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Anders Nordahl-Hansen and Roald A. Øien contributed equally to the main content of the manuscript.
There is a long history of research on parents and caregivers of individuals within autism. Parents and other primary caregivers typically play the most important part in the lives of persons with ASD although the need for support as the child becomes of age varies widely. This special issue includes 30 articles on central areas related to parenting and caregiving for people with ASD. Some of the key themes include intervention and training, mental health issues related to parent and family stress, measurement and assessment, and parent–child transactional processes. Other articles in this issue consider different but equally important topics such as sibling as potential future caregivers and parent support of preschool peer relationships.
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Estes, A., Munson, J., St. John, T., Dager, S. R., Rodda, A., Botteron, K., … Guralnick, M. J. (2017). Parent support of preschool peer relationships in younger siblings of children with autism spectrum disorder. Journal of Autism and Developmental Disorders. https://doi.org/10.1007/s10803-017-3202-5. PubMedCentral
Fox, F., Aabe, N., Turner, K., Redwood, S., & Rai, D. (2017). It was like walking without knowing where I was going: A qualitative study of autism in a UK Somali migrant community. Journal of Autism and Developmental Disorders, 47(2), 305–315. https://doi.org/10.1007/s10803-016-2952-9. CrossRefPubMed
Halstead, E., Ekas, N., Hastings, R. P., & Griffith, G. M. (2018). Associations between resilience and the well-being of mothers of children with autism spectrum disorder and other developmental disabilities. Journal of Autism and Developmental Disorders. https://doi.org/10.1007/s10803-017-3447-z. PubMed
Leadbitter, K., Aldred, C., McConachie, H., Le Couteur, A., Kapadia, D., Charman, T., … Green, J. (2017). The autism family experience questionnaire (AFEQ): An ecologically-valid, parent-nominated measure of family experience, quality of life and prioritised outcomes for early intervention. Journal of Autism and Developmental Disorders. https://doi.org/10.1007/s10803-017-3350-7.
Macari, S. L., Wu, G. C., Powell, K. K., Fontenelle, S., Macris, D. M., & Chawarska, K. (2017). Do parents and clinicians agree on ratings of autism-related behaviors at 12 months of age? A study of infants at high and low risk for ASD. Journal of Autism and Developmental Disorders. https://doi.org/10.1007/s10803-017-3410-z. PubMed
McConachie, H., Livingstone, N., Morris, C., Beresford, B., Le Couteur, A., Gringras, P., … Parr, J. R. (2017). Parents suggest which indicators of progress and outcomes should be measured in young children with autism spectrum disorder. Journal of Autism and Developmental Disorders. https://doi.org/10.1007/s10803-017-3282-2. PubMedCentral
Nuttall, A. K., Coberly, B., & Diesel, S. J. (2018). Childhood caregiving roles, perceptions of benefits, and future caregiving intentions among typically developing adult siblings of individuals with autism spectrum disorder. Journal of Autism and Developmental Disorders. https://doi.org/10.1007/s10803-018-3464-6. PubMed
Shepherd, D., Csako, R., Landon, J., Goedeke, S., & Ty, K. (2017). Documenting and understanding parent’s intervention choices for their child with autism spectrum disorder. Journal of Autism and Developmental Disorders. https://doi.org/10.1007/s10803-017-3395-7.
Shire, S. Y., Shih, W., & Kasari, C. (2017). Brief report: Caregiver strategy implementation—Advancing spoken communication in children who are minimally verbal. Journal of Autism and Developmental Disorders. https://doi.org/10.1007/s10803-017-3454-0.
Woodruff, B., Temkit, M. h., Adams, J., & Yost, K. (2017). Association between affective symptoms and school bullying experiences in adults with autism spectrum disorders (P4. 156). Neurology, 88(16 Supplement), P4. 156.
- The Scientific Study of Parents and Caregivers of Children with ASD: A Flourishing Field but Still Work to be Done
Roald A. Øien
- Springer US