Skip to main content
Top
Gepubliceerd in:

01-10-2005

Systems Analysis of Stress and Positive Perceptions in Mothers and Fathers of Pre-School Children with Autism

Auteurs: Richard P. Hastings, Hanna Kovshoff, Nicholas J. Ward, Francesca degli Espinosa, Tony Brown, Bob Remington

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 5/2005

Log in om toegang te krijgen
share
DELEN

Deel dit onderdeel of sectie (kopieer de link)

  • Optie A:
    Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
  • Optie B:
    Deel de link per e-mail

Abstract

Systemic analyses of psychological functioning in families of children with autism have typically shown that parents report different experiences (e.g., stress) and that siblings may also be affected. The purpose of the present research was more explicitly to address relationships between child, partner, and parent variables. Parents of 48 children with autism (41 mother–father pairs) reported on child characteristics, and their own stress and mental health. Mothers were found to report both more depression and more positive perceptions than fathers. Regression analyses revealed that paternal stress and positive perceptions were predicted by maternal depression; maternal stress was predicted by their children’s behavior problems (not adaptive behavior or autism symptoms) and by their partner’s depression. The future testing of the mechanisms underlying these results is discussed. In addition, the need is emphasized for more systemic analyses to understand the psychological functioning of children with autism and their siblings and parents.
Literatuur
go back to reference Bågenholm A., Gillberg C.. (1991). Psychosocial effects on siblings of children with autism and mental retardation: A population-based study Journal of Mental Deficiency Research 35: 291–307PubMed Bågenholm A., Gillberg C.. (1991). Psychosocial effects on siblings of children with autism and mental retardation: A population-based study Journal of Mental Deficiency Research 35: 291–307PubMed
go back to reference Bebko J. M., Konstantareas M. M., Springer J., (1987). Parent and professional evaluations of family stress associated with characteristics of autism Journal of Autism and Developmental Disorders 17: 565–576PubMedCrossRef Bebko J. M., Konstantareas M. M., Springer J., (1987). Parent and professional evaluations of family stress associated with characteristics of autism Journal of Autism and Developmental Disorders 17: 565–576PubMedCrossRef
go back to reference Behr S. K., Murphy D. L., Summers J. A., (1992). User’s manual: Kansas Inventory of Parental Perceptions (KIPP) Beach Center on Families and Disability Lawrence, KS Behr S. K., Murphy D. L., Summers J. A., (1992). User’s manual: Kansas Inventory of Parental Perceptions (KIPP) Beach Center on Families and Disability Lawrence, KS
go back to reference Berument S. K., Rutter M., Lord C., Pickles A., Bailey A., (1999). Autism Screening Questionnaire: Diagnostic validity British Journal of Psychiatry 175: 444–451PubMed Berument S. K., Rutter M., Lord C., Pickles A., Bailey A., (1999). Autism Screening Questionnaire: Diagnostic validity British Journal of Psychiatry 175: 444–451PubMed
go back to reference Bouma R., Schweitzer R., (1990). The impact of chronic childhood illness on family stress: A comparison between autism and cystic fibrosis Journal of Clinical Psychology 46: 722–730PubMedCrossRef Bouma R., Schweitzer R., (1990). The impact of chronic childhood illness on family stress: A comparison between autism and cystic fibrosis Journal of Clinical Psychology 46: 722–730PubMedCrossRef
go back to reference Bristol M. M., Gallagher J. J., Schopler E., (1988). Mothers and fathers of young developmentally disabled and nondisabled boys: Adaptation and spousal support Developmental Psychology 24: 441–451CrossRef Bristol M. M., Gallagher J. J., Schopler E., (1988). Mothers and fathers of young developmentally disabled and nondisabled boys: Adaptation and spousal support Developmental Psychology 24: 441–451CrossRef
go back to reference Crnic K. A., Friedrich W. N., Greenberg M. T., (1983). Adaptation of families with mentally retarded children: A model of stress, coping, and family ecology American Journal of Mental Deficiency 88: 125–138PubMed Crnic K. A., Friedrich W. N., Greenberg M. T., (1983). Adaptation of families with mentally retarded children: A model of stress, coping, and family ecology American Journal of Mental Deficiency 88: 125–138PubMed
go back to reference Dekker M. C., Nunn R., Koot H. M., (2002). Psychometric properties of the revised Developmental Behaviour Checklist in Dutch children with intellectual disability Journal of Intellectual Disability Research 46: 61–75PubMedCrossRef Dekker M. C., Nunn R., Koot H. M., (2002). Psychometric properties of the revised Developmental Behaviour Checklist in Dutch children with intellectual disability Journal of Intellectual Disability Research 46: 61–75PubMedCrossRef
go back to reference Dumas J. E., Wolf L. C., Fisman S. N., Culligan A., (1991). Parenting stress, child behavior problems, and dysphoria in parents of children with autism, Down syndrome, behavior disorders, and normal development Exceptionality 2: 97–110CrossRef Dumas J. E., Wolf L. C., Fisman S. N., Culligan A., (1991). Parenting stress, child behavior problems, and dysphoria in parents of children with autism, Down syndrome, behavior disorders, and normal development Exceptionality 2: 97–110CrossRef
go back to reference Einfeld S. L., Tonge B. J., (1995). The Developmental Behaviour Checklist: The development and validation of an instrument for the assessment of behavioural and emotional disturbance in children and adolescents with mental retardation Journal of Autism and Developmental Disorders 25: 81–104PubMedCrossRef Einfeld S. L., Tonge B. J., (1995). The Developmental Behaviour Checklist: The development and validation of an instrument for the assessment of behavioural and emotional disturbance in children and adolescents with mental retardation Journal of Autism and Developmental Disorders 25: 81–104PubMedCrossRef
go back to reference Essex E. L., Seltzer M. M., Krauss M. W., (1999). Differences in coping effectiveness and well-being among aging mothers and fathers of adults with mental retardation American Journal on Mental Retardation 104: 545–563PubMedCrossRef Essex E. L., Seltzer M. M., Krauss M. W., (1999). Differences in coping effectiveness and well-being among aging mothers and fathers of adults with mental retardation American Journal on Mental Retardation 104: 545–563PubMedCrossRef
go back to reference Factor D. C., Perry A., Freeman N., (1990). Stress, social support, and respite care use in families with autistic children Journal of Autism and Developmental Disorders 20: 139–146PubMedCrossRef Factor D. C., Perry A., Freeman N., (1990). Stress, social support, and respite care use in families with autistic children Journal of Autism and Developmental Disorders 20: 139–146PubMedCrossRef
go back to reference Fisman S., Wolf L., Ellison D., Freeman T., (2000). A longitudinal study of siblings of children with chronic disabilities Canadian Journal of Psychiatry 45: 369–375 Fisman S., Wolf L., Ellison D., Freeman T., (2000). A longitudinal study of siblings of children with chronic disabilities Canadian Journal of Psychiatry 45: 369–375
go back to reference Fisman S., Wolf L., Ellison D., Gillis B., Freeman T., Szatmari P., (1996). Risk and protective factors affecting the adjustment of siblings of children with chronic disabilities Journal of the American Academy of Child and Adolescent Psychiatry 35: 1532–1541PubMedCrossRef Fisman S., Wolf L., Ellison D., Gillis B., Freeman T., Szatmari P., (1996). Risk and protective factors affecting the adjustment of siblings of children with chronic disabilities Journal of the American Academy of Child and Adolescent Psychiatry 35: 1532–1541PubMedCrossRef
go back to reference Friedrich W. N., Greenberg M. T., Crnic K., (1983). A short form of the Questionnaire on Resources and Stress American Journal of Mental Deficiency 88: 41–48PubMed Friedrich W. N., Greenberg M. T., Crnic K., (1983). A short form of the Questionnaire on Resources and Stress American Journal of Mental Deficiency 88: 41–48PubMed
go back to reference Gavidia-Payne S., Stoneman Z., (1997). Family predictors of maternal and paternal involvement in programs for young children with disabilities Child Development 68: 701–717PubMedCrossRef Gavidia-Payne S., Stoneman Z., (1997). Family predictors of maternal and paternal involvement in programs for young children with disabilities Child Development 68: 701–717PubMedCrossRef
go back to reference Glidden L. M., Floyd F. J., (1997). Disaggregating parental depression and family stress in assessing families of children with developmental disabilities: A multi-sample analysis American Journal on Mental Retardation 102: 250–266PubMedCrossRef Glidden L. M., Floyd F. J., (1997). Disaggregating parental depression and family stress in assessing families of children with developmental disabilities: A multi-sample analysis American Journal on Mental Retardation 102: 250–266PubMedCrossRef
go back to reference Gold N., (1993). Depression and social adjustment in siblings of boys with autism Journal of Autism and Developmental Disorders, 23: 147–163PubMedCrossRef Gold N., (1993). Depression and social adjustment in siblings of boys with autism Journal of Autism and Developmental Disorders, 23: 147–163PubMedCrossRef
go back to reference Gray D. E., Holden W. J., (1992). Psycho-social well-being among parents of children with autism Australia and New Zealand Journal of Developmental Disabilities 18: 83–93 Gray D. E., Holden W. J., (1992). Psycho-social well-being among parents of children with autism Australia and New Zealand Journal of Developmental Disabilities 18: 83–93
go back to reference Hastings R. P., (2002). Parental stress and behaviour problems of children with developmental disability Journal of Intellectual and Developmental Disability 27: 149–160CrossRef Hastings R. P., (2002). Parental stress and behaviour problems of children with developmental disability Journal of Intellectual and Developmental Disability 27: 149–160CrossRef
go back to reference Hastings R. P., (2003a). Behavioural adjustment of siblings of children with autism Journal of Autism and Developmental Disorders 33: 99–104CrossRef Hastings R. P., (2003a). Behavioural adjustment of siblings of children with autism Journal of Autism and Developmental Disorders 33: 99–104CrossRef
go back to reference Hastings R. P., (2003b). Child behaviour problems and partner mental health as correlates of stress in mothers and fathers of children with autism Journal of Intellectual Disability Research 47: 231–237CrossRef Hastings R. P., (2003b). Child behaviour problems and partner mental health as correlates of stress in mothers and fathers of children with autism Journal of Intellectual Disability Research 47: 231–237CrossRef
go back to reference Hastings R. P., Brown T., (2002). Behavior problems of autistic children, parental self-efficacy and mental health American Journal on Mental Retardation 107: 222–232PubMedCrossRef Hastings R. P., Brown T., (2002). Behavior problems of autistic children, parental self-efficacy and mental health American Journal on Mental Retardation 107: 222–232PubMedCrossRef
go back to reference Hastings R. P., Brown T., Mount R. H., Cormack K. F. M., (2001). Exploration of psychometric properties of the Developmental Behavior Checklist Journal of Autism and Developmental Disorders 31: 423–431PubMedCrossRef Hastings R. P., Brown T., Mount R. H., Cormack K. F. M., (2001). Exploration of psychometric properties of the Developmental Behavior Checklist Journal of Autism and Developmental Disorders 31: 423–431PubMedCrossRef
go back to reference Hastings R. P., Johnson E., (2001). Stress in UK families conducting intensive home-based behavioral intervention for their young child with autism Journal of Autism and Developmental Disorders 31: 327–336PubMedCrossRef Hastings R. P., Johnson E., (2001). Stress in UK families conducting intensive home-based behavioral intervention for their young child with autism Journal of Autism and Developmental Disorders 31: 327–336PubMedCrossRef
go back to reference Hastings R. P., Taunt H. M., (2002). Positive perceptions in families of children with developmental disabilities American Journal on Mental Retardation 107: 116–127PubMedCrossRef Hastings R. P., Taunt H. M., (2002). Positive perceptions in families of children with developmental disabilities American Journal on Mental Retardation 107: 116–127PubMedCrossRef
go back to reference Hoare P., Harris M., Jackson P., Kerley S., (1998). A community survey of children with severe intellectual disability and their families: Psychological adjustment, carer distress and the effect of respite care Journal of Intellectual Disability Research 42: 218–227PubMedCrossRef Hoare P., Harris M., Jackson P., Kerley S., (1998). A community survey of children with severe intellectual disability and their families: Psychological adjustment, carer distress and the effect of respite care Journal of Intellectual Disability Research 42: 218–227PubMedCrossRef
go back to reference Hoppes K., Harris S. L., (1990). Perceptions of child attachment and maternal gratification in mothers of children with autism and Down syndrome Journal of Clinical Child Psychology 19: 365–370CrossRef Hoppes K., Harris S. L., (1990). Perceptions of child attachment and maternal gratification in mothers of children with autism and Down syndrome Journal of Clinical Child Psychology 19: 365–370CrossRef
go back to reference Howlin P., (1988). Living with impairment: The effects on children of having an autistic sibling Child: care, health and development 14: 395–408CrossRef Howlin P., (1988). Living with impairment: The effects on children of having an autistic sibling Child: care, health and development 14: 395–408CrossRef
go back to reference Kasari C., Sigman M., (1997). Linking parental perceptions to interactions in young children with autismJournal of Autism and Developmental Disorders 27: 39–57PubMedCrossRef Kasari C., Sigman M., (1997). Linking parental perceptions to interactions in young children with autismJournal of Autism and Developmental Disorders 27: 39–57PubMedCrossRef
go back to reference Koegel R. L., Schreibman L., Loos L. M., Dirlich-Wilheim H., Dunlap G., Robbins F. R., Plienis A. J., (1992). Consistent stress profiles in mothers of children with autism Journal of Autism and Developmental Disorders 22: 205–216PubMedCrossRef Koegel R. L., Schreibman L., Loos L. M., Dirlich-Wilheim H., Dunlap G., Robbins F. R., Plienis A. J., (1992). Consistent stress profiles in mothers of children with autism Journal of Autism and Developmental Disorders 22: 205–216PubMedCrossRef
go back to reference Konstantareas M. M., Homatidis S., (1989). Assessing child symptom severity and stress in parents of autistic children Journal of Child Psychology and Psychiatry 30: 459–470PubMedCrossRef Konstantareas M. M., Homatidis S., (1989). Assessing child symptom severity and stress in parents of autistic children Journal of Child Psychology and Psychiatry 30: 459–470PubMedCrossRef
go back to reference Konstantareas M. M., Homatidis S., (1992). Mothers’ and fathers’ self-report of involvement with autistic, mentally delayed, and normal children Journal of Marriage and the Family 54: 153–164CrossRef Konstantareas M. M., Homatidis S., (1992). Mothers’ and fathers’ self-report of involvement with autistic, mentally delayed, and normal children Journal of Marriage and the Family 54: 153–164CrossRef
go back to reference Konstantareas M. M., Homatidis S., Plowright C. M. S., (1992). Assessing resources and stress in parents of severely dysfunctional children through the Clarke modification of Holroyd’s Questionnaire on Resources and Stress Journal of Autism and Developmental Disorders 22: 217–234PubMedCrossRef Konstantareas M. M., Homatidis S., Plowright C. M. S., (1992). Assessing resources and stress in parents of severely dysfunctional children through the Clarke modification of Holroyd’s Questionnaire on Resources and Stress Journal of Autism and Developmental Disorders 22: 217–234PubMedCrossRef
go back to reference Lord C., Rutter M., LeCouteur A., (1994). Autism diagnostic interview – Revised: A revised version of a diagnostic interview for caregivers of individuals with possible pervasive developmental disorders Journal of Autism and Developmental Disorders 24: 659–685PubMedCrossRef Lord C., Rutter M., LeCouteur A., (1994). Autism diagnostic interview – Revised: A revised version of a diagnostic interview for caregivers of individuals with possible pervasive developmental disorders Journal of Autism and Developmental Disorders 24: 659–685PubMedCrossRef
go back to reference McCubbin H. I., Patterson J. M., (1983). The family stress process: The Double ABCX model of adjustment and adaptation In McCubbin H. I., Sussman M. B., Patterson J. M., (Eds.), Social stress and the family: Advances and developments in family stress theory and research Haworth Press New York (pp. 7–37) McCubbin H. I., Patterson J. M., (1983). The family stress process: The Double ABCX model of adjustment and adaptation In McCubbin H. I., Sussman M. B., Patterson J. M., (Eds.), Social stress and the family: Advances and developments in family stress theory and research Haworth Press New York (pp. 7–37)
go back to reference Milgram N. A., Atzil M., (1988). Parenting stress in raising autistic children Journal of Autism and Developmental Disorders 18: 415–424PubMedCrossRef Milgram N. A., Atzil M., (1988). Parenting stress in raising autistic children Journal of Autism and Developmental Disorders 18: 415–424PubMedCrossRef
go back to reference Moes D., Koegel R. L., Schreibman L., Loos L. M., (1992). Stress profiles for mothers and fathers of children with autism Psychological Reports 71: 1272–1274PubMedCrossRef Moes D., Koegel R. L., Schreibman L., Loos L. M., (1992). Stress profiles for mothers and fathers of children with autism Psychological Reports 71: 1272–1274PubMedCrossRef
go back to reference Patterson J. M., (1988). Families experiencing stress. The Family Adjustment and Adaptation Response model Family Systems Medicine 6: 202–237CrossRef Patterson J. M., (1988). Families experiencing stress. The Family Adjustment and Adaptation Response model Family Systems Medicine 6: 202–237CrossRef
go back to reference Roach M. A., Orsmond G. I., Barratt M. S., (1999). Mothers and fathers of children with Down syndrome: Parental stress and involvement in childcare American Journal on Mental Retardation 104: 422–436PubMedCrossRef Roach M. A., Orsmond G. I., Barratt M. S., (1999). Mothers and fathers of children with Down syndrome: Parental stress and involvement in childcare American Journal on Mental Retardation 104: 422–436PubMedCrossRef
go back to reference Rodrigue J. R., Geffken G. R., Morgan S. B., (1993). Perceived competence and behavioral adjustment of siblings of children with autism Journal of Autism and Developmental Disorders 23: 665–674PubMedCrossRef Rodrigue J. R., Geffken G. R., Morgan S. B., (1993). Perceived competence and behavioral adjustment of siblings of children with autism Journal of Autism and Developmental Disorders 23: 665–674PubMedCrossRef
go back to reference Rodrigue J. R., Morgan S. B., Geffken G., (1990). Families of autistic children: Psychological functioning of mothers Journal of Clinical Child Psychology 19: 371–379CrossRef Rodrigue J. R., Morgan S. B., Geffken G., (1990). Families of autistic children: Psychological functioning of mothers Journal of Clinical Child Psychology 19: 371–379CrossRef
go back to reference Rodrigue J. R., Morgan S. B., Geffken G. R., (1992). Psychosocial adaptation of fathers of children with autism, Down syndrome, and normal development Journal of Autism and Developmental Disorders 22: 249–263PubMedCrossRef Rodrigue J. R., Morgan S. B., Geffken G. R., (1992). Psychosocial adaptation of fathers of children with autism, Down syndrome, and normal development Journal of Autism and Developmental Disorders 22: 249–263PubMedCrossRef
go back to reference Roeyers H., Mycke K., (1995). Siblings of children with autism, with mental retardation and with a normal development Child care, health and development 21: 305–319PubMedCrossRef Roeyers H., Mycke K., (1995). Siblings of children with autism, with mental retardation and with a normal development Child care, health and development 21: 305–319PubMedCrossRef
go back to reference Sanders J. L., Morgan S. B., (1997). Family stress and adjustment as perceived by parents of children with autism or Down syndrome: Implications for intervention Child and Family Behavior Therapy 19: 15–32CrossRef Sanders J. L., Morgan S. B., (1997). Family stress and adjustment as perceived by parents of children with autism or Down syndrome: Implications for intervention Child and Family Behavior Therapy 19: 15–32CrossRef
go back to reference Seligman M., Darling R. B., (1997). Ordinary families: Special children Guilford New York Seligman M., Darling R. B., (1997). Ordinary families: Special children Guilford New York
go back to reference Sparrow S. S., Balla D. A., Cicchetti D. V., (1984). The Vineland Adaptive Behavior Scale (Interview edition survey form) American Guidance Service Circle Time, MN Sparrow S. S., Balla D. A., Cicchetti D. V., (1984). The Vineland Adaptive Behavior Scale (Interview edition survey form) American Guidance Service Circle Time, MN
go back to reference Trute B., (1995). Gender differences in the psychological adjustment of parents of young, developmentally disabled children Journal of Child Psychology and Psychiatry, 36: 1225–1242PubMedCrossRef Trute B., (1995). Gender differences in the psychological adjustment of parents of young, developmentally disabled children Journal of Child Psychology and Psychiatry, 36: 1225–1242PubMedCrossRef
go back to reference Trute B., Hauch C., (1988). Building on family strength: A study of families with positive adjustment to the birth of a developmentally disabled child Journal of Marital and Family Therapy 14: 185–193CrossRef Trute B., Hauch C., (1988). Building on family strength: A study of families with positive adjustment to the birth of a developmentally disabled child Journal of Marital and Family Therapy 14: 185–193CrossRef
go back to reference Wolf L. C., Noh S., Fisman S. N., Speechley M., (1989). Psychological effects of parenting stress on parents of autistic children Journal of Autism and Developmental Disorders 19: 157–166PubMedCrossRef Wolf L. C., Noh S., Fisman S. N., Speechley M., (1989). Psychological effects of parenting stress on parents of autistic children Journal of Autism and Developmental Disorders 19: 157–166PubMedCrossRef
go back to reference Zigmond A. S., Snaith R. P., (1983). The Hospital Anxiety and Depression Scale Acta Psychiatrica Scandinavica 67: 361–370PubMedCrossRef Zigmond A. S., Snaith R. P., (1983). The Hospital Anxiety and Depression Scale Acta Psychiatrica Scandinavica 67: 361–370PubMedCrossRef
Metagegevens
Titel
Systems Analysis of Stress and Positive Perceptions in Mothers and Fathers of Pre-School Children with Autism
Auteurs
Richard P. Hastings
Hanna Kovshoff
Nicholas J. Ward
Francesca degli Espinosa
Tony Brown
Bob Remington
Publicatiedatum
01-10-2005
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 5/2005
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-005-0007-8

Andere artikelen Uitgave 5/2005

Journal of Autism and Developmental Disorders 5/2005 Naar de uitgave

OriginalPaper

Ask the Editor