Skip to main content
Top
Gepubliceerd in: Quality of Life Research 6/2009

01-08-2009

The use, feasibility and psychometric properties of an individualised quality-of-life instrument: a systematic review of the SEIQoL-DW

Auteurs: L. Wettergren, Å. Kettis-Lindblad, M. Sprangers, L. Ring

Gepubliceerd in: Quality of Life Research | Uitgave 6/2009

Log in om toegang te krijgen
share
DELEN

Deel dit onderdeel of sectie (kopieer de link)

  • Optie A:
    Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
  • Optie B:
    Deel de link per e-mail

Abstract

Purpose

To review published studies regarding the use, feasibility and psychometric performance of the schedule for the evaluation of individual quality of life—direct weighting (SEIQoL-DW) in clinical research.

Methods

Systematic literature review. Studies using the SEIQoL-DW were included if they were published in English and employed a quantitative design. A pre-defined checklist was used to analyse the reported results.

Results

Thirty-nine relevant articles were identified. The SEIQoL-DW has been included in studies relating to a variety of populations, including those who are severely ill. The results of convergent and discriminant validity support our hypotheses in which SEIQoL-DW was expected to correlate moderately to high with measures of global QoL, life satisfaction and mental health and weakly with measures of functional status and health.

Conclusion

The SEIQoL-DW appears to be a feasible and valid instrument. The lack of association between the Index score and health, functional status, demographic and clinical parameters may be explained by the instrument’s focus on global QoL and by that of the idiographic measurement approach reflecting the capacity of a patient to value domains other than health in life, despite having health problems. Nevertheless, continued psychometric evaluation in large populations with a longitudinal design is recommended.
Bijlagen
Alleen toegankelijk voor geautoriseerde gebruikers
Literatuur
1.
go back to reference Garratt, A., Schmidt, L., Mackintosh, A., & Fitzpatrick, R. (2002). Quality of life measurement: Bibliographic study of patient assessed health outcome measures. BMJ (Clinical Research Ed.), 324(7351), 1417. doi:10.1136/bmj.324.7351.1417.CrossRef Garratt, A., Schmidt, L., Mackintosh, A., & Fitzpatrick, R. (2002). Quality of life measurement: Bibliographic study of patient assessed health outcome measures. BMJ (Clinical Research Ed.), 324(7351), 1417. doi:10.​1136/​bmj.​324.​7351.​1417.CrossRef
2.
go back to reference Fayers, P. M., & Machin, D. (2007). Quality of life. The assessment, analysis and interpretation of patient-reported outcomes (2nd ed.). Chichester: Wiley. Fayers, P. M., & Machin, D. (2007). Quality of life. The assessment, analysis and interpretation of patient-reported outcomes (2nd ed.). Chichester: Wiley.
5.
go back to reference O’Boyle, C. A., McGee, H., Hickey, A., O’Malley, K., Joyce, C. R. B. (1992). Individual quality of life in patients undergoing hip replacement. Lancet, 339(May 2) 1088–1091. O’Boyle, C. A., McGee, H., Hickey, A., O’Malley, K., Joyce, C. R. B. (1992). Individual quality of life in patients undergoing hip replacement. Lancet, 339(May 2) 1088–1091.
7.
go back to reference McHorney, C. A., & Tarlov, A. R. (1995). Individual-patient monitoring in clinical practice: Are available health status surveys adequate? Quality of Life Research, 4(4), 293–307. doi:10.1007/BF01593882.PubMedCrossRef McHorney, C. A., & Tarlov, A. R. (1995). Individual-patient monitoring in clinical practice: Are available health status surveys adequate? Quality of Life Research, 4(4), 293–307. doi:10.​1007/​BF01593882.PubMedCrossRef
10.
go back to reference Hickey, A. M., Bury, G., O’Boyle, C. A., Bradley, F., O’Kelly, F. D., & Shannon, W. (1996). A new short form individual quality of life measure (SEIQoL-DW): Application in a cohort of individuals with HIV/AIDS. BMJ (Clinical Research Ed.), 313, 29–33. Hickey, A. M., Bury, G., O’Boyle, C. A., Bradley, F., O’Kelly, F. D., & Shannon, W. (1996). A new short form individual quality of life measure (SEIQoL-DW): Application in a cohort of individuals with HIV/AIDS. BMJ (Clinical Research Ed.), 313, 29–33.
11.
13.
go back to reference Martin, F., Camfield, L., Rodham, K., Kliempt, P., & Ruta, D. (2007). Twelve years’ experience with the Patient Generated Index (PGI) of quality of life: A graded structured review. Quality of Life Research, 16(4), 705–715. doi:10.1007/s11136-006-9152-6.PubMedCrossRef Martin, F., Camfield, L., Rodham, K., Kliempt, P., & Ruta, D. (2007). Twelve years’ experience with the Patient Generated Index (PGI) of quality of life: A graded structured review. Quality of Life Research, 16(4), 705–715. doi:10.​1007/​s11136-006-9152-6.PubMedCrossRef
14.
go back to reference Browne, J. P., O’Boyle, C. A., McGee, H. M., Joyce, C. R., McDonald, N. J., O’Malley, K., et al. (1994). Individual quality of life in the healthy elderly. Quality of Life Research, 3(4), 235–244. doi:10.1007/BF00434897.PubMedCrossRef Browne, J. P., O’Boyle, C. A., McGee, H. M., Joyce, C. R., McDonald, N. J., O’Malley, K., et al. (1994). Individual quality of life in the healthy elderly. Quality of Life Research, 3(4), 235–244. doi:10.​1007/​BF00434897.PubMedCrossRef
15.
go back to reference Waldron, D., O’Boyle, C. A., Kearney, M., Moriarty, M., & Carney, D. (1999). Quality-of-life measurement in advanced cancer: Assessing the individual. Journal of Clinical Oncology, 17(11), 3603–3611.PubMed Waldron, D., O’Boyle, C. A., Kearney, M., Moriarty, M., & Carney, D. (1999). Quality-of-life measurement in advanced cancer: Assessing the individual. Journal of Clinical Oncology, 17(11), 3603–3611.PubMed
16.
go back to reference O’Boyle, C. A. (1994). The schedule for the evaluation of the individual quality of life (SEIQoL). International Journal of Mental Health, 23(3), 3–23. O’Boyle, C. A. (1994). The schedule for the evaluation of the individual quality of life (SEIQoL). International Journal of Mental Health, 23(3), 3–23.
17.
go back to reference Chio, A., Gauthier, A., Montuschi, A., Di Vito, N., Ghiglione, P., & Mutani, R. (2004). A cross sectional study on determinants of quality of life in ALS. Journal of Neurology, Neurosurgery and Psychiatry, 75(11), 1597–1601. doi:10.1136/jnnp.2003.033100.CrossRef Chio, A., Gauthier, A., Montuschi, A., Di Vito, N., Ghiglione, P., & Mutani, R. (2004). A cross sectional study on determinants of quality of life in ALS. Journal of Neurology, Neurosurgery and Psychiatry, 75(11), 1597–1601. doi:10.​1136/​jnnp.​2003.​033100.CrossRef
18.
go back to reference De la Rie, S., Noordenbos, G., Donker, M., & van Furth, E. (2007). The patient’s view on quality of life and eating disorders. The International Journal of Eating Disorders, 40(1), 13–20. doi:10.1002/eat.20338.PubMedCrossRef De la Rie, S., Noordenbos, G., Donker, M., & van Furth, E. (2007). The patient’s view on quality of life and eating disorders. The International Journal of Eating Disorders, 40(1), 13–20. doi:10.​1002/​eat.​20338.PubMedCrossRef
20.
go back to reference Frick, E., Borasio, G. D., Zehentner, H., Fischer, N., & Bumeder, I. (2004). Individual quality of life of patients undergoing autologous peripheral blood stem cell transplantation. Psycho-Oncology, 13(2), 116–124. doi:10.1002/pon.730.PubMedCrossRef Frick, E., Borasio, G. D., Zehentner, H., Fischer, N., & Bumeder, I. (2004). Individual quality of life of patients undergoing autologous peripheral blood stem cell transplantation. Psycho-Oncology, 13(2), 116–124. doi:10.​1002/​pon.​730.PubMedCrossRef
21.
23.
go back to reference Lee, M. A., Walker, R. W., Hildreth, A. J., & Prentice, W. M. (2006). Individualized assessment of quality of life in idiopathic Parkinson’s disease. Movement Disorders, 21(11), 1929–1934. doi:10.1002/mds.21099.PubMedCrossRef Lee, M. A., Walker, R. W., Hildreth, A. J., & Prentice, W. M. (2006). Individualized assessment of quality of life in idiopathic Parkinson’s disease. Movement Disorders, 21(11), 1929–1934. doi:10.​1002/​mds.​21099.PubMedCrossRef
24.
go back to reference Levack, P., Graham, J., & Kidd, J. (2004). Listen to the patient: quality of life of patients with recently diagnosed malignant cord compression in relation to their disability. Palliative Medicine, 18(7), 594–601. doi:10.1191/0269216304pm925oa.PubMedCrossRef Levack, P., Graham, J., & Kidd, J. (2004). Listen to the patient: quality of life of patients with recently diagnosed malignant cord compression in relation to their disability. Palliative Medicine, 18(7), 594–601. doi:10.​1191/​0269216304pm925o​a.PubMedCrossRef
25.
go back to reference LeVasseur, S. A., Green, S., & Talman, P. (2005). The SEIQoL-DW is a valid method for measuring individual quality of life in stroke survivors attending a secondary prevention clinic. Quality of Life Research, 14(3), 779–788. doi:10.1007/s11136-004-0795-x.PubMedCrossRef LeVasseur, S. A., Green, S., & Talman, P. (2005). The SEIQoL-DW is a valid method for measuring individual quality of life in stroke survivors attending a secondary prevention clinic. Quality of Life Research, 14(3), 779–788. doi:10.​1007/​s11136-004-0795-x.PubMedCrossRef
27.
go back to reference Lintern, T. C., Beaumont, J. G., Kenealy, P. M., & Murrell, R. C. (2001). Quality of life (QoL) in severely disabled multiple sclerosis patients: Comparison of three QoL measures using multidimensional scaling. Quality of Life Research, 10(4), 371–378. doi:10.1023/A:1012219504134.PubMedCrossRef Lintern, T. C., Beaumont, J. G., Kenealy, P. M., & Murrell, R. C. (2001). Quality of life (QoL) in severely disabled multiple sclerosis patients: Comparison of three QoL measures using multidimensional scaling. Quality of Life Research, 10(4), 371–378. doi:10.​1023/​A:​1012219504134.PubMedCrossRef
28.
go back to reference Lo Coco, G., Lo Coco, D., Cicero, V., Oliveri, A., Lo Verso, G., Piccoli, F., et al. (2005). Individual and health-related quality of life assessment in amyotrophic lateral sclerosis patients and their caregivers. Journal of the Neurological Sciences, 238(1–2), 11–17. doi:10.1016/j.jns.2005.05.018.PubMedCrossRef Lo Coco, G., Lo Coco, D., Cicero, V., Oliveri, A., Lo Verso, G., Piccoli, F., et al. (2005). Individual and health-related quality of life assessment in amyotrophic lateral sclerosis patients and their caregivers. Journal of the Neurological Sciences, 238(1–2), 11–17. doi:10.​1016/​j.​jns.​2005.​05.​018.PubMedCrossRef
30.
32.
go back to reference Moons, P., Marquet, K., Budts, W., & De Geest, S. (2004). Validity, reliability and responsiveness of the “schedule for the evaluation of individual quality of life-direct weighting” (SEIQoL-DW) in congenital heart disease. Health and Quality of Life Outcomes, 2(1), 27. doi:10.1186/1477-7525-2-27.PubMedCrossRef Moons, P., Marquet, K., Budts, W., & De Geest, S. (2004). Validity, reliability and responsiveness of the “schedule for the evaluation of individual quality of life-direct weighting” (SEIQoL-DW) in congenital heart disease. Health and Quality of Life Outcomes, 2(1), 27. doi:10.​1186/​1477-7525-2-27.PubMedCrossRef
33.
go back to reference Moons, P., Van Deyk, K., De Geest, S., Gewillig, M., & Budts, W. (2005). Is the severity of congenital heart disease associated with the quality of life and perceived health of adult patients? Heart (British Cardiac Society), 91(9), 1193–1198. doi:10.1136/hrt.2004.042234. Moons, P., Van Deyk, K., De Geest, S., Gewillig, M., & Budts, W. (2005). Is the severity of congenital heart disease associated with the quality of life and perceived health of adult patients? Heart (British Cardiac Society), 91(9), 1193–1198. doi:10.​1136/​hrt.​2004.​042234.
34.
go back to reference Moons, P., Van Deyk, K., Marquet, K., Raes, E., De Bleser, L., Budts, W., et al. (2005). Individual quality of life in adults with congenital heart disease: A paradigm shift. European Heart Journal, 26(3), 298–307. doi:10.1093/eurheartj/ehi054.PubMedCrossRef Moons, P., Van Deyk, K., Marquet, K., Raes, E., De Bleser, L., Budts, W., et al. (2005). Individual quality of life in adults with congenital heart disease: A paradigm shift. European Heart Journal, 26(3), 298–307. doi:10.​1093/​eurheartj/​ehi054.PubMedCrossRef
35.
go back to reference Mountain, L. A., Campbell, S. E., Seymour, D. G., Primrose, W. R., & Whyte, M. I. (2004). Assessment of individual quality of life using the SEIQoL-DW in older medical patients. QJM, 97(8), 519–524. doi:10.1093/qjmed/hch081.PubMedCrossRef Mountain, L. A., Campbell, S. E., Seymour, D. G., Primrose, W. R., & Whyte, M. I. (2004). Assessment of individual quality of life using the SEIQoL-DW in older medical patients. QJM, 97(8), 519–524. doi:10.​1093/​qjmed/​hch081.PubMedCrossRef
37.
go back to reference Rattray, J., Johnston, M., & Wildsmith, J. A. W. (1998). Assessment of individual quality of life in survivors of intensive care. Nursing in Critical Care, 3(5), 220–226.PubMed Rattray, J., Johnston, M., & Wildsmith, J. A. W. (1998). Assessment of individual quality of life in survivors of intensive care. Nursing in Critical Care, 3(5), 220–226.PubMed
39.
go back to reference Tovbin, D., Gidron, Y., Jean, T., Granovsky, R., & Schnieder, A. (2003). Relative importance and interrelations between psychosocial factors and individualized quality of life of hemodialysis patients. Quality of Life Research, 12(6), 709–717. doi:10.1023/A:1025101601822.PubMedCrossRef Tovbin, D., Gidron, Y., Jean, T., Granovsky, R., & Schnieder, A. (2003). Relative importance and interrelations between psychosocial factors and individualized quality of life of hemodialysis patients. Quality of Life Research, 12(6), 709–717. doi:10.​1023/​A:​1025101601822.PubMedCrossRef
40.
go back to reference Wettergren, L., Bjorkholm, M., Axdorph, U., Bowling, A., & Langius-Eklof, A. (2003). Individual quality of life in long-term survivors of Hodgkin’s lymphoma—a comparative study. Quality of Life Research, 12(5), 545–554. doi:10.1023/A:1025024008139.PubMedCrossRef Wettergren, L., Bjorkholm, M., Axdorph, U., Bowling, A., & Langius-Eklof, A. (2003). Individual quality of life in long-term survivors of Hodgkin’s lymphoma—a comparative study. Quality of Life Research, 12(5), 545–554. doi:10.​1023/​A:​1025024008139.PubMedCrossRef
42.
go back to reference Wettergren, L., Bjorkholm, M., & Langius-Eklof, A. (2005). Validation of an extended version of the SEIQoL-DW in a cohort of Hodgkin lymphoma’ survivors. Quality of Life Research, 14(10), 2331–2335. doi:10.1007/s11136-005-8165-x.CrossRef Wettergren, L., Bjorkholm, M., & Langius-Eklof, A. (2005). Validation of an extended version of the SEIQoL-DW in a cohort of Hodgkin lymphoma’ survivors. Quality of Life Research, 14(10), 2331–2335. doi:10.​1007/​s11136-005-8165-x.CrossRef
43.
go back to reference Neudert, C., Wasner, M., & Borasio, G. D. (2004). Individual quality of life is not correlated with health-related quality of life or physical function in patients with amyotrophic lateral sclerosis. Journal of Palliative Medicine, 7(4), 551–557. doi:10.1089/jpm.2004.7.551.PubMedCrossRef Neudert, C., Wasner, M., & Borasio, G. D. (2004). Individual quality of life is not correlated with health-related quality of life or physical function in patients with amyotrophic lateral sclerosis. Journal of Palliative Medicine, 7(4), 551–557. doi:10.​1089/​jpm.​2004.​7.​551.PubMedCrossRef
44.
go back to reference Ring, L., Hofer, S., Heuston, F., Harris, D., & O’Boyle, C. A. (2005). Response shift masks the treatment impact on patient reported outcomes (PROs): the example of individual quality of life in edentulous patients. Health and Quality of Life Outcomes, 3, 55. doi:10.1186/1477-7525-3-55.PubMedCrossRef Ring, L., Hofer, S., Heuston, F., Harris, D., & O’Boyle, C. A. (2005). Response shift masks the treatment impact on patient reported outcomes (PROs): the example of individual quality of life in edentulous patients. Health and Quality of Life Outcomes, 3, 55. doi:10.​1186/​1477-7525-3-55.PubMedCrossRef
45.
go back to reference Sharpe, L., Butow, P., Smith, C., McConnell, D., & Clarke, S. (2005). Changes in quality of life in patients with advanced cancer: Evidence of response shift and response restriction. Journal of pychosomatic research, 58(6), 497–504.CrossRef Sharpe, L., Butow, P., Smith, C., McConnell, D., & Clarke, S. (2005). Changes in quality of life in patients with advanced cancer: Evidence of response shift and response restriction. Journal of pychosomatic research, 58(6), 497–504.CrossRef
46.
go back to reference Coen, R. F., O’Boyle, C. A., Swanwick, G. R. J., & Coakley, D. (1999). Measuring the impact on relatives of caring for people with Alzheimer’s disease: Quality of life, burden and well-being. Psychology & Health, 14(2), 253–261. doi:10.1080/08870449908407326.CrossRef Coen, R. F., O’Boyle, C. A., Swanwick, G. R. J., & Coakley, D. (1999). Measuring the impact on relatives of caring for people with Alzheimer’s disease: Quality of life, burden and well-being. Psychology & Health, 14(2), 253–261. doi:10.​1080/​0887044990840732​6.CrossRef
47.
go back to reference Hickey, A. M., O’Boyle, C. A., McGee, H. M., & McDonald, N. J. (1997). The relationship between post-trauma problem reporting and carer quality of life after severe head injury. Psychology & Health, 12(6), 827–838. doi:10.1080/08870449708406743.CrossRef Hickey, A. M., O’Boyle, C. A., McGee, H. M., & McDonald, N. J. (1997). The relationship between post-trauma problem reporting and carer quality of life after severe head injury. Psychology & Health, 12(6), 827–838. doi:10.​1080/​0887044970840674​3.CrossRef
48.
go back to reference Bain, G. H., Lemmon, H., Teunisse, S., Starr, J. M., Fox, H. C., Deary, I. J., et al. (2003). Quality of life in healthy old age: Relationships with childhood IQ, minor psychological symptoms and optimism. Social Psychiatry and Psychiatric Epidemiology, 38(11), 632–636. doi:10.1007/s00127-003-0685-5.PubMedCrossRef Bain, G. H., Lemmon, H., Teunisse, S., Starr, J. M., Fox, H. C., Deary, I. J., et al. (2003). Quality of life in healthy old age: Relationships with childhood IQ, minor psychological symptoms and optimism. Social Psychiatry and Psychiatric Epidemiology, 38(11), 632–636. doi:10.​1007/​s00127-003-0685-5.PubMedCrossRef
49.
go back to reference Ring, L., Lindblad, A. K., Bendtsen, P., Viklund, E., Jansson, R., & Glimelius, B. (2006). Feasibility and validity of a computer administered version of SEIQoL-DW. Quality of Life Research, 15(7), 1173–1177. doi:10.1007/s11136-006-0052-6.PubMedCrossRef Ring, L., Lindblad, A. K., Bendtsen, P., Viklund, E., Jansson, R., & Glimelius, B. (2006). Feasibility and validity of a computer administered version of SEIQoL-DW. Quality of Life Research, 15(7), 1173–1177. doi:10.​1007/​s11136-006-0052-6.PubMedCrossRef
51.
go back to reference Krivohlavy, J., & Petrikova, F. (2001). Faith, meaningfulness and quality of life. Studia Psychologica, 43(3), 211–214. Krivohlavy, J., & Petrikova, F. (2001). Faith, meaningfulness and quality of life. Studia Psychologica, 43(3), 211–214.
53.
go back to reference McGee, H. M., O’Boyle, C. A., Hickey, A., O’Malley, K., & Joyce, C. R. B. (1991). Assessing the quality of life of the individual: The SEIQoL with a healthy and a gastroenterology unit population. Psychological Medicine, 21, 749–759.PubMedCrossRef McGee, H. M., O’Boyle, C. A., Hickey, A., O’Malley, K., & Joyce, C. R. B. (1991). Assessing the quality of life of the individual: The SEIQoL with a healthy and a gastroenterology unit population. Psychological Medicine, 21, 749–759.PubMedCrossRef
54.
go back to reference Kettis-Lindblad, A., Ring, L., Widmark, E., Bendtsen, P., & Glimelius, B. (2007). Patients’ and doctors’ views of using the schedule for individual quality of life in clinical practice. The Journal of Supportive Oncology, 5(6), 281–287.PubMed Kettis-Lindblad, A., Ring, L., Widmark, E., Bendtsen, P., & Glimelius, B. (2007). Patients’ and doctors’ views of using the schedule for individual quality of life in clinical practice. The Journal of Supportive Oncology, 5(6), 281–287.PubMed
56.
go back to reference Wettergren, L., Sprangers, M., Bjorkholm, M., & Langius-Eklof, A. (2008). Quality of life before and one year following stem cell transplantation using an individualized and a standardized instrument. Psycho-Oncology, 17(4), 338–346. doi:10.1002/pon.1240.PubMedCrossRef Wettergren, L., Sprangers, M., Bjorkholm, M., & Langius-Eklof, A. (2008). Quality of life before and one year following stem cell transplantation using an individualized and a standardized instrument. Psycho-Oncology, 17(4), 338–346. doi:10.​1002/​pon.​1240.PubMedCrossRef
57.
go back to reference Bayle, B., Kemoun, G., Migaud, H., & Thevenon, A. (2000). Comparison of two modes of administration of a personalized quality of life scale in a longitudinal study of total hip arthroplasty. Joint, Bone, Spine, 67(2), 101–106.PubMed Bayle, B., Kemoun, G., Migaud, H., & Thevenon, A. (2000). Comparison of two modes of administration of a personalized quality of life scale in a longitudinal study of total hip arthroplasty. Joint, Bone, Spine, 67(2), 101–106.PubMed
60.
go back to reference Sundberg, K., Lampic, C., Björk, O., Arvidson, J., & Wettergren, L. (2008). Positive and negative consequences of childhood cancer influencing the lives of young adults. European Journal of Oncology Nursing. doi:10.1016/j.ejon.2008.05.009. Sundberg, K., Lampic, C., Björk, O., Arvidson, J., & Wettergren, L. (2008). Positive and negative consequences of childhood cancer influencing the lives of young adults. European Journal of Oncology Nursing. doi:10.​1016/​j.​ejon.​2008.​05.​009.
Metagegevens
Titel
The use, feasibility and psychometric properties of an individualised quality-of-life instrument: a systematic review of the SEIQoL-DW
Auteurs
L. Wettergren
Å. Kettis-Lindblad
M. Sprangers
L. Ring
Publicatiedatum
01-08-2009
Uitgeverij
Springer Netherlands
Gepubliceerd in
Quality of Life Research / Uitgave 6/2009
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-009-9490-2

Andere artikelen Uitgave 6/2009

Quality of Life Research 6/2009 Naar de uitgave