Top

Quality of Life Research

Gepubliceerd in:

01-09-2013

Validation of the Food Allergy Quality of Life—Parental Burden Questionnaire in the UK

Auteurs: Rebecca C. Knibb, Carol Stalker

Gepubliceerd in: Quality of Life Research | Uitgave 7/2013

Abstract

Purpose

Food allergy can have a profound effect on quality of life (QoL) of the family. The Food Allergy Quality of Life—Parental Burden Questionnaire (FAQL-PB) was developed on a US sample to assess the QoL of parents with food allergic children. The aim of this study was to examine the reliability and validity of the FAQL-PB in a UK sample and to assess the effect of asking about parental burden in the last week compared with parental burden in general, with no time limit for recall given.

Methods

A total of 1,200 parents who had at least one child with food allergy were sent the FAQL-PB and the Child Health Questionnaire (CHQ-PF50); of whom only 63 % responded.

Results

Factor analysis of the FAQL-PB revealed two factors: limitations on life and emotional distress. The total scale and the two sub-scales had high internal reliability (all α > 0.85). There were small to moderate but significant correlations between total FAQL-PB scores and health and parental impact measures on the CHQ-PF50 (p < 0.01). Significantly greater parental burden was reported for the no-time limited compared with the time-limited version (p < 0.01).

Conclusions

The FAQL-PB is a reliable and valid measure for use in the UK. The scale could be used in clinic to assess the physical and emotional quality of life in addition to the impact on total quality of life.

vorige artikel An investigation of the construct validity of the ICECAP-A capability measure

volgende artikel Evaluation of item candidates for a diabetic retinopathy quality of life item bank

Sicherer, S. H. (2011). Epidemiology of food allergy. Journal of Allergy and Clinical Immunology, 127, 594–602.PubMedCrossRef

Gupta, R., Sheikh, A., Strachan, D. P., & Anderson, H. R. (2007). Time trends in allergic disorders in the UK. Thorax, 62, 91–96.PubMedCrossRef

Kotz, D., Simpson, C. R., & Sheikh, A. (2011). Incidence, prevalence, and trends of general practitioner-recorded diagnosis of peanut allergy in England, 2001 to 2005. Journal of Allergy and Clinical Immunology, 127, 623–630.PubMedCrossRef

Sicherer, S. H., Noone, S. A., & Munoz-Furlong, A. (2001). The impact of childhood food allergy on quality of life. Annals of Allergy and Asthma Immunology, 87, 461–464.CrossRef

Primeau, M. N., Kagan, R., Joseph, L., Lim, H., Dufresne, C., Duffy, C., et al. (2000). The psychological burden of peanut allergy as perceived by adults with peanut allergy and the parents of peanut-allergic children. Clinical and Experimental Allergy, 30, 1135–1143.PubMedCrossRef

Marklund, B., Ahlstedt, S., & Nordstrom, G. (2006). Health-related quality of life in food hypersensitive schoolchildren and their families: Parents’ perceptions. Health Quality of Life Outcomes, 4, 48–59.PubMedCrossRef

King, R. M., Knibb, R. C., & Hourihane, J. O’. B. (2009). Impact of peanut allergy on quality of life, stress and anxiety in the family. Allergy, 64, 461–468.PubMedCrossRef

Avery, N. J., King, R. M., Knight, S., & Hourihane, J. O’. B. (2003). Assessment of quality of life in children with peanut allergy. Pediatric Allergy and Immunololgy, 14, 378–382.CrossRef

Cummings, A., Knibb, R. C., King, R., & Lucas, J. (2010). The psychosocial impact of food allergy on children and adolescents: A review. Allergy, 65, 933–945.PubMedCrossRef

10.

Valentine, T., & Knibb, R. C. (2011). Exploring quality of life in families of children with and without a severe food allergy. Appetite, 57, 467–474.PubMedCrossRef

11.

DunnGalvin, A., Flokstra-de Blok, B. M. J., Burks, A., Dubois, A. E. J., & Hourihane, J. O. (2008). Food Allergy Quality of Life Questionnaire (FAQLQ-PF) for children aged 0–12 years: Content, construct and cross-cultural validity. Clinical and Experimental Allergy, 38, 977–986.PubMedCrossRef

12.

Flokstra-de Blok, B. M. J., DunnGalvin, A., Vlieg-Boerstra, B. J., Oude Elberink, J. N. G., Duiverman, E. J., Hourihane, J. O’. B., et al. (2009). Development and validation of a self-administered food allergy quality of life questionnaire for children. Clinical and Experimental Allergy, 39, 127–137.PubMedCrossRef

13.

Flokstra-de Blok, B. M. J., DunnGalvin, A., Vlieg-Boerstra, B. J., Oude Elberink, J. N. G., Duiverman, E. J., Hourihane, J. O’. B., et al. (2008). Development and validation of a self-administered food allergy quality of life questionnaire for adolescents. Journal of Allergy and Clinical Immunology, 122, 139–144.PubMedCrossRef

14.

Lebovidge, J. S., Stone, K. D., Twarog, F. J., Raiselis, S. W., Kalish, L. A., Bailey, E. P., et al. (2006). Development of a preliminary questionnaire to assess parental response to children’s food allergies. Annals of Allergy and Asthma Immunology, 96, 472–477.CrossRef

15.

Gerth van Wijk, R. (2003). Quality of Life, should we bother? Allergy, 58, 284–286.PubMedCrossRef

16.

Cohen, B. L., Noone, N. S., Munoz-Furlong, A., & Sicherer, S. L. (2004). Development of a questionnaire to measure quality of life in families with a child with food allergy. Journal of Allergy and Clinical Immunology, 114, 1159–1163.PubMedCrossRef

17.

Chhabra, S. K., & Kaushik, S. (2005). Validation of the asthma quality of life questionnaire (AQLQ-UK English version) in Indian asthmatic subjects. Indian Journal of Chest Diseases and Allied Sciences, 47, 167–173.PubMed

18.

Landgraf, J. M., Abetz, L., & Wane, J. E. (1999). The child health questionnaire (CHQ): A user’s Manual (2nd ed.). Boston: Health Act.

19.

Knibb, R. C., & Horton, S. (2008). Can illness perceptions and coping predict psychological distress in allergy sufferers? British Journal of Health Psychology, 13, 103–119.PubMedCrossRef

20.

British psychological society code of ethics and conduct (2009). Available from http://www.bps.org.uk.

21.

Field, A. (2009). Discovering statistics using SPSS (3rd ed.). London: Sage.

22.

Pesudov, K., Burr, J. M., Harley, C., & Elliott, C. B. (2007). The development, assessment and selection of questionnaires. Optometry and Vision Science, 84, 603–674.

23.

Juniper, E. F., Guyatt, G. H., Willan, A., & Griffith, L. E. (1994). Determining a minimal important change in a disease-specific quality of life questionnaire. Journal of Clinical Epidemiology, 47, 81–87.PubMedCrossRef

24.

Jaeschke, R., Singer, J., & Guyatt, G. H. (1989). Measurement of health status. Ascertaining the minimal clinically important difference. Control Clinical Trials, 10, 407–415.CrossRef

25.

De vet, H. C., Terwee, C. B., Ostelo, H. B., Knol, D. L., & Bouter, L. M. (2006). Minimal changes in health status questionnaires: Distinction between minimally detectable change and minimally important change. Health and Quality of Life Outcomes, 4, 54–58.PubMedCrossRef

26.

Leung, T. F., Yung, E., Wong, Y. S., Li, C. Y., & Wong, G. W. K. (2009). Quality-of-life assessment in Chinese families with food-allergic children. Clinical and Experimental Allergy, 39, 890–896.PubMedCrossRef

27.

Oude Elberink, J. N., de Monchy, J. G., Golden, D. B., Brouwer, J. L., Guyatt, G. H., & Dubois, A. E. (2002). Development and validation of a health-related quality-of-life questionnaire in patients with yellow jacket allergy. Journal of Allergy and Clinical Immunology, 109, 162–170.PubMedCrossRef

Titel: Validation of the Food Allergy Quality of Life—Parental Burden Questionnaire in the UK
Auteurs: Rebecca C. Knibb
Carol Stalker
Publicatiedatum: 01-09-2013
Uitgeverij: Springer Netherlands
Gepubliceerd in: Quality of Life Research / Uitgave 7/2013
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI: https://doi.org/10.1007/s11136-012-0295-3

Bohn Stafleu van Loghum

Deel dit onderdeel of sectie (kopieer de link)

Abstract

Purpose

Methods

Results

Conclusions

Log in om toegang te krijgen

Andere artikelen Uitgave 7/2013

Comparison of the measurement properties between a short and generic instrument, the 5-level EuroQoL Group’s 5-dimension (EQ-5D-5L) questionnaire, and a longer and disease-specific instrument, the Functional Assessment of Cancer Therapy—Breast (FACT-B), in Asian breast cancer patients

Philosophical perspectives on response shift

Development and validation of a mental health subscale from the Quality of Well-Being Self-Administered

Psychometric characteristics of daily diaries for the Patient-Reported Outcomes Measurement Information System (PROMIS®): a preliminary investigation

Measurement issues in the evaluation of chronic disease self-management programs

Determinants of health-related quality of life in people with Parkinson’s disease: a path analysis