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Journal of Autism and Developmental Disorders

Gepubliceerd in:

09-01-2020 | Original Paper

The Types and Functions of Social Supports Used by Parents Caring for a Child With Autism Spectrum Disorder

Auteurs: Daniel Shepherd, Sonja Goedeke, Jason Landon, Jake Meads

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 4/2020

Abstract

The challenges faced by parents caring for a child with Autism Spectrum Disorder (ASD) can amplify parenting stress, though the impacts of these challenges can be alleviated by social supports. A sample of 674 parent volunteers completed a survey probing the types of social supports currently being used, what function (i.e., tangible, emotional, financial, informational) they judged them to perform, and how each of the utilised supports reduced parenting stress and was considered helpful. Results indicated that informal social supports and social media were perceived as more helpful than formal supports, which were typically perceived in a neutral manner by parents. Overall, the study indicates that addressing the support needs of parents of a child with ASD remains a priority.

vorige artikel Do Parental Interviews for ASD Converge with Clinical Diagnoses? An Empirical Comparison of the 3di and the DISCO in Children with ASD, a Clinically-Referred Group, and Typically Developing Children

volgende artikel Autism Symptoms, Executive Functioning and Academic Progress in Higher Education Students

Abel, S., Machin, T., & Brownlow, C. (2019). Support, socialise and advocate: An exploration of the stated purposes of Facebook autism groups. Research in Autism Spectrum Disorders,61, 10–21. https://doi.org/10.1016/j.rasd.2019.01.009.CrossRef

Abramson, T. A. (2015). Older adults: the “Panini Sandwich” generation. Clinical Gerontologist,38(4), 251–267.CrossRef

Azad, G., & Mandell, D. S. (2016). Concerns of parents and teachers of children with autism in elementary school. Autism,20(4), 435–441. https://doi.org/10.1177/1362361315588199.CrossRefPubMed

Barak-Levy, Y., & Atzaba-Poria, N. A. (2013). Paternal versus maternal coping styles with child diagnosis of developmental delay. Research in Developmental Disabilities,34(6), 2040–2046. https://doi.org/10.1016/j.ridd.2013.02.026.CrossRefPubMed

Begeer, S., Mandell, D., Wijnker-Holmes, B., et al. (2013). Sex differences in the timing of identification among children and adults with autism spectrum disorders. Journal of Autism and Developmental Disorders,43, 1151. https://doi.org/10.1007/s10803-012-1656-z.CrossRefPubMed

Benson, P. R. (2012). Network characteristics, perceived social support, and psychological adjustment in mothers of children with autism spectrum disorder. Journal of Autism and Developmental Disorders,42(12), 2597–2610. https://doi.org/10.1007/s10803-012-1517-9.CrossRefPubMed

Boyd, B. A. (2002). Examining the relationship between stress and lack of social support in mothers of children with autism. Focus on Autism and Other Developmental Disabilities,17(4), 208–215. https://doi.org/10.1177/10883576020170040301.CrossRef

Bromley, J., Hare, D. J., Davison, K., & Emerson, E. (2004). Mothers supporting children with autistic spectrum disorders: Social support, mental health status and satisfaction with services. Autism,8(4), 409–423. https://doi.org/10.1177/1362361304047224.CrossRefPubMed

Cadman, T., Eklund, H., Howley, D., Hayward, H., Clarke, H., Findon, J., … Glaser, K. (2012). Caregiver burden as people with autism spectrum disorder and attention-deficit/hyperactivity disorder transition into adolescence and adulthood in the United Kingdom. Journal of the American Academy of Child & Adolescent Psychiatry, 51(9), 879–888. https://doi.org/10.1016/j.jaac.2012.06.017.

Carlon, S., Carter, M., & Stephenson, J. (2013). A review of declared factors identified by parents of children with autism spectrum disorders (ASD) in making intervention decisions. Research in Autism Spectrum Disorders,7(2), 369–381. https://doi.org/10.1016/j.rasd.2012.10.009.CrossRef

Chamak, B., & Bonniau, B. (2016). Trajectories, long-term outcomes and family experiences of 76 adults with autism spectrum disorder.CrossRef

Cohen, S., Mermelstein, R., Kamarck, T., & Hoberman, H. M. (2009). Measuring the functional components of social support. In I. G. Sarason & B. R. Sarason (Eds.), Social support: Theory, research and applications (pp. 73–94). Dordrecht: Springer. https://doi.org/10.1007/s12640-009-9064-7.CrossRef

Cohen, S., & Wills, T. A. (1985). Stress, social support, and the buffering hypothesis. Psychological Bulletin, 98(2), 310–357. https://doi.org/10.1037/0033-2909.98.2.310.CrossRefPubMed

Davis, N. O., & Carter, A. S. (2008). Parenting stress in mothers and fathers of toddlers with autism spectrum disorders: Associations with child characteristics. Journal of Autism and Developmental Disorders,38(7), 1278–1291. https://doi.org/10.1007/s10803-007-0512-z.CrossRefPubMed

Dunst, C. J., Trivette, C. M., & Cross, A. H. (1986). Mediating influences of social support: Personal, family, and child outcomes. American Journal of Mental Deficiency,90(4), 403–417.PubMed

Dyches, T. T., Christensen, R., Harper, J. M., et al. (2016). Respite care for single mothers of children with autism spectrum disorders. Journal of Autism and Developmental Disorders,46, 812–824.CrossRef

Ekas, N. V., Lickenbrock, D. M., & Whitman, T. L. (2010). Optimism, social support, and well-being in mothers of children with autism spectrum disorder. Journal of Autism and Developmental Disorders,40(10), 1274–1284. https://doi.org/10.1007/s10803-010-0986-y.CrossRefPubMed

Falk, N. H., Norris, K., & Quinn, M. G. (2014). The factors predicting stress, anxiety and depression in the parents of children with autism. Journal of Autism and Developmental Disorders,44(12), 3185–3203. https://doi.org/10.1007/s10803-014-2189-4.CrossRefPubMed

Frazier, T. W., Georgiades, S., Bishop, S. L., & Hardan, A. Y. (2014). Behavioral and cognitive characteristics of females and males with autism in the Simons Simplex Collection. Journal of the American Academy of Child and Adolescent Psychiatry,53(3), 329.e33–340.e323. https://doi.org/10.1016/j.jaac.2013.12.004.CrossRef

Garbacz, S. A., McIntyre, L. L., & Santiago, R. T. (2016). Family involvement and parent–teacher relationships for students with autism spectrum disorders. School Psychology Quarterly,31(4), 478–490. https://doi.org/10.1037/spq0000157.CrossRefPubMedPubMedCentral

Goedeke, S., Shepherd, D., Landon, J., & Taylor, S. (2019). How perceived support relates to child autism symptoms and care-related stress in parents caring for a child with autism. Research in Autism Spectrum Disorders,60, 36–47. https://doi.org/10.1016/j.rasd.2019.01.005.CrossRef

Guralnick, M. J., Hammond, M. A., Neville, B., & Connor, R. T. (2008). The relationship between sources and functions of social support and dimensions of child- and parent-related stress. Journal of Intellectual Disability Research,52(12), 1138–1154. https://doi.org/10.1111/j.1365-2788.2008.01073.x.CrossRefPubMed

Hastings, R. P. (2003). Child behaviour problems and partner mental health as correlates of stress in mothers and fathers of children with autism. Journal of Intellectual Disability Research, 47(4–5), 231-237. https://doi.org/10.1046/j.1365-2788.2003.00485.x.CrossRefPubMed

Huang, C.-Y., Yen, H.-C., Tseng, M.-H., Tung, L.-C., Chen, Y.-D., & Chen, K.-L. (2014). Impacts of autistic behaviors, emotional and behavioral problems on parenting stress in caregivers of children with autism. Journal of Autism and Developmental Disorders,44(6), 1383–1390. https://doi.org/10.1007/s10803-013-2000-y.CrossRefPubMed

Kanne, S. M., Mazurek, M. O., Sikora, D., Bellando, J., Branum-Martin, L., Handen, B., … Warren, Z. (2014). The Autism Impact Measure (AIM): Initial development of a new tool for treatment outcome measurement. Journal of Autism and Developmental Disorders,44(1), 168–179. https://doi.org/10.1007/s10803-013-1862-3.

Karst, J. S., & Van Hecke, A. V. (2012). Parent and family impact of autism spectrum disorders: A review and proposed model for intervention evaluation. Clinical Child and Family Psychology Review,15(3), 247–277. https://doi.org/10.1007/s10567-012-0119-6.CrossRefPubMed

Liu, D., Wright, K. B., & Hu, B. (2018). A meta-analysis of Social Network Site use and social support. Computers & Education,127, 201–213. https://doi.org/10.1074/jbc.M204580200.CrossRef

Marsack, C. N., & Samuel, P. S. (2017). Mediating effects of social support on quality of life for parents of adults with autism. Journal of Autism and Developmental Disorders,47(8), 2378–2389. https://doi.org/10.1007/s10803-017-3157-6.CrossRefPubMed

Mendoza, T. S., & Dickson, G. L. (2010). Levels of stress among parents who have children diagnosed with autism in the United States-Mexico borders region. The Border Walking Journal,8(1), 12–20. https://doi.org/10.1111/j.1471-4159.1991.tb02557.x.

Montes, G., & Cianca, M. In V. B. Patel, V. R. Preedy, & C. R. Martin (Eds.), Comprehensive guide to autism (pp. 167–184). New York: Springer.CrossRef

Moseley, R. L., Hitchiner, R., & Kirkby, J. A. (2018). Self-reported sex differences in high-functioning adults with autism: A meta-analysis. Molecular Autism,9(1), 33. https://doi.org/10.1186/s13229-018-0216-6.CrossRefPubMedPubMedCentral

Obeid, R., & Daou, N. (2015). The effects of coping style, social support, and behavioral problems on the well-being of mothers of children with Autism Spectrum Disorders in Lebanon. Research in Autism Spectrum Disorders,10, 59–70. https://doi.org/10.1016/j.rasd.2014.11.003.CrossRef

Quittner, A. L., Glueckauf, R. L., & Jackson, D. N. (1990). Chronic parenting stress: Moderating versus mediating effects of social support. Journal of Personality and Social Psychology,59(6), 1266–1278. https://doi.org/10.1037/0022-3514.59.6.1266.CrossRefPubMed

Robinson, S., Weiss, J. A., Lunsky, Y., & Ouellette-Kuntz, H. Informal support and burden among parents of adults with intellectual and/or developmental disabilities. Journal of Applied Research in Intellectual Disabilities,29(4), 356–365. https://doi.org/10.1111/jar.12184.CrossRefPubMed

Saha, A., & Agarwal, N. (2016). Modeling social support in autism community on social media. Network Model Analysis Health Inform Bioinforma,5, 8. https://doi.org/10.1007/s13721-016-0115-8.CrossRef

Salmond, C., Crampton, P., King, P., & Waldegrave, C. (2006). NZiDep: A New Zealand index of socioeconomic deprivation for individuals. Social Science & Medicine,62(6), 1474–1485. https://doi.org/10.1016/j.socscimed.2005.08.008.CrossRef

Schertz, H. H., Baker, C., Hurwitz, S., & Benner, L. (2011). Principles of early intervention reflected in toddler research in autism spectrum disorders. Topics in Early Childhood Special Education,31(1), 4–21. https://doi.org/10.1177/0271121410382460.CrossRef

Schofield, D., Zeppel, M. J. B., Tanton, R., Veerman, J. L., Kelly, S. J., Passey, M. E., et al. (2019). Intellectual disability and autism: Socioeconomic impacts of informal caring, projected to 2030. British Journal of Psychiatry,215(5), 654–660. https://doi.org/10.1006/abbi.1998.0932.CrossRef

Searing, B. M. J., Graham, F., & Grainger, R. (2015). Support needs of families living with children with autism spectrum disorder. Journal of Autism and Developmental Disorders,45(11), 3693–3702.CrossRef

Shepherd, D., Csako, R., Landon, J., Goedeke, S., & Ty, K. (2018a). Documenting and understanding parent’s intervention choices for their child with autism spectrum disorder. Journal of Autism and Developmental Disorders,48(4), 988–1001. https://doi.org/10.1007/s10803-017-3395-7.CrossRefPubMed

Shepherd, D., Landon, J., Goedeke, S., Ty, K., & Csako, R. (2018b). Parents’ assessments of their child's autism-related interventions. Research in Autism Spectrum Disorders,50, 1–10. https://doi.org/10.1016/j.rasd.2018.02.005.CrossRef

Shepherd, D., Landon, J., Taylor, S., & Goedeke, S. (2018c). Coping and care-related stress in parents of a child with autism spectrum disorder. Anxiety, Stress and Coping,31(3), 277–290. https://doi.org/10.1080/10615806.2018.1442614.CrossRef

Sims, R. C., Hosey, M., Levy, S.-A., Whitfield, K. E., Katzel, L. I., & Waldstein, S. R. (2014). Distinct functions of social support and cognitive function among older adults. Experimental Aging Research,40(1), 40–59. https://doi.org/10.1080/0361073X.2014.857551.CrossRefPubMedPubMedCentral

Smith, L. E., Seltzer, M. M., Tager-Flusberg, H., Greenberg, J. S., & Carter, A. S. (2007). A comparative analysis of well-being and coping among mothers of toddlers and mothers of adolescents with ASD. Journal of Autism and Developmental Disorders,38(5), 876–5015. https://doi.org/10.1007/s10803-007-0461-6.CrossRef

Taylor, J. L., & Warren, Z. E. (2012). Maternal depressive symptoms following autism spectrum diagnosis. Journal of Autism and Developmental Disorders,42(7), 1411–1418. https://doi.org/10.1007/s10803-011-1375-x.CrossRefPubMed

Thabrew, H., & Eggleston, M. (2018). Spectrum of care: Current management of childhood autism spectrum disorder (ASD) in New Zealand. Australasian Psychiatry,26(3), 294–298. https://doi.org/10.1177/1039856217716290.CrossRefPubMed

Tomanik, S., Harris, G. E., & Hawkins, J. (2004). The relationship between behaviours exhibited by children with autism and maternal stress. Journal of Intellectual and Developmental Disability,29(1), 16–26. https://doi.org/10.1080/13668250410001662892.CrossRef

Totsika, V., Hastings, R. P., Emerson, E., Lancaster, G. A., & Berridge, D. M. (2011). A population-based investigation of behavioural and emotional problems and maternal mental health: associations with autism spectrum disorder and intellectual disability. Journal of Child Psychology and Psychiatry,52(1), 91–99. https://doi.org/10.1111/j.1469-7610.2010.02295.x.CrossRefPubMed

Woodgate, R. L., Ateah, C., & Secco, L. (2008). Living in a world of our own: The experience of parents who have a child with autism. Qualitative Health Research,18(8), 1075–1083. https://doi.org/10.1177/1049732308320112.CrossRefPubMed

Wright, S. D., Brooks, D. E., D’Astous, V., & Grandin, T. (2013). The challenge and promise of autism spectrum disorders in adulthood and aging: A systematic review of the literature (1990–2013). Autism Insights, 2013(5), 21–73. https://doi.org/10.4137/AUI.S11072.CrossRef

Titel: The Types and Functions of Social Supports Used by Parents Caring for a Child With Autism Spectrum Disorder
Auteurs: Daniel Shepherd
Sonja Goedeke
Jason Landon
Jake Meads
Publicatiedatum: 09-01-2020
Uitgeverij: Springer US
Gepubliceerd in: Journal of Autism and Developmental Disorders / Uitgave 4/2020
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI: https://doi.org/10.1007/s10803-019-04359-5

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