Skip to main content
Top

Tip

Swipe om te navigeren naar een ander artikel

02-06-2022 | Original Paper

The Medical Home and Use of Mental and Non-mental Specialty Services Among Children with Autism Spectrum Disorder (ASD)

Auteurs: Tobechukwu H. Ezeh, Brian K. Lee, Jessica E. Rast

Gepubliceerd in: Journal of Autism and Developmental Disorders

Log in om toegang te krijgen
share
DELEN

Deel dit onderdeel of sectie (kopieer de link)

  • Optie A:
    Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
  • Optie B:
    Deel de link per e-mail

Abstract

This study assessed the relationship between the medical home and use of health services among children with autism spectrum disorder (ASD). Data from 2016 to 2018 National Survey of Children’s Health was analyzed. Outcome measures were receipt of mental and non-mental specialty care, difficulty receiving needed mental and non-mental specialty care and unmet need for mental care. Having a medical home was associated with significantly lower odds of having unmet mental health need for children with ASD ages 11–17 (OR 0.14, 95% CI 0.07–0.30) but not for those ages 3–10 (OR 0.54, 95% CI 0.21–1.43). Having a medical home was also associated with lower odds of difficulty getting needed mental health care (OR 0.38, 95% CI 0.22–0.66) as well as non-mental specialty care (OR 0.24, 95% CI 0.13–0.44).
Bijlagen
Alleen toegankelijk voor geautoriseerde gebruikers
Literatuur
go back to reference Abu-Ghname, A., Clementi, M., Marton, S. A., Schwarzwald, H., Giwa, E., Hollier, L., et al. (2019). Behavioral health service utilization: Trends in utilization within a patient-centered medical home for low-income children and women. Journal of Family Medicine and Primary Care, 8(12), 3983–3989. CrossRef Abu-Ghname, A., Clementi, M., Marton, S. A., Schwarzwald, H., Giwa, E., Hollier, L., et al. (2019). Behavioral health service utilization: Trends in utilization within a patient-centered medical home for low-income children and women. Journal of Family Medicine and Primary Care, 8(12), 3983–3989. CrossRef
go back to reference Ader, J., Stille, C. J., Keller, D., Miller, B. F., Barr, M. S., & Perrin, J. M. (2015). The medical home and integrated behavioral health: Advancing the policy agenda. Pediatrics, 135(5), 909–917. CrossRef Ader, J., Stille, C. J., Keller, D., Miller, B. F., Barr, M. S., & Perrin, J. M. (2015). The medical home and integrated behavioral health: Advancing the policy agenda. Pediatrics, 135(5), 909–917. CrossRef
go back to reference Arauz Boudreau, A., Goodman, E., Kurowski, D., Perrin, J. M., Cooley, W. C., & Kuhlthau, K. (2014). Care coordination and unmet specialty care among children with special health care needs. Pediatrics, 133(6), 1046–1053. CrossRef Arauz Boudreau, A., Goodman, E., Kurowski, D., Perrin, J. M., Cooley, W. C., & Kuhlthau, K. (2014). Care coordination and unmet specialty care among children with special health care needs. Pediatrics, 133(6), 1046–1053. CrossRef
go back to reference Asarnow, J. R., Jaycox, L. H., Duan, N., LaBorde, A. P., Rea, M. M., Murray, P., et al. (2005). Effectiveness of a quality improvement intervention for adolescent depression in primary care clinics: A randomized controlled trial. JAMA, 293(3), 311–319. CrossRef Asarnow, J. R., Jaycox, L. H., Duan, N., LaBorde, A. P., Rea, M. M., Murray, P., et al. (2005). Effectiveness of a quality improvement intervention for adolescent depression in primary care clinics: A randomized controlled trial. JAMA, 293(3), 311–319. CrossRef
go back to reference Centers for Disease Control and Prevention. (2007). Prevalence of autism spectrum disorders—Autism and developmental disabilities monitoring network, six sites, United States, 2000. Morbidity and Mortality Weekly Report Surveillance Summaries (Washington, DC: 2002), 56(1), 1–11. Centers for Disease Control and Prevention. (2007). Prevalence of autism spectrum disorders—Autism and developmental disabilities monitoring network, six sites, United States, 2000. Morbidity and Mortality Weekly Report Surveillance Summaries (Washington, DC: 2002), 56(1), 1–11.
go back to reference Cheak-Zamora, N. C., & Farmer, J. E. (2015). The impact of the medical home on access to care for children with autism spectrum disorders. Journal of Autism and Developmental Disorders, 45(3), 636–644. CrossRef Cheak-Zamora, N. C., & Farmer, J. E. (2015). The impact of the medical home on access to care for children with autism spectrum disorders. Journal of Autism and Developmental Disorders, 45(3), 636–644. CrossRef
go back to reference Child and Adolescent Health Management Initiative. (2017). Fast facts: 2016 National Survey of Children’s Health. Data Resource Center for Child and Adolescent Health supported by the U.S. Department of Health and Human Services HRaSAH, Maternal and Child Health Bureau (MCHB). Retrieved February 11, 2017. Child and Adolescent Health Management Initiative. (2017). Fast facts: 2016 National Survey of Children’s Health. Data Resource Center for Child and Adolescent Health supported by the U.S. Department of Health and Human Services HRaSAH, Maternal and Child Health Bureau (MCHB). Retrieved February 11, 2017.
go back to reference Child and Adolescent Health Management Initiative. (2019a). Fast facts: 2017–2018 National Survey of Children’s Health. Data Resource Center for Child and Adolescent Health sbCAUMftUSDoHaHS, Health Resources and Services Administrations’s Maternal and Child Health Bureau (HRSA MCHB). Retrieved July 10, 2019a. Child and Adolescent Health Management Initiative. (2019a). Fast facts: 2017–2018 National Survey of Children’s Health. Data Resource Center for Child and Adolescent Health sbCAUMftUSDoHaHS, Health Resources and Services Administrations’s Maternal and Child Health Bureau (HRSA MCHB). Retrieved July 10, 2019a.
go back to reference Child and Adolescent Health Management Initiative (CAHMI). (2021). 2016–2018 National Survey of Children’s Health (3 Years Combined Dataset) SAS Data Set: Data Resource Center for Child and Adolescent Health supported by Cooperative Agreement U59MC27866 from the U.S. Department of Health and Human Services, Health Resources and Services Administration (HRSA), Maternal and Child Health Bureau (MCHB). Retrieved May 19, 2021, from www.​childhealthdata.​org Child and Adolescent Health Management Initiative (CAHMI). (2021). 2016–2018 National Survey of Children’s Health (3 Years Combined Dataset) SAS Data Set: Data Resource Center for Child and Adolescent Health supported by Cooperative Agreement U59MC27866 from the U.S. Department of Health and Human Services, Health Resources and Services Administration (HRSA), Maternal and Child Health Bureau (MCHB). Retrieved May 19, 2021, from www.​childhealthdata.​org
go back to reference Child and Adolescent Health Management Initiative (CAHMI). (2019b). 2017–2018 National Survey of Children’s Health (2 Years Combined Data Set): Child and family health measures, national performance and outcome measures, and subgroups, SAS codebook, Version 1.0: Data Resource Center for Child and Adolescent Health supported by Cooperative Agreement U59MC27866 from the U.S. Department of Health and Human Services, Health Resources and Services Administration (HRSA), Maternal and Child Health Bureau (MCHB). Retrieved February 24, 2021, from www.​childhealthdata.​org Child and Adolescent Health Management Initiative (CAHMI). (2019b). 2017–2018 National Survey of Children’s Health (2 Years Combined Data Set): Child and family health measures, national performance and outcome measures, and subgroups, SAS codebook, Version 1.0: Data Resource Center for Child and Adolescent Health supported by Cooperative Agreement U59MC27866 from the U.S. Department of Health and Human Services, Health Resources and Services Administration (HRSA), Maternal and Child Health Bureau (MCHB). Retrieved February 24, 2021, from www.​childhealthdata.​org
go back to reference Chiri, G., & Warfield, M. E. (2012). Unmet need and problems accessing core health care services for children with autism spectrum disorder. Maternal and Child Health Journal, 16(5), 1081–1091. CrossRef Chiri, G., & Warfield, M. E. (2012). Unmet need and problems accessing core health care services for children with autism spectrum disorder. Maternal and Child Health Journal, 16(5), 1081–1091. CrossRef
go back to reference Farmer, J. E., Clark, M. J., Mayfield, W. A., Cheak-Zamora, N., Marvin, A. R., Law, J. K., et al. (2014). The relationship between the medical home and unmet needs for children with autism spectrum disorders. Maternal and Child Health Journal, 18(3), 672–680. CrossRef Farmer, J. E., Clark, M. J., Mayfield, W. A., Cheak-Zamora, N., Marvin, A. R., Law, J. K., et al. (2014). The relationship between the medical home and unmet needs for children with autism spectrum disorders. Maternal and Child Health Journal, 18(3), 672–680. CrossRef
go back to reference Foy, J. M. (2010a). Introduction. Pediatrics, 125(Supplement 3), S69–S74. CrossRef Foy, J. M. (2010a). Introduction. Pediatrics, 125(Supplement 3), S69–S74. CrossRef
go back to reference Foy, J. M. (2010b). Enhancing pediatric mental health care: Algorithms for primary care. Pediatrics, 125(Supplement 3), S109–S125. CrossRef Foy, J. M. (2010b). Enhancing pediatric mental health care: Algorithms for primary care. Pediatrics, 125(Supplement 3), S109–S125. CrossRef
go back to reference Foy, J. M., Green, C. M., & Earls, M. F. (2019). Mental health competencies for pediatric practice. Pediatrics, 144(5), e20192757. CrossRef Foy, J. M., Green, C. M., & Earls, M. F. (2019). Mental health competencies for pediatric practice. Pediatrics, 144(5), e20192757. CrossRef
go back to reference Ghandour, R. M., Kogan, M. D., Blumberg, S. J., & Perry, D. F. (2010). Prevalence and correlates of internalizing mental health symptoms among CSHCN. Pediatrics, 125(2), e269–e277. CrossRef Ghandour, R. M., Kogan, M. D., Blumberg, S. J., & Perry, D. F. (2010). Prevalence and correlates of internalizing mental health symptoms among CSHCN. Pediatrics, 125(2), e269–e277. CrossRef
go back to reference Ghandour, R. M., Sherman, L. J., Vladutiu, C. J., Ali, M. M., Lynch, S. E., Bitsko, R. H., et al. (2019). Prevalence and treatment of depression, anxiety, and conduct problems in us children. The Journal of Pediatrics, 206, 256-267.e3. CrossRef Ghandour, R. M., Sherman, L. J., Vladutiu, C. J., Ali, M. M., Lynch, S. E., Bitsko, R. H., et al. (2019). Prevalence and treatment of depression, anxiety, and conduct problems in us children. The Journal of Pediatrics, 206, 256-267.e3. CrossRef
go back to reference Golnik, A., Scal, P., Wey, A., & Gaillard, P. (2012). Autism-specific primary care medical home intervention. Journal of Autism and Developmental Disorders, 42(6), 1087–1093. CrossRef Golnik, A., Scal, P., Wey, A., & Gaillard, P. (2012). Autism-specific primary care medical home intervention. Journal of Autism and Developmental Disorders, 42(6), 1087–1093. CrossRef
go back to reference Hossain, M. M., Khan, N., Sultana, A., Ma, P., McKyer, E. L. J., Ahmed, H. U., et al. (2020). Prevalence of comorbid psychiatric disorders among people with autism spectrum disorder: An umbrella review of systematic reviews and meta-analyses. Psychiatry Research, 287, 112922. CrossRef Hossain, M. M., Khan, N., Sultana, A., Ma, P., McKyer, E. L. J., Ahmed, H. U., et al. (2020). Prevalence of comorbid psychiatric disorders among people with autism spectrum disorder: An umbrella review of systematic reviews and meta-analyses. Psychiatry Research, 287, 112922. CrossRef
go back to reference Inkelas, M. P., Raghavan, R. M. D. P., Larson, K. P., Kuo, A. A. M. D. P., & Ortega, A. N. P. (2007). Unmet mental health need and access to services for children with special health care needs and their families. Ambulatory Pediatrics, 7(6), 431–438. CrossRef Inkelas, M. P., Raghavan, R. M. D. P., Larson, K. P., Kuo, A. A. M. D. P., & Ortega, A. N. P. (2007). Unmet mental health need and access to services for children with special health care needs and their families. Ambulatory Pediatrics, 7(6), 431–438. CrossRef
go back to reference Jane Costello, E., Erkanli, A., & Angold, A. (2006). Is there an epidemic of child or adolescent depression? Journal of Child Psychology and Psychiatry, 47(12), 1263–1271. PubMed Jane Costello, E., Erkanli, A., & Angold, A. (2006). Is there an epidemic of child or adolescent depression? Journal of Child Psychology and Psychiatry, 47(12), 1263–1271. PubMed
go back to reference Khanna, R., Madhavan, S. S., Smith, M. J., Patrick, J. H., Tworek, C., & Becker-Cottrill, B. (2011). Assessment of health-related quality of life among primary caregivers of children with autism spectrum disorders. Journal of Autism and Developmental Disorders, 41(9), 1214–1227. CrossRef Khanna, R., Madhavan, S. S., Smith, M. J., Patrick, J. H., Tworek, C., & Becker-Cottrill, B. (2011). Assessment of health-related quality of life among primary caregivers of children with autism spectrum disorders. Journal of Autism and Developmental Disorders, 41(9), 1214–1227. CrossRef
go back to reference Kogan, M. D., Strickland, B. B., Blumberg, S. J., Singh, G. K., Perrin, J. M., & van Dyck, P. C. (2008). A national profile of the health care experiences and family impact of autism spectrum disorder among children in the United States, 2005–2006. Pediatrics, 122(6), e1149–e1158. CrossRef Kogan, M. D., Strickland, B. B., Blumberg, S. J., Singh, G. K., Perrin, J. M., & van Dyck, P. C. (2008). A national profile of the health care experiences and family impact of autism spectrum disorder among children in the United States, 2005–2006. Pediatrics, 122(6), e1149–e1158. CrossRef
go back to reference Kõlves, K., Fitzgerald, C., Nordentoft, M., Wood, S. J., & Erlangsen, A. (2021). Assessment of suicidal behaviors among individuals with autism spectrum disorder in Denmark. JAMA Network Open, 4(1), e2033565. CrossRef Kõlves, K., Fitzgerald, C., Nordentoft, M., Wood, S. J., & Erlangsen, A. (2021). Assessment of suicidal behaviors among individuals with autism spectrum disorder in Denmark. JAMA Network Open, 4(1), e2033565. CrossRef
go back to reference Lai, M.-C., Lombardo, M. V., & Baron-Cohen, S. (2014). Autism. The Lancet, 383(9920), 896–910. CrossRef Lai, M.-C., Lombardo, M. V., & Baron-Cohen, S. (2014). Autism. The Lancet, 383(9920), 896–910. CrossRef
go back to reference Long, W. E., Bauchner, H., Sege, R. D., Cabral, H. J., & Garg, A. (2012). The value of the medical home for children without special health care needs. Pediatrics, 129(1), 87–98. CrossRef Long, W. E., Bauchner, H., Sege, R. D., Cabral, H. J., & Garg, A. (2012). The value of the medical home for children without special health care needs. Pediatrics, 129(1), 87–98. CrossRef
go back to reference Maenner, M. J., Shaw, K. A., Baio, J., Washington, A., Patrick, M., DiRienzo, M., et al. (2020). Prevalence of autism spectrum disorder among children aged 8 years—Autism and developmental disabilities monitoring network, 11 sites, United States, 2016. MMWR Surveillance Summaries, 69(4), 1–12. CrossRef Maenner, M. J., Shaw, K. A., Baio, J., Washington, A., Patrick, M., DiRienzo, M., et al. (2020). Prevalence of autism spectrum disorder among children aged 8 years—Autism and developmental disabilities monitoring network, 11 sites, United States, 2016. MMWR Surveillance Summaries, 69(4), 1–12. CrossRef
go back to reference Martin, A. B., Crawford, S., Probst, J. C., Smith, G., Saunders, R. P., Watkins, K. W., et al. (2007). Medical homes for children with special health care needs: A program evaluation. Journal of Health Care for the Poor and Underserved, 18(5), 916–930. CrossRef Martin, A. B., Crawford, S., Probst, J. C., Smith, G., Saunders, R. P., Watkins, K. W., et al. (2007). Medical homes for children with special health care needs: A program evaluation. Journal of Health Care for the Poor and Underserved, 18(5), 916–930. CrossRef
go back to reference McPherson, M., Arango, P., Fox, H., Lauver, C., McManus, M., Newacheck, P. W., et al. (1998). A new definition of children with special health care needs. Pediatrics, 102(1), 137–139. CrossRef McPherson, M., Arango, P., Fox, H., Lauver, C., McManus, M., Newacheck, P. W., et al. (1998). A new definition of children with special health care needs. Pediatrics, 102(1), 137–139. CrossRef
go back to reference Medical Home Initiatives for Children with Special Needs Project Advisory Committee. (2002). The medical home. Pediatrics, 110(1), 184–186. CrossRef Medical Home Initiatives for Children with Special Needs Project Advisory Committee. (2002). The medical home. Pediatrics, 110(1), 184–186. CrossRef
go back to reference Palfrey, J. S., Sofis, L. A., Davidson, E. J., Liu, J., Freeman, L., & Ganz, M. L. (2004). The pediatric alliance for coordinated care: Evaluation of a medical home model. Pediatrics, 113(Supplement 4), 1507–1516. CrossRef Palfrey, J. S., Sofis, L. A., Davidson, E. J., Liu, J., Freeman, L., & Ganz, M. L. (2004). The pediatric alliance for coordinated care: Evaluation of a medical home model. Pediatrics, 113(Supplement 4), 1507–1516. CrossRef
go back to reference Parker, J., Talih, M., Malec, D. J., Beresovsky, V., Carroll, M. D., Gonzalez, J. F., et al. (2017). National Center for Health Statistics data presentation standards for proportions. Parker, J., Talih, M., Malec, D. J., Beresovsky, V., Carroll, M. D., Gonzalez, J. F., et al. (2017). National Center for Health Statistics data presentation standards for proportions.
go back to reference Porterfield, S. L., & DeRigne, L. (2011). Medical home and out-of-pocket medical costs for children with special health care needs. Pediatrics, 128(5), 892–900. CrossRef Porterfield, S. L., & DeRigne, L. (2011). Medical home and out-of-pocket medical costs for children with special health care needs. Pediatrics, 128(5), 892–900. CrossRef
go back to reference Power, T. J., Mautone, J. A., Manz, P. H., Frye, L., & Blum, N. J. (2008). Managing attention-deficit/hyperactivity disorder in primary care: A systematic analysis of roles and challenges. Pediatrics, 121(1), e65–e72. CrossRef Power, T. J., Mautone, J. A., Manz, P. H., Frye, L., & Blum, N. J. (2008). Managing attention-deficit/hyperactivity disorder in primary care: A systematic analysis of roles and challenges. Pediatrics, 121(1), e65–e72. CrossRef
go back to reference Romaire, M. A., Bell, J. F., & Grossman, D. C. (2012). Medical home access and health care use and expenditures among children with special health care needs. Archives of Pediatrics & Adolescent Medicine, 166(4), 323–330. CrossRef Romaire, M. A., Bell, J. F., & Grossman, D. C. (2012). Medical home access and health care use and expenditures among children with special health care needs. Archives of Pediatrics & Adolescent Medicine, 166(4), 323–330. CrossRef
go back to reference Soke, G., Maenner, M., Christensen, D., Kurzius-Spencer, M., & Schieve, L. (2018). Prevalence of co-occurring medical and behavioral conditions/symptoms among 4-and 8-year-old children with autism spectrum disorder in selected areas of the United States in 2010. Journal of Autism and Developmental Disorders, 48(8), 2663–2676. CrossRef Soke, G., Maenner, M., Christensen, D., Kurzius-Spencer, M., & Schieve, L. (2018). Prevalence of co-occurring medical and behavioral conditions/symptoms among 4-and 8-year-old children with autism spectrum disorder in selected areas of the United States in 2010. Journal of Autism and Developmental Disorders, 48(8), 2663–2676. CrossRef
go back to reference Thomas, K. C., Ellis, A. R., McLaurin, C., Daniels, J., & Morrissey, J. P. (2007). Access to care for autism-related services. Journal of Autism and Developmental Disorders, 37(10), 1902–1912. CrossRef Thomas, K. C., Ellis, A. R., McLaurin, C., Daniels, J., & Morrissey, J. P. (2007). Access to care for autism-related services. Journal of Autism and Developmental Disorders, 37(10), 1902–1912. CrossRef
go back to reference U.S. Census Bureau. (2017). National Survey of Children’s Health Methodology Report. United States Census Bureau; Retrieved February 08, 2018. U.S. Census Bureau. (2017). National Survey of Children’s Health Methodology Report. United States Census Bureau; Retrieved February 08, 2018.
go back to reference U.S. Census Bureau. (2018). National Survey of Children’s Health Methodology Report. Retrieved July 10, 2019. U.S. Census Bureau. (2018). National Survey of Children’s Health Methodology Report. Retrieved July 10, 2019.
go back to reference Walsh, C., Lydon, S., O’Dowd, E., & O’Connor, P. (2020). Barriers to healthcare for persons with autism: A systematic review of the literature and development of a taxonomy. Developmental Neurorehabilitation, 23(7), 413–430. CrossRef Walsh, C., Lydon, S., O’Dowd, E., & O’Connor, P. (2020). Barriers to healthcare for persons with autism: A systematic review of the literature and development of a taxonomy. Developmental Neurorehabilitation, 23(7), 413–430. CrossRef
Metagegevens
Titel
The Medical Home and Use of Mental and Non-mental Specialty Services Among Children with Autism Spectrum Disorder (ASD)
Auteurs
Tobechukwu H. Ezeh
Brian K. Lee
Jessica E. Rast
Publicatiedatum
02-06-2022
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-022-05596-x