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03-03-2018 | Editorial

The Scientific Study of Parents and Caregivers of Children with ASD: A Flourishing Field but Still Work to be Done

Auteurs: Anders Nordahl-Hansen, Logan Hart, Roald A. Øien

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 4/2018

Abstract

There is a long history of research on parents and caregivers of individuals within autism. Parents and other primary caregivers typically play the most important part in the lives of persons with ASD although the need for support as the child becomes of age varies widely. This special issue includes 30 articles on central areas related to parenting and caregiving for people with ASD. Some of the key themes include intervention and training, mental health issues related to parent and family stress, measurement and assessment, and parent–child transactional processes. Other articles in this issue consider different but equally important topics such as sibling as potential future caregivers and parent support of preschool peer relationships.

vorige artikel Editorial: 2017 in Review

volgende artikel Parent Stress in a Randomized Clinical Trial of Atomoxetine and Parent Training for Children with Autism Spectrum Disorder

Bolte, E. E., & Diehl, J. J. (2013). Measurement tools and target symptoms/skills used to assess treatment response for individuals with autism spectrum disorder. Journal of Autism and Developmental Disorders, 43(11), 2491–2501. CrossRefPubMed

Cunningham, A. B. (2012). Measuring change in social interaction skills of young children with autism. Journal of Autism and Developmental Disorders, 42(4), 593–605. CrossRefPubMed

Delemere, E., & Dounavi, K. (2017). Parent-implemented bedtime fading and positive routines for children with autism spectrum disorders. Journal of Autism and Developmental Disorders. https://doi.org/10.1007/s10803-017-3398-4. PubMed

Estes, A., Munson, J., St. John, T., Dager, S. R., Rodda, A., Botteron, K., … Guralnick, M. J. (2017). Parent support of preschool peer relationships in younger siblings of children with autism spectrum disorder. Journal of Autism and Developmental Disorders. https://doi.org/10.1007/s10803-017-3202-5. PubMedCentral

Fox, F., Aabe, N., Turner, K., Redwood, S., & Rai, D. (2017). It was like walking without knowing where I was going: A qualitative study of autism in a UK Somali migrant community. Journal of Autism and Developmental Disorders, 47(2), 305–315. https://doi.org/10.1007/s10803-016-2952-9. CrossRefPubMed

Halstead, E., Ekas, N., Hastings, R. P., & Griffith, G. M. (2018). Associations between resilience and the well-being of mothers of children with autism spectrum disorder and other developmental disabilities. Journal of Autism and Developmental Disorders. https://doi.org/10.1007/s10803-017-3447-z. PubMed

Larsen, K., Aasland, A., & Diseth, T. H. (2017). Brief report: Agreement between parents and day-care professionals on early symptoms associated with autism spectrum disorders. Journal of Autism and Developmental Disorders. https://doi.org/10.1007/s10803-017-3355-2. PubMed

Leadbitter, K., Aldred, C., McConachie, H., Le Couteur, A., Kapadia, D., Charman, T., … Green, J. (2017). The autism family experience questionnaire (AFEQ): An ecologically-valid, parent-nominated measure of family experience, quality of life and prioritised outcomes for early intervention. Journal of Autism and Developmental Disorders. https://doi.org/10.1007/s10803-017-3350-7.

Lindsey, R. A., & Barry, T. D. (2018). Protective factors against distress for caregivers of a child with autism spectrum disorder. Journal of Autism and Developmental Disorders. https://doi.org/10.1007/s10803-017-3372-1. PubMed

Macari, S. L., Wu, G. C., Powell, K. K., Fontenelle, S., Macris, D. M., & Chawarska, K. (2017). Do parents and clinicians agree on ratings of autism-related behaviors at 12 months of age? A study of infants at high and low risk for ASD. Journal of Autism and Developmental Disorders. https://doi.org/10.1007/s10803-017-3410-z. PubMed

Mademtzi, M., Singh, P., Shic, F., & Koenig, K. (2017). Challenges of females with autism: A parental perspective. Journal of Autism and Developmental Disorders. https://doi.org/10.1007/s10803-017-3341-8. PubMed

McConachie, H., Livingstone, N., Morris, C., Beresford, B., Le Couteur, A., Gringras, P., … Parr, J. R. (2017). Parents suggest which indicators of progress and outcomes should be measured in young children with autism spectrum disorder. Journal of Autism and Developmental Disorders. https://doi.org/10.1007/s10803-017-3282-2. PubMedCentral

Miller, L. E., Perkins, K. A., Dai, Y. G., & Fein, D. A. (2017). Comparison of parent report and direct assessment of child skills in toddlers. Research in Autism Spectrum Disorders, 41, 57–65. CrossRefPubMed

Nuttall, A. K., Coberly, B., & Diesel, S. J. (2018). Childhood caregiving roles, perceptions of benefits, and future caregiving intentions among typically developing adult siblings of individuals with autism spectrum disorder. Journal of Autism and Developmental Disorders. https://doi.org/10.1007/s10803-018-3464-6. PubMed

Sacrey, L. A. R., Zwaigenbaum, L., Bryson, S., Brian, J., Smith, I. M., Roberts, W., … Garon, N. (2018). Parent and clinician agreement regarding early behavioral signs in 12-and 18-month-old infants at-risk of autism spectrum disorder. Autism Research. https://doi.org/10.1002/aur.1920 PubMed

Shepherd, D., Csako, R., Landon, J., Goedeke, S., & Ty, K. (2017). Documenting and understanding parent’s intervention choices for their child with autism spectrum disorder. Journal of Autism and Developmental Disorders. https://doi.org/10.1007/s10803-017-3395-7.

Shire, S. Y., Shih, W., & Kasari, C. (2017). Brief report: Caregiver strategy implementation—Advancing spoken communication in children who are minimally verbal. Journal of Autism and Developmental Disorders. https://doi.org/10.1007/s10803-017-3454-0.

Tudor, M. E., Rankin, J., & Lerner, M. D. (2017). A model of family and child functioning in siblings of youth with autism spectrum disorder. Journal of Autism and Developmental Disorders. https://doi.org/10.1007/s10803-017-3352-5. PubMed

Woodruff, B., Temkit, M. h., Adams, J., & Yost, K. (2017). Association between affective symptoms and school bullying experiences in adults with autism spectrum disorders (P4. 156). Neurology, 88(16 Supplement), P4. 156.

Titel: The Scientific Study of Parents and Caregivers of Children with ASD: A Flourishing Field but Still Work to be Done
Auteurs: Anders Nordahl-Hansen
Logan Hart
Roald A. Øien
Publicatiedatum: 03-03-2018
Uitgeverij: Springer US
Gepubliceerd in: Journal of Autism and Developmental Disorders / Uitgave 4/2018
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI: https://doi.org/10.1007/s10803-018-3526-9

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Local and Global Visual Processing in Autism Spectrum Disorders: Influence of Task and Sample Characteristics and Relation to Symptom Severity

Emotion Regulation Strategies in Preschoolers with Autism: Associations with Parent Quality of Life and Family Functioning

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