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Gepubliceerd in: Journal of Autism and Developmental Disorders 12/2018

06-07-2018 | Original Paper

Support Group Value and Design for Parents of Children with Severe or Profound Intellectual and Developmental Disabilities

Auteurs: Jeffrey B. Jackson, Sarah R. Steward, Susanne Olsen Roper, Bertranna A. Muruthi

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 12/2018

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Abstract

The purpose of this study was to interview parents of children with severe or profound intellectual and developmental disabilities to determine the perceived value of support groups and identify recommendations for support group design based on their experiences and feedback. Despite varied experiences with support groups, most parents indicated the value of support groups is in providing a place where parents can feel understood and both share and gather information. Parents recommended support groups be targeted for parents of children with similar disabilities and needs, have flexible structures and qualified leaders, and offer a wide variety of content in various formats. Given parental recommendations for support group design varied, summary recommendations addressing a wide range of preferences are provided.

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Metagegevens
Titel
Support Group Value and Design for Parents of Children with Severe or Profound Intellectual and Developmental Disabilities
Auteurs
Jeffrey B. Jackson
Sarah R. Steward
Susanne Olsen Roper
Bertranna A. Muruthi
Publicatiedatum
06-07-2018
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 12/2018
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-018-3665-z