Top

Journal of Autism and Developmental Disorders

Tip

Swipe om te navigeren naar een ander artikel

Gepubliceerd in:

10-10-2020 | Original Paper

Trends Over a Decade in NIH Funding for Autism Spectrum Disorder Services Research

Auteurs: Paige E. Cervantes, Maya Matheis, Jasper Estabillo, Dana E. M. Seag, Katherine L. Nelson, Robin Peth-Pierce, Kimberly Eaton Hoagwood, Sarah McCue Horwitz

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 8/2021

Abstract

Investments in autism spectrum disorder (ASD) research, guided by the Interagency Autism Coordinating Committee (IACC), have focused disproportionately on etiology over a well-established stakeholder priority area: research to improve accessibility and quality of community-based services. This study analyzed National Institutes of Health ASD services research funding from 2008 to 2018 to examine funding patterns, evaluate the impact of IACC objectives, and identify future directions. Approximately 9% of total funds were allocated to services research. This investment remained relatively stable across time and lacked diversity across domains (e.g., area of focus, ages sampled, implementation strategies used). While advancements were observed, including increased prevalence of projects focused on adult samples and on dissemination/implementation and prevention areas, greater investment in service research is critically needed.

vorige artikel Autism Traits Predict Self-reported Executive Functioning Deficits in Everyday Life and an Aversion to Exercise

volgende artikel Network Analysis of Internet Addiction Symptoms Among a Clinical Sample of Japanese Adolescents with Autism Spectrum Disorder

Alleen toegankelijk voor geautoriseerde gebruikers

Autism Collaboration, Accountability, Research, Education, and Support (CARES) Act. (2014). Pub. L. 113–157.

Autism Collaboration, Accountability, Research, Education, and Support (CARES) Act. (2019). Pub. L. 116–60.

Cantor, J., McBain, R. K., Kofner, A., Stein, B. D., & Yu, H. (2020). Fewer than half of US mental health treatment facilities provide services for children with autism spectrum disorder: Results from a survey of US mental health treatment facilities on the availability of behavioral health care services for children with autism spectrum disorder. Health Affairs, 39(6), 968–974. https://doi.org/10.1377/hlthaff.2019.01557. CrossRefPubMed

Cidav, Z., Mandell, D., Pyne, J., Beidas, R., Curran, G., & Marcus, S. (2020). A pragmatic method for costing implementation strategies using time-driven activity-based costing. Implementation Science, 15(1), 28. https://doi.org/10.1186/s13012-020-00993-1. CrossRefPubMedPubMedCentral

Combating Autism Act (CAA). (2006). Pub. L. 109–416.

Combating Autism Reauthorization Act (CARA). (2011). Pub. L. 112–32.

Daniels, A. M., & Mandell, D. S. (2014). Explaining differences in age at autism spectrum disorder diagnosis: A critical review. Autism, 18(5), 583–597. https://doi.org/10.1177/1362361313480277. CrossRefPubMed

Eldevik, S., Hastings, R. P., Hughes, J. C., Jahr, E., Eikeseth, S., & Cross, S. (2009). Meta-analysis of early intensive behavioral intervention for children with autism. Journal of Clinical Child & Adolescent Psychology, 38(3), 439–450. https://doi.org/10.1080/15374410902851739. CrossRef

Farmer, J. E., Clark, M. J., Mayfield, W. A., Cheak-Zamora, N., Marvin, A. R., Law, J. K., et al. (2014). The relationship between the medical home and unmet needs for children with autism spectrum disorders. Maternal and Child Health Journal, 18(3), 672–680. https://doi.org/10.1007/s10995-013-1292-z. CrossRefPubMed

Frazier, T. W., Dawson, G., Murray, D., Shih, A., Sachs, J. S., & Geiger, A. (2018). Brief report: A survey of autism research priorities across a diverse community of stakeholders. Journal of Autism and Developmental Disorders, 48(11), 3965–3971. https://doi.org/10.1007/s10803-018-3642-6. CrossRefPubMed

Hoagwood, K. E., Atkins, M., Kelleher, K., Peth-Pierce, R., Olin, S., Burns, B., et al. (2018). Trends in children’s mental health services research funding by the national institute of mental health from 2005 to 2015: A 42% reduction. Journal of the American Academy of Child & Adolescent Psychiatry, 57(1), 10–13. https://doi.org/10.1016/j.jaac.2017.09.433. CrossRef

Interagency Autism Coordinating Committee (IACC). IACC Strategic Plan for Autism Spectrum Disorder (ASD) 2018–2019 Update.July 2020. Retrieved from the U.S. Department of Health and Human Services Interagency Autism Coordinating Committee website https://iacc.hhs.gov/strategic-plan/2019/.

Interagency Autism Coordinating Committee (IACC). (2014). IACC Strategic Plan for Autism Spectrum Disorder (ASD) Research —2013 Update. Retrieved from the U.S. Department of Health and Human Services Interagency Autism Coordinating Committee website https://iacc.hhs.gov/strategic-plan/2013/index.shtml.

Interagency Autism Coordinating Committee (IACC). (2017a). 2016–2017 Interagency Autism Coordinating Committee Strategic Plan For Autism Spectrum Disorder. Retrieved from the U.S. Department of Health and Human Services Interagency Autism Coordinating Committee website https://iacc.hhs.gov/publications/strategic-plan/2017/.

Leigh, J. P., & Du, J. (2015). Brief report: Forecasting the economic burden of autism in 2015 and 2025 in the united states. Journal of Autism and Developmental Disorders, 45(12), 4135–4139. https://doi.org/10.1007/s10803-015-2521-7. CrossRefPubMed

Maenner, M. J., Shaw, K. A., Baio, J., et al. (2020). Prevalence of autism spectrum disorder among children aged 8 years: Autism and developmental disabilities monitoring network, 11 sites, united states, 2016. MMWR Surveillance Summaries, 69(SS-4), 1–12. https://doi.org/10.15585/mmwr.ss6904a1. CrossRefPubMedCentral

Mandell, D., & Mandy, W. (2015). Should all young children be screened for autism spectrum disorder? Autism, 19(8), 895–896. https://doi.org/10.1177/1362361315608323. CrossRefPubMed

National Autism Center. (2015). Findings and conclusions: National standards project, phase 2. Randolph, MA: National Autism Center.

Office of Autism Research Coordination, National Institute of Mental Health, on behalf of the Interagency Autism Coordinating Committee (IACC). (2017b). 2014–2015 IACC Autism Spectrum Disorder Research Portfolio Analysis Report. Retrieved from the U.S. Department of Health and Human Services Interagency Autism Coordinating Committee website https://iacc.hhs.gov/portfolio-analysis/2015/index.shtml .

Office of Autism Research Coordination, National Institute of Mental Health, on behalf of the Interagency Autism Coordinating Committee (IACC). (2019). 2016 IACC Autism Spectrum Disorder Research Portfolio Analysis Report. Retrieved from the U.S. Department of Health and Human Services Interagency Autism Coordinating Committee website https://iacc.hhs.gov/portfolio-analysis/2016/index.shtml

Pellicano, E., Dinsmore, A., & Charman, T. (2014). What should autism research focus upon? Community views and priorities from the United Kingdom. Autism, 18(7), 756–770. https://doi.org/10.1177/1362361314529627. CrossRefPubMedPubMedCentral

Powell, B. J., Waltz, T. J., Chinman, M. J., Damschroder, L. J., Smith, J. L., Matthieu, M. M., et al. (2015). A refined compilation of implementation strategies: Results from the Expert Recommendations for Implementing Change (ERIC) project. Implementation Science, 10(1), 21. https://doi.org/10.1186/s13012-015-0209-1. CrossRefPubMedPubMedCentral

Proctor, E. K., Powell, B. J., & McMillen, J. C. (2013). Implementation strategies: Recommendations for specifying and reporting. Implementation Science, 8(1), 139. https://doi.org/10.1186/1748-5908-8-139. CrossRefPubMedPubMedCentral

Robins, D. L., Adamson, L. B., Barton, M., Connell, J. E., Dumont-Mathieu, T., Dworkin, P. H., et al. (2016). Universal autism screening for toddlers: Recommendations at odds. Journal of Autism and Developmental Disorders. https://doi.org/10.1007/s10803-016-2697-5. CrossRefPubMedPubMedCentral

Smith, D. P., Hayward, D. W., Gale, C. M., Eikeseth, S., & Klintwall, L. (2019). Treatment gains from early and intensive behavioral intervention (EIBI) are maintained 10 years later. Behavior Modification. https://doi.org/10.1177/0145445519882895. CrossRefPubMed

Smith, K. A., Gehricke, J.-G., Iadarola, S., Wolfe, A., & Kuhlthau, K. A. (2020). Disparities in service use among children with autism: A systematic review. Pediatrics, 145(Supplement 1), S35–S46. https://doi.org/10.1542/peds.2019-1895G. CrossRefPubMed

Suhrheinrich, J., Stahmer, A. C., Reed, S., Schreibman, L., Reisinger, E., & Mandell, D. (2013). Implementation challenges in translating pivotal response training into community settings. Journal of Autism and Developmental Disorders. https://doi.org/10.1007/s10803-013-1826-7. CrossRefPubMedPubMedCentral

Waltz, T. J., Powell, B. J., Matthieu, M. M., Damschroder, L. J., Chinman, M. J., Smith, J. L., et al. (2015). Use of concept mapping to characterize relationships among implementation strategies and assess their feasibility and importance: Results from the Expert Recommendations for Implementing Change (ERIC) study. Implementation Science, 10(1), 109. https://doi.org/10.1186/s13012-015-0295-0. CrossRefPubMedPubMedCentral

Wood, J. J., McLeod, B. D., Klebanoff, S., & Brookman-Frazee, L. (2015). Toward the implementation of evidence-based interventions for youth with autism spectrum disorders in schools and community agencies. Behavior Therapy, 46(1), 83–95. https://doi.org/10.1016/j.beth.2014.07.003. CrossRefPubMed

Ziskind, D., Bennett, A., Jawad, A., & Blum, N. (2020). Therapy and psychotropic medication use in young children with autism spectrum disorder. Pediatrics, 145(Suppl 1), S99–S107. https://doi.org/10.1542/peds.2019-1895M. CrossRefPubMed

Zwaigenbaum, L. (2010). Advances in the early detection of autism. Current Opinion in Neurology, 23(2), 97–102. https://doi.org/10.1097/WCO.0b013e3283372430. CrossRefPubMed

Titel: Trends Over a Decade in NIH Funding for Autism Spectrum Disorder Services Research
Auteurs: Paige E. Cervantes
Maya Matheis
Jasper Estabillo
Dana E. M. Seag
Katherine L. Nelson
Robin Peth-Pierce
Kimberly Eaton Hoagwood
Sarah McCue Horwitz
Publicatiedatum: 10-10-2020
Uitgeverij: Springer US
Gepubliceerd in: Journal of Autism and Developmental Disorders / Uitgave 8/2021
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI: https://doi.org/10.1007/s10803-020-04746-3

Mijn bibliotheek

Shop

Tips voor Mijn BSL

Bohn Stafleu van Loghum

Tip

Swipe om te navigeren naar een ander artikel

Trends Over a Decade in NIH Funding for Autism Spectrum Disorder Services Research

Abstract

Mijn bibliotheek

Shop

Tips voor Mijn BSL

Bohn Stafleu van Loghum

Tip

Swipe om te navigeren naar een ander artikel

Deel dit onderdeel of sectie (kopieer de link)

Abstract

Log in om toegang te krijgen

Andere artikelen Uitgave 8/2021

Implicit Semantic Processing of Linguistic and Non-linguistic Stimuli in Adults with Autism Spectrum Disorder

Overcoming Language Barriers between Interventionists and Immigrant Parents of Children with Autism Spectrum Disorder

A Preliminary Epidemiologic Study of Social (Pragmatic) Communication Disorder Relative to Autism Spectrum Disorder and Developmental Disability Without Social Communication Deficits

Referral, Assessment and Use of Screening Measures Related to Autism Spectrum Disorder at a Tertiary Hospital Setting

Brief Report: Reactivity to Accelerometer Measurement among Adolescents with Autism Spectrum Disorder

Development and Psychometric Properties of a New Questionnaire to Assess Mental Health and Concerning Behaviors in Children and Young People with Autism Spectrum Disorder (ASD): The Assessment of Concerning Behavior (ACB) Scale