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Quality of Life Research
Gepubliceerd in: Quality of Life Research 10/2013

01-12-2013

Utility of the PedsQL™ family impact module: assessing the psychometric properties in a community sample

Auteurs: Gustavo R. Medrano, Kristoffer S. Berlin, W. Hobart Davies

Gepubliceerd in: Quality of Life Research | Uitgave 10/2013

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Abstract

Purpose

Research on families coping with pediatric chronic illnesses has established that children and parents are affected by the illness. Therefore, optimal assessment of parent and family functioning is clinically important. The PedsQL™ family impact module (FIM) assesses parents’ health-related quality of life (HRQOL) and family functioning. While the FIM has been shown to be reliable and valid in multiple chronic illness groups, there is little data on its use in non-clinical groups. The study’s objective was to assess the reliability, validity, and factor structure of the FIM in a community sample.

Methods

Nine hundred and twenty-nine community parents of children 2–17 years old completed an anonymous online survey. The mean age of the participants was 37.6 years (SD = 8.6), and the majority were mothers (63.6 %), white (82.9 %), and married (74.8 %). The mean age of the children being reported on was 8.8 years (SD = 3.9), and the majority were female (52.3 %) and 41.2 % were reported as having at least one chronic condition.

Results

All of the FIM’s scales demonstrated excellent internal consistency reliability. Confirmatory factor analysis of the measure supported the current structure. The measure correlated in the expected direction with validated measures of anxiety, depression, child HRQOL, and number of chronic conditions endorsed. Independent t tests indicated that the measure has discriminant validity between parents who reported having a child with a chronic condition to those who did not.

Conclusion

The results of this study suggest the FIM is a reliable and valid measure of parent HRQOL and family functioning within a community sample, and facilitate its use in comparative studies.
vorige artikel Perception of health-related quality of life in children with chronic kidney disease by the patients and their caregivers: Multicentre national study results
volgende artikel Psychometric properties of the EuroQol Five Dimensional Questionnaire (EQ-5D-3L) in caregivers of autistic children
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Metagegevens
Titel
Utility of the PedsQL™ family impact module: assessing the psychometric properties in a community sample
Auteurs
Gustavo R. Medrano
Kristoffer S. Berlin
W. Hobart Davies
Publicatiedatum
01-12-2013
Uitgeverij
Springer Netherlands
Gepubliceerd in
Quality of Life Research / Uitgave 10/2013
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-013-0422-9

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