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Gepubliceerd in: Quality of Life Research 4/2020

06-12-2019

The effect of multiple recruitment contacts on response rates and patterns of missing data in a survey of bladder cancer survivors 6 months after cystectomy

Auteurs: Joanna E. Bulkley, Maureen O’Keeffe-Rosetti, Christopher S. Wendel, James V. Davis, Kim N. Danforth, Teresa N. Harrison, Marilyn L. Kwan, Julie Munneke, Neon Brooks, Marcia Grant, Michael C. Leo, Matthew Banegas, Sheila Weinmann, Carmit K. McMullen

Gepubliceerd in: Quality of Life Research | Uitgave 4/2020

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Abstract

Purpose

The Bladder Cancer Quality of Life Study collected detailed and sensitive patient-reported outcomes from bladder cancer survivors in the period after bladder removal surgery, when participation in survey research may present a burden. This paper describes the study recruitment methods and examines the response rates and patterns of missing data.

Methods

Detailed surveys focusing on quality of life, healthcare decision-making, and healthcare expenses were mailed to patients 5–7 months after cystectomy. We conducted up to 10 follow-up recruitment calls. We analyzed survey completion rates following each contact in relation to demographic and clinical characteristics, and patterns of missing data across survey content areas.

Results

The overall response rate was 71% (n = 269/379). This was consistent across patient clinical characteristics; response rates were significantly higher among patients over age 70 and significantly lower among racial and ethnic minority patients compared to non-Hispanic white patients. Each follow-up contact resulted in marginal survey completion rates of at least 10%. Rates of missing data were low across most content areas, even for potentially sensitive questions. Rates of missing data differed significantly by sex, age, and race/ethnicity.

Conclusions

Despite the effort required to participate in research, this population of cancer survivors showed willingness to share detailed information about quality of life, health care decision-making, and expenses, soon after major cancer surgery. Additional contacts were effective at increasing participation. Response patterns differed by race/ethnicity and other demographic factors. Our data collection methods show that it is feasible to gather detailed patient-reported outcomes during this challenging period.
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Metagegevens
Titel
The effect of multiple recruitment contacts on response rates and patterns of missing data in a survey of bladder cancer survivors 6 months after cystectomy
Auteurs
Joanna E. Bulkley
Maureen O’Keeffe-Rosetti
Christopher S. Wendel
James V. Davis
Kim N. Danforth
Teresa N. Harrison
Marilyn L. Kwan
Julie Munneke
Neon Brooks
Marcia Grant
Michael C. Leo
Matthew Banegas
Sheila Weinmann
Carmit K. McMullen
Publicatiedatum
06-12-2019
Uitgeverij
Springer International Publishing
Gepubliceerd in
Quality of Life Research / Uitgave 4/2020
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-019-02379-3

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