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Gepubliceerd in: Journal of Autism and Developmental Disorders 11/2018

03-09-2018 | Editorial

The Severe End of the Spectrum: Insights and Opportunities from the Autism Inpatient Collection (AIC)

Auteur: Matthew Siegel

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 11/2018

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Abstract

Research on individuals severely affected by autism, including those who are minimally verbal, have intellectual disability or challenging behaviors, has become less common. The Autism Inpatient Collection (AIC) was initiated so data on this group is available to the research community. Ten studies utilizing phenotypic data from the first 350 AIC participants are presented. Greater autism severity, sleep disturbance, and psychiatric disorders are risks for hospitalization; fluently verbal youth experience more depression and oppositional symptoms; lower adaptive/coping skills are associated with increased problem behaviors; lower IQ is a risk for SIB; post-traumatic and suicidal symptoms are common; and challenging behaviors improve with specialized inpatient treatment. A new measure of emotion regulation and prescribing practices are described and future research discussed.
Literatuur
go back to reference Aman, M. G., Singh, N. N., Stewart, A. W., & Field, C. J. (1985). The aberrant behavior checklist: a behavior rating scale for the assessment of treatment effects. American Journal of Mental Deficiency, 89(5), 485–491.PubMed Aman, M. G., Singh, N. N., Stewart, A. W., & Field, C. J. (1985). The aberrant behavior checklist: a behavior rating scale for the assessment of treatment effects. American Journal of Mental Deficiency, 89(5), 485–491.PubMed
go back to reference Baghdadli, A., Pascal, C., Grisi, S., & Aussilloux, C. (2003). Risk factors for self-injurious behaviours among 222 young children with autistic disorders. Journal of Intellectual Disability Research, 47(Pt 8), 622–627.CrossRefPubMed Baghdadli, A., Pascal, C., Grisi, S., & Aussilloux, C. (2003). Risk factors for self-injurious behaviours among 222 young children with autistic disorders. Journal of Intellectual Disability Research, 47(Pt 8), 622–627.CrossRefPubMed
go back to reference Bodfish, J. W., Symons, F. J., Parker, D. E., & Lewis, M. H. (2000). Varieties of repetitive behavior in autism: comparisons to mental retardation. Journal of Autism and Developmental Disorders, 30(3), 237–243.CrossRefPubMed Bodfish, J. W., Symons, F. J., Parker, D. E., & Lewis, M. H. (2000). Varieties of repetitive behavior in autism: comparisons to mental retardation. Journal of Autism and Developmental Disorders, 30(3), 237–243.CrossRefPubMed
go back to reference Gadow, K. D. S. (2013). Child and Adolescent Symptom Inventory-5 (Ages 5 to 18 Years). Stony Brook: Checkmate Plus. Gadow, K. D. S. (2013). Child and Adolescent Symptom Inventory-5 (Ages 5 to 18 Years). Stony Brook: Checkmate Plus.
go back to reference Hall-Lande, J., Hewitt, A., Mishra, S., Piescher, K., & Laliberte, T. (2014). Involvement of children with autism spectrum disorder (ASD) in the child protection system. Focus on Autism and Other Developmental Disabilities, 30(4), 237–248.CrossRef Hall-Lande, J., Hewitt, A., Mishra, S., Piescher, K., & Laliberte, T. (2014). Involvement of children with autism spectrum disorder (ASD) in the child protection system. Focus on Autism and Other Developmental Disabilities, 30(4), 237–248.CrossRef
go back to reference Horowitz, L. M., Thurm, A., Farmer, C., Mazefsky, C., Lanzillo, E., Bridge, J. A., et al. (2017). Talking about death or suicide: Prevalence and clinical correlates in youth with autism spectrum disorder in the psychiatric inpatient setting. Journal of Autism and Developmental Disorders. https://doi.org/10.1007/s10803-017-3180-7.CrossRef Horowitz, L. M., Thurm, A., Farmer, C., Mazefsky, C., Lanzillo, E., Bridge, J. A., et al. (2017). Talking about death or suicide: Prevalence and clinical correlates in youth with autism spectrum disorder in the psychiatric inpatient setting. Journal of Autism and Developmental Disorders. https://​doi.​org/​10.​1007/​s10803-017-3180-7.CrossRef
go back to reference Matson, J. L., Boisjoli, J., & Mahan, S. (2009). The relation of communication and challenging behaviors in infants and toddlers with autism spectrum disorders. Journal of Developmental and Physical Disabilities, 21, 253–261.CrossRef Matson, J. L., Boisjoli, J., & Mahan, S. (2009). The relation of communication and challenging behaviors in infants and toddlers with autism spectrum disorders. Journal of Developmental and Physical Disabilities, 21, 253–261.CrossRef
go back to reference Mazefsky, C. A., Day, T. N., Siegel, M., White, S. W., Yu, L., & Pilkonis, P. A. (2016). Development of the emotion dysregulation inventory: A PROMIS(R)ing method for creating sensitive and unbiased questionnaires for autism spectrum disorder. Journal of Autism and Developmental Disorders. https://doi.org/10.1007/s10803-016-2907-1.CrossRef Mazefsky, C. A., Day, T. N., Siegel, M., White, S. W., Yu, L., & Pilkonis, P. A. (2016). Development of the emotion dysregulation inventory: A PROMIS(R)ing method for creating sensitive and unbiased questionnaires for autism spectrum disorder. Journal of Autism and Developmental Disorders. https://​doi.​org/​10.​1007/​s10803-016-2907-1.CrossRef
go back to reference Pedersen, K. A., Santangelo, S. L., Gabriels, R. L., Righi, G., Erard, M., & Siegel, M. (2017). Behavioral outcomes of specialized psychiatric hospitalization in the Autism Inpatient Collection (AIC): A multisite comparison. Journal of Autism and Developmental Disorders. https://doi.org/10.1007/s10803-017-3366-z.CrossRef Pedersen, K. A., Santangelo, S. L., Gabriels, R. L., Righi, G., Erard, M., & Siegel, M. (2017). Behavioral outcomes of specialized psychiatric hospitalization in the Autism Inpatient Collection (AIC): A multisite comparison. Journal of Autism and Developmental Disorders. https://​doi.​org/​10.​1007/​s10803-017-3366-z.CrossRef
go back to reference Reiss, S., & Szyszko, J. (1983). Diagnostic overshadowing and professional experience with mentally retarded persons. American Journal of Mental Deficiency, 87(4), 396–402.PubMed Reiss, S., & Szyszko, J. (1983). Diagnostic overshadowing and professional experience with mentally retarded persons. American Journal of Mental Deficiency, 87(4), 396–402.PubMed
go back to reference Sannar, E. M., Palka, T., Beresford, C., Peura, C., Kaplan, D., Verdi, M., et al. (2017). Sleep problems and their relationship to maladaptive behavior severity in psychiatrically hospitalized children with autism spectrum disorder (ASD). Journal of Autism and Developmental Disorders. https://doi.org/10.1007/s10803-017-3362-3.CrossRef Sannar, E. M., Palka, T., Beresford, C., Peura, C., Kaplan, D., Verdi, M., et al. (2017). Sleep problems and their relationship to maladaptive behavior severity in psychiatrically hospitalized children with autism spectrum disorder (ASD). Journal of Autism and Developmental Disorders. https://​doi.​org/​10.​1007/​s10803-017-3362-3.CrossRef
Metagegevens
Titel
The Severe End of the Spectrum: Insights and Opportunities from the Autism Inpatient Collection (AIC)
Auteur
Matthew Siegel
Publicatiedatum
03-09-2018
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 11/2018
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-018-3731-6

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