 405–416.PubMedCrossRef
Mungo, D., Ruta, L., Arrigo, V., & Mazzona, L. (2007). Impairment of quality of life in parents of children and adolescents with pervasive developmental disorder. Health and Quality of Life Outcomes, 5(22), 1–9.
Munro, B. (2005). Statistical methods for health care research (5th ed.). Philadelphia: Lippincott Williams & Wilkins.
Norusis, M. J. (1998). SPSS professional statistics. Upper Sadler River, NJ: Prentice-Hall.
Nunnally, J. C., & Bernstein, I. H. (1994). Psychometric theory. New York: McGraw-Hill.
Ohaeri, J. U., Awadalla, A. W., El-Abassi, A. M., & Jacob, A. (2007). Confirmatory factor analytical study of the WHOQOL-Bref: Experience with Sudanese general population and psychiatric samples. Medical Research Methodology, 7(37), 7–37.
Ohaeri, J., Awadalla, A., & Farah, A. (2009). Quality of life in people with epilepsy and their family caregivers: An Arab experience using the short version of WHO Quality of Life Instrument. Saudi Medical Journal, 30(10), 1328–1335.PubMed
Parish, S., Seltzer, M., Greenberg, J., & Floyd, F. (2004). Economic implications of caregiving at midlife: Comparing parents with and without children who have developmental disabilities. Mental Retardation, 42(6), 413–426.PubMedCrossRef
Rogers, S. J., & Ozonoff, S. (2005). Annotation: What do we know about sensory dysfunction in autism? A critical review of the empirical evidence. Journal of Child Psychology and Psychiatry, 46(12), 1255–1268.PubMedCrossRef
Seltzer, M., Abbeduto, M., Krauss, L., Greenberg, J., & Swe, S. (2004). Comparison groups in autism family research: Down syndrome, fragile X syndrome, and schizophrenia. Journal of Autism and Developmental Disorders, 34, 11–30.CrossRef
Skevington, S. M. (2002). Advancing cross-cultural research on quality of life: Observations drawn from the WHOQOL development. Quality of Life Research, 11, 135–144.PubMedCrossRef
Skevington, S. M., Lotfy, M., & O’Connell, K. A. (2004). The World Health Organization’s WHOQOL-BREF quality of life assessment: Psychometric properties and results of the international field trial. Quality of Life Research, 13, 299–310.PubMedCrossRef
Swensen, A. R., Birnbaum, H. G., Secnik, K., Marynchenko, M., Greenberg, P., & Claxton, A. (2003). Autism spectrum disorder: Increased costs for patients and their families. Journal of the American Academy of Child and Adolescent Psychiatry, 42(12), 1415–1423.PubMedCrossRef
Tabachnick, B., & Fidell, L. (2001). Using multivariate statistics. Needham Height, MA: Allyn & Bacon.
Wang, L., Fan, X., & Willson, V. (1996). Effects of nonnormal data on parameter estimates and fit indices for a model with latent and manifest variables: An empirical study. Structural Equation Modeling, 3, 228–247.CrossRef
WHOQOL Group. (1998). Development of the World Health Organization WHOQOL-BREF quality of life assessment. Psychological Medicine, 28, 551–558.CrossRef
Metagegevens
Titel
Validation of the World Health Organization’s Quality of Life Questionnaire with Parents of Children with Autistic Disorder
Auteurs
Latefa A. Dardas
Muayyad M. Ahmad
Publicatiedatum
01-09-2014
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 9/2014
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-014-2110-1

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