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Journal of Autism and Developmental Disorders

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Gepubliceerd in: Journal of Autism and Developmental Disorders 6/2017

15-03-2017 | Original Paper

Symptom Recognition and Diagnosis of Cerebral Palsy in Nepal

Auteur: Ritesh Thapa

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 6/2017

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Abstract

Cerebral palsy (CP) is the most common movement disorder of childhood. Parents recognized the symptoms of CP at mean age of 13 months. However there was a mean delay of going to a doctor by 23 months and the mean age of diagnosis was 5½ years. Less than half of the CP children were diagnosed by a pediatrician and were receiving treatment methods with weak evidence base of efficacy. Delay in recognition of symptoms and help seeking due to lack of awareness and access to proper medical care and prevalent false beliefs were the leading reason for late diagnosis of CP in Nepal and thus children loose valuable time for intervention in their early developmental stage.
vorige artikel Psychosexual Functioning of Cognitively-able Adolescents with Autism Spectrum Disorder Compared to Typically Developing Peers: The Development and Testing of the Teen Transition Inventory- a Self- and Parent Report Questionnaire on Psychosexual Functioning
volgende artikel Bone Mass in Boys with Autism Spectrum Disorder
Literatuur
Ahlström, G. (2007). Experiences of loss and chronic sorrow in persons with severe chronic illness. Journal of Clinical Nursing, 16(3a), 76–83. CrossRefPubMed
Aran, A., Shalev, R. S., Biran, G., & Gross-Tsur, V. (2007). Parenting style impacts on quality of life in children with cerebral palsy. Journal of Pediatrics, 151, 56–60. CrossRefPubMed
Bell, K. J., Ounpuu, S., DeLuca, P. A., & Romness, M. J. (2002). Natural progression of gait in children with cerebral palsy. Journal of Pediatric Orthopaedics, 22(5), 677–682.
Central Bureau of Statistics (CBS), Nepal. (2012). National population and housing census 2011. National Report, 1, 211–225.
Christensen, D., Van Naarden Braun, K., Doernberg, N. S., Maenner, M. J., Arneson, C. L., Durkin, M. S., et al. (2014). Prevalence of cerebral palsy, co-occurring autism spectrum disorders, and motor functioning—autism and developmental disabilities monitoring network, USA, 2008. Developmental Medicine and Child Neurology, 56(1), 59–65. CrossRefPubMed
Chung, M. C., Vostanis, P., Cumella, S., Doran, J., Winchester, C., & Wun, W. L. (1999). Children with special needs: Use of health services, behavior and ethnicity. Children and Youth Services Review, 21(5), 413–426. CrossRef
Davis, D. (1997). Review of cerebral palsy, Part II: Identification and intervention. Neonatal Network, 16, 19–25. PubMed
Department of Health Services. (2007). Annual report 2063/2064. Kathmandu: Government of Nepal Ministry of Health and Population.
Department of Health Services. (2017). Annual report 2014/2015. Kathmandu: Government of Nepal Ministry of Health and Population.
Ellis, M., Bhattarai, S., & Pandey, J. (2007). Cerebral palsy in Nepal: A descriptive study of 136 disabled children presenting to a cerebral palsy centre in Kathmandu. Journal of Institute of Medicine, 20(1).
Granild-Jensen, J. B., Rackauskaite, G., Flachs, E. M., & Uldall, P. (2015). Predictors for early diagnosis of cerebral palsy from national registry data. Developmental Medicine and Child Neurology, 57(10), 931–935. CrossRefPubMed
Hachette, F. (2009). Free health care services in Nepal rapid assessment of the implementation and per patient expenditure. Kathmandu: GTZ/GFA Consulting Group GmbH. Accessed 01 Dec 2014.
Ho, T., & Chung, S. (1996). Help-seeking behaviours among child psychiatric clinic attenders in Hong Kong. Social Psychiatry and Psychiatric Epidemiology, 31(5), 292–298. PubMed
Howard, M., & Hodes, M. (2000). Psychopathology, adversity, and service utilization of young refugees. Journal of the American Academy of Child and Adolescent Psychiatry, 39(3), 368–377. CrossRefPubMed
Ketelaar, M., Volman, M. J., Gorter, J. W., & Vermeer, A. (2008). Stress in parents of children with cerebral palsy: What sources of stress are we talking about? Child, 34, 825–829.
Khatri, G. K., Onta, S. R., Tiwari, S., & Choulagai, B. P. (2011). Knowledge and management practices of pediatricians about autism spectrum disorder in Kathmandu, Nepal. Journal of Nepal Pediatric Society, 31(2), 98–104. CrossRef
Kleinman, A. (1980). Patients and healers in the context of culture. Berkeley: University of California Press.
Leerkes, E. M., & Burney, R. V. (2007). The development of parenting efficacy among new mothers and fathers. Infancy, 12(1), 45–67. CrossRef
Lindström, K., & Bremberg, S. (1997). The contribution of developmental surveillance to early detection of cerebral palsy. ActaPaediatrica, 86(7), 736–739.
Lock, T. M., Shapiro, B. K., Ross, A., & Capute, A. J. (1986). Age of presentation in developmental disability. Journal of Developmental and Behavioral Pediatrics, 7(6), 340–345. CrossRefPubMed
Maulik, P. K., & Darmstadt, G. L. (2007). Childhood disability in low-and middle-income countries: Overview of screening, prevention, services, legislation, and epidemiology. Pediatrics, 120 (Supplement 1), S1–S55. CrossRefPubMed
McIntyre, S., Morgan, C., Walker, K., & Novak, I. (2011). Cerebral palsy–don’t delay. Developmental Disabilities Research Reviews, 17(2), 114–129. doi: 10.​1002/​ddrr.​1106. PMID 23362031.
McMiller, W. P., & Weisz, J. R. (1996). Help-seeking preceding mental health clinic intake among African–American Latino and Caucasian youth. Journal of the American Academy of Child and Adolescent Psychiatry, 35(8), 1086–1094. CrossRefPubMed
Ministry of Health and Population. (2011). Nepal population report. Kathmandu: Government of Nepal.
New Era. (2001). A situation analysis of disability in Nepal. Kathmamdu: New Era, UNICEF and National Planning Commission.
Oskoui, M., Coutinho, F., Dykeman, J., Jetté, N., & Pringsheim, T. (2013). An update on the prevalence of cerebral palsy: A systematic review and meta-analysis. Developmental Medicine and Child Neurology, 55(6), 509–519. doi: 10.​1111/​dmcn.​12080. PMID 23346889.
Pharoah, P. O. D., Cooke, T., Johnson, M. A., King, R., & Mutch, L. (1998). Epidemiology of cerebral palsy in England and Scotland, 1984–9. Archives of Disease in Childhood-Fetal and Neonatal Edition, 79(1), F21–F25. CrossRefPubMedPubMedCentral
Piggot, J., Hocking, C., & Paterson, J. (2003). Parental adjustment to having a child with cerebral palsy and participation in home therapy programs. Occupational Therapy in Pediatrics, 23, 5–29. CrossRef
Piggot, J., Paterson, J., & Hocking, C. (2002). Participation in home therapy programs for children with cerebral palsy: A compelling challenge. Qualitative Health Research, 12, 1112–1129. CrossRefPubMed
Plant, K. M., & Sanders, M. R. (2007). Reducing problem behavior during care-giving in families of preschool-aged children with developmental disabilities. Research in Developmental Disabilities, 28, 362–385. CrossRefPubMed
Raina, P., O’Donnell, M., Rosenbaum, P., Brehaut, J., Walter, S. D., Russell, D., et al. (2005). The health and well-being of caregivers of children with cerebral palsy. Pediatrics, 115, e626–e636. CrossRefPubMed
Rosenbaum, P., Paneth, N., Leviton, A., Goldstein, M., Bax, M., Damiano, D., & Jacobsson, B. (2007). A report: The definition and classification of cerebral palsy April 2006. Developmental Medicine and Child Neurology Journal, 109(suppl 109), 8–14.
Rosenbaum, P., & Stewart, D. (2004). The world health organization international classification of functioning, disability, and health: A model to guide clinical thinking, practice and research in the field of cerebral palsy. In Seminars in pediatric neurology (Vol. 11, No. 1, pp. 5–10). Philadelphia: WB Saunders.
Rosenbaum, P. L., Walter, S. D., Hanna, S. E., Palisano, R. J., Russell, D. J., Raina, P., & Galuppi, B. E., et al. (2002). Prognosis for gross motor function in cerebral palsy: Creation of motor development curves. Jama, 288(11), 1357–1363. CrossRefPubMed
Rüsch, N., Angermeyer, M. C., & Corrigan, P. W. (2005). Mental illness stigma: concepts, consequences, and initiatives to reduce stigma. European Psychiatry, 20(8), 529–539. CrossRefPubMed
Sanders, M. R. (2008). Triple P-positive parenting program as a public health approach to strengthening parenting. Journal of Family Psychology, 22, 506–517. CrossRefPubMed
Saul, R., & Phillips, D. (1998). Ghosts and germs: Cerebral palsy in Nepal—A cultural exploration of cosmology and disability. Center for Nepal and Asian Studies Journal, 25(2), 215–232.
Sauvey, S., Osrin, D., Manandhar, D. S., Costello, A. M., & Wirz, S. (2005). Prevalence of childhood and adolescent disabilities in rural Nepal. Indian Pediatrics, 42(17), 697–702. PubMed
Thapa, R. (2016). Retrospective descriptive study of cerebral palsy in Nepal. Journal of Autism and Developmental Disorders, 46(7), 2285–2291. CrossRefPubMed
UNICEF. (2005). United Nations Children’s Fund, The state of the world’s children 2006. UNICEF–NY, 10017.
Vermaes, I. P., Janssens, J. M., Mullaart, R. A., Vinck, A., & Gerris, J. R. (2008). Parents personality and parenting stress in families of children with spina bifida. Child, 34, 665–674.
Watson, L., Blair, E., & Stanley, F. (2006). Report of the Western Australian cerebral palsy register to birth year 1999. Perth: Telethon Institute for Child Health Research.
Wiley, M., & Damiano, D. (1998). Lower-extremity strength profiles in spastic cerebral palsy. Developmental Medicine and Child Neurology, 40, 100–107. CrossRefPubMed
Witter, S., Khadka, S., Nath, H., & Tiwari, S. (2011). The national free delivery policy in Nepal: Early evidence of its effects on health facilities. Health Policy and Planning, 26(suppl 2), ii84–ii91. PubMed
World Health Organization. (2001). The World Health Report 2001: Mental health: New understanding, new hope. Geneva: World Health Organization.
World Health Organization. (2007). International Classification of Functioning, Disability, and Health: Children & Youth Version: ICF-CY. Geneva: World Health Organization.
World Health Organization. (2011). World report on disability. Geneva: World Health Organization.
Yarnell, J. (2013). Epidemiology and disease prevention: A global approach (02 ed.). Oxford: Oxford University Press, p. 190. ISBN 9780199660537.
Young, B., Dixon-Woods, M., Findlay, M., & Heney, D. (2002). Parenting in a crisis: Conceptualising mothers of children with cancer. Social science & medicine, 55(10), 1835–1847.
Zarrinkalam, R., Russo, R. N., Gibson, C. S., van Essen, P., Peek, A. K., & Haan, E. (2010). CP or Not CP? A review of diagnoses in a cerebral palsy register. Pediatric Neurology, 42(3), 177–180. CrossRefPubMed
Metagegevens
Titel
Symptom Recognition and Diagnosis of Cerebral Palsy in Nepal
Auteur
Ritesh Thapa
Publicatiedatum
15-03-2017
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 6/2017
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-017-3090-8

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