Skip to main content
Top
Gepubliceerd in:

01-03-2021 | Original Paper

The Actor–Partner Effects of Parenting Stress on Quality of Life Among Parents of Children with ASD: The Mediating Role of Mental Quality of Life

Auteurs: Hakimeh Vahedparast, Saeedeh Khalafi, Faeze Jahanpour, Razieh Bagherzadeh

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 1/2022

Log in om toegang te krijgen
share
DELEN

Deel dit onderdeel of sectie (kopieer de link)

  • Optie A:
    Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
  • Optie B:
    Deel de link per e-mail

Abstract

The present study investigated the actor–partner effects of parenting stress (PS) on quality of life (QoL) among parents (96 couples) of children with autism spectrum disorder (ASD). Data were collected using the QoL Scale and the PS Index. Structural equation modeling was also utilized to test the hypothesis. The results revealed the effects of PS in each parent on mental QoL of that parent. Maternal PS further shaped physical QoL in mothers. However, PS in one parent did not influence QoL of his or her partner. Accordingly, mental QoL had a mediating role between PS and physical QoL. It was ultimately suggested to take account of QoL among parents in addition to the treatment of children with ASD.
Literatuur
go back to reference Aali, S., Aim yazdi, S. A., Abdkhodae, M., Ghanaee, A., & Moharari, F. (2015). Developmental function of families with autism spectrum disorder children compared with families with healthy children. Medical Journal of Mashhad University of Medical Sciences, 58(1), 32–41. https://doi.org/10.22038/mjms.2015.3768CrossRef Aali, S., Aim yazdi, S. A., Abdkhodae, M., Ghanaee, A., & Moharari, F. (2015). Developmental function of families with autism spectrum disorder children compared with families with healthy children. Medical Journal of Mashhad University of Medical Sciences, 58(1), 32–41. https://​doi.​org/​10.​22038/​mjms.​2015.​3768CrossRef
go back to reference Abidin, R. R., & Brunner, J. F. (1995). Development of a parenting alliance inventory. Journal of Clinical Child Psychology, 24(1), 31–40.CrossRef Abidin, R. R., & Brunner, J. F. (1995). Development of a parenting alliance inventory. Journal of Clinical Child Psychology, 24(1), 31–40.CrossRef
go back to reference Al-Oran, H. M., & AL-Sagarat, A. Y. (2016). Parenting stress of children with autistic disorder. Open Access Library Journal, 3(7), 1–10. Al-Oran, H. M., & AL-Sagarat, A. Y. (2016). Parenting stress of children with autistic disorder. Open Access Library Journal, 3(7), 1–10.
go back to reference Bashirian, S., Karami, M., Khazaei, S., & Jenabi, E. (2019). Predictors of quality of life for parents of children with autism disorders in Iran. Advances in Human Biology, 9(2), 108.CrossRef Bashirian, S., Karami, M., Khazaei, S., & Jenabi, E. (2019). Predictors of quality of life for parents of children with autism disorders in Iran. Advances in Human Biology, 9(2), 108.CrossRef
go back to reference Calzada, L. R., Pistrang, N., & Mandy, W. P. (2012). High-functioning autism and asperger’s disorder: Utility and meaning for families. Journal of Autism and Developmental Disorders, 42(2), 230–243.CrossRef Calzada, L. R., Pistrang, N., & Mandy, W. P. (2012). High-functioning autism and asperger’s disorder: Utility and meaning for families. Journal of Autism and Developmental Disorders, 42(2), 230–243.CrossRef
go back to reference Cooper, C. E., McLanahan, S. S., Meadows, S. O., & Brooks-Gunn, J. (2009). Family structure transitions and maternal parenting stress. Journal of Marriage and Family, 71(3), 558–574.CrossRef Cooper, C. E., McLanahan, S. S., Meadows, S. O., & Brooks-Gunn, J. (2009). Family structure transitions and maternal parenting stress. Journal of Marriage and Family, 71(3), 558–574.CrossRef
go back to reference Cruz, L. P., Camargos-Júnior, W., & Rocha, F. L. (2013). The broad autism phenotype in parents of individuals with autism: A systematic review of the literature. Trends in Psychiatry and Psychotherapy, 35(4), 252–263.CrossRef Cruz, L. P., Camargos-Júnior, W., & Rocha, F. L. (2013). The broad autism phenotype in parents of individuals with autism: A systematic review of the literature. Trends in Psychiatry and Psychotherapy, 35(4), 252–263.CrossRef
go back to reference Dardas, L. A., & Ahmad, M. M. (2014a). Predictors of quality of life for fathers and mothers of children with autistic disorder. Research in Developmental Disabilities, 35(6), 1326–1333.CrossRef Dardas, L. A., & Ahmad, M. M. (2014a). Predictors of quality of life for fathers and mothers of children with autistic disorder. Research in Developmental Disabilities, 35(6), 1326–1333.CrossRef
go back to reference Dardas, L. A., & Ahmad, M. M. (2014b). Quality of life among parents of children with autistic disorder: A sample from the Arab world. Research in Developmental Disabilities, 35(2), 278–287.CrossRef Dardas, L. A., & Ahmad, M. M. (2014b). Quality of life among parents of children with autistic disorder: A sample from the Arab world. Research in Developmental Disabilities, 35(2), 278–287.CrossRef
go back to reference Dardas, L. A., & Ahmad, M. M. (2015). Coping strategies as mediators and moderators between stress and quality of life among parents of children with autistic disorder. Stress and Health, 31(1), 5–12.CrossRef Dardas, L. A., & Ahmad, M. M. (2015). Coping strategies as mediators and moderators between stress and quality of life among parents of children with autistic disorder. Stress and Health, 31(1), 5–12.CrossRef
go back to reference Ellen Selman, L., et al. (2018). ‘You are labelled by your children’s disability’—A community-based, participatory study of stigma among Somali parents of children with autism living in the United Kingdom. Ethnicity & Health, 23(7), 781–796.CrossRef Ellen Selman, L., et al. (2018). ‘You are labelled by your children’s disability’—A community-based, participatory study of stigma among Somali parents of children with autism living in the United Kingdom. Ethnicity & Health, 23(7), 781–796.CrossRef
go back to reference Framework, I. C. (1992). The MOS 36-item short-form health survey (SF-36). Medical Care, 30(6), 473–483.CrossRef Framework, I. C. (1992). The MOS 36-item short-form health survey (SF-36). Medical Care, 30(6), 473–483.CrossRef
go back to reference Galletta, M., et al. (2019). Sense of coherence and physical health-related quality of life in Italian chronic patients: The mediating role of the mental component. British Medical Journal Open, 9(9), e030001. Galletta, M., et al. (2019). Sense of coherence and physical health-related quality of life in Italian chronic patients: The mediating role of the mental component. British Medical Journal Open, 9(9), e030001.
go back to reference Ghaffary, G., Karimi, A., & Nowzeri, H. (2012). Trend study of quality of life in Iran. Social Studies and Research in Iran, 1(3), 107–134. Ghaffary, G., Karimi, A., & Nowzeri, H. (2012). Trend study of quality of life in Iran. Social Studies and Research in Iran, 1(3), 107–134.
go back to reference Henseler, J., Ringle, C. M., & Sinkovics, R. R. (2009). The use of partial least squares path modeling in international marketing. In R. R. Sinkovics & P. N. Ghauri (Eds.), New challenges to international marketing. Bingley: Emerald Group Publishing Limited. Henseler, J., Ringle, C. M., & Sinkovics, R. R. (2009). The use of partial least squares path modeling in international marketing. In R. R. Sinkovics & P. N. Ghauri (Eds.), New challenges to international marketing. Bingley: Emerald Group Publishing Limited.
go back to reference Hsiao, Y. J. (2016). Pathways to mental health-related quality of life for parents of children with autism spectrum disorder: Roles of parental stress, children’s performance, medical support, and neighbor support. Research in Autism Spectrum Disorders, 23, 122–130.CrossRef Hsiao, Y. J. (2016). Pathways to mental health-related quality of life for parents of children with autism spectrum disorder: Roles of parental stress, children’s performance, medical support, and neighbor support. Research in Autism Spectrum Disorders, 23, 122–130.CrossRef
go back to reference Hsiao, Y. J. (2018). Autism spectrum disorders: Family demographics, parental stress, and family quality of life. Journal of Policy and Practice in Intellectual Disabilities, 15(1), 70–79.CrossRef Hsiao, Y. J. (2018). Autism spectrum disorders: Family demographics, parental stress, and family quality of life. Journal of Policy and Practice in Intellectual Disabilities, 15(1), 70–79.CrossRef
go back to reference Johnson, N., Frenn, M., Feetham, S., & Simpson, P. (2011). Autism spectrum disorder: Parenting stress, family functioning and health-related quality of life. Families, Systems, & Health, 29(3), 232.CrossRef Johnson, N., Frenn, M., Feetham, S., & Simpson, P. (2011). Autism spectrum disorder: Parenting stress, family functioning and health-related quality of life. Families, Systems, & Health, 29(3), 232.CrossRef
go back to reference Johnson, N. L., & Simpson, P. (2013). Lack of father involvement in research on children with autism spectrum disorder: Maternal parenting stress and family functioning. Issues in Mental Health Nursing, 34(4), 220–228.CrossRef Johnson, N. L., & Simpson, P. (2013). Lack of father involvement in research on children with autism spectrum disorder: Maternal parenting stress and family functioning. Issues in Mental Health Nursing, 34(4), 220–228.CrossRef
go back to reference Kerr, M. E. (1981). Family systems theory and therapy. Handbook of Family Therapy, 1, 226–264. Kerr, M. E. (1981). Family systems theory and therapy. Handbook of Family Therapy, 1, 226–264.
go back to reference Lorem, G. F., Schirmer, H., Wang, C. E., & Emaus, N. (2017). Ageing and mental health: Changes in self-reported health due to physical illness and mental health status with consecutive cross-sectional analyses. British Medical Journal Open, 7(1), e013629. Lorem, G. F., Schirmer, H., Wang, C. E., & Emaus, N. (2017). Ageing and mental health: Changes in self-reported health due to physical illness and mental health status with consecutive cross-sectional analyses. British Medical Journal Open, 7(1), e013629.
go back to reference Malhotra, S., Khan, W., & Bhatia, M. (2012). Quality of life of parents having children with developmental disabilities. Delhi Psychiatry Journal, 15(1), 171–176. Malhotra, S., Khan, W., & Bhatia, M. (2012). Quality of life of parents having children with developmental disabilities. Delhi Psychiatry Journal, 15(1), 171–176.
go back to reference Marsack-Topolewski, C. N., & Church, H. L. (2019). Impact of caregiver burden on quality of life for parents of adult children with autism spectrum disorder. American Journal on Intellectual and Developmental Disabilities, 124(2), 145–156.CrossRef Marsack-Topolewski, C. N., & Church, H. L. (2019). Impact of caregiver burden on quality of life for parents of adult children with autism spectrum disorder. American Journal on Intellectual and Developmental Disabilities, 124(2), 145–156.CrossRef
go back to reference McCubbin, H. I., & Patterson, J. M. (1983). The family stress process: The double ABCX model of adjustment and adaptation. Marriage & Family Review, 6(1–2), 7–37.CrossRef McCubbin, H. I., & Patterson, J. M. (1983). The family stress process: The double ABCX model of adjustment and adaptation. Marriage & Family Review, 6(1–2), 7–37.CrossRef
go back to reference McStay, R. L., Trembath, D., & Dissanayake, C. (2014). Stress and family quality of life in parents of children with autism spectrum disorder: Parent gender and the double ABCX model. Journal of Autism and Developmental Disorders, 44(12), 3101–3118.CrossRef McStay, R. L., Trembath, D., & Dissanayake, C. (2014). Stress and family quality of life in parents of children with autism spectrum disorder: Parent gender and the double ABCX model. Journal of Autism and Developmental Disorders, 44(12), 3101–3118.CrossRef
go back to reference Miranda, A., Mira, A., Berenguer, C., Rosello, B., & Baixauli, I. (2019). Parenting stress in mothers of children with autism without intellectual disability. Mediation of behavioral problems and coping strategies. Frontiers in Psychology, 10, 464.CrossRef Miranda, A., Mira, A., Berenguer, C., Rosello, B., & Baixauli, I. (2019). Parenting stress in mothers of children with autism without intellectual disability. Mediation of behavioral problems and coping strategies. Frontiers in Psychology, 10, 464.CrossRef
go back to reference Montazeri, A., Goshtasebi, A., Vahdaninia, M., & Gandek, B. (2005). The Short Form Health Survey (SF-36): Translation and validation study of the Iranian version. Quality of Life Research, 14(3), 875–882.CrossRef Montazeri, A., Goshtasebi, A., Vahdaninia, M., & Gandek, B. (2005). The Short Form Health Survey (SF-36): Translation and validation study of the Iranian version. Quality of Life Research, 14(3), 875–882.CrossRef
go back to reference Özgür, B. G., Aksu, H., & Eser, E. (2018). Factors affecting quality of life of caregivers of children diagnosed with autism spectrum disorder. Indian Journal of Psychiatry, 60(3), 278.CrossRef Özgür, B. G., Aksu, H., & Eser, E. (2018). Factors affecting quality of life of caregivers of children diagnosed with autism spectrum disorder. Indian Journal of Psychiatry, 60(3), 278.CrossRef
go back to reference Podsakoff, N. P., Shen, W., & Podsakoff, P. M. (2006). The role of formative measurement models in strategic management research: Review, critique, and implications for future research. Research Methodology in Strategy and Management, 3(1), 197–252.CrossRef Podsakoff, N. P., Shen, W., & Podsakoff, P. M. (2006). The role of formative measurement models in strategic management research: Review, critique, and implications for future research. Research Methodology in Strategy and Management, 3(1), 197–252.CrossRef
go back to reference Ponnet, K., et al. (2013). The influence of mothers’ and fathers’ parenting stress and depressive symptoms on own and partner’s parent-child communication. Family Process, 52(2), 312–324.CrossRef Ponnet, K., et al. (2013). The influence of mothers’ and fathers’ parenting stress and depressive symptoms on own and partner’s parent-child communication. Family Process, 52(2), 312–324.CrossRef
go back to reference Ribeiro, M. F. M., Vandenberghe, L., Prudente, C. O. M., & Porto, C. C. (2016). Cerebral Palsy: How the child’s age and severity of impairment affect the mother’s stress and coping strategies. Ciencia & Saude Coletiva, 21(10), 3203–3212.CrossRef Ribeiro, M. F. M., Vandenberghe, L., Prudente, C. O. M., & Porto, C. C. (2016). Cerebral Palsy: How the child’s age and severity of impairment affect the mother’s stress and coping strategies. Ciencia & Saude Coletiva, 21(10), 3203–3212.CrossRef
go back to reference Rivard, M., Terroux, A., Parent-Boursier, C., & Mercier, C. (2014). Determinants of stress in parents of children with autism spectrum disorders. Journal of Autism and Developmental Disorders, 44(7), 1609–1620.CrossRef Rivard, M., Terroux, A., Parent-Boursier, C., & Mercier, C. (2014). Determinants of stress in parents of children with autism spectrum disorders. Journal of Autism and Developmental Disorders, 44(7), 1609–1620.CrossRef
go back to reference Salehi, F., Raji, P., Mahmoodian, M., Dadgar, H., & Baghestani, A. R. (2017). Quality of life of mothers of children with autism spectrum disorders and its relationship with severity of disorder and child’s occupational performance. Journal of Modern Rehabilitation, 11(3), 167–174. Salehi, F., Raji, P., Mahmoodian, M., Dadgar, H., & Baghestani, A. R. (2017). Quality of life of mothers of children with autism spectrum disorders and its relationship with severity of disorder and child’s occupational performance. Journal of Modern Rehabilitation, 11(3), 167–174.
go back to reference Samadi, S., & McConkey, R. (2014). The impact on Iranian mothers and fathers who have children with an autism spectrum disorder. Journal of Intellectual Disability Research, 58(3), 243–254.CrossRef Samadi, S., & McConkey, R. (2014). The impact on Iranian mothers and fathers who have children with an autism spectrum disorder. Journal of Intellectual Disability Research, 58(3), 243–254.CrossRef
go back to reference Shirzadi, P., Framarzi, S., Ghasemi, M., & Shafiee, M. (2015). Investigating validity and reliability of parenting stress index-short form among fathers of normal child under 7 years old. Rooyesh-e-Ravanshenasi Journal, 3, 91–110. Shirzadi, P., Framarzi, S., Ghasemi, M., & Shafiee, M. (2015). Investigating validity and reliability of parenting stress index-short form among fathers of normal child under 7 years old. Rooyesh-e-Ravanshenasi Journal, 3, 91–110.
go back to reference Taghizadeh, Z., et al. (2017). Individual consequences of having work and family roles simultaneously in Iranian married women. Women & Health, 57(1), 52–68.CrossRef Taghizadeh, Z., et al. (2017). Individual consequences of having work and family roles simultaneously in Iranian married women. Women & Health, 57(1), 52–68.CrossRef
go back to reference Vasilopoulou, E., & Nisbet, J. (2016). The quality of life of parents of children with autism spectrum disorder: A systematic review. Research in Autism Spectrum Disorders, 23, 36–49.CrossRef Vasilopoulou, E., & Nisbet, J. (2016). The quality of life of parents of children with autism spectrum disorder: A systematic review. Research in Autism Spectrum Disorders, 23, 36–49.CrossRef
Metagegevens
Titel
The Actor–Partner Effects of Parenting Stress on Quality of Life Among Parents of Children with ASD: The Mediating Role of Mental Quality of Life
Auteurs
Hakimeh Vahedparast
Saeedeh Khalafi
Faeze Jahanpour
Razieh Bagherzadeh
Publicatiedatum
01-03-2021
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 1/2022
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-021-04919-8