Swipe om te navigeren naar een ander artikel
For the PROMIS Sexual Function Domain Committee.
One goal of the Patient-Reported Outcomes Measurement Information System™ (PROMIS™) is to develop a measure of sexual functioning that broadens the definition of sexual activity and incorporates items that reflect constructs identified as important by patients with cancer. We describe how cognitive interviews improved the quality of the items and discuss remaining challenges to assessing sexual functioning in research with cancer populations.
We conducted 39 cognitive interviews of patients with cancer and survivors on the topic of sexual experience. Each of the 83 candidate items was seen by 5–24 participants. Participants included both men and women and varied by cancer type, treatment trajectory, race, and literacy level. Significantly revised items were retested in subsequent interviews.
Cognitive interviews provided useful feedback about the relevance, sensitivity, appropriateness, and clarity of the items. Participants identified broad terms (e.g., “sex life”) to assess sexual experience and exposed the challenges of measuring sexual functioning consistently, considering both adjusted and unadjusted sexual experiences.
Cognitive interviews were critical for item refinement in the development of the PROMIS measure of sexual function. Efforts are underway to validate the measure in larger cancer populations.
Log in om toegang te krijgen
Met onderstaand(e) abonnement(en) heeft u direct toegang:
Horner, M. J., Ries, L. A. G., Krapcho, M., Neyman, N., Aminou, R., Howlader, N., et al. (Eds) SEER Cancer Facts Sheet. National Cancer Institute. Bethesda, MD (based on November 2008 data submission). http://seer.cancer.gov/statfacts/html/all.html.
Committee on Cancer Survivorship. (2006). Improving care and quality of life, institute of medicine. Washington, DC: National Academies Press.
Bober, S. L., & Park, E. R. (2008). Let’s talk about sex and cancer. Boston Globe, A11.
Schover, L. R. (2005). Sexuality and fertility after cancer. Hematology (American Society of Hematology Education Program,52, 3–527.
National Cancer Institute. (2004). Sexuality and reproductive issues (PDQ ®). Version date 05/20/2009. Available at: http://www.cancer.gov/cancertopics/pdq/supportivecare/sexuality/healthprofessional.
Hordern, A., & Street, A. (2007). Communicating about patient sexuality and intimacy after cancer: Mismatched expectations and unmet needs. Medical Journal of Australia,186(5), 224–227. PubMed
Jeffery, D. D., Tzeng, J. P., Keefe, F. J., Porter, L. S., Hahn, E. A., Flynn, K. E., et al. (2009). Initial report of the cancer patient-reported outcomes measurement information system (PROMIS) sexual function committee: Review of sexual function measures and domains used in oncology. Cancer,115(6), 1142–1153. PubMedCrossRef
Reeve, B. B., Hays, R. D., Bjorner, J. B., Cook, K. F., Crane, P. K., Teresi, J. A., et al. (2007). Psychometric evaluation and calibration of health-related quality of life item banks: Plans for the patient-reported outcomes measurement information system (PROMIS). Medical Care, 45(5 Suppl 1), S22–S31.
Garcia, S. F., Cella, D., Clauser, S. B., Flynn, K. E., Lad, T., Lai, J. S., et al. (2007). Standardizing patient-reported outcomes assessment in cancer clinical trials: A patient-reported outcomes measurement information system initiative. Journal of Clinical Oncology,25(32), 5106–5112. PubMedCrossRef
Masters, W. H., & Johnson, V. E. (1966). Human sexual response. Toronto, NY: Bantam.
Flynn, K. E., Tzeng, J., Jeffery, D. D., Reeve, B. B., Weinfurt, K. P., & The PROMIS Sexual Function Domain Subcommittee. (2007). Conceptualizations of sexual functioning and intimacy among cancer sufferers and survivors. Psychooncology,16(S2), S135–S136.
Forsyth, B. H., & Lessler, J. T. (1991). Cognitive laboratory methods: A taxonomy. In P. P. Biemer, L. E. Lyberg, N. A. Mathiowetz, & S. Sudman (Eds.), Measurement errors in surveys (pp. 393–418). New York: Wiley.
Willis, G. B. (2005). Cognitive interviewing. Thousand Oaks, CA: Sage.
Willis, G. B., Reeve, B. B., & Barofsky, I. (2005). The use of cognitive interviewing techniques in quality of life and patient-reported outcomes assessment. In J. Lipscomb, C. C. Gotay, & C. Snyder (Eds.), Outcomes assessment in cancer: Measures, methods, and applications (pp. 610–623). New York: Cambridge University Press.
- Using cognitive interviews to evaluate items for measuring sexual functioning across cancer populations: improvements and remaining challenges
Alice K. Fortune-Greeley
Kathryn E. Flynn
Diana D. Jeffery
Megan S. Williams
Francis J. Keefe
Bryce B. Reeve
Gordon B. Willis
Kevin P. Weinfurt
- Springer Netherlands