Skip to main content
Top
Gepubliceerd in: Journal of Autism and Developmental Disorders 2/2019

25-08-2018 | Original Paper

Understanding Service Usage and Needs for Adults with ASD: The Importance of Living Situation

Auteurs: Katerina M. Dudley, Mark R. Klinger, Allison Meyer, Patrick Powell, Laura G. Klinger

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 2/2019

Log in om toegang te krijgen
share
DELEN

Deel dit onderdeel of sectie (kopieer de link)

  • Optie A:
    Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
  • Optie B:
    Deel de link per e-mail

Abstract

With the increasing prevalence of adults with autism spectrum disorder (ASD), research examining the service experiences of this population is greatly needed. The current study investigated service use, unmet needs, and obstacles to service access for a large sample of adults with ASD. After accounting for various demographic factors known to impact service usage and needs, living situation was a significant predictor of service use, needs, and obstacles to services. Adults with ASD living with family reported less service use, higher unmet need, and more obstacles to accessing services. With more than half of this adult sample living with family, results have clear public policy implications to support the increasing population of adults with ASD living with aging caregivers.
Literatuur
go back to reference Arnett, J. J., & Tanner, J. L. (2006). Emerging adulthood: The dawning of a new age. Washington, DC: American Psychological Association.CrossRef Arnett, J. J., & Tanner, J. L. (2006). Emerging adulthood: The dawning of a new age. Washington, DC: American Psychological Association.CrossRef
go back to reference Baio, J., Wiggins, L., Christensen, D. L., & Al., E. (2018). Prevalence of autism spectrum disorder among children aged 8 years—Autism and developmental. MMWR Surveillance Summaries, 67, 1.CrossRefPubMedCentral Baio, J., Wiggins, L., Christensen, D. L., & Al., E. (2018). Prevalence of autism spectrum disorder among children aged 8 years—Autism and developmental. MMWR Surveillance Summaries, 67, 1.CrossRefPubMedCentral
go back to reference Bishop-Fitzpatrick, L. (2016). Psychosocial interventions and community-based services for adults with autism in the United States: Understanding what we know now and charting a course for the future. In Autism spectrum disorder in mid and later life (pp. 323–332). London: Jessica Kingsley Publishers. Bishop-Fitzpatrick, L. (2016). Psychosocial interventions and community-based services for adults with autism in the United States: Understanding what we know now and charting a course for the future. In Autism spectrum disorder in mid and later life (pp. 323–332). London: Jessica Kingsley Publishers.
go back to reference Bishop-Fitzpatrick, L., Minshew, N., & Eack, S. (2013). A systematic review of psychosocial interventions for adults with autism spectrum disorders. Journal of Autism and Developmental Disorders, 43(3), 687–694.CrossRefPubMedPubMedCentral Bishop-Fitzpatrick, L., Minshew, N., & Eack, S. (2013). A systematic review of psychosocial interventions for adults with autism spectrum disorders. Journal of Autism and Developmental Disorders, 43(3), 687–694.CrossRefPubMedPubMedCentral
go back to reference Brody, E. M. (1978). The aging of the family. American Academy of Political and Social Science, 438, 13–27.CrossRef Brody, E. M. (1978). The aging of the family. American Academy of Political and Social Science, 438, 13–27.CrossRef
go back to reference Brody, E. M. (1985). Parent care as a normative family stress. The Gerontological Society of America, 25(1), 19–29. Brody, E. M. (1985). Parent care as a normative family stress. The Gerontological Society of America, 25(1), 19–29.
go back to reference García-Villamisar, D., Wehman, P., & Diaz Navarro, M. (2002). Changes in the quality of autistic people’s life that work in supported and sheltered employment. A 5-year follow-up study. Journal of Vocational Rehabilitation, 17(4), 309–312. García-Villamisar, D., Wehman, P., & Diaz Navarro, M. (2002). Changes in the quality of autistic people’s life that work in supported and sheltered employment. A 5-year follow-up study. Journal of Vocational Rehabilitation, 17(4), 309–312.
go back to reference Leslie, D. L., Iskandarani, K., & Dick, A. W. (2017). The effects of medicaid home and community-based services waivers on unmet needs among children with autism spectrum disorder. Medical Care, 55(1), 57–63.CrossRefPubMedPubMedCentral Leslie, D. L., Iskandarani, K., & Dick, A. W. (2017). The effects of medicaid home and community-based services waivers on unmet needs among children with autism spectrum disorder. Medical Care, 55(1), 57–63.CrossRefPubMedPubMedCentral
go back to reference Maenner, M. J., Smith, L. E., Hong, J., Makuch, R., Greenberg, J., & Mailick, M. (2013). An evaluation of an activities of daily living scale for adolscents and adults with developmental disabilities. Disability and Health Journal, 6(1), 8–17.CrossRefPubMed Maenner, M. J., Smith, L. E., Hong, J., Makuch, R., Greenberg, J., & Mailick, M. (2013). An evaluation of an activities of daily living scale for adolscents and adults with developmental disabilities. Disability and Health Journal, 6(1), 8–17.CrossRefPubMed
go back to reference Mandell, D. S., Wiggins, L. D., Carpenter, L., Daniels, J., DiGuiseppi, C., Durkin, M. S., et al. (2009). Racial/ethnic disparities in the identification of children with autism spectrum disorder. American Journal of Public Health, 99(3), 493–498.CrossRefPubMedPubMedCentral Mandell, D. S., Wiggins, L. D., Carpenter, L., Daniels, J., DiGuiseppi, C., Durkin, M. S., et al. (2009). Racial/ethnic disparities in the identification of children with autism spectrum disorder. American Journal of Public Health, 99(3), 493–498.CrossRefPubMedPubMedCentral
go back to reference Persson, B. (2000). Brief report: A longitudinal study of quality of life and independence among adult men with autism. Journal of Autism and Developmental Disorders, 30(1), 61–66.CrossRefPubMed Persson, B. (2000). Brief report: A longitudinal study of quality of life and independence among adult men with autism. Journal of Autism and Developmental Disorders, 30(1), 61–66.CrossRefPubMed
go back to reference Pickard, K. E., & Ingersoll, B. R. (2016). Quality versus quantity: The role of socioeconomic status on parent-reported service knowledge, service use, unmet service needs, and barriers to service usage. Autism, 20(1), 106–115.CrossRefPubMed Pickard, K. E., & Ingersoll, B. R. (2016). Quality versus quantity: The role of socioeconomic status on parent-reported service knowledge, service use, unmet service needs, and barriers to service usage. Autism, 20(1), 106–115.CrossRefPubMed
go back to reference Ratto, A. B., Anthony, B. J., Pugliese, C., Mendez, R., Safer-Lichtenstein, J., Dudley, K. M., et al. (2017). Lessons learned: Engaging culturally diverse families in neurodevelopmental disorders intervention research. Autism, 21(5), 622–634.CrossRefPubMed Ratto, A. B., Anthony, B. J., Pugliese, C., Mendez, R., Safer-Lichtenstein, J., Dudley, K. M., et al. (2017). Lessons learned: Engaging culturally diverse families in neurodevelopmental disorders intervention research. Autism, 21(5), 622–634.CrossRefPubMed
go back to reference Rumberger, R. W., Larson, K. A., Ream, R. K., & Palardy, G. J. (1999). The educational consequences of mobility for California students and schools. Policy Analysis for California Education (PACE). Rumberger, R. W., Larson, K. A., Ream, R. K., & Palardy, G. J. (1999). The educational consequences of mobility for California students and schools. Policy Analysis for California Education (PACE).
go back to reference Schlossberg, N. K. (1981). A model for analyzing human adaptation to development. The Counseling Psychologist, 9(2), 2–18.CrossRef Schlossberg, N. K. (1981). A model for analyzing human adaptation to development. The Counseling Psychologist, 9(2), 2–18.CrossRef
go back to reference Schopler, E., Reichler, R. J., & Renner, B. R., (1988). Childhood autism rating scale (CARS). Los Angeles: Western Psychological Services. Schopler, E., Reichler, R. J., & Renner, B. R., (1988). Childhood autism rating scale (CARS). Los Angeles: Western Psychological Services.
go back to reference Shattuck, P. T., Roux, A. M., Hudson, L. E., Lounds Taylor, J., Maenner, M. J., & Trani, J.-F. (2012). Services for adults with an autism spectrum disorder. Canadian Journal of Psychiatry, 57(5), 284–291.CrossRefPubMed Shattuck, P. T., Roux, A. M., Hudson, L. E., Lounds Taylor, J., Maenner, M. J., & Trani, J.-F. (2012). Services for adults with an autism spectrum disorder. Canadian Journal of Psychiatry, 57(5), 284–291.CrossRefPubMed
go back to reference U.S. Census Bureau. (1983). General population characteristics: United States summary. Washington, DC: U.S. Census Bureau. U.S. Census Bureau. (1983). General population characteristics: United States summary. Washington, DC: U.S. Census Bureau.
Metagegevens
Titel
Understanding Service Usage and Needs for Adults with ASD: The Importance of Living Situation
Auteurs
Katerina M. Dudley
Mark R. Klinger
Allison Meyer
Patrick Powell
Laura G. Klinger
Publicatiedatum
25-08-2018
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 2/2019
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-018-3729-0

Andere artikelen Uitgave 2/2019

Journal of Autism and Developmental Disorders 2/2019 Naar de uitgave