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Quality of Life Research
Gepubliceerd in: Quality of Life Research 9/2012

01-11-2012

Understanding the health impact of caregiving: a qualitative study of immigrant parents and single parents of children with cancer

Auteurs: Anne F. Klassen, Sonia Gulati, Leeat Granek, Zahava R. S. Rosenberg-Yunger, Lisa Watt, Lillian Sung, Robert Klaassen, David Dix, Nicola T. Shaw

Gepubliceerd in: Quality of Life Research | Uitgave 9/2012

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Abstract

Purpose

Research looking at the health of parents of children with cancer typically uses outcome measures focused on symptoms of anxiety, depression, or post-traumatic stress. Our team builds on this literature to provide a more comprehensive understanding of the health impact of caregiving.

Methods

Interviews were conducted with 79 Canadian parents of children with cancer at least 6 months post-diagnosis. Line-by-line coding was used to establish categories and themes. Constant comparison was used to examine relationships within and across codes and categories. Interviewing continued until no new themes emerged.

Results

Parents described health concerns as including sleep disturbance, daytime fatigue, anxiety, depression, social isolation, and changes in social roles. Parents described the positive impacts of caregiving as including gaining a greater appreciation for child and family and developing compassion, empathy, patience, inner strength, and new perspectives on life.

Conclusion

Parents of children with cancer can experience a range of health problems due to the emotional impact of a cancer diagnosis and the intensive and often prolonged nature of treatment and aftercare. Given the central role parents play as caregivers, it is crucial to understand the health impact of caregiving so that supportive interventions can be implemented as necessary.
vorige artikel The effect of family-based multidisciplinary cognitive behavioral treatment on health-related quality of life in childhood obesity
volgende artikel Comparing higher order models for the EORTC QLQ-C30
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Metagegevens
Titel
Understanding the health impact of caregiving: a qualitative study of immigrant parents and single parents of children with cancer
Auteurs
Anne F. Klassen
Sonia Gulati
Leeat Granek
Zahava R. S. Rosenberg-Yunger
Lisa Watt
Lillian Sung
Robert Klaassen
David Dix
Nicola T. Shaw
Publicatiedatum
01-11-2012
Uitgeverij
Springer Netherlands
Gepubliceerd in
Quality of Life Research / Uitgave 9/2012
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-011-0072-8

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