Skip to main content
main-content
Top

Tip

Swipe om te navigeren naar een ander artikel

Gepubliceerd in: Quality of Life Research 5/2016

01-05-2016 | Review

Time and chronic illness: a narrative review

Auteur: Tanisha Jowsey

Gepubliceerd in: Quality of Life Research | Uitgave 5/2016

Log in om toegang te krijgen
share
DELEN

Deel dit onderdeel of sectie (kopieer de link)

  • Optie A:
    Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
  • Optie B:
    Deel de link per e-mail

Abstract

Purpose

This narrative review is concerned with the ways in which the relationships between time and chronic illnesses have been chartered in recent literature. It aims to identify types of time (referred to here as temporal structures) most commonly reported in chronic illness literature and to assess their bearing on people’s lived experiences.

Methods

Literature searches of three electronic databases (Google Scholar, MEDLINE, and PubMed) were carried out in November 2014 of articles published between 1970 and 2013 using the following search terms (and derivatives): chronic illness AND time AND (patient OR carer). The review followed four procedural steps: (a) comprehensive search, (b) temporal structure appraisal, (c) synthesis of findings, and (d) critical appraisal.

Results

Forty studies met the inclusion criteria and were included for review. Four types of called temporal structures had a strong presence in the literature: calendar and clocked time, biographical time, past–present–future time, and inner time and rhythms. The first three temporal structures are largely understood socially, and the fourth is predominantly understood in and through the body. Several studies reported more than one temporal structure as informing people’s chronic illness experiences. A wide array of chronic illnesses were represented in these studies. Few studies reported on the experiences of people with multi-morbid chronic illnesses.

Conclusion

Chronic illness induces new relationships to time. Drawing on Hyden (Sociol Health Illn 19(1):48–69, 1997), it is suggested that “narrative” storytelling—as a temporally informed analytic device—might prove effective for reconciling the tensions emergent from new and multiple relationships to time that chronic and multiple illnesses create. Opportunities exist for healthcare practitioners and health services to offer patients illness support that is cognisant of their relationships to time.

Met onderstaand(e) abonnement(en) heeft u direct toegang:

BSL Podotherapeut Totaal

Binnen de bundel kunt u gebruik maken van boeken, tijdschriften, e-learnings, web-tv's en uitlegvideo's. BSL Podotherapeut Totaal is overal toegankelijk; via uw PC, tablet of smartphone.

Literatuur
1.
go back to reference World Health Organization. (2002). Innovative care for chronic conditions: Building blocks for action: Global report. Geneva: World Health Organization. World Health Organization. (2002). Innovative care for chronic conditions: Building blocks for action: Global report. Geneva: World Health Organization.
2.
go back to reference Baumeister, R. F., & Leary, M. R. (1997). Writing narrative literature reviews. Review of general psychology, 1(3), 311. CrossRef Baumeister, R. F., & Leary, M. R. (1997). Writing narrative literature reviews. Review of general psychology, 1(3), 311. CrossRef
3.
go back to reference Charmaz, K. (1993). Good days, bay days: The self in chronic illness and time. Piscataway Township, NJ: Rutgers University Press. Charmaz, K. (1993). Good days, bay days: The self in chronic illness and time. Piscataway Township, NJ: Rutgers University Press.
5.
go back to reference Jowsey, T. (2013). Chronic illness time. Canberra: Australian National University. Jowsey, T. (2013). Chronic illness time. Canberra: Australian National University.
6.
go back to reference Jowsey, T., McRae, I. S., Valderas, J. M., Dugdale, P., Phillips, R., Bunton, R., et al. (2013). Time’s up. Descriptive epidemiology of multi-morbidity and time spent on health related activity by older Australians: A time use survey. PLoS One, 8(4), e59379. PubMedPubMedCentralCrossRef Jowsey, T., McRae, I. S., Valderas, J. M., Dugdale, P., Phillips, R., Bunton, R., et al. (2013). Time’s up. Descriptive epidemiology of multi-morbidity and time spent on health related activity by older Australians: A time use survey. PLoS One, 8(4), e59379. PubMedPubMedCentralCrossRef
7.
go back to reference Jowsey, T., Yen, L., & Matthews, P. W. (1044). Time spent on health related activities associated with chronic illness: A scoping literature review. BMC Public Health, 2012(12), 1–12. Jowsey, T., Yen, L., & Matthews, P. W. (1044). Time spent on health related activities associated with chronic illness: A scoping literature review. BMC Public Health, 2012(12), 1–12.
8.
go back to reference Jowsey, T., Yen, L. E., Bagheri, N., & McRae, I. S. (2014). Time spent by people managing chronic obstructive pulmonary disease indicates biographical disruption. International Journal of Chronic Obstructive Pulmonary Disease, 9, 87. PubMedPubMedCentralCrossRef Jowsey, T., Yen, L. E., Bagheri, N., & McRae, I. S. (2014). Time spent by people managing chronic obstructive pulmonary disease indicates biographical disruption. International Journal of Chronic Obstructive Pulmonary Disease, 9, 87. PubMedPubMedCentralCrossRef
9.
go back to reference McKenna, K., Liddle, J., Brown, A., Lee, K., & Gustafsson, L. (2009). Comparison of time use, role participation and life satisfaction of older people after stroke with a sample without stroke. Australian Occupational Therapy Journal, 56(3), 177–188. PubMedCrossRef McKenna, K., Liddle, J., Brown, A., Lee, K., & Gustafsson, L. (2009). Comparison of time use, role participation and life satisfaction of older people after stroke with a sample without stroke. Australian Occupational Therapy Journal, 56(3), 177–188. PubMedCrossRef
10.
go back to reference Yen, L., McRae, I. S., Jowsey, T., Gillespie, J., Dugdale, P., Banfield, M., et al. (2013). Health work by older people with chronic illness: How much time does it take? Chronic Illness, 9(4), 268–282. PubMedCrossRef Yen, L., McRae, I. S., Jowsey, T., Gillespie, J., Dugdale, P., Banfield, M., et al. (2013). Health work by older people with chronic illness: How much time does it take? Chronic Illness, 9(4), 268–282. PubMedCrossRef
11.
go back to reference AIHW. (2006). Chronic diseases and associated risk factors in Australia, 2006. Report No.: AIHW Cat. No. PHE 81. Canberra: Australian Institute of Health and Welfare. November, 2006. AIHW. (2006). Chronic diseases and associated risk factors in Australia, 2006. Report No.: AIHW Cat. No. PHE 81. Canberra: Australian Institute of Health and Welfare. November, 2006.
12.
go back to reference Bittman, M., Fisher, K., Hill, P., & Thomson, C. (2005). The time cost of care. International Journal of Time Use Research, 2(1), 54–66. CrossRef Bittman, M., Fisher, K., Hill, P., & Thomson, C. (2005). The time cost of care. International Journal of Time Use Research, 2(1), 54–66. CrossRef
13.
go back to reference Bittman, M., Hill, T., & Thomson, C. (2007). The impact of caring on informal carers’ employment, income and earnings: A longitudinal approcah. Australian Journal of Social Issues, 42(2), 255–272. Bittman, M., Hill, T., & Thomson, C. (2007). The impact of caring on informal carers’ employment, income and earnings: A longitudinal approcah. Australian Journal of Social Issues, 42(2), 255–272.
14.
go back to reference Bittman, M., & Thomson, C. (2000). Invisible support: The determinants of time spent in informal care. In J. Warburton & M. Oppenheimer (Eds.), Volunteers and volunteering (pp. 98–112). Sydney: Federation Press. Bittman, M., & Thomson, C. (2000). Invisible support: The determinants of time spent in informal care. In J. Warburton & M. Oppenheimer (Eds.), Volunteers and volunteering (pp. 98–112). Sydney: Federation Press.
15.
go back to reference Bookman, A., & Harrington, M. (2007). Family caregivers: A shadow workforce in the geriatric health care system? Journal of Health Politics, Policy and Law, 32(6), 1005–1041. PubMedCrossRef Bookman, A., & Harrington, M. (2007). Family caregivers: A shadow workforce in the geriatric health care system? Journal of Health Politics, Policy and Law, 32(6), 1005–1041. PubMedCrossRef
16.
go back to reference Ettner, S. L., Cadwell, B. L., Russell, L. B., Brown, A., Karter, A. J., Safford, M., et al. (2009). Investing time in health: Do socio-economically disadvantaged patients spend more or less extra time on diabetes self-care? Health Economics, 18, 645–663. PubMedPubMedCentralCrossRef Ettner, S. L., Cadwell, B. L., Russell, L. B., Brown, A., Karter, A. J., Safford, M., et al. (2009). Investing time in health: Do socio-economically disadvantaged patients spend more or less extra time on diabetes self-care? Health Economics, 18, 645–663. PubMedPubMedCentralCrossRef
17.
go back to reference Jowsey, T., McRae, I., Banfield, M., Gillespie, J., & Yen, L. (2013). Time to care? Health of informal older carers and time spent on health related activities: An Australian survey. BMC Public Health, 13, 374–394. PubMedPubMedCentralCrossRef Jowsey, T., McRae, I., Banfield, M., Gillespie, J., & Yen, L. (2013). Time to care? Health of informal older carers and time spent on health related activities: An Australian survey. BMC Public Health, 13, 374–394. PubMedPubMedCentralCrossRef
18.
go back to reference Jowsey, T., Yen, L., Ward, N., McNab, J., Aspin, C., & Usherwood, T. (2012). It hinges on the door: Time, spaces and identity in Australian Aboriginal Health Services. Health Sociology Review, 21(2), 196–207. CrossRef Jowsey, T., Yen, L., Ward, N., McNab, J., Aspin, C., & Usherwood, T. (2012). It hinges on the door: Time, spaces and identity in Australian Aboriginal Health Services. Health Sociology Review, 21(2), 196–207. CrossRef
20.
go back to reference McCoy, L. (2009). Time, self and the medication day: A closer look at the everyday work of ‘adherence’. Sociology of Health and Illness, 31(1), 128–146. PubMedCrossRef McCoy, L. (2009). Time, self and the medication day: A closer look at the everyday work of ‘adherence’. Sociology of Health and Illness, 31(1), 128–146. PubMedCrossRef
21.
go back to reference Russell, L. B., Dong-Churl, S., & Safford, M. M. (2005). Time requirements for diabetes self-management: Too much for many? The Journal of Family Practice, 54(1), 52–56. PubMed Russell, L. B., Dong-Churl, S., & Safford, M. M. (2005). Time requirements for diabetes self-management: Too much for many? The Journal of Family Practice, 54(1), 52–56. PubMed
22.
go back to reference Russell, L. B., Ibuka, Y., & Carr, D. (2008). How much time do patients spend on outpatient visits?: The American time use survey. The Patient, 1(3), 211–222. PubMedCrossRef Russell, L. B., Ibuka, Y., & Carr, D. (2008). How much time do patients spend on outpatient visits?: The American time use survey. The Patient, 1(3), 211–222. PubMedCrossRef
23.
go back to reference Safford, M. M., Russell, L., Suh, D. C., Roman, S., & Pogach, L. (2005). How much time do patients with diabetes spend on self-care? Journal of the American Board of Family Practice, 18(4), 262–270. PubMedCrossRef Safford, M. M., Russell, L., Suh, D. C., Roman, S., & Pogach, L. (2005). How much time do patients with diabetes spend on self-care? Journal of the American Board of Family Practice, 18(4), 262–270. PubMedCrossRef
24.
go back to reference Yabroff, K. R., Warren, J. L., Knopf, K., Davis, W. W., & Brown, M. L. (2005). Estimating patient time costs associated with colorectal cancer care. Medical Care, 43(7), 640–648. PubMedCrossRef Yabroff, K. R., Warren, J. L., Knopf, K., Davis, W. W., & Brown, M. L. (2005). Estimating patient time costs associated with colorectal cancer care. Medical Care, 43(7), 640–648. PubMedCrossRef
25.
go back to reference Ziegert, K., Fridlund, B., & Lidell, E. (2009). “Time for dialysis as time to live”: Experiences of time in everyday life of the Swedish next of kin of hemodialysis patients. Nursing and Health Sciences, 11(1), 45–50. PubMedCrossRef Ziegert, K., Fridlund, B., & Lidell, E. (2009). “Time for dialysis as time to live”: Experiences of time in everyday life of the Swedish next of kin of hemodialysis patients. Nursing and Health Sciences, 11(1), 45–50. PubMedCrossRef
26.
go back to reference Pound, P., Gompertz, P., & Ebrahim, S. (1998). Illness in the context of old age: The case of stroke. Sociology of Health and Illness, 20(4), 489–506. CrossRef Pound, P., Gompertz, P., & Ebrahim, S. (1998). Illness in the context of old age: The case of stroke. Sociology of Health and Illness, 20(4), 489–506. CrossRef
27.
go back to reference Sanders, C., Donovan, J., & Dieppe, P. (2002). The significance and consequences of having painful and disabled joints in older age: Coexisting accounts of normal and disrupted biographies. Sociology of Health and Illness, 24(2), 227–253. CrossRef Sanders, C., Donovan, J., & Dieppe, P. (2002). The significance and consequences of having painful and disabled joints in older age: Coexisting accounts of normal and disrupted biographies. Sociology of Health and Illness, 24(2), 227–253. CrossRef
28.
go back to reference Faircloth, C., Boylstein, C., Rittman, M., & Young, M. E. (2004). Disrupted bodies: Experiencing the newly limited body in stroke. Symbolic Interaction, 27(1), 71–87. CrossRef Faircloth, C., Boylstein, C., Rittman, M., & Young, M. E. (2004). Disrupted bodies: Experiencing the newly limited body in stroke. Symbolic Interaction, 27(1), 71–87. CrossRef
29.
go back to reference Rittman, M., Faircloth, C., Boylstein, C., Tubrium, J. F., Williams, C., Van Puymbroeck, M., et al. (2004). The experience of time in the transition from hospital to home following stroke. Journal of Rehabilitation Research and Development, 41(3a), 259–268. PubMedCrossRef Rittman, M., Faircloth, C., Boylstein, C., Tubrium, J. F., Williams, C., Van Puymbroeck, M., et al. (2004). The experience of time in the transition from hospital to home following stroke. Journal of Rehabilitation Research and Development, 41(3a), 259–268. PubMedCrossRef
30.
go back to reference Bury, M. (1982). Chronic illness as biographical disruption. Sociology of Health and Illness, 4(2), 167–182. PubMedCrossRef Bury, M. (1982). Chronic illness as biographical disruption. Sociology of Health and Illness, 4(2), 167–182. PubMedCrossRef
31.
go back to reference Corbin, J., & Strauss, A. (1985). Managing chronic illness: Three lines of work. Qualitative Sociology, 8(3), 224–247. CrossRef Corbin, J., & Strauss, A. (1985). Managing chronic illness: Three lines of work. Qualitative Sociology, 8(3), 224–247. CrossRef
32.
go back to reference Corbin, J., & Strauss, A. (1992). The chronic illness trajectory framework: The Corbin and strauss nursing model. In P. Woog (Ed.), The chronic illness trajectory framework: The Corbin and Strauss nursing model (pp. 9–28). New York: Springer. Corbin, J., & Strauss, A. (1992). The chronic illness trajectory framework: The Corbin and strauss nursing model. In P. Woog (Ed.), The chronic illness trajectory framework: The Corbin and Strauss nursing model (pp. 9–28). New York: Springer.
33.
go back to reference Morris, D. (2008). Diabetes, chronic illness and the bodily roots of ecstatic temporality. Human Studies: A Journal for Philosophy and the Social Sciences, 31(4), 399–421. CrossRef Morris, D. (2008). Diabetes, chronic illness and the bodily roots of ecstatic temporality. Human Studies: A Journal for Philosophy and the Social Sciences, 31(4), 399–421. CrossRef
34.
go back to reference Harris, M. (2009). Troubling biographical disruption: Narratives of unconcern about hepatitis C diagnosis. Sociology of Health and Illness, 31(7), 1028–1042. PubMedCrossRef Harris, M. (2009). Troubling biographical disruption: Narratives of unconcern about hepatitis C diagnosis. Sociology of Health and Illness, 31(7), 1028–1042. PubMedCrossRef
35.
go back to reference Bosworth, H. B., Steinhauser, K. E., Orr, M., Lindquist, J. H., Grambow, S. C., & Oddone, E. Z. (2004). Congestive heart failure patients’ perceptions of quality of life: The integration of physical and psychosocial factors. Aging and Mental Health, 8(1), 83–91. PubMedCrossRef Bosworth, H. B., Steinhauser, K. E., Orr, M., Lindquist, J. H., Grambow, S. C., & Oddone, E. Z. (2004). Congestive heart failure patients’ perceptions of quality of life: The integration of physical and psychosocial factors. Aging and Mental Health, 8(1), 83–91. PubMedCrossRef
36.
go back to reference Chernus, L. A. (2011). Aging and the experience of ‘remembered’ time: A biopsychosocial exploration. Time and Society, 20(3), 325–345. CrossRef Chernus, L. A. (2011). Aging and the experience of ‘remembered’ time: A biopsychosocial exploration. Time and Society, 20(3), 325–345. CrossRef
37.
go back to reference Faircloth, C., Boylstein, C., Rittman, M., Young, M. E., & Gubrium, J. (2004). Sudden illness and biographical flow in narratives of stroke recovery. Sociology of Health and Illness, 26(2), 242–261. PubMedCrossRef Faircloth, C., Boylstein, C., Rittman, M., Young, M. E., & Gubrium, J. (2004). Sudden illness and biographical flow in narratives of stroke recovery. Sociology of Health and Illness, 26(2), 242–261. PubMedCrossRef
38.
go back to reference Morgan, M., & Thomas, M. (2009). Lay and professional constructions of time: Implications for illness behaviour and management of a chronic condition. Sociology, 43(3), 555–572. CrossRef Morgan, M., & Thomas, M. (2009). Lay and professional constructions of time: Implications for illness behaviour and management of a chronic condition. Sociology, 43(3), 555–572. CrossRef
39.
go back to reference Pinnock, H., Kendall, M., Murray, S. A., Worth, A., Levack, P., Porter, M., et al. (2011). Living and dying with severe chronic obstructive pulmonary disease: Multi-perspective longitudinal qualitative study. British Medical Journal, 342, d142. PubMedPubMedCentralCrossRef Pinnock, H., Kendall, M., Murray, S. A., Worth, A., Levack, P., Porter, M., et al. (2011). Living and dying with severe chronic obstructive pulmonary disease: Multi-perspective longitudinal qualitative study. British Medical Journal, 342, d142. PubMedPubMedCentralCrossRef
40.
go back to reference Ellingsen, S., Roxberg, A., Kristoffersen, K., Rosland, J. H., & Alvsvag, H. (2014). Being in transit and in transition: The experience of time at the place, when living with severe incurable disease—A phenomenological study. Scandinavian Journal of Caring Sciences, 28(3), 458–468. PubMedCrossRef Ellingsen, S., Roxberg, A., Kristoffersen, K., Rosland, J. H., & Alvsvag, H. (2014). Being in transit and in transition: The experience of time at the place, when living with severe incurable disease—A phenomenological study. Scandinavian Journal of Caring Sciences, 28(3), 458–468. PubMedCrossRef
41.
go back to reference Ellingsen, S., Roxberg, Å., Kristoffersen, K., Rosland, J. H., & Alvsvag, H. (2013). Entering a world with no future: A phenomenological study describing the embodied experience of time when living with severe incurable disease. Scandinavian Journal of Caring Sciences, 27(1), 165–174. PubMedCrossRef Ellingsen, S., Roxberg, Å., Kristoffersen, K., Rosland, J. H., & Alvsvag, H. (2013). Entering a world with no future: A phenomenological study describing the embodied experience of time when living with severe incurable disease. Scandinavian Journal of Caring Sciences, 27(1), 165–174. PubMedCrossRef
42.
go back to reference Jowsey, T., Ward, N. J., & Gardner, K. (2013). Agents in time: Representations of chronic illness. Health Sociology Review, 22(3), 243–254. CrossRef Jowsey, T., Ward, N. J., & Gardner, K. (2013). Agents in time: Representations of chronic illness. Health Sociology Review, 22(3), 243–254. CrossRef
43.
go back to reference Paterson, B. (2001). Myth of empowerment in chronic illness. Journal of Advanced Nursing, 34(5), 574–581. PubMedCrossRef Paterson, B. (2001). Myth of empowerment in chronic illness. Journal of Advanced Nursing, 34(5), 574–581. PubMedCrossRef
44.
go back to reference Townsend, A. (2011). Applying Bourdieu’s theory to accounts of living with multimorbidity. Chronic Illness, 8(2), 89–101. PubMedCrossRef Townsend, A. (2011). Applying Bourdieu’s theory to accounts of living with multimorbidity. Chronic Illness, 8(2), 89–101. PubMedCrossRef
45.
go back to reference Adam, B. (1995). Timewatch: A social analysis of time. Cambridge: Polity Press. Adam, B. (1995). Timewatch: A social analysis of time. Cambridge: Polity Press.
46.
go back to reference Postill, J. (2002). Clock and calendar time: A missing anthropological problem. Time and Society, 11(2/3), 251–270. Postill, J. (2002). Clock and calendar time: A missing anthropological problem. Time and Society, 11(2/3), 251–270.
47.
go back to reference Fabian, J. (1983). Time and the other: How anthropology makes its object. New York: Columbia University Press. Fabian, J. (1983). Time and the other: How anthropology makes its object. New York: Columbia University Press.
48.
go back to reference Griffiths, J. (1999). Pip Pip: A sideways look at time. New York: Harper Collins. Griffiths, J. (1999). Pip Pip: A sideways look at time. New York: Harper Collins.
49.
go back to reference Centre for the Advancement of Health. (1996). An indexed bibliography on self-management for people with chronic disease. Washington, DC: The Centre for Health Studies of Group Health Cooperative of Puget Sound. Centre for the Advancement of Health. (1996). An indexed bibliography on self-management for people with chronic disease. Washington, DC: The Centre for Health Studies of Group Health Cooperative of Puget Sound.
50.
go back to reference Armstrong, N. (1987). Coping with diabetes mellitus. A full-time job. Nursing Clinics of North America, 22(1), 559–568. PubMed Armstrong, N. (1987). Coping with diabetes mellitus. A full-time job. Nursing Clinics of North America, 22(1), 559–568. PubMed
51.
go back to reference Davies, K. (1994). The tensions between process time and clock time in care work: The example of day care nurseries. Time and Society, 3, 227–303. CrossRef Davies, K. (1994). The tensions between process time and clock time in care work: The example of day care nurseries. Time and Society, 3, 227–303. CrossRef
52.
go back to reference Carricaburu, D., & Pierret, J. (1995). From biographical disruption to biographical reinforcement: The case of HIV-positive men. Sociology of Health and Illness, 17(1), 65–90. CrossRef Carricaburu, D., & Pierret, J. (1995). From biographical disruption to biographical reinforcement: The case of HIV-positive men. Sociology of Health and Illness, 17(1), 65–90. CrossRef
53.
go back to reference Olsen, A., Banwell, C., & Dance, P. (2013). Reinforced biographies among women living with hepatitis C. Qualitative Health Research, 23(4), 531–540. PubMedCrossRef Olsen, A., Banwell, C., & Dance, P. (2013). Reinforced biographies among women living with hepatitis C. Qualitative Health Research, 23(4), 531–540. PubMedCrossRef
54.
go back to reference Williams, S. (2000). Chronic illness as biographical disruption or biographical disruption as chronic illness? Reflections on a core concept. Sociology of Health Illness, 22(1), 40–67. CrossRef Williams, S. (2000). Chronic illness as biographical disruption or biographical disruption as chronic illness? Reflections on a core concept. Sociology of Health Illness, 22(1), 40–67. CrossRef
55.
go back to reference Charmaz, K. (1989). The self in time. Studies of symbolic interaction, 10, 127–141. Charmaz, K. (1989). The self in time. Studies of symbolic interaction, 10, 127–141.
56.
go back to reference Adams, S., Pill, R., & Jones, A. (1997). Medication, chronic illness and identity: The perspective of people with asthma. Social Science and Medicine, 45(2), 189–201. PubMedCrossRef Adams, S., Pill, R., & Jones, A. (1997). Medication, chronic illness and identity: The perspective of people with asthma. Social Science and Medicine, 45(2), 189–201. PubMedCrossRef
57.
go back to reference Heidegger, M. (1962). Being and time. New York: State University of New York Press. Heidegger, M. (1962). Being and time. New York: State University of New York Press.
58.
go back to reference Subrt, J. (2001). The problem of time from the perspective of the social sciences. Czech Sociological Review, 9(2), 211–224. Subrt, J. (2001). The problem of time from the perspective of the social sciences. Czech Sociological Review, 9(2), 211–224.
59.
go back to reference Rutz, H. J. (Ed.). (2012). The politics of time (Vol. 4). Arlington: American Ethnological Society Monograph Series. Rutz, H. J. (Ed.). (2012). The politics of time (Vol. 4). Arlington: American Ethnological Society Monograph Series.
60.
go back to reference Gell, A. (1992). The anthropology of time: Cultural constructions of temporal maps and images. Oxford: Berg. Gell, A. (1992). The anthropology of time: Cultural constructions of temporal maps and images. Oxford: Berg.
61.
go back to reference Kenny, P. M., Hall, J. P., Zapart, S., & Davis, P. R. (2010). Informal care and home-based palliative care: The health-related quality of life of carers. Journal of Pain and Symptom Management, 40(1), 35–48. PubMedCrossRef Kenny, P. M., Hall, J. P., Zapart, S., & Davis, P. R. (2010). Informal care and home-based palliative care: The health-related quality of life of carers. Journal of Pain and Symptom Management, 40(1), 35–48. PubMedCrossRef
62.
go back to reference Merleau-Ponty, M. (1962). Phenomenology of perception. New York: Humanities Press. Merleau-Ponty, M. (1962). Phenomenology of perception. New York: Humanities Press.
63.
go back to reference Boxenbaum, H. (1986). Time concepts in physics, biology, and pharmacokinetics. Journal of Pharmaceutical Sciences, 75(11), 1053–1062. PubMedCrossRef Boxenbaum, H. (1986). Time concepts in physics, biology, and pharmacokinetics. Journal of Pharmaceutical Sciences, 75(11), 1053–1062. PubMedCrossRef
65.
go back to reference Kaufman, S. R. (2010). Time, clinic technologies, and the making of reflexive longevity: The cultural work of time left in an ageing society. Sociology of Health and Illness, 32(2), 225–237. PubMedCentralCrossRef Kaufman, S. R. (2010). Time, clinic technologies, and the making of reflexive longevity: The cultural work of time left in an ageing society. Sociology of Health and Illness, 32(2), 225–237. PubMedCentralCrossRef
66.
go back to reference Martin, C. M., Peterson, C., Robinson, R., & Sturmberg, J. P. (2009). Care for chronic illness in Australian general practice—Focus groups of chronic disease self-help groups over 10 years: Implications for chronic care systems reforms. Asia Pacific Family Medicine, 8(1), 1. PubMedPubMedCentralCrossRef Martin, C. M., Peterson, C., Robinson, R., & Sturmberg, J. P. (2009). Care for chronic illness in Australian general practice—Focus groups of chronic disease self-help groups over 10 years: Implications for chronic care systems reforms. Asia Pacific Family Medicine, 8(1), 1. PubMedPubMedCentralCrossRef
67.
go back to reference Valderas, J. M., Starfield, B., Sibbald, B., Salisbury, C., & Roland, M. (2009). Defining comorbidity: Implications for understanding health and health services. Annals of Family Medicine, 7(4), 357–363. PubMedPubMedCentralCrossRef Valderas, J. M., Starfield, B., Sibbald, B., Salisbury, C., & Roland, M. (2009). Defining comorbidity: Implications for understanding health and health services. Annals of Family Medicine, 7(4), 357–363. PubMedPubMedCentralCrossRef
68.
go back to reference Australian Institute of Health and Welfare. (2006). Chronic diseases and associated risk factors in Australia, 2006. Canberra: AIHW. Australian Institute of Health and Welfare. (2006). Chronic diseases and associated risk factors in Australia, 2006. Canberra: AIHW.
69.
go back to reference Australian Institute of Health and Welfare. (2010). Australia’s Health 2010. Australia’s health no. 12. Cat. no. AUS 122. ed. Canberra: AIHW. Australian Institute of Health and Welfare. (2010). Australia’s Health 2010. Australia’s health no. 12. Cat. no. AUS 122. ed. Canberra: AIHW.
70.
go back to reference Hydén, L. C. (1997). Illness and narrative. Sociology of Health and Illness, 19(1), 48–69. Hydén, L. C. (1997). Illness and narrative. Sociology of Health and Illness, 19(1), 48–69.
71.
go back to reference Labov, W. (1972). Language in the Inner City: Studies in the Black English Vernacular (Vol. 3). Pennsylvania: University of Pennsylvania Press. Labov, W. (1972). Language in the Inner City: Studies in the Black English Vernacular (Vol. 3). Pennsylvania: University of Pennsylvania Press.
72.
go back to reference Labov, W. (1982). Speech actions and reactions in personal narrative. In D. Tannen (Ed.), Analyzing Discourse: Text and Talk (pp. 219–247). Washington DC: Georgetown University Press. Labov, W. (1982). Speech actions and reactions in personal narrative. In D. Tannen (Ed.), Analyzing Discourse: Text and Talk (pp. 219–247). Washington DC: Georgetown University Press.
73.
go back to reference Labov, W. (2003). Uncovering the event structure of narrative. Round Table on Language and Linguistics(pp. 63–83). Georgetown: Georgetown University Press. Labov, W. (2003). Uncovering the event structure of narrative. Round Table on Language and Linguistics(pp. 63–83). Georgetown: Georgetown University Press.
74.
go back to reference Ricoeur, P. (1988). Time and narrative. Chicago: University of Chicago Press. Ricoeur, P. (1988). Time and narrative. Chicago: University of Chicago Press.
75.
76.
go back to reference Ricoeur, P. (2010). Time and narrative. Chicago: University of Chicago Press. Ricoeur, P. (2010). Time and narrative. Chicago: University of Chicago Press.
77.
go back to reference Ross, C. (2015). Digital storytelling: The new way to inspire hope in cancer patients. Calgary Herlad. 11:04 AM MDT, March 27, 2015. Ross, C. (2015). Digital storytelling: The new way to inspire hope in cancer patients. Calgary Herlad. 11:04 AM MDT, March 27, 2015.
78.
go back to reference Cox, A. M., & Albert, D. H. (2013). The healing heart for families: Storytelling to encourage caring and healthy families. Gabriola Island BC: New Society Publishers. Cox, A. M., & Albert, D. H. (2013). The healing heart for families: Storytelling to encourage caring and healthy families. Gabriola Island BC: New Society Publishers.
80.
go back to reference Chelf, J. H., Deshler, A. M. B., Hillman, S., & Durazo-Arvizu, R. (2000). Storytelling: A strategy for living and coping with cancer. Cancer Nursing, 23(1), 1–5. PubMedCrossRef Chelf, J. H., Deshler, A. M. B., Hillman, S., & Durazo-Arvizu, R. (2000). Storytelling: A strategy for living and coping with cancer. Cancer Nursing, 23(1), 1–5. PubMedCrossRef
Metagegevens
Titel
Time and chronic illness: a narrative review
Auteur
Tanisha Jowsey
Publicatiedatum
01-05-2016
Uitgeverij
Springer International Publishing
Gepubliceerd in
Quality of Life Research / Uitgave 5/2016
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-015-1169-2