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Quality of Life Research
Gepubliceerd in: Quality of Life Research 4/2021

17-11-2020

Using nationally representative percentiles to interpret PROMIS pediatric measures

Auteurs: Adam C. Carle, Katherine B. Bevans, Carole A. Tucker, Christopher B. Forrest

Gepubliceerd in: Quality of Life Research | Uitgave 4/2021

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Abstract

Purpose

This study’s aim was to use a representative sample of the US pediatric population to estimate percentiles for several PROMIS pediatric measures: Anger, Anxiety, Depressive Symptoms, Family Relationships, Fatigue, Global Health, Life Satisfaction, Meaning and Purpose, Pain Behavior, Pain Interference, Physical Activity, Physical Function Mobility, Physical Function Upper Extremity, Physical Stress Experiences, Positive Affect, Psychological Stress Experiences, Sleep Disturbance, Sleep Impairment, and Peer Relationships.

Methods

We used two separate, nationally representative samples of parents and children aged 5–17 years drawn in different years from the GfK Knowledge Panel, a dual-frame online probability panel.

Results

All measures that were developed using a representative sample had a median at or near the expected value of 50. For the other measures, the 50th percentile was often 10 points or more from 50. Several domains had high floors or low ceilings. No domain’s percentiles completely corresponded to the percentiles associated with a normal distribution with a mean of 50 and standard deviation of 10.

Conclusions

This work allows users to interpret a child’s self-reported quality of life relative to children in the US general population. When attempting to evaluate whether a child falls above or below other children in the US, one should use the values presented in this study. In addition, we recommend that users should focus on whether a child’s score falls into one of a few broad severity groups rather than on specific percentile scores.
vorige artikel Assessing the engagement of children and families in selecting patient-reported outcomes (PROs) and developing their measures: a systematic review
volgende artikel Health care access and health-related quality of life among people with diabetes in the Southern Cone of Latin America—a cross-sectional analysis of data of the CESCAS I study
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Metagegevens
Titel
Using nationally representative percentiles to interpret PROMIS pediatric measures
Auteurs
Adam C. Carle
Katherine B. Bevans
Carole A. Tucker
Christopher B. Forrest
Publicatiedatum
17-11-2020
Uitgeverij
Springer International Publishing
Gepubliceerd in
Quality of Life Research / Uitgave 4/2021
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-020-02700-5

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