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Gepubliceerd in: Journal of Autism and Developmental Disorders 1/2013

01-01-2013 | Original Paper

Treatments for Neurodevelopmental Disorders: Evidence, Advocacy, and the Internet

Auteurs: Nina C. Di Pietro, Louise Whiteley, Ania Mizgalewicz, Judy Illes

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 1/2013

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Abstract

The Internet is a major source of health-related information for parents of sick children despite concerns surrounding quality. For neurodevelopmental disorders, the websites of advocacy groups are a largely unexamined source of information. We evaluated treatment information posted on nine highly-trafficked advocacy websites for autism, cerebral palsy, and fetal alcohol spectrum disorder. We found that the majority of claims about treatment safety and efficacy were unsubstantiated. Instead, a range of rhetorical strategies were used to imply scientific support. When peer-reviewed publications were cited, 20 % were incorrect or irrelevant. We call for new partnerships between advocacy and experts in developmental disorders to ensure better accuracy and higher transparency about how treatment information is selected and evidenced on advocacy websites.
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Metagegevens
Titel
Treatments for Neurodevelopmental Disorders: Evidence, Advocacy, and the Internet
Auteurs
Nina C. Di Pietro
Louise Whiteley
Ania Mizgalewicz
Judy Illes
Publicatiedatum
01-01-2013
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 1/2013
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-012-1551-7

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