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24-02-2017 | Uitgave 7/2017

Quality of Life Research 7/2017

The Cancer Loneliness Scale and Cancer-related Negative Social Expectations Scale: development and validation

Tijdschrift:
Quality of Life Research > Uitgave 7/2017
Auteurs:
Rebecca N. Adams, Catherine E. Mosher, Kevin L. Rand, Adam T. Hirsh, Patrick O. Monahan, Rafat Abonour, Kurt Kroenke
Belangrijke opmerkingen

Electronic supplementary material

The online version of this article (doi:10.​1007/​s11136-017-1518-4) contains supplementary material, which is available to authorized users.

Abstract

Purpose

Loneliness is a known risk factor for poor mental and physical health outcomes and quality of life in the general population, and preliminary research suggests that loneliness is linked to poorer health outcomes in cancer patients as well. Various aspects of the cancer experience contribute to patients feeling alone and misunderstood. Furthermore, loneliness theory suggests that negative social expectations, which may specifically relate to the cancer experience, precipitate and sustain loneliness. Cancer-specific tools are needed to assess key constructs of this theory. In the current study, we developed and tested measures of (1) loneliness attributed to cancer (i.e., cancer-related loneliness) and (2) negative social expectations related to cancer.

Methods

First, we developed the items for the measures based on theory, prior research, and expert feedback. Next, we assessed the measures’ psychometric properties (i.e., internal consistency and construct validity) in a diverse sample of cancer patients.

Results

The final products included a 7-item unidimensional Cancer Loneliness Scale and a 5-item unidimensional Cancer-related Negative Social Expectations Scale. Evidence of excellent reliability and validity was found for both measures.

Conclusions

The resulting measures have both clinical and research utility.

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Extra materiaal
Supplementary material 1 (DOCX 21 KB)
11136_2017_1518_MOESM1_ESM.docx
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