Skip to main content
Top
Gepubliceerd in:

31-08-2019 | Original Paper

The Quality of Care for Australian Children with Autism Spectrum Disorders

Auteurs: K. Churruca, L. A. Ellis, J. C. Long, C. Pomare, L. K. Wiles, G. Arnolda, H. P. Ting, S. Woolfenden, V. Sarkozy, C. de Wet, P. Hibbert, J. Braithwaite, the CareTrack Kids Investigative Team

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 12/2019

Log in om toegang te krijgen
share
DELEN

Deel dit onderdeel of sectie (kopieer de link)

  • Optie A:
    Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
  • Optie B:
    Deel de link per e-mail

Abstract

Knowledge about the quality of care delivered to children with autism spectrum disorders (ASD) in relation to that recommended by clinical practice guidelines (CPGs) is limited. ASD care quality indicators were developed from CPGs and validated by experts, then used to assess the quality of care delivered by general practitioners (GPs) and pediatricians in Australia. Data were retrospectively collected from the medical records of 228 children (≤ 15 years) with ASD for 2012–2013. Overall quality of care was high, but with considerable variation among indicators, and between GPs and pediatricians—e.g., GPs were less likely to complete the assessment care bundle (61%; 95% CI 21–92). Findings highlight potential areas for improvement in the need for standardized criteria for diagnosis.
Bijlagen
Alleen toegankelijk voor geautoriseerde gebruikers
Voetnoten
1
This figure comprised 5 indicator assessments for a patient who visited outside the study period, and 38 indicators for patients who were too old for inclusion in the study.
 
Literatuur
go back to reference Amaral, D. G. (2017). Examining the causes of autism. Cerebrum: The Dana Forum on Brain Science, 2017, cer-01-17. Amaral, D. G. (2017). Examining the causes of autism. Cerebrum: The Dana Forum on Brain Science, 2017, cer-01-17.
go back to reference Australian Government Department of Health and Ageing. (2008). Early intervention for children with autism spectrum disorders: Guidelines for best practice. Canberra: Australian Government Department of Health and Ageing. Australian Government Department of Health and Ageing. (2008). Early intervention for children with autism spectrum disorders: Guidelines for best practice. Canberra: Australian Government Department of Health and Ageing.
go back to reference Australian Medical Association. (2016). Position statement: Autism spectrum disorder. Canberra: Australian Medical Association. Australian Medical Association. (2016). Position statement: Autism spectrum disorder. Canberra: Australian Medical Association.
go back to reference Autism CRC. (2018). A national guideline for the assessment and diagnosis of autism spectrum disorder in Australia. Brisbane: Autism CRC, University of Queensland. Autism CRC. (2018). A national guideline for the assessment and diagnosis of autism spectrum disorder in Australia. Brisbane: Autism CRC, University of Queensland.
go back to reference Baio, J., Wiggins, L., Christensen, D. L., Maenner, M. J., Daniels, J., Warren, Z., et al. (2018). Prevalence of autism spectrum disorder among children aged 8 years—Autism and developmental disabilities monitoring network. Morbidity and mortality weekly report. Surveillance summaries (Vol. 67, pp. 1–23). 11 sites, US, Centers for Disease Control and Prevention. Baio, J., Wiggins, L., Christensen, D. L., Maenner, M. J., Daniels, J., Warren, Z., et al. (2018). Prevalence of autism spectrum disorder among children aged 8 years—Autism and developmental disabilities monitoring network. Morbidity and mortality weekly report. Surveillance summaries (Vol. 67, pp. 1–23). 11 sites, US, Centers for Disease Control and Prevention.
go back to reference Bauer, N. S., Carroll, A. E., Saha, C., & Downs, S. M. (2015). Computer decision support changes physician practice but not knowledge regarding autism spectrum disorders. Applied Clinical Informatics,6(3), 454–465.CrossRef Bauer, N. S., Carroll, A. E., Saha, C., & Downs, S. M. (2015). Computer decision support changes physician practice but not knowledge regarding autism spectrum disorders. Applied Clinical Informatics,6(3), 454–465.CrossRef
go back to reference Braithwaite, J., Hibbert, P. D., Jaffe, A., White, L., Cowell, C., Harris, M., et al. (2018). Quality of health care for children in Australia, 2012–2013. Journal of the American Medical Association,319(11), 1113–1124.CrossRef Braithwaite, J., Hibbert, P. D., Jaffe, A., White, L., Cowell, C., Harris, M., et al. (2018). Quality of health care for children in Australia, 2012–2013. Journal of the American Medical Association,319(11), 1113–1124.CrossRef
go back to reference Chiri, G., & Warfield, M. E. (2012). Unmet need and problems accessing core health care services for children with autism spectrum disorder. Maternal and Child Health Journal,16(5), 1081–1091.CrossRef Chiri, G., & Warfield, M. E. (2012). Unmet need and problems accessing core health care services for children with autism spectrum disorder. Maternal and Child Health Journal,16(5), 1081–1091.CrossRef
go back to reference Christensen, D. L., Bilder, D. A., Zahorodny, W., Pettygrove, S., Durkin, M. S., Fitzgerald, R. T., et al. (2016). Prevalence and characteristics of autism spectrum disorder among 4-year-old children in the autism and developmental disabilities monitoring network. Journal of Developmental and Behavioral Pediatrics,37(1), 1–8. https://doi.org/10.1097/DBP.0000000000000235.CrossRefPubMed Christensen, D. L., Bilder, D. A., Zahorodny, W., Pettygrove, S., Durkin, M. S., Fitzgerald, R. T., et al. (2016). Prevalence and characteristics of autism spectrum disorder among 4-year-old children in the autism and developmental disabilities monitoring network. Journal of Developmental and Behavioral Pediatrics,37(1), 1–8. https://​doi.​org/​10.​1097/​DBP.​0000000000000235​.CrossRefPubMed
go back to reference Daniels, A. M., & Mandell, D. S. (2014). Explaining differences in age at autism spectrum disorder diagnosis: A critical review. Autism,18(5), 583–597.CrossRef Daniels, A. M., & Mandell, D. S. (2014). Explaining differences in age at autism spectrum disorder diagnosis: A critical review. Autism,18(5), 583–597.CrossRef
go back to reference Farley, M. A., McMahon, W. M., Fombonne, E., Jenson, W. R., Miller, J., Gardner, M., et al. (2009). Twenty-year outcome for individuals with autism and average or near-average cognitive abilities. Autism Research,2(2), 109–118.CrossRef Farley, M. A., McMahon, W. M., Fombonne, E., Jenson, W. R., Miller, J., Gardner, M., et al. (2009). Twenty-year outcome for individuals with autism and average or near-average cognitive abilities. Autism Research,2(2), 109–118.CrossRef
go back to reference Fitch, K., Bernstein, S. J., Aguilar, M. D., Burnand, B., & LaCalle, J. R. (2001). The RAND/UCLA appropriateness method user’s manual. Santa Monica, CA: RAND CORP. Fitch, K., Bernstein, S. J., Aguilar, M. D., Burnand, B., & LaCalle, J. R. (2001). The RAND/UCLA appropriateness method user’s manual. Santa Monica, CA: RAND CORP.
go back to reference Glasson, E. J., MacDermott, S., Dixon, G., Cook, H., Chauvel, P., Maley-Berg, A., et al. (2008). Management of assessments and diagnoses for children with autism spectrum disorders: The Western Australian model. Medical Journal of Australia,188(5), 288–291.CrossRef Glasson, E. J., MacDermott, S., Dixon, G., Cook, H., Chauvel, P., Maley-Berg, A., et al. (2008). Management of assessments and diagnoses for children with autism spectrum disorders: The Western Australian model. Medical Journal of Australia,188(5), 288–291.CrossRef
go back to reference Hathorn, C., Alateeqi, N., Graham, C., & O’Hare, A. (2014). Impact of adherence to best practice guidelines on the diagnostic and assessment services for autism spectrum disorder. Journal of Autism and Developmental Disorders,44(8), 1859–1866.CrossRef Hathorn, C., Alateeqi, N., Graham, C., & O’Hare, A. (2014). Impact of adherence to best practice guidelines on the diagnostic and assessment services for autism spectrum disorder. Journal of Autism and Developmental Disorders,44(8), 1859–1866.CrossRef
go back to reference Hooper, T. D., Hibbert, P. D., Mealing, N., Wiles, L. K., Jaffe, A., White, L., et al. (2015). CareTrack Kids-part 2. Assessing the appropriateness of the healthcare delivered to Australian children: Study protocol for a retrospective medical record review. British Medical Journal Open,5(4), e007749. https://doi.org/10.1136/bmjopen-2015-007749.CrossRef Hooper, T. D., Hibbert, P. D., Mealing, N., Wiles, L. K., Jaffe, A., White, L., et al. (2015). CareTrack Kids-part 2. Assessing the appropriateness of the healthcare delivered to Australian children: Study protocol for a retrospective medical record review. British Medical Journal Open,5(4), e007749. https://​doi.​org/​10.​1136/​bmjopen-2015-007749.CrossRef
go back to reference Howlin, P., Goode, S., Hutton, J., & Rutter, M. (2004). Adult outcome for children with autism. Journal of Child Psychology and Psychiatry,45(2), 212–229.CrossRef Howlin, P., Goode, S., Hutton, J., & Rutter, M. (2004). Adult outcome for children with autism. Journal of Child Psychology and Psychiatry,45(2), 212–229.CrossRef
go back to reference Johnson, C. P., & Myers, S. M. (2007). Identification and evaluation of children with autism spectrum disorders. Pediatrics,120(5), 1183–1215.CrossRef Johnson, C. P., & Myers, S. M. (2007). Identification and evaluation of children with autism spectrum disorders. Pediatrics,120(5), 1183–1215.CrossRef
go back to reference Keil, A., Breunig, C., Fleischfresser, S., & Oftedahl, E. (2014). Promoting routine use of developmental and autism-specific screening tools by pediatric primary care clinicians. Wisconsin Medical Journal,113(6), 227–231.PubMed Keil, A., Breunig, C., Fleischfresser, S., & Oftedahl, E. (2014). Promoting routine use of developmental and autism-specific screening tools by pediatric primary care clinicians. Wisconsin Medical Journal,113(6), 227–231.PubMed
go back to reference Korn, E. L., & Graubard, B. I. (1998). Confidence intervals for proportions with small expected number of positive counts estimated from survey data. Survey Methodology,24, 193–201. Korn, E. L., & Graubard, B. I. (1998). Confidence intervals for proportions with small expected number of positive counts estimated from survey data. Survey Methodology,24, 193–201.
go back to reference Mann, R., & Williams, J. (2003). Standards in medical record keeping. Clinical Medicine,3(4), 329–332.CrossRef Mann, R., & Williams, J. (2003). Standards in medical record keeping. Clinical Medicine,3(4), 329–332.CrossRef
go back to reference McGlynn, E. A., Asch, S. M., Adams, J., Keesey, J., Hicks, J., DeCristofaro, A., et al. (2003). The quality of health care delivered to adults in the United States. The New England Journal of Medicine,348(26), 2635–2645.CrossRef McGlynn, E. A., Asch, S. M., Adams, J., Keesey, J., Hicks, J., DeCristofaro, A., et al. (2003). The quality of health care delivered to adults in the United States. The New England Journal of Medicine,348(26), 2635–2645.CrossRef
go back to reference McKenzie, K., Forsyth, K., O’Hare, A., McClure, I., Rutherford, M., Murray, A., et al. (2016). The relationship between waiting times and ‘adherence’ to the Scottish Intercollegiate Guidelines Network 98 guideline in autism spectrum disorder diagnostic services in Scotland. Autism,20(4), 395–401. https://doi.org/10.1177/1362361315586136.CrossRefPubMed McKenzie, K., Forsyth, K., O’Hare, A., McClure, I., Rutherford, M., Murray, A., et al. (2016). The relationship between waiting times and ‘adherence’ to the Scottish Intercollegiate Guidelines Network 98 guideline in autism spectrum disorder diagnostic services in Scotland. Autism,20(4), 395–401. https://​doi.​org/​10.​1177/​1362361315586136​.CrossRefPubMed
go back to reference National Institute for Health and Care Excellence. (2011). Autism diagnosis in children and young people: Recognition, referral and diagnosis of children and young people on the autism spectrum. London, UK: NICE. National Institute for Health and Care Excellence. (2011). Autism diagnosis in children and young people: Recognition, referral and diagnosis of children and young people on the autism spectrum. London, UK: NICE.
go back to reference Owen, J. M., Conway, R., Silke, B., & O’Riordan, D. (2015). Medical record documentation among interns: A prospective quality improvement study. Irish Medical Journal,108(6), 183–185.PubMed Owen, J. M., Conway, R., Silke, B., & O’Riordan, D. (2015). Medical record documentation among interns: A prospective quality improvement study. Irish Medical Journal,108(6), 183–185.PubMed
go back to reference Palmer, E., Ketteridge, C., Parr, J. R., Baird, G., & Le Couteur, A. (2011). Autism spectrum disorder diagnostic assessments: Improvements since publication of the National Autism Plan for Children. Archives of Disease in Childhood,96(5), 473–475.CrossRef Palmer, E., Ketteridge, C., Parr, J. R., Baird, G., & Le Couteur, A. (2011). Autism spectrum disorder diagnostic assessments: Improvements since publication of the National Autism Plan for Children. Archives of Disease in Childhood,96(5), 473–475.CrossRef
go back to reference Parner, E. T., Thorsen, P., Dixon, G., de Klerk, N., Leonard, H., Nassar, N., et al. (2011). A comparison of autism prevalence trends in Denmark and Western Australia. Journal of Autism and Developmental Disorders,41(12), 1601–1608.CrossRef Parner, E. T., Thorsen, P., Dixon, G., de Klerk, N., Leonard, H., Nassar, N., et al. (2011). A comparison of autism prevalence trends in Denmark and Western Australia. Journal of Autism and Developmental Disorders,41(12), 1601–1608.CrossRef
go back to reference Productivity Commission. (2011). Disability care and support, Report no. 54. Canberra, Australia: Australian Government. Productivity Commission. (2011). Disability care and support, Report no. 54. Canberra, Australia: Australian Government.
go back to reference Scottish Intercollegiate Guidelines Network. (2007). Assessment, diagnosis and clinical interventions for children and young people with autism spectrum disorders. Edinburgh: NHS Scotland. Scottish Intercollegiate Guidelines Network. (2007). Assessment, diagnosis and clinical interventions for children and young people with autism spectrum disorders. Edinburgh: NHS Scotland.
go back to reference Silove, N., Blackmore, R., Warren, A., Gibbs, V., & Roberts, J. (2008). A consensus approach for the paediatrician’s role in the diagnosis and assessment of autism spectrum disorders in Australia. Sydney: Royal Australasian College of Physicians. Silove, N., Blackmore, R., Warren, A., Gibbs, V., & Roberts, J. (2008). A consensus approach for the paediatrician’s role in the diagnosis and assessment of autism spectrum disorders in Australia. Sydney: Royal Australasian College of Physicians.
go back to reference Synergies Economic Consulting. (2011). Economic costs of austism spectrum disorder in Australia. Brisbane: Synergies Economic Consulting. Synergies Economic Consulting. (2011). Economic costs of austism spectrum disorder in Australia. Brisbane: Synergies Economic Consulting.
go back to reference Tchaconas, A., & Adesman, A. (2017). Diagnostic evaluation of children with autism spectrum disorders: Clinician compliance with published guidelines. Journal of Developmental and Behavioral Pediatrics,38(1), 29–38.CrossRef Tchaconas, A., & Adesman, A. (2017). Diagnostic evaluation of children with autism spectrum disorders: Clinician compliance with published guidelines. Journal of Developmental and Behavioral Pediatrics,38(1), 29–38.CrossRef
go back to reference Tonge, B., & Brereton, A. (2011). Autism spectrum disorders. Australian Family Physician,40(9), 672–677.PubMed Tonge, B., & Brereton, A. (2011). Autism spectrum disorders. Australian Family Physician,40(9), 672–677.PubMed
go back to reference Ward, S. L., Sullivan, K. A., & Gilmore, L. (2016). Practitioner perceptions of the assessment and diagnosis of autism in Australia. Australian Psychologist,51(4), 272–279.CrossRef Ward, S. L., Sullivan, K. A., & Gilmore, L. (2016). Practitioner perceptions of the assessment and diagnosis of autism in Australia. Australian Psychologist,51(4), 272–279.CrossRef
go back to reference Wiles, L. K., Hooper, T. D., Hibbert, P. D., Molloy, C., White, L., Jaffe, A., et al. (2019). Clinical indicators for common paediatric conditions: Processes, provenance and products of the CareTrack Kids study. PLoS ONE,14(1), e0209637.CrossRef Wiles, L. K., Hooper, T. D., Hibbert, P. D., Molloy, C., White, L., Jaffe, A., et al. (2019). Clinical indicators for common paediatric conditions: Processes, provenance and products of the CareTrack Kids study. PLoS ONE,14(1), e0209637.CrossRef
go back to reference Wiles, L. K., Hooper, T. D., Hibbert, P. D., White, L., Mealing, N., Jaffe, A., et al. (2015). CareTrack Kids-part 1. Assessing the appropriateness of healthcare delivered to Australian children: Study protocol for clinical indicator development. British Medical Journal Open,5(4), e007748. Wiles, L. K., Hooper, T. D., Hibbert, P. D., White, L., Mealing, N., Jaffe, A., et al. (2015). CareTrack Kids-part 1. Assessing the appropriateness of healthcare delivered to Australian children: Study protocol for clinical indicator development. British Medical Journal Open,5(4), e007748.
go back to reference Williams, K., Glasson, E. J., Wray, J., Tuck, M., Helmer, M., Bower, C. I., et al. (2005). Incidence of autism spectrum disorders in children in two Australian states. Medical Journal of Australia,182(3), 108–111.CrossRef Williams, K., Glasson, E. J., Wray, J., Tuck, M., Helmer, M., Bower, C. I., et al. (2005). Incidence of autism spectrum disorders in children in two Australian states. Medical Journal of Australia,182(3), 108–111.CrossRef
go back to reference Williams, K., Woolfenden, S., Roberts, J., Rodger, S., Bartak, L., & Prior, M. (2014). Autism in context 2: Assessment, intervention and services in Australia. Journal of Paediatrics and Child Health,50(5), 341–346.CrossRef Williams, K., Woolfenden, S., Roberts, J., Rodger, S., Bartak, L., & Prior, M. (2014). Autism in context 2: Assessment, intervention and services in Australia. Journal of Paediatrics and Child Health,50(5), 341–346.CrossRef
Metagegevens
Titel
The Quality of Care for Australian Children with Autism Spectrum Disorders
Auteurs
K. Churruca
L. A. Ellis
J. C. Long
C. Pomare
L. K. Wiles
G. Arnolda
H. P. Ting
S. Woolfenden
V. Sarkozy
C. de Wet
P. Hibbert
J. Braithwaite
the CareTrack Kids Investigative Team
Publicatiedatum
31-08-2019
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 12/2019
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-019-04195-7