Skip to main content
Top
Gepubliceerd in: Quality of Life Research 7/2007

01-09-2007 | Original Research

The effects of response bias on self-reported quality of life among childhood cancer survivors

Auteurs: Tara E. O’Leary, Lisa Diller, Christopher J. Recklitis

Gepubliceerd in: Quality of Life Research | Uitgave 7/2007

Log in om toegang te krijgen
share
DELEN

Deel dit onderdeel of sectie (kopieer de link)

  • Optie A:
    Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
  • Optie B:
    Deel de link per e-mail

Abstract

Background

Several studies of long-term adjustment in childhood cancer survivors (CCS) report very positive outcomes, while other studies find significant adjustment problems. These inconsistencies have prompted some investigators to suggest survivors may be biased responders, prone to underreporting on self-report measures. This study tested the hypothesis that CCS are elevated on self-deception response bias (SDRB), and that SDRB is associated with higher ratings of quality-of-life (QOL).

Methods

One hundred and seven adult (mean age = 31.85) survivors of childhood cancers completed a demographic questionnaire, Short Form-12 (SF-12), Functional Assessment of Cancer Therapy-General (FACT-G), and Self-Deception Enhancement scale (SDE), an SDRB measure.

Results

Survivors’ QOL scores were similar to normative groups, but they evidenced much higher levels of response bias. SDE scores were significantly correlated with the FACT-G, and SF-12 Mental Health (but not Physical Health) scores even after accounting for demographic and treatment-related variables.

Conclusions

CCS show a biased response style, indicating a systematic tendency to deny difficulties on QOL measures. This may complicate QOL studies by inflating survivors’ reports of their socio-emotional functioning. Understanding how response bias develops may help us learn more about cancer survivors’ adaptation to illness, and the effects of the illness experience on their perceptions of QOL.
Literatuur
1.
go back to reference Elkin, T. D., Phipps, S., Mulhern, R. K., et al. (1997). Psychological functioning of adolescent and young adult survivors of pediatric malignancy. Medical and Pediatric Oncology, 29, 582–588.PubMedCrossRef Elkin, T. D., Phipps, S., Mulhern, R. K., et al. (1997). Psychological functioning of adolescent and young adult survivors of pediatric malignancy. Medical and Pediatric Oncology, 29, 582–588.PubMedCrossRef
2.
go back to reference Robison, L. L., Mertens, A. C., Boice, J. D., et al. (2002). Study design and cohort characteristics of the Childhood Cancer Survivor Study: A multi-institutional collaborative project. Medical and Pediatric Oncology, 38, 229–239.PubMedCrossRef Robison, L. L., Mertens, A. C., Boice, J. D., et al. (2002). Study design and cohort characteristics of the Childhood Cancer Survivor Study: A multi-institutional collaborative project. Medical and Pediatric Oncology, 38, 229–239.PubMedCrossRef
3.
go back to reference Stuber, M. L., Nader, K., Yasuda, P., et al. (1991). Stress responses after pediatric bone marrow transplantation: Preliminary results of a prospective longitudinal study. Journal of American Academy of Child and Adolescent Psychiatry, 30, 952–957.CrossRef Stuber, M. L., Nader, K., Yasuda, P., et al. (1991). Stress responses after pediatric bone marrow transplantation: Preliminary results of a prospective longitudinal study. Journal of American Academy of Child and Adolescent Psychiatry, 30, 952–957.CrossRef
4.
go back to reference Wallace, W. H., Blacklay, A., Eiser, C., et al. (2001). Developing strategies for long term follow up of survivors of childhood cancer. British Medical Journal, 323, 271–274.PubMedCrossRef Wallace, W. H., Blacklay, A., Eiser, C., et al. (2001). Developing strategies for long term follow up of survivors of childhood cancer. British Medical Journal, 323, 271–274.PubMedCrossRef
5.
go back to reference Constain, K., Hewison, J., & Howes, M. J. (1993). Comparison of a function-based model and meaning-based model of quality of life in oncology: Multidimensionality examined. Journal of Psychosocial Oncology, 11, 17–37.CrossRef Constain, K., Hewison, J., & Howes, M. J. (1993). Comparison of a function-based model and meaning-based model of quality of life in oncology: Multidimensionality examined. Journal of Psychosocial Oncology, 11, 17–37.CrossRef
6.
go back to reference Carr, A. J., Gibson, B., & Robinson, P. G. (2001). Measuring quality of life: Is quality of life determined by expectations or experience? British Medical Journal, 322, 1240–1243.PubMedCrossRef Carr, A. J., Gibson, B., & Robinson, P. G. (2001). Measuring quality of life: Is quality of life determined by expectations or experience? British Medical Journal, 322, 1240–1243.PubMedCrossRef
7.
go back to reference Cella, D., Hahn, E. A., & Dineen, K. (2002). Meaningful change in cancer-specific quality of life scores: Differences between improvement and worsening. Quality of Life Research, 11, 207–221.PubMedCrossRef Cella, D., Hahn, E. A., & Dineen, K. (2002). Meaningful change in cancer-specific quality of life scores: Differences between improvement and worsening. Quality of Life Research, 11, 207–221.PubMedCrossRef
8.
go back to reference D’Angio, G. J. (1994). Introduction and historical perspective. In G. J. D’Angio (Ed.), Survivors of childhood cancer: Assessment and management (pp. 105). St. Louis, MO: Mosby. D’Angio, G. J. (1994). Introduction and historical perspective. In G. J. D’Angio (Ed.), Survivors of childhood cancer: Assessment and management (pp. 105). St. Louis, MO: Mosby.
9.
go back to reference Hudson, M. M., Mertens, A. C., Yasui, Y., et al. (2003). Health status of adult long-term survivors of childhood cancer: A report from the Childhood Cancer Survivor Study. The Journal of the American Medical Association, 290, 1583–1592.CrossRef Hudson, M. M., Mertens, A. C., Yasui, Y., et al. (2003). Health status of adult long-term survivors of childhood cancer: A report from the Childhood Cancer Survivor Study. The Journal of the American Medical Association, 290, 1583–1592.CrossRef
10.
go back to reference Mitby, P. A., Robison, L. L., Whitton, J. A., et al. (2003). Utilization of special education services and educational attainment among long-term survivors of childhood cancer: A report from the Childhood Cancer Survivor Study. Cancer, 97, 1115–1126.PubMedCrossRef Mitby, P. A., Robison, L. L., Whitton, J. A., et al. (2003). Utilization of special education services and educational attainment among long-term survivors of childhood cancer: A report from the Childhood Cancer Survivor Study. Cancer, 97, 1115–1126.PubMedCrossRef
11.
go back to reference Meeske, K. A., Siegel, S. E., Globe, D. R., et al. (2005). Prevalence and correlates of fatigue in long-term survivors of childhood leukemia. Journal of Clinical Oncology, 23, 5501–5510.PubMedCrossRef Meeske, K. A., Siegel, S. E., Globe, D. R., et al. (2005). Prevalence and correlates of fatigue in long-term survivors of childhood leukemia. Journal of Clinical Oncology, 23, 5501–5510.PubMedCrossRef
12.
go back to reference Parsons, S. K., Shih, M. C., Mayer, D. K., et al. (2005). Preliminary psychometric evaluation of the Child Health Ratings Inventory (CHRIS) and Disease-Specific Impairment Inventory-Hematopoietic Stem Cell Transplantation (DSII-HSCT) in parents and children. Quality of Life Research, 14, 1613–1625.PubMedCrossRef Parsons, S. K., Shih, M. C., Mayer, D. K., et al. (2005). Preliminary psychometric evaluation of the Child Health Ratings Inventory (CHRIS) and Disease-Specific Impairment Inventory-Hematopoietic Stem Cell Transplantation (DSII-HSCT) in parents and children. Quality of Life Research, 14, 1613–1625.PubMedCrossRef
13.
go back to reference Vannatta, K., Gerhardt, C. A., Wells, R. J., et al. (2006). Intensity of CNS treatment for pediatric cancer: Prediction of social outcomes in survivors. Pediatric Blood and Cancer doi: 10.1002/pbc.21062. Vannatta, K., Gerhardt, C. A., Wells, R. J., et al. (2006). Intensity of CNS treatment for pediatric cancer: Prediction of social outcomes in survivors. Pediatric Blood and Cancer doi:​ 10.​1002/​pbc.​21062.
14.
go back to reference Hobbie, W. L., Stuber, M., Meeske, K., et al. (2000). Symptoms of posttraumatic stress in young adult survivors of childhood cancer. Journal of Clinical Oncology, 18, 4060–4066.PubMed Hobbie, W. L., Stuber, M., Meeske, K., et al. (2000). Symptoms of posttraumatic stress in young adult survivors of childhood cancer. Journal of Clinical Oncology, 18, 4060–4066.PubMed
15.
go back to reference Koocher, G., & O’Malley, J. E. (1981). Book the damocles syndrome: Psychosocial consequences of surviving childhood cancer. New York, NY: McGraw-Hill. Koocher, G., & O’Malley, J. E. (1981). Book the damocles syndrome: Psychosocial consequences of surviving childhood cancer. New York, NY: McGraw-Hill.
16.
go back to reference Mackie, E., Hill, J., Kondryn, H., et al. (2000). Adult psychosocial outcomes in long-term survivors of acute lymphoblastic leukaemia and Wilms’ tumour: A controlled study. Lancet, 355, 1310–1314.PubMedCrossRef Mackie, E., Hill, J., Kondryn, H., et al. (2000). Adult psychosocial outcomes in long-term survivors of acute lymphoblastic leukaemia and Wilms’ tumour: A controlled study. Lancet, 355, 1310–1314.PubMedCrossRef
17.
go back to reference Moore, I. M., Glasser, M. E., & Ablin, A. R. (1988). The late psychosocial consequences of childhood cancer. Journal of Pediatric Nursing, 3, 150–158.PubMed Moore, I. M., Glasser, M. E., & Ablin, A. R. (1988). The late psychosocial consequences of childhood cancer. Journal of Pediatric Nursing, 3, 150–158.PubMed
18.
go back to reference Sawyer, M., Antoniou, G., Toogood, I., et al. (1997). Childhood cancer: A two-year prospective study of the psychological adjustment of children and parents. Journal of American Academy of Child and Adolescent Psychiatry, 36, 1736–1743.CrossRef Sawyer, M., Antoniou, G., Toogood, I., et al. (1997). Childhood cancer: A two-year prospective study of the psychological adjustment of children and parents. Journal of American Academy of Child and Adolescent Psychiatry, 36, 1736–1743.CrossRef
19.
go back to reference Stuber, M. L., Christakis, D. A., Houskamp, B., et al. (1996). Posttrauma symptoms in childhood leukemia survivors and their parents. Psychosomatics, 37, 254–261.PubMed Stuber, M. L., Christakis, D. A., Houskamp, B., et al. (1996). Posttrauma symptoms in childhood leukemia survivors and their parents. Psychosomatics, 37, 254–261.PubMed
20.
go back to reference Zeltzer, L. K., Chen, E., Weiss, R., et al. (1997). Comparison of psychologic outcome in adult survivors of childhood acute lymphoblastic leukemia versus sibling controls: A cooperative Children’s Cancer Group and National Institutes of Health study. Journal of Clinical Oncology, 15, 547–556.PubMed Zeltzer, L. K., Chen, E., Weiss, R., et al. (1997). Comparison of psychologic outcome in adult survivors of childhood acute lymphoblastic leukemia versus sibling controls: A cooperative Children’s Cancer Group and National Institutes of Health study. Journal of Clinical Oncology, 15, 547–556.PubMed
21.
go back to reference Apajasalo, M., Sintonen, H., Siimes, M. A., et al. (1996). Health-related quality of life of adults surviving malignancies in childhood. European Journal of Cancer, 32A, 1354–1358.PubMedCrossRef Apajasalo, M., Sintonen, H., Siimes, M. A., et al. (1996). Health-related quality of life of adults surviving malignancies in childhood. European Journal of Cancer, 32A, 1354–1358.PubMedCrossRef
22.
go back to reference Canning, E. H., Canning, R. D., & Boyce, W. T. (1992). Depressive symptoms and adaptive style in children with cancer. Journal of American Academy of Child and Adolescent Psychiatry, 31, 1120–1124.CrossRef Canning, E. H., Canning, R. D., & Boyce, W. T. (1992). Depressive symptoms and adaptive style in children with cancer. Journal of American Academy of Child and Adolescent Psychiatry, 31, 1120–1124.CrossRef
23.
go back to reference Cella, D. F., & Tross, S. (1986). Psychological adjustment to survival from Hodgkin’s disease. Journal of Consulting and Clinical Psychology, 54, 616–622.PubMedCrossRef Cella, D. F., & Tross, S. (1986). Psychological adjustment to survival from Hodgkin’s disease. Journal of Consulting and Clinical Psychology, 54, 616–622.PubMedCrossRef
24.
go back to reference Kazak, A. E., Barakat, L. P., Meeske, K., et al. (1997). Posttraumatic stress, family functioning, and social support in survivors of childhood leukemia and their mothers and fathers. Journal of Consulting and Clinical Psychology, 65, 120–129.PubMedCrossRef Kazak, A. E., Barakat, L. P., Meeske, K., et al. (1997). Posttraumatic stress, family functioning, and social support in survivors of childhood leukemia and their mothers and fathers. Journal of Consulting and Clinical Psychology, 65, 120–129.PubMedCrossRef
25.
go back to reference Zebrack, B. J., Zeltzer, L. K., Whitton, J., et al. (2002). Psychological outcomes in long-term survivors of childhood leukemia, Hodgkin’s disease, and non-Hodgkin’s lymphoma: A report from the Childhood Cancer Survivor Study. Pediatrics, 110, 42–52.PubMedCrossRef Zebrack, B. J., Zeltzer, L. K., Whitton, J., et al. (2002). Psychological outcomes in long-term survivors of childhood leukemia, Hodgkin’s disease, and non-Hodgkin’s lymphoma: A report from the Childhood Cancer Survivor Study. Pediatrics, 110, 42–52.PubMedCrossRef
26.
go back to reference Parsons, S. K., Barlow, S. E., Levy, S. L., et al. (1999). Health-related quality of life in pediatric bone marrow transplant survivors: According to whom? International Journal of Cancer Supplement, 12, 46–51.CrossRef Parsons, S. K., Barlow, S. E., Levy, S. L., et al. (1999). Health-related quality of life in pediatric bone marrow transplant survivors: According to whom? International Journal of Cancer Supplement, 12, 46–51.CrossRef
27.
go back to reference Radcliffe, J., Bennett, D., Kazak, A. E., et al. (1996). Adjustment in childhood brain tumor survival: Child, mother, and teacher report. Journal of Pediatric Psychology, 21, 529–539.PubMedCrossRef Radcliffe, J., Bennett, D., Kazak, A. E., et al. (1996). Adjustment in childhood brain tumor survival: Child, mother, and teacher report. Journal of Pediatric Psychology, 21, 529–539.PubMedCrossRef
28.
go back to reference Slevin, M. L., Plant, H., Lynch, D., et al. (1988). Who should measure quality of life, the doctor or the patient? British Journal of Cancer, 57, 109–112.PubMed Slevin, M. L., Plant, H., Lynch, D., et al. (1988). Who should measure quality of life, the doctor or the patient? British Journal of Cancer, 57, 109–112.PubMed
29.
go back to reference Eiser, C., & Eiser, J. R. (2000). Social comparisons and quality of life among survivors of childhood cancer and their mothers. Psychology and Health, 15, 449–460. Eiser, C., & Eiser, J. R. (2000). Social comparisons and quality of life among survivors of childhood cancer and their mothers. Psychology and Health, 15, 449–460.
30.
go back to reference Dolgin, M. J., Somer, E., Buchvald, E., et al. (1999). Quality of life in adult survivors of childhood cancer. Social Work in Health Care, 28, 31–43.PubMedCrossRef Dolgin, M. J., Somer, E., Buchvald, E., et al. (1999). Quality of life in adult survivors of childhood cancer. Social Work in Health Care, 28, 31–43.PubMedCrossRef
31.
go back to reference Felder-Puig, R., Formann, A. K., Mildner, A., et al. (1998). Quality of life and psychosocial adjustment of young patients after treatment of bone cancer. Cancer, 83, 69–75.PubMedCrossRef Felder-Puig, R., Formann, A. K., Mildner, A., et al. (1998). Quality of life and psychosocial adjustment of young patients after treatment of bone cancer. Cancer, 83, 69–75.PubMedCrossRef
32.
go back to reference Nicholson, H. S., Mulvihill, J. J., & Byrne, J. (1992). Late effects of therapy in adult survivors of osteosarcoma and Ewing’s sarcoma. Medical and Pediatric Oncology, 20, 6–12.PubMedCrossRef Nicholson, H. S., Mulvihill, J. J., & Byrne, J. (1992). Late effects of therapy in adult survivors of osteosarcoma and Ewing’s sarcoma. Medical and Pediatric Oncology, 20, 6–12.PubMedCrossRef
33.
go back to reference Tebbi, C. K., Bromberg, C., & Piedmonte, M. (1989). Long-term vocational adjustment of cancer patients diagnosed during adolescence. Cancer, 63, 213–218.PubMedCrossRef Tebbi, C. K., Bromberg, C., & Piedmonte, M. (1989). Long-term vocational adjustment of cancer patients diagnosed during adolescence. Cancer, 63, 213–218.PubMedCrossRef
34.
go back to reference Oeffinger, K. C., Mertens, A. C., Sklar, C. A., et al. (2006). Chronic health conditions in adult survivors of childhood cancer. The New England Journal of Medicine, 355, 1572–1582.PubMedCrossRef Oeffinger, K. C., Mertens, A. C., Sklar, C. A., et al. (2006). Chronic health conditions in adult survivors of childhood cancer. The New England Journal of Medicine, 355, 1572–1582.PubMedCrossRef
35.
go back to reference Langeveld, N. E., Stam, H., Grootenhuis, M. A., et al. (2002). Quality of life in young adult survivors of childhood cancer. Support Care Cancer, 10, 579–600.PubMedCrossRef Langeveld, N. E., Stam, H., Grootenhuis, M. A., et al. (2002). Quality of life in young adult survivors of childhood cancer. Support Care Cancer, 10, 579–600.PubMedCrossRef
36.
go back to reference Langeveld, N. E., Ubbink, M. C., Last, B. F., et al. (2003). Educational achievement, employment and living situation in long-term young adult survivors of childhood cancer in the Netherlands. Psychooncology, 12, 213–225.PubMedCrossRef Langeveld, N. E., Ubbink, M. C., Last, B. F., et al. (2003). Educational achievement, employment and living situation in long-term young adult survivors of childhood cancer in the Netherlands. Psychooncology, 12, 213–225.PubMedCrossRef
37.
go back to reference Gray, R. E., Doan, B. D., Shermer, P., et al. (1992). Psychologic adaptation of survivors of childhood cancer. Cancer, 70, 2713–2721.PubMedCrossRef Gray, R. E., Doan, B. D., Shermer, P., et al. (1992). Psychologic adaptation of survivors of childhood cancer. Cancer, 70, 2713–2721.PubMedCrossRef
38.
go back to reference Zebrack, B. J., & Chesler, M. A. (2002). Quality of life in childhood cancer survivors. Psychooncology, 11, 132–141.PubMedCrossRef Zebrack, B. J., & Chesler, M. A. (2002). Quality of life in childhood cancer survivors. Psychooncology, 11, 132–141.PubMedCrossRef
39.
go back to reference Zevon, M. A., Neubauer, N. A., & Green, D. M. (1990). Adjustment and vocational satisfaction of patients treated during childhood or adolescence for acute lymphoblastic leukemia. The American Journal of Pediatric Hematology/Oncology, 12, 454–461.PubMedCrossRef Zevon, M. A., Neubauer, N. A., & Green, D. M. (1990). Adjustment and vocational satisfaction of patients treated during childhood or adolescence for acute lymphoblastic leukemia. The American Journal of Pediatric Hematology/Oncology, 12, 454–461.PubMedCrossRef
40.
go back to reference Recklitis, C., Parsons, S. K., Shih, M. C., et al. (2006). Factor structure of the Brief Symptom Inventory-18 in adult survivors of childhood cancer: Results from the Childhood Cancer Survivor Study. Psychological Assessment, 18, 22–32.PubMedCrossRef Recklitis, C., Parsons, S. K., Shih, M. C., et al. (2006). Factor structure of the Brief Symptom Inventory-18 in adult survivors of childhood cancer: Results from the Childhood Cancer Survivor Study. Psychological Assessment, 18, 22–32.PubMedCrossRef
41.
go back to reference Taylor, S. E. (1983). Adjustment to threatening events: A theory of cognitive adaptation. American Psychologist, 38, 1161–1173.CrossRef Taylor, S. E. (1983). Adjustment to threatening events: A theory of cognitive adaptation. American Psychologist, 38, 1161–1173.CrossRef
42.
go back to reference Park, C. L. (1998). Stress-related growth and thriving through coping: The roles of personality and cognitive processes. Journal of Social Issues, 54, 267–273.CrossRef Park, C. L. (1998). Stress-related growth and thriving through coping: The roles of personality and cognitive processes. Journal of Social Issues, 54, 267–273.CrossRef
43.
go back to reference Breetvelt, I. S., & Van Dam, F. S. (1991). Underreporting by cancer patients: The case of response-shift. Social Science & Medicine, 32, 981–987.CrossRef Breetvelt, I. S., & Van Dam, F. S. (1991). Underreporting by cancer patients: The case of response-shift. Social Science & Medicine, 32, 981–987.CrossRef
44.
go back to reference Howard, G. S., Schmeck, R. R., & Bray, J. H. (1979). Internal validity in studies employing self-report instruments: A suggested remedy. Journal of Educational Measurement, 16, 129–135.CrossRef Howard, G. S., Schmeck, R. R., & Bray, J. H. (1979). Internal validity in studies employing self-report instruments: A suggested remedy. Journal of Educational Measurement, 16, 129–135.CrossRef
45.
go back to reference Sprangers, M. A., & Schwartz, C. E. (1999). Integrating response shift into health-related quality of life research: A theoretical model. Social Science & Medicine, 48, 1507–1515.CrossRef Sprangers, M. A., & Schwartz, C. E. (1999). Integrating response shift into health-related quality of life research: A theoretical model. Social Science & Medicine, 48, 1507–1515.CrossRef
46.
go back to reference Schwartz, C. E., Feinberg, R., Jilinskaia, E., et al. (1999). Paradoxical effects of response shift on an evaluation of rehabilitation for childhood cancer survivors [Abstract of paper for the 1999 annual meeting: Symposium: Response shift effects in rehabilitation]. Psychosomatic Medicine, 61, 129. Schwartz, C. E., Feinberg, R., Jilinskaia, E., et al. (1999). Paradoxical effects of response shift on an evaluation of rehabilitation for childhood cancer survivors [Abstract of paper for the 1999 annual meeting: Symposium: Response shift effects in rehabilitation]. Psychosomatic Medicine, 61, 129.
47.
go back to reference Bauld, C., Anderson, V., & Arnold, J. (1998). Psychosocial aspects of adolescent cancer survival. Journal of Paediatrics and Child Health, 34, 120–126.PubMedCrossRef Bauld, C., Anderson, V., & Arnold, J. (1998). Psychosocial aspects of adolescent cancer survival. Journal of Paediatrics and Child Health, 34, 120–126.PubMedCrossRef
48.
go back to reference Paulhus, D. L. (1989). Social desirable responding: Some new solutions to old problems. In D. L. Paulhus (Ed.), Personality psychology: Recent trends and emerging directions (pp. 201–209). New York, NY: Academic Press. Paulhus, D. L. (1989). Social desirable responding: Some new solutions to old problems. In D. L. Paulhus (Ed.), Personality psychology: Recent trends and emerging directions (pp. 201–209). New York, NY: Academic Press.
49.
go back to reference Paulhus, D. L. (1990). Measurement and control of response bias. In D. L. Paulhus (Ed.), Measures of personality and social psychological attitudes (pp. 17–51). San Diego, CA: Academic Press. Paulhus, D. L. (1990). Measurement and control of response bias. In D. L. Paulhus (Ed.), Measures of personality and social psychological attitudes (pp. 17–51). San Diego, CA: Academic Press.
50.
go back to reference Phipps, S., & Srivastava, D. K. (1997). Repressive adaptation in children with cancer. Health Psychology, 16, 521–528.PubMedCrossRef Phipps, S., & Srivastava, D. K. (1997). Repressive adaptation in children with cancer. Health Psychology, 16, 521–528.PubMedCrossRef
51.
go back to reference Holden, R. R., & Fekken, G. C. (1989). Three common social desirability scales: Friends, aquaintances, or Strangers? Journal of Research in Personality, 23, 180–191.CrossRef Holden, R. R., & Fekken, G. C. (1989). Three common social desirability scales: Friends, aquaintances, or Strangers? Journal of Research in Personality, 23, 180–191.CrossRef
52.
go back to reference Weinberger, D. A., Schwartz, G. E., & Davidson, R. J. (1979). Low-anxious, high-anxious, and repressive coping styles: Psychometric patterns and behavioral and physiological responses to stress. Journal of Abnormal Psychology, 88, 369–380.PubMedCrossRef Weinberger, D. A., Schwartz, G. E., & Davidson, R. J. (1979). Low-anxious, high-anxious, and repressive coping styles: Psychometric patterns and behavioral and physiological responses to stress. Journal of Abnormal Psychology, 88, 369–380.PubMedCrossRef
53.
go back to reference Shedler, J., Mayman, M., & Manis, M. (1993). The illusion of mental health. The American Psychologist, 48, 1117–1131.PubMedCrossRef Shedler, J., Mayman, M., & Manis, M. (1993). The illusion of mental health. The American Psychologist, 48, 1117–1131.PubMedCrossRef
54.
go back to reference Ware, J. E., Kosinski, M., & Keller, S. D. (1998). Book SF-12: How to score the SF-12 physical and mental health summary scales. Lincoln, RI: Quality Metric Inc. Ware, J. E., Kosinski, M., & Keller, S. D. (1998). Book SF-12: How to score the SF-12 physical and mental health summary scales. Lincoln, RI: Quality Metric Inc.
55.
go back to reference Cella, D. F., Tulsky, D. S., Gray, G., et al. (1993). The Functional Assessment of Cancer Therapy scale: Development and validation of the general measure. Journal of Clinical Oncology, 11, 570–579.PubMed Cella, D. F., Tulsky, D. S., Gray, G., et al. (1993). The Functional Assessment of Cancer Therapy scale: Development and validation of the general measure. Journal of Clinical Oncology, 11, 570–579.PubMed
56.
go back to reference Brucker, P. S., Yost, K., Cashy, J., et al. (2005). General population and cancer patient norms for the Functional Assessment of Cancer Therapy-General (FACT-G). Evaluation & the Health Professions, 28, 192–211.CrossRef Brucker, P. S., Yost, K., Cashy, J., et al. (2005). General population and cancer patient norms for the Functional Assessment of Cancer Therapy-General (FACT-G). Evaluation & the Health Professions, 28, 192–211.CrossRef
57.
go back to reference Paulhus, D. L. (1998). Book Paulhus Deception Scales (PDS): Balanced inventory of desirable responding-7 user’s manual. North Tonawanda, NY: Multi-Health Systems, Inc. Paulhus, D. L. (1998). Book Paulhus Deception Scales (PDS): Balanced inventory of desirable responding-7 user’s manual. North Tonawanda, NY: Multi-Health Systems, Inc.
58.
go back to reference Paulhus, D. L. (1988). Assessing self-deception and impression management in self-reports: The balanced inventory of desirable responding. Vancouver, Canada: University of British Columbia. Paulhus, D. L. (1988). Assessing self-deception and impression management in self-reports: The balanced inventory of desirable responding. Vancouver, Canada: University of British Columbia.
59.
go back to reference Paulhus, D. L., & Reid, D. B. (1991). Enhancement and denial in socially desirable responding. Journal of Personality and Social Psychology, 60, 307–317.CrossRef Paulhus, D. L., & Reid, D. B. (1991). Enhancement and denial in socially desirable responding. Journal of Personality and Social Psychology, 60, 307–317.CrossRef
60.
go back to reference Paulhus, D. L. (2001). Socially desirable responding: The evolution of a construct. In D. L. Paulhus (Ed.), The role of constructs in psychological and educational measurement (pp. 49–69). Hillsdale, NJ: Erlbaum. Paulhus, D. L. (2001). Socially desirable responding: The evolution of a construct. In D. L. Paulhus (Ed.), The role of constructs in psychological and educational measurement (pp. 49–69). Hillsdale, NJ: Erlbaum.
61.
go back to reference Eton, D. T., Cella, D., Yost, K. J., et al. (2004). A combination of distribution- and anchor-based approaches determined minimally important differences (MIDs) for four endpoints in a breast cancer scale. Journal of Clinical Epidemiology, 57, 898–910.PubMedCrossRef Eton, D. T., Cella, D., Yost, K. J., et al. (2004). A combination of distribution- and anchor-based approaches determined minimally important differences (MIDs) for four endpoints in a breast cancer scale. Journal of Clinical Epidemiology, 57, 898–910.PubMedCrossRef
62.
go back to reference Tchen, N., Juffs, H. G., Downie, F. P., et al. (2003). Cognitive function, fatigue, and menopausal symptoms in women receiving adjuvant chemotherapy for breast cancer. Journal of Clinical Oncology, 21, 4175–4183.PubMedCrossRef Tchen, N., Juffs, H. G., Downie, F. P., et al. (2003). Cognitive function, fatigue, and menopausal symptoms in women receiving adjuvant chemotherapy for breast cancer. Journal of Clinical Oncology, 21, 4175–4183.PubMedCrossRef
63.
go back to reference Lipton, R. B., Hamelsky, S. W., Kolodner, K. B., et al. (2000). Migraine, quality of life, and depression: A population-based case-control study. Neurology, 55, 629–635.PubMed Lipton, R. B., Hamelsky, S. W., Kolodner, K. B., et al. (2000). Migraine, quality of life, and depression: A population-based case-control study. Neurology, 55, 629–635.PubMed
64.
go back to reference Detmar, S. B., Aaronson, N. K., Wever, L. D., et al. (2000). How are you feeling? Who wants to know? Patients’ and oncologists’ preferences for discussing health-related quality-of-life issues. Journal of Clinical Oncology, 18, 3295–3301.PubMed Detmar, S. B., Aaronson, N. K., Wever, L. D., et al. (2000). How are you feeling? Who wants to know? Patients’ and oncologists’ preferences for discussing health-related quality-of-life issues. Journal of Clinical Oncology, 18, 3295–3301.PubMed
65.
go back to reference Sarna, L., Padilla, G., Holmes, C., et al. (2002). Quality of life of long-term survivors of non-small-cell lung cancer. Journal of Clinical Oncology, 20, 2920–2929.PubMedCrossRef Sarna, L., Padilla, G., Holmes, C., et al. (2002). Quality of life of long-term survivors of non-small-cell lung cancer. Journal of Clinical Oncology, 20, 2920–2929.PubMedCrossRef
66.
go back to reference Burns, J. W., Kubilus, A., Bruehl, S., et al. (2001). A fourth empirically derived cluster of chronic pain patients based on the multidimensional pain inventory: evidence for repression within the dysfunctional group. Journal of Consulting and Clinical Psychology, 69, 663–673.PubMedCrossRef Burns, J. W., Kubilus, A., Bruehl, S., et al. (2001). A fourth empirically derived cluster of chronic pain patients based on the multidimensional pain inventory: evidence for repression within the dysfunctional group. Journal of Consulting and Clinical Psychology, 69, 663–673.PubMedCrossRef
67.
go back to reference Asendorpf, J. B., & Ostendorf, F. (1998). Is self-enhancement healthy? Conceptual, psychometric, and empirical analysis. Journal of Personality and Social Psychology, 74, 955–966.PubMedCrossRef Asendorpf, J. B., & Ostendorf, F. (1998). Is self-enhancement healthy? Conceptual, psychometric, and empirical analysis. Journal of Personality and Social Psychology, 74, 955–966.PubMedCrossRef
68.
go back to reference Paulhus, D. L. (1998). Interpersonal and intrapsychic adaptiveness of trait self-enhancement: A mixed blessing? Journal of Personality and Social Psychology, 74, 1197–1208.PubMedCrossRef Paulhus, D. L. (1998). Interpersonal and intrapsychic adaptiveness of trait self-enhancement: A mixed blessing? Journal of Personality and Social Psychology, 74, 1197–1208.PubMedCrossRef
69.
go back to reference Zebrack, B. J., & Chesler, M. (2001). Health-related worries, self-image, and life outlooks of long-term survivors of childhood cancer. Health & Social Work, 26, 245–256. Zebrack, B. J., & Chesler, M. (2001). Health-related worries, self-image, and life outlooks of long-term survivors of childhood cancer. Health & Social Work, 26, 245–256.
70.
go back to reference Lawton, J. M., Fergusson, D. M., & Horwood, L. J. (1989). Self-esteem and defensiveness: An analysis of the self-esteem inventory. Psychological Reports, 64, 1307–1320. Lawton, J. M., Fergusson, D. M., & Horwood, L. J. (1989). Self-esteem and defensiveness: An analysis of the self-esteem inventory. Psychological Reports, 64, 1307–1320.
71.
go back to reference Lambird, K. H., & Mann, T. (2006). When do ego threats lead to self-regulation failure? Negative consequences of defensive high self-esteem. Personality and Social Psychology Bulletin, 32, 1177–1187.PubMedCrossRef Lambird, K. H., & Mann, T. (2006). When do ego threats lead to self-regulation failure? Negative consequences of defensive high self-esteem. Personality and Social Psychology Bulletin, 32, 1177–1187.PubMedCrossRef
72.
go back to reference Turkat, D. (1978). Self-esteem research: The role of defensiveness. Psychological Record, 28, 129–135. Turkat, D. (1978). Self-esteem research: The role of defensiveness. Psychological Record, 28, 129–135.
73.
go back to reference Esterling, B. A., Antoni, M. H., Kumar, M., et al. (1993). Defensiveness, trait anxiety, and Epstein-Barr viral capsid antigen antibody titers in healthy college students. Health Psychology, 12, 132–139.PubMedCrossRef Esterling, B. A., Antoni, M. H., Kumar, M., et al. (1993). Defensiveness, trait anxiety, and Epstein-Barr viral capsid antigen antibody titers in healthy college students. Health Psychology, 12, 132–139.PubMedCrossRef
74.
go back to reference Carlson, L. E., Angen, M., Cullum, J., et al. (2004). High levels of untreated distress and fatigue in cancer patients. British Journal of Cancer, 90, 2297–2304.PubMed Carlson, L. E., Angen, M., Cullum, J., et al. (2004). High levels of untreated distress and fatigue in cancer patients. British Journal of Cancer, 90, 2297–2304.PubMed
75.
go back to reference Deimling, G. T., Kahana, B., Bowman, K. F., et al. (2002). Cancer survivorship and psychological distress in later life. Psychooncology, 11, 479–494.PubMedCrossRef Deimling, G. T., Kahana, B., Bowman, K. F., et al. (2002). Cancer survivorship and psychological distress in later life. Psychooncology, 11, 479–494.PubMedCrossRef
76.
go back to reference Dugan, W., McDonald, M. V., Passik, S. D., et al. (1998). Use of the Zung Self-Rating Depression Scale in cancer patients: Feasibility as a screening tool. Psychooncology, 7, 483–493.PubMedCrossRef Dugan, W., McDonald, M. V., Passik, S. D., et al. (1998). Use of the Zung Self-Rating Depression Scale in cancer patients: Feasibility as a screening tool. Psychooncology, 7, 483–493.PubMedCrossRef
77.
go back to reference Hoffman, B. M., Zevon, M. A., D’Arrigo, M. C., et al. (2004). Screening for distress in cancer patients: The NCCN rapid-screening measure. Psychooncology, 13, 792–799.PubMedCrossRef Hoffman, B. M., Zevon, M. A., D’Arrigo, M. C., et al. (2004). Screening for distress in cancer patients: The NCCN rapid-screening measure. Psychooncology, 13, 792–799.PubMedCrossRef
78.
go back to reference Ryan, H., Schofield, P., Cockburn, J., et al. (2005). How to recognize and manage psychological distress in cancer patients. European Journal of Cancer Care (Engl), 14, 7–15.CrossRef Ryan, H., Schofield, P., Cockburn, J., et al. (2005). How to recognize and manage psychological distress in cancer patients. European Journal of Cancer Care (Engl), 14, 7–15.CrossRef
Metagegevens
Titel
The effects of response bias on self-reported quality of life among childhood cancer survivors
Auteurs
Tara E. O’Leary
Lisa Diller
Christopher J. Recklitis
Publicatiedatum
01-09-2007
Uitgeverij
Springer Netherlands
Gepubliceerd in
Quality of Life Research / Uitgave 7/2007
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-007-9231-3

Andere artikelen Uitgave 7/2007

Quality of Life Research 7/2007 Naar de uitgave