Top

Optie A:

Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
Optie B:

Deel de link per e-mail
Link delen

vorige artikel A Comparison of Two Group-Delivered Social Skil...

volgende artikel Behavioral and Emotional Symptoms of Children a...

Tip

Swipe om te navigeren naar een ander artikel

01-05-2007 | Original Paper | Uitgave 5/2007

Use of Autism-Related Services by Families and Children

Tijdschrift:: Journal of Autism and Developmental Disorders > Uitgave 5/2007

Auteurs:: Kathleen C. Thomas, Joseph P. Morrissey, Carolyn McLaurin

» Toegang tot de volledige tekst krijgen

Abstract

This paper describes approaches to care and associated service use by families with a child with autism. A combined telephone and self-administered survey was completed by 301 families with a child, 8 years old or younger, in North Carolina, during the winter of 2003–2004. Findings indicate that 66% of families used one or more approach to care and there was a significant (p < 0.05) association between approach and the pattern of service use. There appears to be a distinctive set of services associated with each approach to care, but with overlap between them. Speech/language therapy at school was the most frequently used service and also identified as the best service. The majority (81%) of families reported they were satisfied with services.

Log in om toegang te krijgen

Hier inloggen

Met onderstaand(e) abonnement(en) heeft u direct toegang:

BSL Psychologie Totaal

Met BSL Psychologie Totaal blijft u als professional steeds op de hoogte van de nieuwste ontwikkelingen binnen uw vak. Met het online abonnement heeft u toegang tot een groot aantal boeken, protocollen, vaktijdschriften en e-learnings op het gebied van psychologie en psychiatrie. Zo kunt u op uw gemak en wanneer het u het beste uitkomt verdiepen in uw vakgebied.

Meer informatie

American Academy of Child and Adolescent Psychiatry. (1999). American Academy of Child and Adolescent Psychiatry Official Action: Practice parameters for the assessment and treatment of children, adolescents, and adults with autism and other pervasive developmental disorders. Journal of the American Academy of Child and Adolescent Psychiatry, 38, 32S–54S. CrossRef

Allen, S. (1998). Introduction: Converging trends. In S. Allen, &V. Mor (Eds.), Living in the community with disability: Service needs, use, and systems (pp. 1–12). New York: Springer.

Barry, T., Klinger, L., Lee, J., Palardy, N., Gilmore, T., & Bodin, S. (2003). Examining the effectiveness of an outpatient clinic-based social skills group for high-functioning children with autism. Journal of Autism and Developmental Disorders, 33, 685–701. PubMedCrossRef

Birenbaum, A., & Cohen, H. (1993). Mini-symposium: Helping families. Mental Retardation, 31, 67–74. PubMed

Birenbaum, A., Guyot, D., & Cohen, H. (1990). Health care financing for severe developmental disabilities (Monograph 14). Washington, D.C.: American Association on Mental Retardation.

Birnbrauer, J., & Leach, D. (1993). The Murdoch Early Intervention Program after 2 years. Behaviour-Change, 10, 63–74.

Bryson, S., Rogers, S., & Fombonne E. (2003). Autism spectrum disorders: Early detection, intervention, education, and psychopharmacological management. Canadian Journal of Psychiatry, 48, 506–516.

Campbell, M., Schopler, E., Cueva, J., & Hallin, A. (1996) Treatment of autistic disorder. Journal of the American Academy of Child and Adolescent Psychiatry, 35, 134–143. PubMedCrossRef

Cohen, J. (1997). Design and methods of the Medical Expenditure Panel Survey Household Component. Rockville, MD: Agency for Health Care Policy and Research.

Dawson G., & Osterling, J. (1997). Early intervention in autism. In M. Guralnick (Ed.), The effectiveness of early intervention. Baltimore, MD: P.H. Brookes, pp. 307–326.

Edwards, W., & Berlin, M. (1989). Questionnaires and data collection for the household survey (National Medical Expenditure Survey Methods Vol. 2). Rockville, MD: U.S. Department of Health and Human Services.

Fombonne, E. (2002). Epidemiological trends in rates of autism. Molecular Psychiatry, 7, S4–S6. PubMedCrossRef

Fombonne, E. (2003). Epidemiological surveys of autism and other pervasive developmental disorders: An update. Journal of Autism and Developmental Disorders, 33, 365–382. PubMedCrossRef

Green, V., Pituch, K., Itchon, J., Choi, A., O’Reilly, M., & Sigafoos, J. (2006). Internet survey of treatments used by parents of children with autism. Research in Developmental Disabilities, 27, 70−84. PubMedCrossRef

Greenspan, S., Wieder, S., & Simons, R. (1998). The child with special needs: Encouraging intellectual and emotional growth. Reading, PA: Perseus.

Gross, J. (2004, January 30). As autism cases rise, parents run frenzied race to get help. The New York Times.

Holmes, D. (1990). Community-based services for children and adults with autism: The Eden family of programs. Journal of Autism and Developmental Disability, 20, 339–351. CrossRef

Horwitz, S. M., Hoagwood, K., Stiffman, A., Summerfeld, T., Weisz, J. R., Costello, E. J., Rost, K., Bean, D. L., Cottler, L., Leaf, P. J., Roper, M., & Norquist, G. (2001). Reliability of the Services Assessment for Children and Adolescents. Psychiatric Services, 52, 1088–1094. PubMedCrossRef

Hurth, J., Shaw, E., Izeman, S., Whaley, K., & Rogers, S. (1999). Areas of agreement about effective practices among programs serving young children with autism spectrum disorders. Infants and Young Children, 12, 17–26. CrossRef

Ireys, H., & Perry, J. (1999). Development and evaluation of a satisfaction scale for parents of children with special health care needs. Pediatrics, 104, 1182–1191. PubMed

Jarbrink, K., Fombonne, E., & Knapp, M. (2003). Measuring the parental, service and cost impacts of children with autistic spectrum disorder: A pilot study. Journal of Autism and Developmental Disorders, 33, 395–402. PubMedCrossRef

Kerker, B., Owens, P., Zigler, E., & Horwitz, S. (2004). Mental health disorders among individuals with mental retardation: Challenges to accurate prevalence estimates. Public Health Reports, 119, 409–417. CrossRef

Kidd, P. (2002). Autism, an extreme challenge to integrative medicine. Part II: Medical management. Alternative Medicine Review, 7, 472–499. PubMed

Kohler, F. (2000). Examining the services received by young children with autism and their families: A survey of parent responses. Focus on Autism and Other Developmental Disabilities, 14, 150–158. CrossRef

Levy, S., Mandell, D., Merhar, S., Ittenbach, R., & Pinto-Martin, J. (2003). Use of complementary and alternative medicine among children recently diagnosed with autistic spectrum disorder. Developmental and Behavioral Pediatrics, 24, 418–423. CrossRef

Lovaas, O. I. (1987). Behavioral treatment and normal educational and intellectual functioning in young autistic children. Journal of Consulting and Clinical Psychology, 55, 3–9. PubMedCrossRef

Luce, S., Christian, W., Anderson, S., Troy, P., & Larsson, E. (1992), Development of a continuum of services for children and adults with autism and other severe behavior disorders. Research in Developmental Disabilities, 13, 9–25. PubMedCrossRef

Mandell, D., Listerud, J., Levy, S., & Pinto-Martin, J. (2002). Race differences in the age at diagnosis among Medicaid-elligible children with autism. Journal of the American Academy of Child and Adolescent Psychiatry, 41, 1447–1453. PubMedCrossRef

Marcus, L., Garfinkle, A., & Wolery, M. (2001). Issues in early diagnosis and intervention with young children with autism. In E. Schopler, N. Yirmiya, C. Shulman & L. Marcus (Eds.), The research basis for autism intervention. New York: Kluwer Academic/Plenum.

Marcus, L., Lansing, M., Adnrews, C., & Schopler, E. (1978). Improvement of teaching effectiveness in parents of autistic children. Journal of the American Academy of Child Psychiatry, 17, 625–639. PubMedCrossRef

McConachie, H., Le Couteur, A., & Honey, E. (2005). Can a diagnosis of Asperger syndrome be made in very young children with suspected autism spectrum disorder? Journal of Autism and Developmental Disorders, 35, 167–176. PubMedCrossRef

McEachin, J., Smith, T., & Lovaas, O. (1993). Long-term outcome for children with autism who received early intensive behavioral treatment. American Journal of Mental Retardation, 97, 359–372. PubMed

McWilliam, R., Tocci, L., & Harbin, G. (1998). Family-centered services: Service providers’ discourse and behavior. Topics in Early Childhood Special Education, 18, 206–221. CrossRef

Miller, J., Gaboda, D., & Davis, D. (2001). Early childhood chronic illness: Comparability of maternal reports and medical records. Vital Health Statistics, Apr, 1–10.

Ozonoff, S., & Cathcart, K. (1998). Effectiveness of a home program intervention for young children with autism. Journal of Autism and Developmental Disorders, 28, 25–32. PubMedCrossRef

Prater, C., & Zylstra, R. (2002). Autism: A medical primer. American Family Physician, 66, 1667–1674. PubMed

Rhoades, J., & Cohen, J. (2004). The uninsured in America, 1996–2003: Estimates for the U.S. population under age 65 (Medical Expenditures Panel Survey Statistical Brief #45). Rockville, MD: Agency for Healthcare Research and Quality.

Rogers, S. (1998a). Neuropsychology of autism in young children and its implications for early intervention. Mental Retardation and Developmental Disabilities Research Reviews, 4, 104–112. CrossRef

Rogers, S. (1998b). Empirically supported comprehensive treatments for young children with autism. Journal of Clinical Child Psychology, 27, 168–179. CrossRef

Rogers, S., & Lewis, H. (1989). An effective day treatment model for young children with pervasive developmental disorders. Journal of the American Academy of Child and Adolescent Psychiatry, 28, 207–214. PubMedCrossRef

Schopler, E. (2001). Treatment for autism: From science to pseudo-science or anti-science. In E. Shopler, N. Yirmiya, C. Shulman, & L. Marcus (Eds.), The research basis for autism intervention (pp. 9–24). New York: Kluwer Academic/Plenum.

Schopler, E., Brehm, S., Kinsbourne, M., & Reichler, R. (1971). Effect of treatment structure on development in autistic children. Archives of General Psychiatry, 24, 415–421. PubMed

Sheinkopf, S., & Siegel, B. (1998). Home-based behavioral treatment of young children with autism. Journal of Autism and Developmental Disorders, 28, 15–23. PubMedCrossRef

Stahmer, A. (2005). The structure of early intervention services for children with autism. A presentation at the National Institute of Mental Health conference on Mental Health Services Research, Bethesda, MD.

Stallard, P & Lenton, S. (1992). How satisfied are parents of pre-school children who have special needs with the services they have received? A consumer survey. Child Care Health Development, 18, 197–205. CrossRef

Svarstad, B., Chewning, B., Sleath, B., & Claesson, C. (1999). The brief medication questionnaire: A tool for screening patient adherence and barriers to adherence. Patient Education and Counseling, 37, 113–124. PubMedCrossRef

United States Census (2000). Profile of selected economic characteristics: 2000 (Census 2000 Summary File 3). Washington, D.C.: Author.

United States Census (2001). Persons by race, age and sex 2000: North Carolina. Washington, D.C.: Author.

United States Census (2003) Median family income in the past 12 months (2003 inflation-adjusted dollars) by family size: North Carolina. Washington, D.C.: Author.

Wieder, S., & Greenspan, S. (2003). Climbing the symbolic ladder in the DIR model through floor time/interactive play. Autism, 7, 425–435. PubMedCrossRef

Williams, K., & Wishart, J. (2003). The Son-Rise Program intervention for autism: An investigation into family experiences. Journal of Intellectual Disability Research, 47, 291–299. PubMedCrossRef

Titel: Use of Autism-Related Services by Families and Children
Auteurs:: Kathleen C. Thomas
Joseph P. Morrissey
Carolyn McLaurin
Publicatiedatum: 01-05-2007
DOI: https://doi.org/10.1007/s10803-006-0208-9
Uitgeverij: Kluwer Academic Publishers-Plenum Publishers
Tijdschrift: Journal of Autism and Developmental Disorders
Uitgave 5/2007
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432

Bohn Stafleu van Loghum

Deel dit onderdeel of sectie (kopieer de link)

Tip

Swipe om te navigeren naar een ander artikel

Abstract

Log in om toegang te krijgen

Met onderstaand(e) abonnement(en) heeft u direct toegang:

BSL Psychologie Totaal

Andere artikelen Uitgave 5/2007

Describing the Sensory Abnormalities of Children and Adults with Autism

Patterns of Nonverbal Cognitive Functioning in Young Children with Autism Spectrum Disorders

Announcements

Psychological and Neurobehavioral Comparisons of Children with Asperger’s Disorder Versus High-Functioning Autism

Social Communication Profiles of Children with Autism Spectrum Disorders Late in the Second Year of Life

Brief Report: Effect of Maternal Age on Severity of Autism