Skip to main content
Mijn bibliotheek
Shop
Nieuws Boeken Tijdschriften E-learning Web-tv Video Audio
Tips voor Mijn BSL
UITGEBREID ZOEKEN
Inloggen
Top
Journal of Child and Family Studies
Gepubliceerd in: Journal of Child and Family Studies 11/2021

21-08-2021 | Original Paper

The Development and Process Evaluation of PEER: A Camp-based Programme for Adolescents Impacted by Cancer

Auteurs: Pandora Patterson, Fiona E. J. McDonald, Elizabeth Kelly-Dalgety, Aileen Luo, Kimberley R. Allison

Gepubliceerd in: Journal of Child and Family Studies | Uitgave 11/2021

Log in om toegang te krijgen
share
DELEN

Deel dit onderdeel of sectie (kopieer de link)

  • Optie A:
    Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
  • Optie B:
    Deel de link per e-mail
    Link delen
publish
Publiceer nu

Abstract

Adolescents impacted by their own or a relative’s cancer diagnosis experience significant psychosocial needs. Residential programmes provide opportunities to address these, yet limited evaluation research and unclear reporting of therapeutic and theoretical underpinnings complicate efforts to understand programme effects. This paper reports the development and process evaluation of PEER, a four-day programme with psychosocial (acceptance and commitment therapy, self-compassion) and recreational components for adolescents impacted by their own or a parent/sibling’s cancer. Staff (N = 51) and adolescents (N = 148, 12–17 years) who attended a PEER programme participated in this evaluation. The evaluation of fidelity included measures of facilitators’ confidence to deliver content, adherence to the programme manual, quality of programme delivery, participants’ engagement, and overall satisfaction. The process evaluation included assessment of quality of life, distress, and process variables (psychological flexibility, mindfulness, self-compassion) at pre-programme, post-programme, and two-month follow-up, as well as qualitative feedback from participants and facilitators. Moderation analyses identified predictors of clinically significant improvement in psychosocial outcomes. The programme was delivered with good fidelity, and participants reported high satisfaction and engagement. Approximately 15–20% of participants experienced clinically-meaningful improvements in distress and quality of life; those who reported higher distress and lower baseline psychological flexibility, mindfulness and self-kindness experienced greater improvements. Qualitative feedback additionally evidenced the value of peer connection and support. The evaluation evidences PEER’s feasibility, acceptability and value for adolescents impacted by cancer, particularly those experiencing greater distress. Its success indicates the potential of the therapeutic approaches used, and for community organisations to develop interventions complementing services offered by healthcare systems.
vorige artikel Family Socioeconomic Status and Executive Function in Urban Chinese Children: The Effects of Cortisol Reactivity
volgende artikel Life Interrupted: Family Routines Buffer Stress during the COVID-19 Pandemic
Voetnoten
1
Distress was not assessed immediately post-program as the Kessler-10 measures distress over the past 30 days and is therefore inappropriate to detect changes in distress over a four-day program.
 
2
Participants also completed the brief COPE (Carver, 1997) as part of the evaluation of the PEER program, although this was not used in this study’s analyses.
 
Literatuur
Alderfer, M. A., Long, K. A., Lown, E. A., Marsland, A. L., Ostrowski, N. L., Hock, J. M., & Ewing, L. J. (2010, Aug). Psychosocial adjustment of siblings of children with cancer: a systematic review. Psycho-Oncology, 19(8), 789–805.
Australian Bureau of Statistics (ABS). (2012, 4/4/2012). 4817.0.55.001—Information paper: use of the Kessler Psychological Distress Scale in ABS Health Surveys, Australia, 2007–08. ABS.
Berbis, J., Oudin, C., Alessandrini, M., Vercasson, C., Barlogis, V., Chambost, H., Michel, G., & Auquier, P. (2015). Quality of life in minor siblings of childhood leukemia survivors, long-term after diagnosis: a LEA study. Psycho-Oncology, 24(6), 661–668.PubMedCrossRef
Bluth, K., & Eisenlohr-Moul, T. A. (2017). Response to a mindful self-compassion intervention in teens: a within-person association of mindfulness, self-compassion, and emotional well-being outcomes. Journal of Adolescence, 57, 108–118.PubMedPubMedCentralCrossRef
Bluth, K., Gaylord, S. A., Campo, R. A., Mullarkey, M. C., & Hobbs, L. (2016). Making friends with yourself: a mixed methods pilot study of a mindful self-compassion program for adolescents. Mindfulness, 7(2), 479–492.PubMedCrossRef
Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3, 77–101.CrossRef
Campo, R. A., Bluth, K., Santacroce, S. J., Knapik, S., Tan, J., Gold, S., Philips, K., Gaylord, S., & Asher, G. N. (2017). A mindful self-compassion videoconference intervention for nationally recruited posttreatment young adult cancer survivors: feasibility, acceptability, and psychosocial outcomes. Supportive Care in Cancer, 25(6), 1759–1768.PubMedCrossRef
Carroll, C., Patterson, M., Wood, S., Booth, A., Rick, J., & Balain, S. (2007). A conceptual framework for implementation fidelity. Implementation Science, 2(1), 40.PubMedPubMedCentralCrossRef
Carver, C. S. (1997). You want to measure coping but your protocol’s too long—consider brief cope. International Journal of Behavioural Medicine, 4(1), 92–100.CrossRef
Clark, C. D. (2018). Summer camp as therapeutic landscape. In R. Hawkins & L. A. Nabors (Eds.), Promoting prosocial behaviors in children through games and play: Making social emotional learning fun (pp. 205–225): Nova Science Publishers Inc.
Clarke, K., Patterson, P., McDonald, F. E. J., Wakefield, C. E., Sansom-Daly, U., & Zebrack, B. (2021). The development and process evaluation of a 3-day acceptance and commitment therapy group program for adolescent cancer survivors. Child and Youth Care. Forum, 50, 229–246. https://​doi.​org/​10.​1007/​s10566-020-09571-4.CrossRef
Ernst, M. M., & Mellon, M. W. (2016). Acceptance and Commitment Therapy (ACT) to foster resilience in pediatric chronic illness. In C. DeMichelis & M. Ferrari (Eds.), Child and adolescent resilience within medical contexts: Integrating Research and Practice (pp. 193–2007). Springer.
Feros, D. L., Lane, L., Ciarrochi, J., & Blackledge, J. T. (2013). Acceptance and Commitment Therapy (ACT) for improving the lives of cancer patients: a preliminary study. Psycho-Oncology, 22, 459–464.PubMed
Franklin, M., Patterson, P., Allison, K. R., Rosso-Buckton, A., & Walczak, A. (2018). An invisible patient: Healthcare professionals’ perspectives on caring for adolescents and young adults who have a sibling with cancer. European Journal of Cancer Care, 27(6), e12970.
Gard, T., Brach, N., Hölzel, B. K., Noggle, J. J., Conboy, L. A., & Lazar, S. W. (2012). Effects of a yoga-based intervention for young adults on quality of life and perceived stress: The potential mediating roles of mindfulness and self-compassion. The Journal of Positive Psychology, 7(3), 165–175.CrossRef
Greco, L. A., Lambert, W., & Baer, R. A. (2008). Psychological inflexibility in childhood adolescence: development and evaluation of the Avoidance and Fusion Questionnaire for Youth. Psychological Assessment, 20, 93–102.PubMedCrossRef
Van der Gucht, K., Takano, K., Labarque, V., Vandenabeele, K., Nolf, N., Kuylen, S., Cosyns, V., Van Broeck, N., Kuppens, P., & Raes, F. (2017). Journal of Adolescent and young adult oncology, 6(2), 307–317.
Halliburton, A. E., & Cooper, L. D. (2015). Applications and adaptations of Acceptance and Commitment Therapy (ACT) for adolescents. Journal of Contextual Behavioral Science, 4(1), 1–11.CrossRef
Hancock, L. (2011). The camp experience of siblings of pediatric cancer patients. Journal of Pediatric Oncology Nursing, 28(3), 137–142.PubMedCrossRef
Hayes, S. C., Luoma, J. B., Bond, F. W., Masuda, A., & Lillis, J. (2006). Acceptance and commitment therapy: model, processes and outcomes. Behaviour Research and Therapy, 44(1), 1–25. Jan.CrossRefPubMed
Huizinga, G. A., Visser, A., Zelders-Steyn, Y. E., Teule, J. A., Reijneveld, S. A., & Roodbol, P. F. (2011). Psychological impact of having a parent with cancer. European Journal of Cancer, 47(Suppl 3), S239–246. Sep.PubMedCrossRef
Hulbert-Williams, N., Storey, L., & Wilson, K. G. (2015). Psychological interventions for patients with cancer: psychological flexibility and the potential utility of acceptance and commitment therapy. European Journal of Cancer Care, 24, 15–27.PubMedCrossRef
Johnson, P. O., & Fay, L. F. (1950). The Johnson-Neyman technique, its theory and application. Psychometrika, 15, 349–387.PubMedCrossRef
Johnson, P. O., & Neyman, J. (1936). Tests of certain linear hypotheses and theri application to some educational problems. Statistical Research Memoirs, 1, 57–93.
Kabat-Zinn, J. (2003). Mindfulness-based interventions in context: past, present, and future. Clinical Psychology: Science and Practice, 10(2), 144–156.
Kearney, P. J. (2018). Healing rites of passage: Salutogenesis in serious fun camps. London, UK: Routledge.
Keng, S.-L., Smoski, M. J., Robins, C. J., Ekblad, A. G., & Brantley, J. G. (2012). Mechanisms of change in mindfulness-based stress reduction: self-compassion and mindfulness as mediators of intervention outcomes. Journal of Cognitive Psychotherapy, 26(3), 270–280.CrossRef
Kessler, R. C., Andrews, G., Colpe, L. J., Hiripi, E., Mroczek, D. K., Normand, S. L. T., Walters, E. L., & Zaslavsky, A. M. (2002). Short screening scales to monitor population prevalences and trends in non-specific psychological distress. Psychological Medicine, 32, 959–976.PubMedCrossRef
Kirchhoff, A. C., McFadden, M., Warner, E. L., & Kinney, A. Y. (2014). Quality of life and comorbidities impact education and employment for survivors of adolescent and young adult cancers. Cancer Epidemiology, Biomarkers and Prevention, 23(3), 568.CrossRef
Kuby, A., Mclean, N., & Allen, K. (2015). Validation of the Child and Adolescent Mindfulness Measure (CAMM) with non-clinical adolescents. Mindfulness, 6(6), 1448–1455.CrossRef
Kuhne, F., Krattenmacher, T., Bergelt, C., Ernst, J. C., Flechtner, H. H., Klitzing, K., Romer, G., & Moller, B. (2012). Parental palliative cancer: Psychosocial adjustment and health-related quality of life in adolescents participating in a German family counselling service. BMC Palliative Care, 11(1), 21.PubMedPubMedCentralCrossRef
Leary, M. R., Tate, E. B., Allen, A. B., Adams, C. E., & Hancock, J. (2007). Self-compassion and reactions to unpleasant self-relevant events: the implications of treating oneself kindly. Journal of Personality and Social Psychology, 92(5), 887–904.PubMedCrossRef
L’Estrange, K. L., Timulak, L., Kinsella, L., & D’Alton, P. (2016). Experiences of changes in self-compassion following mindfulness-based intervention with a cancer population. Mindfulness, 7(3), 734–744.CrossRef
Lewis, P., Jordens, C. F. C., Mooney-Somers, J., Smith, K., & Kerridge, I. (2013). Growing up with cancer: Accommodating the effects of cancer into young people’s social lives. Journal of Pediatric Oncology Nursing, 30(6), 311–319.PubMedCrossRef
Marshall, E.-J., & Brockman, R. N. (2016). The relationships between psychological flexibility, self-compassion, and emotional well-being. Journal of Cognitive Psychotherapy, 30(1), 60–72.PubMedCrossRef
Martiniuk, A., Silva, M., Amylon, M., & Barr, R. (2014). Camp programs for children with cancer and their families: Review of research progress over the past decade. Pediatric Blood and Cancer, 61(5), 778–787.PubMedCrossRef
McDonald, F. E. J., Patterson, P., White, K. J., Butow, P., & Bell, M. L. (2015). Predictors of unmet needs and psychological distress in adolescent and young adult siblings of people diagnosed with cancer. Psycho-Oncology, 24(3), 333–340.PubMedCrossRef
Miles, M. B., & Huberman, A. M. (1994). Qualitative data analysis: a sourcebook (2nd ed.). Thousand Oaks, CA: Sage.
Millar, B., Patterson, P., & Desille, N. (2010). Emerging adulthood and cancer: How unmet needs vary with time since treatment. Palliative and Supportive Care, 8(2), 151–158.PubMedCrossRef
Montoya, A. K. (2019). Moderation analysis in two-instance repeated measures designs: probing methods and multiple moderator models. Behavior Research Methods, 51(1), 61–82.PubMedCrossRef
Neff, K. D. (2003a). The development and validation of a scale to measure self-compassion. Self and Identity, 2(3), 223–250.CrossRef
Neff, K. D. (2003b). Self-compassion: An alternative conceptualisation of a healthy attitute toward oneself. Self and Identity, 2, 85–102.CrossRef
Neville, A. R., Moothathamby, N., Naganathan, M., Huynh, E., & Moola, F. J. (2019). “A place to call our own”: The impact of camp experiences on the psychosocial wellbeing of children and youth affected by cancer—a narrative review. Complementary Therapies in Clinical Practice, 36, 18–28.PubMedCrossRef
Norman, G., Sloan, J., & Wyrwich, K. (2003). Interpretation of changes in health-related quality of life: The remarkable universality of half a standard deviation. Medical Care Research and Review, 41(5), 582–592.
Packman, W., Greenhalgh, J., Chesterman, B., Shaffer, T., Fine, J., VanZutphen, K., Golan, R., & Amylon, M. D. (2005). Siblings of pediatric cancer patients: the quantitative and qualitative nature of quality of life. Journal of Psychosocial Oncology, 23(1), 87–108.PubMedCrossRef
Patterson, P., Koussa, M., McDonald, F., Middlemiss, W., Stevens, H., Wright, A., Albritton, K., & Heath, C. (2017, June). The impact of attachment on the effectiveness of mindfulness as an intervention for AYA siblings of cancer patients ANZCHOG Annual Scientific Meeting, Adelaide, Australia.
Patterson, P., McDonald, F., Tindle, R., Kelly-Dalgety, E., Zebrack, B., & Costa, D. (2018, Dec). The development and preliminary evaluation of the cancer peer support scale in adolescents living with cancer. Psycho-Oncology, 27(12), 2865–2868.
Patterson, P., & McDonald, F. E. J. (2015). ‘Being Mindful’: Does it help adolescents and young adults who have completed cancer treatment? Journal of Pediatric Oncology Nursing, 32(4), 189–194.
Patterson, P., McDonald, F. E. J., Ciarrochi, J., Hayes, L., & Tracey, D. (2017, June). Truce: The development and evaluation of an Acceptance and Commitment Therapy program for young people who have a parent with cancer. Association for Contextual Behavioural Science World Conference 15, Seville, Spain.
Patterson, P., McDonald, F. E. J., Ciarrochi, J., Hayes, L., Tracey, D., Konings, S., Wright, A., & Hulbert-Williams, N. (2019, June). Modifying Truce—a program for young people with a parent with cancer—for online delivery. ACBS World Conference, Dublin, Ireland.
Patterson, P., McDonald, F. E. J., Ciarrochi, J., Hayes, L., Tracey, D., Wakefield, C. E., & White, K. (2015). A study protocol for Truce: a pragmatic controlled trial of a seven-week acceptance and commitment therapy program for young people who have a parent with cancer. BMC Psychology, 3(1), Article 31.CrossRef
Patterson, P., McDonald, F. E. J., White, K. J., Butow, P. N., & Walczak, A. (2017). Levels of unmet needs and distress amongst adolescents and young adults (AYAs) impacted by familial cancer. Psycho-Oncology, 26(9), 1285–1292.PubMedPubMedCentralCrossRef
Patterson, P., Millar, B., Desille, N., & McDonald, F. E. J. (2012). The unmet needs of emerging adults with a cancer diagnosis: a qualitative study. Cancer Nursing, 35(3), E32–E40.PubMedCrossRef
Pinto-Gouveia, J., Duarte, C., Matos, M., & Fráguas, S. (2014). The protective role of self-compassion in relation to psychopathology symptoms and quality of life in chronic and in cancer patients. Clinical Psychology and Psychotherapy, 21, 311–323.PubMedCrossRef
Przezdziecki, A., & Sherman, K. A. (2016). Modifying affective and cognitive responses regarding body image difficulties in breast cancer survivors using a self-compassion-based writing intervention. Mindfulness, 7(5), 1142–1155.CrossRef
Renshaw, T. L. (2017). Screening for psychological inflexibility: Initial validation of the Avoidance and Fusion Questionnaire for Youth as a school mental health screener. Journal of Psychoeducational Assessment, 35(5), 482–493.CrossRef
Rodgers, R. F., Donovan, E., Cousineau, T., Yates, K., McGowan, K., Cook, E., Lowy, A. S., & Franko, D. L. (2018). BodiMojo: Efficacy of a mobile-based intervention in improving body image and self-compassion among adolescents. Journal of Youth and Adolescence, 47, 1363–1372.PubMedCrossRef
Ruiz, F. J. (2012). Acceptance and commitment therapy versus traditional cognitive behavioral therapy: a systematic review and meta-analysis of current empirical evidence. International Journal of Psychology and Psychological Therapy, 12(2), 333–367.
Seitz, D. C. M., Besier, T., Debatin, K.-M., Grabow, D., Dieluweit, U., Hinz, A., Kaatsch, P., & Goldbeck, L. (2010). Posttraumatic stress, depression and anxiety among adult long-term survivors of cancer in adolescence. European Journal of Cancer, 46, 1596–1606.PubMedCrossRef
Swain, J., Hancock, K., Dixon, A., & Bowman, J. (2015). Acceptance and commitment therapy for children: a systematic review of intervention studies. Journal of Contextual Behavioral Science, 4, 73–85.CrossRef
Wu, Y. P., Prout, K., Roberts, M. C., Parikshak, S., & Amylon, M. D. (2011). Assessing experiences of children who attended a camp for children with cancer and their siblings: a preliminary study. Child & Youth Care Forum, 40, 121.CrossRef
Zabelina, D., & Robinson, M. (2010). Don’t be so hard on yourself: self-compassion facilitates creative originality among self-judgmental individuals. Creativity Research Journal, 22(3), 288–293.CrossRef
Zoogman, S., Goldberg, S. B., Hoyt, W. T., & Miller, L. (2015). Mindfulness interventions with youth: a meta-analysis. Mindfulness, 6(2), 290–302.CrossRef
Metagegevens
Titel
The Development and Process Evaluation of PEER: A Camp-based Programme for Adolescents Impacted by Cancer
Auteurs
Pandora Patterson
Fiona E. J. McDonald
Elizabeth Kelly-Dalgety
Aileen Luo
Kimberley R. Allison
Publicatiedatum
21-08-2021
Uitgeverij
Springer US
Gepubliceerd in
Journal of Child and Family Studies / Uitgave 11/2021
Print ISSN: 1062-1024
Elektronisch ISSN: 1573-2843
DOI
https://doi.org/10.1007/s10826-021-02061-8

Andere artikelen Uitgave 11/2021

Journal of Child and Family Studies 11/2021 Naar de uitgave

Review

Integrated Treatment Programmes for Mothers with Substance Use Problems: A Systematic Review and Meta-analysis of Interventions to Prevent Out-of-home Child Placements

Original Paper

Family Socioeconomic Status and Executive Function in Urban Chinese Children: The Effects of Cortisol Reactivity

Review

Effectiveness of Family Systems Theory Interventions on Adolescents with Type 1 Diabetes: A Meta-analysis

Original Paper

Family Processes and Mental Health among Children and Caregivers in a Family Strengthening Program

Original Paper

Patterns in Father Presence and Engagement in Mongolia: A Historical Cross-Sectional Study

Original Paper

Life Interrupted: Family Routines Buffer Stress during the COVID-19 Pandemic