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Gepubliceerd in: Journal of Child and Family Studies 11/2020

20-09-2020 | Original Paper

The Applicability of the “Revised Burden Measure” in Pediatric Settings: Measuring Parents’ Caregiving Burdens and Uplifts

Auteurs: Neuza Silva, Marco Pereira, Maria Cristina Canavarro, Rhonda Montgomery, Carlos Carona

Gepubliceerd in: Journal of Child and Family Studies | Uitgave 11/2020

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Abstract

In pediatric settings, a valid and reliable assessment of negative and positive dimensions of caregiving can inform intervention processes and improve parent–child adaptation outcomes. While caregiving is a normative component of parenting, the experience can be quantitatively and/or qualitatively different for parents of children with a chronic health condition. The aim of this study was to systematically examine the psychometric properties of the “Revised Burden Measure” in a sample of parents of children with and without chronic health conditions. The “Revised Burden Measure” and self-reported measures of quality of life and mental health were administered to a sample of parents who had children with (n = 277) or without (n = 117) chronic health conditions. Classical test theory, item response theory, multi-group confirmatory factor analysis, and multivariate and univariate analyses of covariance were conducted to investigate the reliability and validity of the instrument. The “Revised Burden Measure” was shown to have good reliability, as well as criterion and known-groups validity. The data showed minor DIF by children’s health status. Confirmatory factor analyses revealed a second-order model of caregiving burden (with Relationship, Objective and Subjective burdens loading on Overall Burden) and the construct validity of the complementary Uplifts subscale. Additionally, multi-group analyses ascertained the measurement and structural invariance of the model by children’s health status. The results generally confirm the reliability and validity of the “Revised Burden Measure” and demonstrate its overall clinical and developmental applicability in pediatric settings.
Literatuur
go back to reference Aneshensel, C. S., Pearlin, L. I., Mullan, J. T., Zarit, S. H., & Whitlach, C. J. (1995). Profiles in caregiving: The unexpected career. San Diego, CA: Academic Press. Aneshensel, C. S., Pearlin, L. I., Mullan, J. T., Zarit, S. H., & Whitlach, C. J. (1995). Profiles in caregiving: The unexpected career. San Diego, CA: Academic Press.
go back to reference Bickman, L., & Rog, D. J. (2009). The SAGE handbook of applied social research methods (2nd ed.). Los Angeles: Sage. Bickman, L., & Rog, D. J. (2009). The SAGE handbook of applied social research methods (2nd ed.). Los Angeles: Sage.
go back to reference Browne, M., & Cudeck, R. (1993). Alternative ways of assessing model fit. In K. Bollen & J. Long (Eds.), Testing structural equation models (pp. 136–162). Newbury Park, CA: Sage. Browne, M., & Cudeck, R. (1993). Alternative ways of assessing model fit. In K. Bollen & J. Long (Eds.), Testing structural equation models (pp. 136–162). Newbury Park, CA: Sage.
go back to reference Byrne, B. M. (2010), Structural Equation Modeling with AMOS: basic concepts, applications, and programming (2nd ed.). New York, NY: Routledge. Byrne, B. M. (2010), Structural Equation Modeling with AMOS: basic concepts, applications, and programming (2nd ed.). New York, NY: Routledge.
go back to reference Chou, K., Chu, H., Tseng, C., & Lu, R. (2003). The measurement of caregiver burden. Journal of Medical Sciences, 23(2), 73–82. Chou, K., Chu, H., Tseng, C., & Lu, R. (2003). The measurement of caregiver burden. Journal of Medical Sciences, 23(2), 73–82.
go back to reference Cummings, E. M., Davies, P. T., & Campbell, S. B. (2000). Developmental psychopathology and family process: theory, research and clinical implications. New York, NY: The Guilford Press. Cummings, E. M., Davies, P. T., & Campbell, S. B. (2000). Developmental psychopathology and family process: theory, research and clinical implications. New York, NY: The Guilford Press.
go back to reference Farrell, A. M., & Rudd, J. M. (2009). Factor analysis and discriminant validity: a brief review of some practical issues. In D. Tojib (Ed.), ANZMAC 2009 conference proceedings. Melbourne, Australia: ANZMAC. Farrell, A. M., & Rudd, J. M. (2009). Factor analysis and discriminant validity: a brief review of some practical issues. In D. Tojib (Ed.), ANZMAC 2009 conference proceedings. Melbourne, Australia: ANZMAC.
go back to reference Gonçalves, M. M., Simões, M. R., & Almeida, L. S. (2017). Psicologia clínica e da saúde—Instrumentos de avaliação (Clinical and health psychology—assessment instruments). Lisboa: PACTOR. Gonçalves, M. M., Simões, M. R., & Almeida, L. S. (2017). Psicologia clínica e da saúdeInstrumentos de avaliação (Clinical and health psychology—assessment instruments). Lisboa: PACTOR.
go back to reference Hair, J. F., Black, W. C., Babin, B. J., & Anderson, R. E. (2010). Multivariate data analysis (7th ed.). New Jersey, NJ: Prentice Hall. Hair, J. F., Black, W. C., Babin, B. J., & Anderson, R. E. (2010). Multivariate data analysis (7th ed.). New Jersey, NJ: Prentice Hall.
go back to reference Holland, P., & Thayer, D. (1988). Differential item performance and the Mantel-Haenszel procedure. In H. Wainer & H. I. Braun (Eds.), Test validity (pp. 129–145). Hillsdale, NJ: Erlbaum. Holland, P., & Thayer, D. (1988). Differential item performance and the Mantel-Haenszel procedure. In H. Wainer & H. I. Braun (Eds.), Test validity (pp. 129–145). Hillsdale, NJ: Erlbaum.
go back to reference Linacre, J. M. (2011). A user’s guide to WINSTEPS & MINISTEPS: Rasch model computer programs. Winsteps.com. Linacre, J. M. (2011). A user’s guide to WINSTEPS & MINISTEPS: Rasch model computer programs. Winsteps.​com.
go back to reference Montgomery, R. J. V., Borgatta, E. F., & Borgatta, M. L. (2000). Societal and family change in the burden of care. In W. T. Liu & H. L. Kendig (Eds.), Who should care for the elderly? An East-West value divide (pp. 27–54). Singapore: Singapore University Press. Montgomery, R. J. V., Borgatta, E. F., & Borgatta, M. L. (2000). Societal and family change in the burden of care. In W. T. Liu & H. L. Kendig (Eds.), Who should care for the elderly? An East-West value divide (pp. 27–54). Singapore: Singapore University Press.
go back to reference Montgomery, R. J. V., & Kosloski, K. (2006). The league of experienced family caregivers: measure development. Milwaukee, WI: University of Wisconsin-Milwaukee. Montgomery, R. J. V., & Kosloski, K. (2006). The league of experienced family caregivers: measure development. Milwaukee, WI: University of Wisconsin-Milwaukee.
go back to reference Montgomery, R. J. V., & Kosloski, K. D. (2013). Pathways to a caregiver identity and implications for support services. In R. C. Talley & R. J. V. Montgomery (Eds.), Caregiving: Research, practice, policy. Caregiving across the lifespan: Research, practice, policy (pp. 131–156). New York, NY: Springer Science + Business Media. Montgomery, R. J. V., & Kosloski, K. D. (2013). Pathways to a caregiver identity and implications for support services. In R. C. Talley & R. J. V. Montgomery (Eds.), Caregiving: Research, practice, policy. Caregiving across the lifespan: Research, practice, policy (pp. 131–156). New York, NY: Springer Science + Business Media.
go back to reference Padilla, J. L., Hidalgo, M. D., Benítez, I., & Gómez-Benito, J. (2012). Comparison of three software programs for evaluating DIF by means of the Mantel-Haenszel procedure: EASY-DIF, DIFAS and EZDIF. Psicologica, 33(1), 135–156. Padilla, J. L., Hidalgo, M. D., Benítez, I., & Gómez-Benito, J. (2012). Comparison of three software programs for evaluating DIF by means of the Mantel-Haenszel procedure: EASY-DIF, DIFAS and EZDIF. Psicologica, 33(1), 135–156.
go back to reference Pais-Ribeiro, J. L. (2001). Mental Health Inventory: Um estudo de adaptação à população portuguesa (Mental Health Inventory: Adaptation study to the Portuguese population). Psicologia, Saúde & Doenças, 2(1), 77–99. Pais-Ribeiro, J. L. (2001). Mental Health Inventory: Um estudo de adaptação à população portuguesa (Mental Health Inventory: Adaptation study to the Portuguese population). Psicologia, Saúde & Doenças, 2(1), 77–99.
go back to reference Pereira, M., Melo, C., Gameiro, S., & Canavarro, M. C. (2011). Estudos psicométricos da versão em Português Europeu do índice de qualidade de vida EUROHIS-QOL-8 (Psychometric studies of the European Portuguese version of the quality of life index EUROHIS-QOL-8). Laboratório de Psicologia, 9(2), 109–123. https://doi.org/10.14417/lp.627.CrossRef Pereira, M., Melo, C., Gameiro, S., & Canavarro, M. C. (2011). Estudos psicométricos da versão em Português Europeu do índice de qualidade de vida EUROHIS-QOL-8 (Psychometric studies of the European Portuguese version of the quality of life index EUROHIS-QOL-8). Laboratório de Psicologia, 9(2), 109–123. https://​doi.​org/​10.​14417/​lp.​627.CrossRef
go back to reference Quittner, A. L., Opipari, L., Regoli, M., Jacobsen, J., & Eigen, H. (1992). The impact of caregiving and role strain on family life: comparisons between mothers of children with cystic fibrosis and matched controls. Rehabilitation Psychology, 37(4), 275–290. https://doi.org/10.1037/h0079107.CrossRef Quittner, A. L., Opipari, L., Regoli, M., Jacobsen, J., & Eigen, H. (1992). The impact of caregiving and role strain on family life: comparisons between mothers of children with cystic fibrosis and matched controls. Rehabilitation Psychology, 37(4), 275–290. https://​doi.​org/​10.​1037/​h0079107.CrossRef
go back to reference Simões, M. R. (1994). Investigações no âmbito da aferição nacional do teste das Matrizes Progressivas de Raven (Raven’s Progressive Matrices: Aferition studies). Doctoral Dissertation. Universidade de Coimbra. http://hdl.handle.net/10316/946 Simões, M. R. (1994). Investigações no âmbito da aferição nacional do teste das Matrizes Progressivas de Raven (Raven’s Progressive Matrices: Aferition studies). Doctoral Dissertation. Universidade de Coimbra. http://​hdl.​handle.​net/​10316/​946
go back to reference Townsend, P. (1957). The family life of old people: An inquiry in East London. London: Routledge & Kegan Paul. Townsend, P. (1957). The family life of old people: An inquiry in East London. London: Routledge & Kegan Paul.
go back to reference Ullman, J. B. (1996). Structural equation modeling. In B. G. Tabachnick & L. S. Fidell (Eds.), Using multivariate statistics (pp. 709–819). New York, NY: Harper Collins College Publishers. Ullman, J. B. (1996). Structural equation modeling. In B. G. Tabachnick & L. S. Fidell (Eds.), Using multivariate statistics (pp. 709–819). New York, NY: Harper Collins College Publishers.
go back to reference West, S. G., Finch, J. F., & Curran, P. J. (1995). Structural equation models with non-normal variables: Problems and remedies. In R. Hoyle (Ed.), Structural equation modeling: Concepts, issues, and applications (pp. 56–75). Thousand Oaks, CA: Sage. West, S. G., Finch, J. F., & Curran, P. J. (1995). Structural equation models with non-normal variables: Problems and remedies. In R. Hoyle (Ed.), Structural equation modeling: Concepts, issues, and applications (pp. 56–75). Thousand Oaks, CA: Sage.
go back to reference Wortman, C. B. (2004). Post-traumatic growth: progress and problems. Psychological Inquiry, 15(1), 81–90. Wortman, C. B. (2004). Post-traumatic growth: progress and problems. Psychological Inquiry, 15(1), 81–90.
Metagegevens
Titel
The Applicability of the “Revised Burden Measure” in Pediatric Settings: Measuring Parents’ Caregiving Burdens and Uplifts
Auteurs
Neuza Silva
Marco Pereira
Maria Cristina Canavarro
Rhonda Montgomery
Carlos Carona
Publicatiedatum
20-09-2020
Uitgeverij
Springer US
Gepubliceerd in
Journal of Child and Family Studies / Uitgave 11/2020
Print ISSN: 1062-1024
Elektronisch ISSN: 1573-2843
DOI
https://doi.org/10.1007/s10826-020-01832-z

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