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Gepubliceerd in: Journal of Autism and Developmental Disorders 4/2016

16-11-2015 | Original Paper

Understanding Hong Kong Chinese Families’ Experiences of an Autism/ASD Diagnosis

Auteurs: Kathleen Tait, Francis Fung, Aihua Hu, Naomi Sweller, Wei Wang

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 4/2016

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Abstract

Little is known about the experience of Chinese parents of children diagnosed with autism spectrum disorders (ASD) living in the Hong Kong Special Administrative Region. Seventy-five parents of children (aged 6 months–18 years) with ASD diagnoses completed the Family Quality of Life Scale. Forty-five parents from the original surveyed cohort, also participated in semi-structured interviews. Parents’ perceptions of their child’s disability were influenced both by their cultural background and by the limited and expensive, pre- and post-diagnostic services available. Longer waiting times to diagnosis were associated with lower emotional well-being and perceived disability-related support. Clinicians are encouraged to become part of the support network for parents of children with ASD, to help parents to adjust to caring for their child.
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Metagegevens
Titel
Understanding Hong Kong Chinese Families’ Experiences of an Autism/ASD Diagnosis
Auteurs
Kathleen Tait
Francis Fung
Aihua Hu
Naomi Sweller
Wei Wang
Publicatiedatum
16-11-2015
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 4/2016
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-015-2650-z