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The impact of patients’ illness on family members has proven to be both widespread and severe. Currently, there is no generic instrument that can be used to measure the impact of illnesses on the partner or family members of patients. This study describes the development of the Family Reported Outcome Measure (FROM-16)©.
A total of 30 items were generated from the content of previous interviews with family members. Qualitative and quantitative feedback from expert panels was collected. Items were reduced using both Rasch analysis and factor analysis, and full psychometric testing was carried out including construct validity and reliability.
Collapsing response categories, removing misfitting items and combining residually correlating items produced a good fit to the Rasch model (n = 240, total χ 2 = 56.6, df = 48, p = 0.18). Factor analysis produced a 16-item measure with two factors. The FROM showed high internal consistency (n = 120, Cronbach’s α = 0.80–0.89), high reproducibility (n = 51, intraclass correlation = 0.85–0.92) and a mean completion time of 2 min. Construct validity was proven through the correlation between the FROM and the WHOQOL-BREF total scores (n = 119, r = −0.53–0.52, p < 0.001), and the correlation between the FROM and the patient’s overall health score (n = 120, r = −0.45–0.48, p < 0.001).
The FROM-16 is both reliable and valid for use. It has a potential for wide use, including clinical (healthcare professionals or researchers in all medical specialties), industrial and social sciences. The FROM can be used to identify areas where family members need further support, as well as identify those individuals most affected by the patient’s illness.
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Breau, G. M., Camfield, C. S., Camfield, P. R., & Breau, L. M. (2008). Evaluation of the responsiveness of the Impact of Pediatric Epilepsy Scale. Epilepsy and Behaviour, 13(3), 454–457. CrossRef
Golics, C. J., Basra, M. K. A., Finlay, A. Y., & Salek, M. S. (2013). The impact of disease on family members: A critical aspect of medical care. Journal of the Royal Society of Medicine (in press).
Golics, C. J., Salek, M. S., Basra, M. K. A., & Finlay, A. Y. (2013). The impact of patients’ disease on family quality of life: An experience from 26 specialties. Journal of the Royal Society of Medicine. doi: 10.1177/0141076812472616.
Haynes, N. S., Richard, D. C. S., & Kubany, E. S. (1995). Content validity in psychological assessment: A functional approach to concepts and methods. Psychological Assessment, 7(3), 238–247. CrossRef
Fisher, W. P. (1992). Reliability statistics. Rasch Measurement Transactions, 6(3), 238.
Fabrigar, L. R., Wegener, D. T., MacCallum, R. C., & Strahan, E. J. (1999). Evaluating the use of exploratory factor analysis in psychological research. Psychological Methods, 4(3), 272–299. CrossRef
Pallant, J. F. (2005). SPSS survival manual: A step- by- step guide to data analysis using SPSS for Windows (Version 12) (2nd ed.). In J. F. Pallant. Maidenhead: Open University Press.
Cattell, R. B. (1966). The scree test for number of factors. Multivariate Behavioural Research, 1(2), 245–276. CrossRef
Finch, H. (2006). Comparison of the performance of varimax and promax rotations: Factor structure recovery for dichotomous items. Journal of Educational Measurement, 43, 39–52. CrossRef
Cronbach, L. (1951). Coefficient alpha and the internal structure of tests. Psychometrika, 16(3), 297–334. CrossRef
Streiner, D. L., & Norman, G. R. (2008). Health Measurement Scales: A practical guide to their development and use (4th ed.). Oxford: Oxford University Press. CrossRef
Nunnally, J. C. (1978). Psychometric theory (2nd ed.). New York: McGraw-Hill.
Issacs, B. J., Brown, I., Brown, R. I., Baum, N., Myerscough, T., Neikrug, S., et al. (2007). The international family quality of life project: Goals and description of a survey tool. Journal of Policy and Practice in Intellectual Disabilities, 4(3), 177–185. CrossRef
Golics, C. J., Basra, M. K. A., Salek, M. S., & Finlay, A. Y. (2011). Diseases profoundly affect the quality of life of family members of patients. The Journal of Investigative Dermatology, 131(Suppl 2), S39.
Grant, J. S., & Davis, L. L. (1997). Selection and use of content experts for instrument development. Research in Nursing & Health, 20(3), 269–274. CrossRef
Heppner, P. P., Kivlighan, D. M., & Wampold, B. E. (1992). Research design in counseling. Pacific Grove, CA: Brooks/Cole.
Clark, L. A., & Watson, D. (1995). Constructing validity: Basic issues in objective scale development. Psychological Assessment, 7(3), 309–319. CrossRef
Ponterotto, J. G., & Ruckdeschel, D. E. (2007). An overview of coefficient alpha and a reliability matrix for estimating adequacy of internal consistency coefficients with psychological research measures. Perceptual and Motor Skills, 105(3 Pt 1), 997–1014. PubMed
- The development and validation of the Family Reported Outcome Measure (FROM-16)© to assess the impact of disease on the partner or family member
Catherine Jane Golics
Mohammad Khurshid Azam Basra
Andrew Yule Finlay
- Springer International Publishing