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Journal of Autism and Developmental Disorders

Gepubliceerd in:

28-08-2021 | Original Paper

The Efficacy and Impact of a Special Education Legislative Advocacy Program Among Parents of Children with Disabilities

Auteurs: Meghan Burke, Zachary Rossetti, Chak Li

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 7/2022

Abstract

With the looming reauthorization of the Individuals with Disabilities Education Act (IDEA), it is important for parent input to inform legislative changes. Unfortunately, parent input has been limited in past IDEA reauthorizations. Thus, it is critical to develop and test interventions to improve parent legislative advocacy. With 37 parents of children with disabilities, we conducted a randomized controlled trial to determine the efficacy and impact of an advocacy program. Results indicate significant increases in special education knowledge and special education legislative advocacy activities for the intervention (versus waitlist-control) group. However, there were no significant changes in civic engagement. Implications for research and practice are discussed.

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Agran, M., & Hughes, C. (2013). “You can’t vote—You’re mentally incompetent”: Denying democracy to people with severe disabilities. Research & Practice for Persons with Severe Disabilities, 38(1), 58–62. https://doi.org/10.2511/027494813807047006CrossRef

Armijo-Olivo, S., Warren, S., & Magee, D. (2009). Intention to treat analysis, compliance, drop-outs, and how to deal with missing data in clinical research: A review. Physical Therapy Reviews, 14(1), 36–49. https://doi.org/10.1179/174328809X405928CrossRef

Balcazar, F. E., Keys, C. B., Bertram, J. F., & Rizzo, T. (1996). Advocate development in the field of developmental disabilities: A data-based conceptual model. Mental Retardation, 34(6), 341–351.PubMed

Burke, M. M., Goldman, S. E., Hart, M. S., & Hodapp, R. M. (2016). Evaluating the efficacy of a special education advocacy training program. Journal of Policy and Practice in Intellectual Disabilities, 13(4), 269–276. https://doi.org/10.1111/jppi.12183CrossRef

Burke, M. M., & Sandman, L. (2017). The effectiveness of a parent advocacy training upon legislative advocacy. Journal of Policy and Practice in Intellectual Disabilities, 14, 138–145.CrossRef

Burke, M. M., Sandman, L., Perez, B., & O’Leary, M. (2018). The phenomenon of legislative advocacy among parents of children with disabilities. Journal of Research in Special Education Needs, 18(1), 50–58. https://doi.org/10.1111/1471-3802.12392CrossRef

Feldman, L., Pasek, J., Romer, D., & Jamieson, K. H. (2007). Identifying best practices in civic education: Lessons from the student voices program. American Journal of Education, 114(1), 75–100.CrossRef

Fitzgerald, J. L., & Watkins, M. W. (2006). Parents’ rights in special education: The readability of procedural safeguards. Exceptional Children, 72(4), 497–510. https://doi.org/10.1177/001440290607200407CrossRef

Gerber, M. M. (2017). A history of special education. In J. M. Kauffman, D. P. Hallahan, & P. C. Pullen (Eds.), Handbook of special education (2nd ed., pp. 3–15). Routledge.CrossRef

Harr, J. J. (2000). The 1997 reauthorization of the individuals with disabilities education act: “Making a good law better”: How federal bureaucracy became involved in the legislative process. Journal of Disability Policy Studies, 11, 111–119.CrossRef

Harry, B. (2008). Collaboration with culturally and linguistically diverse families: Ideal versus reality. Exceptional Children, 74(3), 372–388. https://doi.org/10.1177/001440290807400306CrossRef

Jackson-Elmoore, C. (2006). Influencing state policy: Information, access and timing. American Journal of Health Education, 37, 159–169.CrossRef

Kalyanpur, M., Harry, B., & Skrtic, T. (2000). Equity and advocacy expectations of culturally diverse families’ participation in special education. International Journal of Disability, Development and Education, 47(2), 119–136. https://doi.org/10.1080/713671106CrossRef

Kleinman, D. L., Delborne, J. A. & Anderson, A. A. (2009). Engaging citizens: the high cost of citizen participation in high technology. Public Understanding of Science, 12, 1–20.

Lalvani, P., & Hale, C. (2015). Squeaky wheels, mothers from hell, and CEOs of the IEP: Parents, privilege, and the “fight” for inclusive education. Understanding and Dismantling Privilege, 5(2), 21–41.

Lopez, M. H., & Marcelo, K. B. (2008). The civic engagement of immigrant youth: New evidence from the 2006 civic and political health of the nation survey. Applied Development Science, 12(2), 66–73.CrossRef

Mandic, C. G., Rudd, R., Hehir, T., & Acevedo-Garcia, D. (2012). Readability of special education procedural safeguards. The Journal of Special Education, 45(4), 195–203. https://doi.org/10.1177/0022466910362774CrossRef

Mueller, T. G. (2017). Promoting collaborative partnerships in families. In J. M. Kauffman, D. P. Hallahan, & P. C. Pullen (Eds.), Handbook of special education (2nd ed., pp. 773–792). Routledge.CrossRef

National Parent Technical Assistance Center (2016). Parent centers helping families. Self-publication.

National School Boards Association. (2014). Individuals with Disabilities Education Act (IDEA). Early preparation for reauthorization (Issue Brief). NSBA Office of Advocacy.

Olivos, E. M., Gallagher, R. J., & Aguilar, J. (2010). Fostering collaboration with culturally and linguistically diverse families of children with moderate to severe disabilities. Journal of Educational and Psychological Consultation, 20(1), 28–40. https://doi.org/10.1080/10474410903535372CrossRef

Rossetti, Z., Burke, M. M., Rios, K., Aleman Tovar, J., Schraml-Block, K., Rivera, J., Cruz, J., & Lee, J. (2020). From individual to systemic advocacy: Parents as change agents. Exceptionality. https://doi.org/10.1080/09362835.2020.1850456CrossRef

Sessa, V. I., Grabowski, S., & Shashidhar, A. (2013). Servicelearning pedagogy, civic engagement, and academic engagement: Multiple bidirectional relationships in college freshmen. The International Journal of Research on Service-Learning and Community Engagement, 1(1), 23–46.CrossRef

Trainor, A. A. (2010). Diverse approaches to parent advocacy during special education home—School interactions: Identification and use of cultural and social capital. Remedial and Special Education, 31(1), 34–47. https://doi.org/10.1177/0741932508324401CrossRef

Turnbull, H. R., Shogren, K. A., & Turnbull, A. P. (2011). Evolution of the parent movement: Past, present, and future. In J. M. Kauffman & D. P. Hallahan (Eds.), Handbook of special education (pp. 639–653). Routledge.

U.S. Department of Education. (2017). 2017 Determination letters on state implementation of IDEA. U.S. Department of Education.

Walsh, N. R., & Kaminsky, J. (2009). Psychologists get involved at the national level: Grassroots lobbying on capital hill. The New School Psychology Bulletin, 3, 2.

Wehmeyer, M. L., Lattimore, J., Jorgenson, J. D., Palmer, S. B., Thompson, E., & Schumaker, K. M. (2003). The self-determined career development model: A pilot study. Journal of Vocational Rehabilitation, 19, 79–87.

Wehmeyer, M. L., & Palmer, S. B. (2003). Adult outcomes for students with cognitive disabilities three-years after high school: The impact of self-determination. Education and Training in Developmental Disabilities, 38, 131–144.

Wright, A. C., & Taylor, S. (2014). Advocacy by parents of young children with special needs: Activities, processes, and perceived effectiveness. Journal of Social Service Research, 40(5), 591–605. https://doi.org/10.1080/01488376.2014.896850CrossRef

York, L. A. (2004). Descriptive analysis of comments obtained during the process of regulating the reauthorization of the Individuals with Disabilities Education Act of 2004. Unpublished Dissertation.

Titel: The Efficacy and Impact of a Special Education Legislative Advocacy Program Among Parents of Children with Disabilities
Auteurs: Meghan Burke
Zachary Rossetti
Chak Li
Publicatiedatum: 28-08-2021
Uitgeverij: Springer US
Gepubliceerd in: Journal of Autism and Developmental Disorders / Uitgave 7/2022
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI: https://doi.org/10.1007/s10803-021-05258-4

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