Skip to main content
Top
Gepubliceerd in:

08-02-2016 | Original Paper

The Need for an Ecological Approach to Parental Stress in Autism Spectrum Disorders: The Combined Role of Individual and Environmental Factors

Auteurs: C. Derguy, K. M’Bailara, G. Michel, S. Roux, M. Bouvard

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 6/2016

Log in om toegang te krijgen
share
DELEN

Deel dit onderdeel of sectie (kopieer de link)

  • Optie A:
    Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
  • Optie B:
    Deel de link per e-mail

Abstract

This study aimed to identify parental stress predictors in ASD by considering individual and environmental factors in an ecological approach. Participants were 115 parents of children with ASD aged from 3 to 10 years. Multiple regression analyses were conducted to determine the best predictors of parental stress among child-related, parent-related and environmental factors. Poor quality interactions within the extended family, high levels of expressed emotion and absence of children’s schooling were associated with higher stress, regardless of the child’s age and developmental quotient [F (3) = 37.051; p < 0.001; Adj. R2 = 0.457]. This study highlights the importance of considering environmental factors, specifically family variables, to understand parental stress. These key findings should be considered when designing support programs.
Literatuur
go back to reference Abidin, R. R. (1995). Parenting stress index professional manual (3rd ed.). Odessa: Psychological Assessment Resources. Abidin, R. R. (1995). Parenting stress index professional manual (3rd ed.). Odessa: Psychological Assessment Resources.
go back to reference American Psychiatric Association. (2003). DSM-IV-TR Manuel diagnostique et statistique des troubles mentaux: Texte révisé (2e ed.). France: Editions Masson. American Psychiatric Association. (2003). DSM-IV-TR Manuel diagnostique et statistique des troubles mentaux: Texte révisé (2e ed.). France: Editions Masson.
go back to reference Baghdadli, A., Darrou, C., Coudurier, C., Michelon, C., Raysse, P., Ledesert, B., et al. (2008). Durée des prises en charge d’enfants autistes et qualité de vie de leurs parents. Pratiques et Organisation Des Soins, 1, 53–60. Baghdadli, A., Darrou, C., Coudurier, C., Michelon, C., Raysse, P., Ledesert, B., et al. (2008). Durée des prises en charge d’enfants autistes et qualité de vie de leurs parents. Pratiques et Organisation Des Soins, 1, 53–60.
go back to reference Barker, E. T., Hartley, S. L., Seltzer, M. M., Floyd, F. J., Greenberg, J. S., & Orsmond, G. I. (2011a). Trajectories of emotional well-being in mothers of adolescents and adults with autism. Developmental Psychology, 47(2), 551–561. doi:10.1037/a0021268.CrossRefPubMedPubMedCentral Barker, E. T., Hartley, S. L., Seltzer, M. M., Floyd, F. J., Greenberg, J. S., & Orsmond, G. I. (2011a). Trajectories of emotional well-being in mothers of adolescents and adults with autism. Developmental Psychology, 47(2), 551–561. doi:10.​1037/​a0021268.CrossRefPubMedPubMedCentral
go back to reference Barker, E. T., Hartley, S. L., Seltzer, M. M., Floyd, F. J., Greenberg, J. S., & Orsmond, G. I. (2011b). Trajectories of emotional well-being in mothers of adolescents and adults with autism. Developmental Psychology, 47(2), 551–561. doi:10.1037/a0021268.CrossRefPubMedPubMedCentral Barker, E. T., Hartley, S. L., Seltzer, M. M., Floyd, F. J., Greenberg, J. S., & Orsmond, G. I. (2011b). Trajectories of emotional well-being in mothers of adolescents and adults with autism. Developmental Psychology, 47(2), 551–561. doi:10.​1037/​a0021268.CrossRefPubMedPubMedCentral
go back to reference Baron-Cohen, S., Wheelwright, S., Skinner, R., Martin, J., & Clubley, E. (2001). The autism-spectrum quotient (AQ): Evidence from Asperger syndrome/high-functioning autism, males and females, scientists and mathematicians. Journal of Autism and Developmental Disorders, 31(1), 5–17.CrossRefPubMed Baron-Cohen, S., Wheelwright, S., Skinner, R., Martin, J., & Clubley, E. (2001). The autism-spectrum quotient (AQ): Evidence from Asperger syndrome/high-functioning autism, males and females, scientists and mathematicians. Journal of Autism and Developmental Disorders, 31(1), 5–17.CrossRefPubMed
go back to reference Belsky, J. (1984). The determinants of parenting: A process model. Child Development, 55(1), 83–96.CrossRefPubMed Belsky, J. (1984). The determinants of parenting: A process model. Child Development, 55(1), 83–96.CrossRefPubMed
go back to reference Benson, P. R., & Kersh, J. (2011). Marital quality and psychological adjustment among mothers of children with ASD: Cross-sectional and longitudinal relationships. Journal of Autism and Developmental Disorders, 41(12), 1675–1685. doi:10.1007/s10803-011-1198-9.CrossRefPubMed Benson, P. R., & Kersh, J. (2011). Marital quality and psychological adjustment among mothers of children with ASD: Cross-sectional and longitudinal relationships. Journal of Autism and Developmental Disorders, 41(12), 1675–1685. doi:10.​1007/​s10803-011-1198-9.CrossRefPubMed
go back to reference Bigras, M., LaFrenière, P. J., & Abidin, R. R. (1996). Indice de stress parental: Manuel francophone en complément de l’édition américaine. Toronto: Multi-Health Sistems. Bigras, M., LaFrenière, P. J., & Abidin, R. R. (1996). Indice de stress parental: Manuel francophone en complément de l’édition américaine. Toronto: Multi-Health Sistems.
go back to reference Bressoux, P. (2010). Modélisation statistique appliquée aux sciences sociales (2nd ed.). Bruxelles: De Boeck. Bressoux, P. (2010). Modélisation statistique appliquée aux sciences sociales (2nd ed.). Bruxelles: De Boeck.
go back to reference Bristol, M. M. (1987). Mothers of children with autism or communication disorders: Successful adaptation and the double ABCX model. Journal of Autism and Developmental Disorders, 17(4), 469–486.CrossRefPubMed Bristol, M. M. (1987). Mothers of children with autism or communication disorders: Successful adaptation and the double ABCX model. Journal of Autism and Developmental Disorders, 17(4), 469–486.CrossRefPubMed
go back to reference Cappe, E. (2012). Effet de l’inclusion sociale et scolaire sur le processus d’ajustement et la qualité de vie des parents d’un enfant présentant un trouble du spectre autistique. Annales Médico-Psychologiques, Revue Psychiatrique, 170(7), 471–475. doi:10.1016/j.amp.2012.06.015.CrossRef Cappe, E. (2012). Effet de l’inclusion sociale et scolaire sur le processus d’ajustement et la qualité de vie des parents d’un enfant présentant un trouble du spectre autistique. Annales Médico-Psychologiques, Revue Psychiatrique, 170(7), 471–475. doi:10.​1016/​j.​amp.​2012.​06.​015.CrossRef
go back to reference Cappe, E., Wolff, M., Bobet, R., & Adrien, J.-L. (2011). Quality of life: A key variable to consider in the evaluation of adjustment in parents of children with autism spectrum disorders and in the development of relevant support and assistance programmes. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 20(8), 1279–1294. doi:10.1007/s11136-011-9861-3.CrossRef Cappe, E., Wolff, M., Bobet, R., & Adrien, J.-L. (2011). Quality of life: A key variable to consider in the evaluation of adjustment in parents of children with autism spectrum disorders and in the development of relevant support and assistance programmes. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 20(8), 1279–1294. doi:10.​1007/​s11136-011-9861-3.CrossRef
go back to reference Davis, N., & Carter, A. (2008). Parenting stress in mothers and fathers of toddlers with autism spectrum disorders: Associations with child characteristics. Journal of Autism and Developmental Disorders, 38(7), 1278–1291.CrossRefPubMed Davis, N., & Carter, A. (2008). Parenting stress in mothers and fathers of toddlers with autism spectrum disorders: Associations with child characteristics. Journal of Autism and Developmental Disorders, 38(7), 1278–1291.CrossRefPubMed
go back to reference Derguy, C., Michel, G., M’Bailara, K., Roux, S., & Bouvard, M. (2015). Assessing needs in parents of children with autism spectrum disorder: A crucial preliminary step to target relevant issues for support programs. Journal of Intellectual and Developmental Disability, 40(2), 1–11. doi:10.3109/13668250.2015.1023707.CrossRef Derguy, C., Michel, G., M’Bailara, K., Roux, S., & Bouvard, M. (2015). Assessing needs in parents of children with autism spectrum disorder: A crucial preliminary step to target relevant issues for support programs. Journal of Intellectual and Developmental Disability, 40(2), 1–11. doi:10.​3109/​13668250.​2015.​1023707.CrossRef
go back to reference Duarte, C. S., Bordin, I. A., Yazigi, L., & Mooney, J. (2005). Factors associated with stress in mothers of children with autism. Autism, 9(4), 416–427.CrossRefPubMed Duarte, C. S., Bordin, I. A., Yazigi, L., & Mooney, J. (2005). Factors associated with stress in mothers of children with autism. Autism, 9(4), 416–427.CrossRefPubMed
go back to reference Estes, A., Munson, J., Dawson, G., Koehler, E., Zhou, X.-H., & Abbott, R. (2009). Parenting stress and psychological functioning among mothers of preschool children with autism and developmental delay. Autism: The International Journal of Research and Practice, 13(4), 375–387. doi:10.1177/1362361309105658.CrossRef Estes, A., Munson, J., Dawson, G., Koehler, E., Zhou, X.-H., & Abbott, R. (2009). Parenting stress and psychological functioning among mothers of preschool children with autism and developmental delay. Autism: The International Journal of Research and Practice, 13(4), 375–387. doi:10.​1177/​1362361309105658​.CrossRef
go back to reference Falk, N. H., Norris, K., & Quinn, M. G. (2014). The factors predicting stress, anxiety and depression in the parents of children with autism. Journal of Autism and Developmental Disorders, 44(12), 3185–3203. doi:10.1007/s10803-014-2189-4.CrossRefPubMed Falk, N. H., Norris, K., & Quinn, M. G. (2014). The factors predicting stress, anxiety and depression in the parents of children with autism. Journal of Autism and Developmental Disorders, 44(12), 3185–3203. doi:10.​1007/​s10803-014-2189-4.CrossRefPubMed
go back to reference Favez, N. (2010). L’examen clinique de la famille. Mardaga: Modèles et instrument d’évaluation. Favez, N. (2010). L’examen clinique de la famille. Mardaga: Modèles et instrument d’évaluation.
go back to reference Giallo, R., Wood, C. E., Jellett, R., & Porter, R. (2013). Fatigue, wellbeing and parental self-efficacy in mothers of children with an autism spectrum disorder. Autism: The International Journal of Research and Practice, 17(4), 465–480. doi:10.1177/1362361311416830.CrossRef Giallo, R., Wood, C. E., Jellett, R., & Porter, R. (2013). Fatigue, wellbeing and parental self-efficacy in mothers of children with an autism spectrum disorder. Autism: The International Journal of Research and Practice, 17(4), 465–480. doi:10.​1177/​1362361311416830​.CrossRef
go back to reference Harper, A., Dyches, T. T., Harper, J., Roper, S. O., & South, M. (2013). Respite care, marital quality, and stress in parents of children with autism spectrum disorders. Journal of Autism and Developmental Disorders. doi:10.1007/s10803-013-1812-0.PubMed Harper, A., Dyches, T. T., Harper, J., Roper, S. O., & South, M. (2013). Respite care, marital quality, and stress in parents of children with autism spectrum disorders. Journal of Autism and Developmental Disorders. doi:10.​1007/​s10803-013-1812-0.PubMed
go back to reference Hastings, R. P., & Brown, T. (2002). Behavior problems of children with autism, parental self-efficacy, and mental health. American Journal of Mental Retardation: AJMR, 107(3), 222–232.CrossRefPubMed Hastings, R. P., & Brown, T. (2002). Behavior problems of children with autism, parental self-efficacy, and mental health. American Journal of Mental Retardation: AJMR, 107(3), 222–232.CrossRefPubMed
go back to reference Hastings, R. P., Daley, D., Burns, C., & Beck, A. (2006). Maternal distress and expressed emotion: Cross-sectional and longitudinal relationships with behavior problems of children with intellectual disabilities (English). American Journal of Mental Retardation, 111(1), 48–61.CrossRefPubMed Hastings, R. P., Daley, D., Burns, C., & Beck, A. (2006). Maternal distress and expressed emotion: Cross-sectional and longitudinal relationships with behavior problems of children with intellectual disabilities (English). American Journal of Mental Retardation, 111(1), 48–61.CrossRefPubMed
go back to reference Hastings, R. P., & Johnson, E. (2001). Stress in UK families conducting intensive home-based behavioral intervention for their young child with autism. Journal of Autism and Developmental Disorders, 31(3), 327–336.CrossRefPubMed Hastings, R. P., & Johnson, E. (2001). Stress in UK families conducting intensive home-based behavioral intervention for their young child with autism. Journal of Autism and Developmental Disorders, 31(3), 327–336.CrossRefPubMed
go back to reference Hastings, R. P., Kovshoff, H., Ward, N. J., Degli Espinosa, F., Brown, T., & Remington, B. (2005). Systems analysis of stress and positive perceptions in mothers and fathers of pre-school children with autism. Journal of Autism and Developmental Disorders, 35(5), 635–644. doi:10.1007/s10803-005-0007-8.CrossRefPubMed Hastings, R. P., Kovshoff, H., Ward, N. J., Degli Espinosa, F., Brown, T., & Remington, B. (2005). Systems analysis of stress and positive perceptions in mothers and fathers of pre-school children with autism. Journal of Autism and Developmental Disorders, 35(5), 635–644. doi:10.​1007/​s10803-005-0007-8.CrossRefPubMed
go back to reference Herring, S., Gray, K., Taffe, J., Tonge, B., Sweeney, D., & Einfeld, S. (2006). Behaviour and emotional problems in toddlers with pervasive developmental disorders and developmental delay: Associations with parental mental health and family functioning. Journal of Intellectual Disability Research: JIDR, 50(Pt 12), 874–882. doi:10.1111/j.1365-2788.2006.00904.x.CrossRefPubMed Herring, S., Gray, K., Taffe, J., Tonge, B., Sweeney, D., & Einfeld, S. (2006). Behaviour and emotional problems in toddlers with pervasive developmental disorders and developmental delay: Associations with parental mental health and family functioning. Journal of Intellectual Disability Research: JIDR, 50(Pt 12), 874–882. doi:10.​1111/​j.​1365-2788.​2006.​00904.​x.CrossRefPubMed
go back to reference Hill-Chapman, C. R., Herzog, T. K., & Maduro, R. S. (2013). Aligning over the child: Parenting alliance mediates the association of autism spectrum disorder atypicality with parenting stress. Research in Developmental Disabilities, 34(5), 1498–1504. doi:10.1016/j.ridd.2013.01.004.CrossRefPubMed Hill-Chapman, C. R., Herzog, T. K., & Maduro, R. S. (2013). Aligning over the child: Parenting alliance mediates the association of autism spectrum disorder atypicality with parenting stress. Research in Developmental Disabilities, 34(5), 1498–1504. doi:10.​1016/​j.​ridd.​2013.​01.​004.CrossRefPubMed
go back to reference IBM Corp. (2011). IBM SPSS Statistics for Windows, Version 20.0. IBM Corp. (2011). IBM SPSS Statistics for Windows, Version 20.0.
go back to reference Ingersoll, B., & Hambrick, D. Z. (2011). The relationship between the broader autism phenotype, child severity, and stress and depression in parents of children with autism spectrum disorders. Research in Autism Spectrum Disorders, 5(1), 337–344. doi:10.1016/j.rasd.2010.04.017.CrossRef Ingersoll, B., & Hambrick, D. Z. (2011). The relationship between the broader autism phenotype, child severity, and stress and depression in parents of children with autism spectrum disorders. Research in Autism Spectrum Disorders, 5(1), 337–344. doi:10.​1016/​j.​rasd.​2010.​04.​017.CrossRef
go back to reference Johnson, N., Frenn, M., Feetham, S., & Simpson, P. (2011). Autism spectrum disorder: Parenting stress, family functioning and health-related quality of life. Families, Systems, and Health, 29(3), 232–252. doi:10.1037/a0025341.CrossRefPubMed Johnson, N., Frenn, M., Feetham, S., & Simpson, P. (2011). Autism spectrum disorder: Parenting stress, family functioning and health-related quality of life. Families, Systems, and Health, 29(3), 232–252. doi:10.​1037/​a0025341.CrossRefPubMed
go back to reference Johnston, C., Hessl, D., Blasey, C., Eliez, S., Erba, H., Dyer-Friedman, J., et al. (2003). Factors associated with parenting stress in mothers of children with fragile X syndrome. Journal of Developmental and Behavioral Pediatrics: JDBP, 24(4), 267–275.CrossRefPubMed Johnston, C., Hessl, D., Blasey, C., Eliez, S., Erba, H., Dyer-Friedman, J., et al. (2003). Factors associated with parenting stress in mothers of children with fragile X syndrome. Journal of Developmental and Behavioral Pediatrics: JDBP, 24(4), 267–275.CrossRefPubMed
go back to reference Katz, S., & Kessel, L. (2002). Grandparents of children with developmental disabilities: Perceptions, beliefs, and involvement in their care. Issues in Comprehensive Pediatric Nursing, 25(1), 113–128.CrossRefPubMed Katz, S., & Kessel, L. (2002). Grandparents of children with developmental disabilities: Perceptions, beliefs, and involvement in their care. Issues in Comprehensive Pediatric Nursing, 25(1), 113–128.CrossRefPubMed
go back to reference Kavanagh, D. J., O’Halloran, P., Manicavasagar, V., Clark, D., Piatkowska, O., Tennant, C., et al. (1997). The family attitude scale: Reliability and validity of a new scale for measuring the emotional climate of families. Psychiatry Research, 70(3), 185–195. doi:10.1016/S0165-1781(97)00033-4.CrossRefPubMed Kavanagh, D. J., O’Halloran, P., Manicavasagar, V., Clark, D., Piatkowska, O., Tennant, C., et al. (1997). The family attitude scale: Reliability and validity of a new scale for measuring the emotional climate of families. Psychiatry Research, 70(3), 185–195. doi:10.​1016/​S0165-1781(97)00033-4.CrossRefPubMed
go back to reference Kenny, D. A., Kashy, D. A., & Cook, W. L. (2006). Dyadic data analysis. New York: Guilford Press. Kenny, D. A., Kashy, D. A., & Cook, W. L. (2006). Dyadic data analysis. New York: Guilford Press.
go back to reference Lau, W. Y.-P., Gau, S. S.-F., Chiu, Y.-N., & Wu, Y.-Y. (2014). Autistic traits in couple dyads as a predictor of anxiety spectrum symptoms. Journal of Autism and Developmental Disorders, 44(11), 2949–2963. doi:10.1007/s10803-014-2151-5.CrossRefPubMed Lau, W. Y.-P., Gau, S. S.-F., Chiu, Y.-N., & Wu, Y.-Y. (2014). Autistic traits in couple dyads as a predictor of anxiety spectrum symptoms. Journal of Autism and Developmental Disorders, 44(11), 2949–2963. doi:10.​1007/​s10803-014-2151-5.CrossRefPubMed
go back to reference Le Couteur, A., Rutter, M., Lord, C., Rios, P., Robertson, S., Holdgrafer, M., et al. (1989). Autism diagnostic interview: A standardized investigator-based instrument. Journal of Autism and Developmental Disorders, 19(3), 363–387.CrossRefPubMed Le Couteur, A., Rutter, M., Lord, C., Rios, P., Robertson, S., Holdgrafer, M., et al. (1989). Autism diagnostic interview: A standardized investigator-based instrument. Journal of Autism and Developmental Disorders, 19(3), 363–387.CrossRefPubMed
go back to reference Lin, L.-Y. (2011). Factors associated with caregiving burden and maternal pessimism in mothers of adolescents with an autism spectrum disorder in Taiwan. Occupational Therapy International, 18(2), 96–105. doi:10.1002/oti.305.CrossRefPubMed Lin, L.-Y. (2011). Factors associated with caregiving burden and maternal pessimism in mothers of adolescents with an autism spectrum disorder in Taiwan. Occupational Therapy International, 18(2), 96–105. doi:10.​1002/​oti.​305.CrossRefPubMed
go back to reference Lord, C., Rutter, M., DiLavore, P., & Risi, S. (1999). Autism Diagnostic Observation Schedule-WPS (ADOS-WPS). Los Angeles, CA: Western Psychological Services. Lord, C., Rutter, M., DiLavore, P., & Risi, S. (1999). Autism Diagnostic Observation Schedule-WPS (ADOS-WPS). Los Angeles, CA: Western Psychological Services.
go back to reference Lord, C., Rutter, M., & Le Couteur, A. (1994). Autism Diagnostic Interview-Revised: A revised version of a diagnostic interview for caregivers of individuals with possible pervasive developmental disorders. Journal of Autism and Developmental Disorders, 24(5), 659–685.CrossRefPubMed Lord, C., Rutter, M., & Le Couteur, A. (1994). Autism Diagnostic Interview-Revised: A revised version of a diagnostic interview for caregivers of individuals with possible pervasive developmental disorders. Journal of Autism and Developmental Disorders, 24(5), 659–685.CrossRefPubMed
go back to reference Manning, M. M., Wainwright, L., & Bennett, J. (2011). The double ABCX model of adaptation in racially diverse families with a school-age child with autism. Journal of Autism and Developmental Disorders, 41(3), 320–331. doi:10.1007/s10803-010-1056-1.CrossRefPubMed Manning, M. M., Wainwright, L., & Bennett, J. (2011). The double ABCX model of adaptation in racially diverse families with a school-age child with autism. Journal of Autism and Developmental Disorders, 41(3), 320–331. doi:10.​1007/​s10803-010-1056-1.CrossRefPubMed
go back to reference McCubbin, H. I., & Patterson, J. M. (1983). Family stress and adaptation to crises: A double ABCX model of family behavior. In D. H. Olson & R. C. Miller (Eds.), Family studies review yearbook (Vol. 1, pp. 87–106). Beverly Hills, CA: Sage. McCubbin, H. I., & Patterson, J. M. (1983). Family stress and adaptation to crises: A double ABCX model of family behavior. In D. H. Olson & R. C. Miller (Eds.), Family studies review yearbook (Vol. 1, pp. 87–106). Beverly Hills, CA: Sage.
go back to reference McStay, R. L., Dissanayake, C., Scheeren, A., Koot, H. M., & Begeer, S. (2013). Parenting stress and autism: The role of age, autism severity, quality of life and problem behaviour of children and adolescents with autism. Autism: The International Journal of Research and Practice. doi:10.1177/1362361313485163. McStay, R. L., Dissanayake, C., Scheeren, A., Koot, H. M., & Begeer, S. (2013). Parenting stress and autism: The role of age, autism severity, quality of life and problem behaviour of children and adolescents with autism. Autism: The International Journal of Research and Practice. doi:10.​1177/​1362361313485163​.
go back to reference McStay, R. L., Trembath, D., & Dissanayake, C. (2014). Stress and family quality of life in parents of children with autism spectrum disorder: Parent gender and the double ABCX model. Journal of Autism and Developmental Disorders. doi:10.1007/s10803-014-2178-7.PubMed McStay, R. L., Trembath, D., & Dissanayake, C. (2014). Stress and family quality of life in parents of children with autism spectrum disorder: Parent gender and the double ABCX model. Journal of Autism and Developmental Disorders. doi:10.​1007/​s10803-014-2178-7.PubMed
go back to reference Olson, D., & Gorall, D. (2003). Circumplex model of marital and family systems. In F. Walsh (Ed.), Normal family process (3rd ed., pp. 514–548). New York, NY: Guilford Press. Olson, D., & Gorall, D. (2003). Circumplex model of marital and family systems. In F. Walsh (Ed.), Normal family process (3rd ed., pp. 514–548). New York, NY: Guilford Press.
go back to reference Osborne, L. A., McHugh, L., Saunders, J., & Reed, P. (2008). A possible contra-indication for early diagnosis of Autistic Spectrum Conditions: Impact on parenting stress. Research in Autism Spectrum Disorders, 2(4), 707–715. doi:10.1016/j.rasd.2008.02.005.CrossRef Osborne, L. A., McHugh, L., Saunders, J., & Reed, P. (2008). A possible contra-indication for early diagnosis of Autistic Spectrum Conditions: Impact on parenting stress. Research in Autism Spectrum Disorders, 2(4), 707–715. doi:10.​1016/​j.​rasd.​2008.​02.​005.CrossRef
go back to reference Pakenham, K. I., Samios, C., & Sofronoff, K. (2005). Adjustment in mothers of children with Asperger syndrome: An application of the double ABCX model of family adjustment. Autism The International Journal of Research and Practice, 9(2), 191–212. doi:10.1177/1362361305049033.CrossRefPubMed Pakenham, K. I., Samios, C., & Sofronoff, K. (2005). Adjustment in mothers of children with Asperger syndrome: An application of the double ABCX model of family adjustment. Autism The International Journal of Research and Practice, 9(2), 191–212. doi:10.​1177/​1362361305049033​.CrossRefPubMed
go back to reference Peters-Scheffer, N., Didden, R., & Korzilius, H. (2012). Maternal stress predicted by characteristics of children with autism spectrum disorder and intellectual disability. Research in Autism Spectrum Disorders, 6(2), 696–706. doi:10.1016/j.rasd.2011.10.003.CrossRef Peters-Scheffer, N., Didden, R., & Korzilius, H. (2012). Maternal stress predicted by characteristics of children with autism spectrum disorder and intellectual disability. Research in Autism Spectrum Disorders, 6(2), 696–706. doi:10.​1016/​j.​rasd.​2011.​10.​003.CrossRef
go back to reference Piana, H., Fortin, C., Noulhiane, M., Golse, B., & Robel, L. (2007). Investigation of the Behavioural Phenotype of Parents of Autistic Children through the New FAQ Self-Report. L'Encephale 33(3), 285–292.CrossRefPubMed Piana, H., Fortin, C., Noulhiane, M., Golse, B., & Robel, L. (2007). Investigation of the Behavioural Phenotype of Parents of Autistic Children through the New FAQ Self-Report. L'Encephale 33(3), 285–292.CrossRefPubMed
go back to reference Pozo, P., Sarriá, E., & Brioso, A. (2014). Family quality of life and psychological well-being in parents of children with autism spectrum disorders: A double ABCX model. Journal of Intellectual Disability Research: JIDR, 58(5), 442–458. doi:10.1111/jir.12042.CrossRefPubMed Pozo, P., Sarriá, E., & Brioso, A. (2014). Family quality of life and psychological well-being in parents of children with autism spectrum disorders: A double ABCX model. Journal of Intellectual Disability Research: JIDR, 58(5), 442–458. doi:10.​1111/​jir.​12042.CrossRefPubMed
go back to reference Rivard, M., Terroux, A., Parent-Boursier, C., & Mercier, C. (2014). Determinants of stress in parents of children with autism spectrum disorders. Journal of Autism and Developmental Disorders. doi:10.1007/s10803-013-2028-z.PubMed Rivard, M., Terroux, A., Parent-Boursier, C., & Mercier, C. (2014). Determinants of stress in parents of children with autism spectrum disorders. Journal of Autism and Developmental Disorders. doi:10.​1007/​s10803-013-2028-z.PubMed
go back to reference Rousselot-Pailley, B., Fortin, C., Golse, B., Falissard, B., & Robel, L. (2011). L’autoquestionnaire FAQ: un outil valide pour le repérage des endophénotypes des parents d’enfants autistes. L’encéphale, 37(3), 191–198.CrossRefPubMed Rousselot-Pailley, B., Fortin, C., Golse, B., Falissard, B., & Robel, L. (2011). L’autoquestionnaire FAQ: un outil valide pour le repérage des endophénotypes des parents d’enfants autistes. L’encéphale, 37(3), 191–198.CrossRefPubMed
go back to reference Samadi, S. A., & McConkey, R. (2014). The impact on Iranian mothers and fathers who have children with an autism spectrum disorder. Journal of Intellectual Disability Research, 58(3), 243–254. doi:10.1111/jir.12005.CrossRefPubMed Samadi, S. A., & McConkey, R. (2014). The impact on Iranian mothers and fathers who have children with an autism spectrum disorder. Journal of Intellectual Disability Research, 58(3), 243–254. doi:10.​1111/​jir.​12005.CrossRefPubMed
go back to reference Samadi, S. A., McConkey, R., & Kelly, G. (2013). Enhancing parental well-being and coping through a family-centred short course for Iranian parents of children with an autism spectrum disorder. Autism: The International Journal of Research and Practice, 17(1), 27–43. doi:10.1177/1362361311435156.CrossRef Samadi, S. A., McConkey, R., & Kelly, G. (2013). Enhancing parental well-being and coping through a family-centred short course for Iranian parents of children with an autism spectrum disorder. Autism: The International Journal of Research and Practice, 17(1), 27–43. doi:10.​1177/​1362361311435156​.CrossRef
go back to reference Sandler, A. G., Warren, S. H., & Raver, S. A. (1995). Grandparents as a source of support for parents of children with disabilities: A brief report. Mental Retardation, 33(4), 248–250.PubMed Sandler, A. G., Warren, S. H., & Raver, S. A. (1995). Grandparents as a source of support for parents of children with disabilities: A brief report. Mental Retardation, 33(4), 248–250.PubMed
go back to reference Schopler, E., Lansing, M., Reichler, R. J., & Marcus, L. M. (2008). PEP-3 profil psycho-educatif (3rd ed.). Bruxelles: De Boeck. Schopler, E., Lansing, M., Reichler, R. J., & Marcus, L. M. (2008). PEP-3 profil psycho-educatif (3rd ed.). Bruxelles: De Boeck.
go back to reference Sharpley, C. F., Bitsika, V., & Efremidis, B. (1997). Influence of gender, parental health, and perceived expertise of assistance upon stress, anxiety, and depression among parents of children with autism. Journal of Intellectual and Developmental Disability, 22(1), 19–28. doi:10.1080/13668259700033261.CrossRef Sharpley, C. F., Bitsika, V., & Efremidis, B. (1997). Influence of gender, parental health, and perceived expertise of assistance upon stress, anxiety, and depression among parents of children with autism. Journal of Intellectual and Developmental Disability, 22(1), 19–28. doi:10.​1080/​1366825970003326​1.CrossRef
go back to reference Siman-Tov, A., & Kaniel, S. (2011). Stress and personal resource as predictors of the adjustment of parents to autistic children: A multivariate model. Journal of Autism and Developmental Disorders, 41(7), 879–890. doi:10.1007/s10803-010-1112-x.CrossRefPubMed Siman-Tov, A., & Kaniel, S. (2011). Stress and personal resource as predictors of the adjustment of parents to autistic children: A multivariate model. Journal of Autism and Developmental Disorders, 41(7), 879–890. doi:10.​1007/​s10803-010-1112-x.CrossRefPubMed
go back to reference Tabachnick, B. G., & Fidell, L. S. (2012). Using multivariate statistics (6th ed.). Boston: Pearson. Tabachnick, B. G., & Fidell, L. S. (2012). Using multivariate statistics (6th ed.). Boston: Pearson.
go back to reference Tobing, L. E., & Glenwick, D. S. (2002). Relation of the childhood autism rating scale-parent version to diagnosis, stress, and age. Research in Developmental Disabilities, 23(3), 211–223.CrossRefPubMed Tobing, L. E., & Glenwick, D. S. (2002). Relation of the childhood autism rating scale-parent version to diagnosis, stress, and age. Research in Developmental Disabilities, 23(3), 211–223.CrossRefPubMed
go back to reference Trute, B. (2003). Grand parents of children with developmental disabilities: Intergenerational support and family well-being. Families in Society, 84(1), 119–126.CrossRef Trute, B. (2003). Grand parents of children with developmental disabilities: Intergenerational support and family well-being. Families in Society, 84(1), 119–126.CrossRef
go back to reference Vandeleur, C., Kavanagh, D. J., Favez, N., Castelao, E., & Preisig, M. (2013). French version of the family attitude scale: Psychometric properties and relation of attitudes to the respondent’s psychiatric status. Psychiatry Research, 210(2), 641–646. doi:10.1016/j.psychres.2013.07.008.CrossRefPubMed Vandeleur, C., Kavanagh, D. J., Favez, N., Castelao, E., & Preisig, M. (2013). French version of the family attitude scale: Psychometric properties and relation of attitudes to the respondent’s psychiatric status. Psychiatry Research, 210(2), 641–646. doi:10.​1016/​j.​psychres.​2013.​07.​008.CrossRefPubMed
go back to reference Vandeleur, C., Preisig, M., Fenton, B., & Ferrero, F. (1999). Construct validity and internal reliability of a French version of FACES III in adolescent and adults. Swiss Journal of Psychology, 58(3), 161–169.CrossRef Vandeleur, C., Preisig, M., Fenton, B., & Ferrero, F. (1999). Construct validity and internal reliability of a French version of FACES III in adolescent and adults. Swiss Journal of Psychology, 58(3), 161–169.CrossRef
go back to reference Wechsler, D. (2004). Echelle d’intelligence de Wechsler pour la période pré-scolaire et primaire—Troisième édition. ECPA. Wechsler, D. (2004). Echelle dintelligence de Wechsler pour la période pré-scolaire et primaireTroisième édition. ECPA.
go back to reference Yingling, L., Miller, W., McDonald, A., & Galewaler, S. (1998). GARF assessment sourcebook. Unsins the DSM-IV global assessment of relational functioning. New York: Routledge. Yingling, L., Miller, W., McDonald, A., & Galewaler, S. (1998). GARF assessment sourcebook. Unsins the DSM-IV global assessment of relational functioning. New York: Routledge.
Metagegevens
Titel
The Need for an Ecological Approach to Parental Stress in Autism Spectrum Disorders: The Combined Role of Individual and Environmental Factors
Auteurs
C. Derguy
K. M’Bailara
G. Michel
S. Roux
M. Bouvard
Publicatiedatum
08-02-2016
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 6/2016
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-016-2719-3

Andere artikelen Uitgave 6/2016

Journal of Autism and Developmental Disorders 6/2016 Naar de uitgave