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Gepubliceerd in: Journal of Child and Family Studies 11/2021

21-08-2021 | Original Paper

The Development and Process Evaluation of PEER: A Camp-based Programme for Adolescents Impacted by Cancer

Auteurs: Pandora Patterson, Fiona E. J. McDonald, Elizabeth Kelly-Dalgety, Aileen Luo, Kimberley R. Allison

Gepubliceerd in: Journal of Child and Family Studies | Uitgave 11/2021

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Abstract

Adolescents impacted by their own or a relative’s cancer diagnosis experience significant psychosocial needs. Residential programmes provide opportunities to address these, yet limited evaluation research and unclear reporting of therapeutic and theoretical underpinnings complicate efforts to understand programme effects. This paper reports the development and process evaluation of PEER, a four-day programme with psychosocial (acceptance and commitment therapy, self-compassion) and recreational components for adolescents impacted by their own or a parent/sibling’s cancer. Staff (N = 51) and adolescents (N = 148, 12–17 years) who attended a PEER programme participated in this evaluation. The evaluation of fidelity included measures of facilitators’ confidence to deliver content, adherence to the programme manual, quality of programme delivery, participants’ engagement, and overall satisfaction. The process evaluation included assessment of quality of life, distress, and process variables (psychological flexibility, mindfulness, self-compassion) at pre-programme, post-programme, and two-month follow-up, as well as qualitative feedback from participants and facilitators. Moderation analyses identified predictors of clinically significant improvement in psychosocial outcomes. The programme was delivered with good fidelity, and participants reported high satisfaction and engagement. Approximately 15–20% of participants experienced clinically-meaningful improvements in distress and quality of life; those who reported higher distress and lower baseline psychological flexibility, mindfulness and self-kindness experienced greater improvements. Qualitative feedback additionally evidenced the value of peer connection and support. The evaluation evidences PEER’s feasibility, acceptability and value for adolescents impacted by cancer, particularly those experiencing greater distress. Its success indicates the potential of the therapeutic approaches used, and for community organisations to develop interventions complementing services offered by healthcare systems.

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Voetnoten
1
Distress was not assessed immediately post-program as the Kessler-10 measures distress over the past 30 days and is therefore inappropriate to detect changes in distress over a four-day program.
 
2
Participants also completed the brief COPE (Carver, 1997) as part of the evaluation of the PEER program, although this was not used in this study’s analyses.
 
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Metagegevens
Titel
The Development and Process Evaluation of PEER: A Camp-based Programme for Adolescents Impacted by Cancer
Auteurs
Pandora Patterson
Fiona E. J. McDonald
Elizabeth Kelly-Dalgety
Aileen Luo
Kimberley R. Allison
Publicatiedatum
21-08-2021
Uitgeverij
Springer US
Gepubliceerd in
Journal of Child and Family Studies / Uitgave 11/2021
Print ISSN: 1062-1024
Elektronisch ISSN: 1573-2843
DOI
https://doi.org/10.1007/s10826-021-02061-8