Skip to main content
Mijn bibliotheek
Shop
Nieuws Boeken Tijdschriften E-learning Web-tv Video Audio
Tips voor Mijn BSL
UITGEBREID ZOEKEN
Inloggen
Top
Quality of Life Research
Gepubliceerd in: Quality of Life Research 2/2011

01-03-2011

The PedsQL in pediatric cerebral palsy: reliability and validity of the Chinese version pediatric quality of life inventory 4.0 generic core scales and 3.0 cerebral palsy module

Auteurs: Xue Yang, Nong Xiao, Jianying Yan

Gepubliceerd in: Quality of Life Research | Uitgave 2/2011

Log in om toegang te krijgen
share
DELEN

Deel dit onderdeel of sectie (kopieer de link)

  • Optie A:
    Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
  • Optie B:
    Deel de link per e-mail
    Link delen
publish
Publiceer nu

Abstract

Purpose

This investigation examines the reliability, validity, and sensitivity of the Chinese version Pediatric Quality of Life Inventory (PedsQL) 4.0 Generic Core Scales and 3.0 cerebral palsy (CP) Module in pediatric CP.

Methods

The study sample was comprised of 126 parents of children with CP between the ages of 2 and 12 years including 18 child respondents 5–12 years of age. Mean age of the 87 boys (69.0%) and 39 girls (31.0%) was 4 years 1 month (SD 2 years 2 month).

Results

Reliability was demonstrated for the PedsQL 4.0 (α = 0.86 child, 0.89 parent) and CP Module (α = 0.91 child, 0.96 parent). The PedsQL 4.0 distinguished between healthy children and children with CP. Construct validity of the CP Module was supported through an analysis of the intercorrelations between the Generic Core Scale scores and the CP Module Scale scores and exploratory factor analysis of PedsQL items.

Conclusions

The findings provide support for the measurement properties of the Chinese version PedsQL 4.0 Generic Core Scales and 3.0 CP Module in pediatric CP.
vorige artikel Biological maturation as a confounding factor in the relation between chronological age and health-related quality of life in adolescent females
volgende artikel Erratum to: The PedsQL in pediatric cerebral palsy: reliability and validity of the Chinese version pediatric quality of life inventory 4.0 generic core scales and 3.0 cerebral palsy module
Bijlagen
Alleen toegankelijk voor geautoriseerde gebruikers
Literatuur
1.
Miller, F. (2004). Cerebral palsy. New York: Springer Science and Business Media, Inc.
2.
Winter, S., Autry, A., Boyle, C., & Yeargin-Allsopp, M. (2002). Trends in the prevalence of cerebral palsy in a population-based study. Pediatrics, 110(6), 1220–1225.CrossRefPubMed
3.
Rosenbaum, P. (2003). Cerebral palsy: What parents and doctors want to know. British Medical Journal, 326(7396), 970–974.CrossRefPubMed
4.
Fayers, P. M., & Machin, D. (2000). Quality of life: Assessment, analysis and interpretation. New York: Wiley.
5.
Matza, L. S., Swensen, A. R., Flood, E. M., et al. (2004). Assessment of health-related quality of life in children: A review of conceptual, methodological, and regulatory issues. Value in Health, 7(1), 79–92.CrossRefPubMed
6.
Bjornson, K. F., & McLaughlin, J. F. (2001). The measurement of health related quality of life (HRQL) in children with CP. European Journal of Neurology, 5, 183–193.CrossRef
7.
Varni, J. W., Burwinkle, T. M., Sherman, S. A., et al. (2005). Health-related quality of life of children and adolescents with cerebral palsy: Hearing the voices of the children. Developmental Medicine and Child Neurology, 47(9), 592–597.CrossRefPubMed
8.
Eiser, C., & Morse, R. (2001). Can parents rate their child’s health-related quality of life?: Results from a systematic review. Quality of Life Research, 10(4), 347–357.CrossRefPubMed
9.
Uzark, K., Jones, K., Burwinkle, T. M., & Varni, J. W. (2003). The pediatric quality of life inventory in children with heart disease. Progress in Pediatric Cardiology, 18, 141–148.CrossRef
10.
Palmer, S. N., Meeske, K. A., Katz, E. R., et al. (2007). The PedsQL™ brain tumor module: Initial reliability and validity. Pediatric Blood and Cancer, 49(3), 287–293.CrossRefPubMed
11.
Varni, J. W., Burwinkle, T. M., Berrin, S. J., et al. (2006). The PedsQL™ in pediatric cerebral palsy: Reliability, validity, and sensitivity of the generic core scales and cerebral palsy module. Developmental Medicine and Child Neurology, 48(6), 442–449.CrossRefPubMed
12.
Varni, J. W., Burwinkle, T. M., Jacobs, J. R., et al. (2003). The PedsQL™ in type 1 and type 2 diabetes: Reliability and validity of the pediatric quality of life inventory™ generic core scales and type 1 diabetes module. Diabetes Care, 26(3), 631–637.CrossRefPubMed
13.
Varni, J. W., Burwinkle, T. M., Rapoff, M. A., et al. (2004). The PedsQL™ in pediatric asthma: Reliability and validity of the pediatric quality of life inventory™ generic core scales and asthma module. Journal of Behavioral Medicine, 27(3), 297–318.CrossRefPubMed
14.
Varni, J. W., Burwinkle, T. M., Katz, E. R., et al. (2002). The PedsQL™ in pediatric cancer: Reliability and validity of the pediatric quality of life inventory™ generic core scales, multidimensional fatigue scale, and cancer module. Cancer, 94(7), 2090–2106.CrossRefPubMed
15.
Iannaccone, S. T., Hynan, L. S., Morton, A., et al. (2009). The PedsQL™ in pediatric patients with spinal muscular atrophy: Feasibility, reliability, and validity of the pediatric quality of life inventory™ generic core scales and neuromuscular module. Neuromuscular Disorders, 19(12), 805–812.CrossRefPubMed
16.
Varni, J. W., & Limbers, C. A. (2008). The PedsQL™ multidimensional fatigue scale in young adults: Feasibility, reliability and validity in a university student population. Quality of Life Research, 17(1), 105–114.CrossRefPubMed
17.
Varni, J. W., Seid, M., & Rode, C. A. (1999). The PedsQL: Measurement model for the pediatric quality of life inventory. Medical Care, 37(2), 126–139.CrossRefPubMed
18.
Varni, J. W., Burwinkle, T. M., & Seid, M. (2006). The PedsQL 4.0 as a school population health measure: Feasibility, reliability, and validity. Quality of Life Research, 15(2), 203–215.CrossRefPubMed
19.
Varni, J. W., Seid, M., & Kurtin, P. S. (2001). PedsQL 4.0: Reliability and validity of the pediatric quality of life inventory version 4.0 generic core scales in healthy and patient populations. Medical Care, 39(8), 800–812.CrossRefPubMed
20.
Varni, J. W., Limbers, C. A., & Burwinkle, T. M. (2007). How young can children reliably and validly self-report their health-related quality of life?: An analysis of 8, 591 children across age subgroups with the PedsQL 4.0 generic core scales. Health Qual Life Outcomes, 5, 1.CrossRefPubMed
21.
Varni, J. W., Burwinkle, T. M., Sherman, S. A., et al. (2005). Health-related quality of life of children and adolescents with cerebral palsy: Hearing the voices of the children. Developmental Medicine and Child Neurology, 47(9), 592–597.CrossRefPubMed
22.
Chen, Y. M., He, L. P., Mai, J. C., et al. (2008). Validity and reliability of pediatric quality of life inventory version 4.0 generic core scales in Chinese children and adolescents. Zhonghua Liu Xing Bing Xue Za Zhi, 29(6), 560–563.PubMed
23.
Fairclough, D. L. (2002). Design and analysis of quality of life studies in clinical trials: Interdisciplinary statistics. New York: Chapman & Hall/CRC.
24.
McHorney, C. A., Ware, J. E., Jr, Lu, J. F., & Sherbourne, C. D. (1994). The MOS 36-item short-form health survey (SF-36): III. Tests of data quality, scaling assumptions, and reliability across diverse patient groups. Medical Care, 32(1), 40–66.CrossRefPubMed
25.
Cronbach, L. J. (1951). Coefficient alpha and the internal structure of tests. Psychometrika, 16, 297–334.CrossRef
26.
Nunnally, J. C., & Bernstein, I. R. (1994). Psychometric theory (3rd ed.). New York: McGraw-Hill.
27.
Cohen, J. (1988). Statistical power analysis for the behavioral sciences (2nd ed.). New Jersey: Lawrence Erlbaum Associates.
28.
Pedhazur, E. J., & Schmelkin, L. P. (1991). Measurement, design, and analysis: An integrated approach. New Jersey: Lawrence Erlbaum Associates.
29.
Rosnow, R. L., & Rosenthal, R. (1996). Computing contrasts, effect sizes, and counternulls on other people’s published data: General procedures for research consumers. Pyschological Methods, 1, 331–340.CrossRef
30.
Floyd, F. J., & Widaman, K. F. (1995). Factor analysis in the development and refinement of clinical assessment instruments. Psychological Assess, 7, 286–299.CrossRef
31.
Bartko, J. J. (1966). The intraclass correlation coefficient as a measure of reliability. Psychological Reports, 19(1), 3–11.PubMed
32.
McGraw, K. O., & Wong, S. P. (1996). Forming inferences about some intraclass correlation coefficients. Psychological Methods, 1, 30–46.CrossRef
33.
de Vet, H. C., Terwee, C. B., Knol, D. L., et al. (2006). When to use agreement versus reliability measures. Journal of Clinical Epidemiology, 59(10), 1033–1039.CrossRefPubMed
34.
Novick, M., & Lewis, G. (1967). Coefficient alpha and the reliability of composite measurements. Psychometrika, 32(1), 1–13.CrossRefPubMed
35.
Sprangers, M. A. G., & Aaronson, N. K. (1992). The role of health care providers and significant others in evaluating the quality of life of patients with chronic disease: A review. Journal of Clinical Epidemiology, 45(7), 743–760.CrossRefPubMed
36.
Achenbach, T. M., McConaughy, S. H., & Howell, C. T. (1987). Child/adolescent behavioral and emotional problems: Implications of cross-informant correlations for situational specificity. Psychological Bulletin, 101(2), 213–232.CrossRefPubMed
37.
Eiser, C., & Morse, R. (2001). Can parents rate their child’s health-related quality of life?: Results from a systematic review. Quality of Life Research, 10(4), 347–357.CrossRefPubMed
38.
Campo, J. V., Comer, D. M., Jansen-McWilliams, L., et al. (2002). Recurrent pain, emotional distress, and health service use in childhood. Journal of Pediatrics, 141(1), 76–83.CrossRefPubMed
39.
Janicke, D. M., Finney, J. W., & Riley, A. W. (2001). Children’s health care use: A prospective investigation of factors related to care-seeking. Medical Care, 39(9), 990–1001.CrossRefPubMed
40.
Varni, J. W., & Setoguchi, Y. (1992). Screening for behavioral and emotional problems in children and adolescents with congenital or acquired limb deficiencies. American Journal of Disease of Children, 146(1), 103–107.
41.
Varni, J. W., Limbers, C. A., & Burwinkle, T. M. (2007). Parent proxy-report of their children’s health-related quality of life: An analysis of 13, 878 parents’ reliability and validity across age subgroups using the PedsQLTM 4.0 generic core scales. Health and Quality of Life Outcomes, 5, 2.CrossRefPubMed
42.
Reinfjell, T., Diseth, T. H., Veenstra, M., & Vikan, A. (2006). Measuring health-related quality of life in young adolescents: Reliability and validity in the Norwegian version of the pediatric quality of life inventory™ 4.0 (PedsQL) generic core scales. Health and Quality of Life Outcomes, 4, 61.CrossRefPubMed
43.
Costello, A. B., & Osborne, J. W. (2005). Best practices in exploratory factor analysis: Four recommendations for getting the most from your analysis. Practical Assessment Research and Evaluation, 10(7), 1–9.
Metagegevens
Titel
The PedsQL in pediatric cerebral palsy: reliability and validity of the Chinese version pediatric quality of life inventory 4.0 generic core scales and 3.0 cerebral palsy module
Auteurs
Xue Yang
Nong Xiao
Jianying Yan
Publicatiedatum
01-03-2011
Uitgeverij
Springer Netherlands
Gepubliceerd in
Quality of Life Research / Uitgave 2/2011
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-010-9751-0

Andere artikelen Uitgave 2/2011

Quality of Life Research 2/2011 Naar de uitgave

OriginalPaper

Measurement properties of a multicultural weight-specific quality-of-life instrument for children and adolescents

OriginalPaper

Comparison of the short-term health-related quality of life in patients with esophageal cancer with different routes of gastric tube reconstruction after minimally invasive esophagectomy

Brief Communication

Discrepancy in rating health-related quality of life of depression between patient and general population

BriefCommunication

Validation of the medical outcomes study HIV (MOS-HIV) health survey among HIV-infected patients in Taiwan

OriginalPaper

The importance of socio-demographic factors for the quality of life of adults with congenital heart disease

ReviewPaper

To what extent can response shift theory explain the variation in prostate cancer patients’ reactions to treatment side-effects? A review