Swipe om te navigeren naar een ander artikel
The online version of this article (https://doi.org/10.1007/s10803-018-3593-y) contains supplementary material, which is available to authorized users.
This study examined how 34 senior students and first-year college students with autism spectrum disorder, their mothers (n = 34) and fathers (n = 26) navigate the higher education transition, and how this context impacts on dynamics in the parent–child relationships. Semi-structured interviews were analyzed based on grounded theory and dyadic analysis principles. Both parties were confronted with an abundance of challenges and experienced strong feelings of ambivalence, stress and anxiety. Differences in perspectives occurred regarding the construction of adulthood, the acquisition of autonomy, disclosure and subscribing to support services. These differences caused tensions in the parent–child relationship, hindering the transformation of the relationship into an adult-like mutual relationship. Clinical implications are extrapolated on the basis of these findings.
Log in om toegang te krijgen
Met onderstaand(e) abonnement(en) heeft u direct toegang:
Supplementary material 1 (DOCX 53 KB)10803_2018_3593_MOESM1_ESM.docx
Adreon, D., & Durocher, J. S. (2007). Evaluating the college transition needs of individuals with high-functioning autism spectrum disorders. Intervention in School and Clinic, 42(5), 271–279. https://doi.org/10.1177/10534512070420050201. CrossRef
American Psychiatric Assocation. (2013). Diagnostic and statistical manual of mental disorders (5th ed.). Arlington, VA: American Psychiatric Press. CrossRef
American Psychiatric Association. (2000). Diagnostic and statistical manual of mental disorders (4th ed.). Wahington, DC: American Psychiatric Association. ( Text revision)
Aquilino, W. S. (1997). From adolescent to young adult: A prospective study of parent-child relations during the transition to adulthood. Journal of Marriage and the Family, 59, 670–686. CrossRef
Aquilino, W. S. (2006). The noncustodial father–child relationship from adolescence into young adulthood. Journal of Marriage and Family, 68(4), 929–946. CrossRef
Arnett, J. J. (1997). Young people’s conceptions of the transition to adulthood. Youth & Society, 29, 1–23. CrossRef
Baumeister, R. F. (1982). Self-esteem, self-presentation, and future interaction: A dilemma of reputation. Journal of Personality, 50(1), 29–45. https://doi.org/10.1111/j.1467-6494.1982.tb00743.x. CrossRef
Baxter, L. A., & Montgomery, B. M. (1996). Relating: Dialogues & dialectics. New York: Guilford Press.
Beyers, W., & Goossens, L. (2008). Dynamics of perceived parenting and identity formation in late adolescence. Journal of Adolescence, 31, 165–184. CrossRef
Bogdan, R. C., & Biklen, S. K. (1998). Qualitative research in education: An introduction to theory and methods (3rd ed.). Boston: Allyn & Bacon.
Brugha, S., McManus, S., Bankart, J., Scott, F., Purdon, S., Smith, J., et al. (2011). Epidemiology of autism spectrum disorders in adults in the community in England. Archives of General Psychiatry, 68(5), 459–465. https://doi.org/10.1001/archgenpsychiatry.2011.38. CrossRefPubMed
Cadman, T., Eklund, H., Howley, D., Hayward, H., Clarke, H., et al. (2012). Caregiver burden as people with autism spectrum disorder and attention-deficit/hyperactivity disorder transition into adolescence and adulthood in the United Kingdom. Journal of the American Academy of Child & Adolescent Psychiatry, 51(9), 879–888. CrossRef
Caughlin, J. P., & Afifi, W. A. (2004). When is topic avoidance unsatisfying? Examining moderators of the association between avoidance and dissatisfaction. Human Communication Research, 30, 479–513. https://doi.org/10.1111/j.1468-2958.2004.tb00742.x. CrossRef
Centers for Disease Control and Prevention. (2016). Prevalence and characteristics of autism spectrum disorder among children aged 8 years—Autism and Developmental Disabilities Monitoring Network, 11 Sites, United States, 2012. Surveillance Summaries, 65(3), 1–23. CrossRef
Charmaz, K. (2006). Constructing grounded theory. London: Sage.
Cheak-Zamora, N. C., Teti, M., & First, J. (2015). ‘Transitions are scary for our kids, and they’re scary for us’: Family member and youth perspectives on the challenges of transitioning to adulthood with autism. Journal of Applied Research in Intellectual Disabilities, 28(6), 548–560. https://doi.org/10.1111/jar.12150. CrossRefPubMed
Chickering, A. W., & Reisser, L. L. (1993). Education and identity (2nd ed.). San Francisco: Jossey-Bass.
Corbin, J., & Strauss, A. (2008). Basics of qualitative research (3rd ed.). London: Sage.
Cox, B., Thompson, K., Anderson, A., Mintz, A., Locks, T., Morgan, L., Edelstein, J., & Wolz, A. (2017). College experiences for students with autism spectrum disorder (ASD): Personal identity, public disclosure, and institutional support. Journal of College Student Development, 58(1), 71–78. CrossRef
De Mol, J. (2008). Children’ s influence and processes of interpersonal influence in family systems. Doctoral dissertation. Ghent University.
Erikson, E. H. (1974). Dimensions of a new identity. New York: Norton.
Fombonne, E., Quircke, S., & Hagen, A. (2011). Epidemiology of autism spectrum disorders. In D. G. Amaral, G. Dawson & D. H. Geschwind (Eds.), Autism spectrum disorders (pp. 90–111). Oxford: Oxford University Press. CrossRef
Hendricks, D. R., & Wehman, P. (2009). Transition from school to adulthood for youth with autism spectrum disorders: Review and recommendations. Focus on Autism and Other Developmental Disabilities, 24, 77–88. CrossRef
Hendrickson, J. M., Woods-Groves, S., Rodgers, D. B., & Datchuk, S. (2017). Perceptions of students with autism and their parents: The college experience. Education and Treatment of Children, 40(4), 571–596. CrossRef
Hinde, R. A. (1997). Relationships: A dialectical perspective. Hove: Psychology Press.
Howlin, P., & Moss, P. (2012). Adults with autism spectrum disorders. Canadian Journal of Psychiatry, 57(5), 275–283. CrossRef
Huston, T. L. (2002). Power. In H. H. Kelley, E. Berschied, A. Christensen, J. Harvey, T. L. Huston, G. Levinger, E. McClintock, L. A. Peplau & D. R. Peterson (Eds.), Close relationships (pp. 169–219). New York: Freeman.
Kenny, M. E. (1987). The extent and function of parental attachment among first-year college students. Journal of Youth and Adolescence, 16, 17–29. CrossRef
Kenyon, D. B., & Koerner, S. S. (2009). Examining emerging-adults’ and parents’ expectations about autonomy during the transition to college. Journal of Adolescent Research, 24(3), 293–320. CrossRef
Koren, C., Simhi, S., Lipman-Schiby, S., & Fogel, S. (2016). The partner in late-life repartnering: Caregiving expectations from an intergenerational perspective. International Psychogeriatrics, 28(9), 1555–1565. CrossRef
Kuczynski, L., & De Mol, J. (2015). Dialectical models of socialization. In W. F. Overton, P. C. M. Molenaar, & R. M. Lerner (Eds.), Theory and method. Volume 1 of the Handbook of child psychology and developmental science (7th ed.) Hoboken, NJ: Wiley.
Leary, M. R., & Kowalski, R. M. (1990). Impression management: A literature review and two-component model. Psychological Bulletin, 107, 34–47. https://doi.org/10.1037/0033-2909.107.1.34. CrossRef
Lefkowitz, E. S. (2005). Things have gotten better: Developmental changes among emerging adults after the transition to university. Journal of Adolescent Research, 20(1), 40–63. CrossRef
Miles, M. B., & Huberman, A. M. (1994). Qualitative data analysis, an expanded sourcebook (2nd ed.). London: Sage.
Miller, L. C., & Berg, J. (1984). Selectivity and urgency in interpersonal exchange. In V. J. Derlega (Ed.), Communication, intimacy, and close relationships (pp. 161–206). Orlando, FL: Academic Press. CrossRef
Morrison, J. Q., Sansoti, F. J., & Hadley, W. M. (2009). Parent perceptions of the anticipated needs and expectations for support for their college-bound students with asperger’s syndrome. Journal of Postsecondary Education and Disability, 22(2), 78–87.
Petronio, S. (2002). Boundaries of privacy: Dialectics of disclosure. Albany: State University of New York Press.
Pinder-Amaker, S. (2014). Identifying the unmet needs of college students on the autism spectrum. Harvard Review of Psychiatry, 22(2), 125–137. https://doi.org/10.1097/HRP.0000000000000032. CrossRefPubMed
Reczek, C. (2014). Conducting a multi family member interview study. Family Process, 53(2), 318–335. CrossRef
Rice, K. G., & Mulkeen, P. (1995). Relationships with parents and peers: A longitudinal study of adolescent intimacy. Journal of Adolescent Research, 10, 338–357. CrossRef
Rober, P., & Rosenblatt, P. C. (2013). Selective disclosure in a first conversation about a family death in James Agee’s novel a death in the family. Death Studies, 37, 172–194. https://doi.org/10.1080/07481187.2011.628555. CrossRefPubMed
Sanford, C., Newman, L., Wagner, M., Cameto, R., Knokey, A. M., & Shaver, D. (2011). The post-high school outcomes of young adults with disabilities up to 6 years after high school. Menlo Park, CA: SRI International.
Segrin, C., Woszidlo, A., Givertz, M., & Montgomery, N. (2013). Parent and child traits associated with overparenting. Journal of Social and Clinical Psychology, 32(6), 569–595. CrossRef
Thornton, A., Orbuch, T. L., & Axxin, W. G. (1995). Parent-child relationships during the transition to adulthood. Journal of Family Issues, 16, 538–564. CrossRef
Van Hees, V., Moyson, T., & Roeyers, H. (2015). Higher education experiences of students with autism spectrum disorder: Challenges, benefits and support needs. Journal of Autism and Developmental Disorders, 45(6), 1673–1688. CrossRef
Van Parys, H., Provoost, V., Wyverkens, E., De Sutter, P., Pennings, G., & Buysse, A. (2016). Family communication about the donor conception: A multi-perspective qualitative study with lesbian parents and their children. Qualitative Health Research, 26(14), 1998–2008. CrossRef
White, S. W., Elias, R., Salinas, C. E., Capriola, N., Conner, C. M., Asselin, S. B., Miyazaki, Y., et al. (2016). Students with autism spectrum disorder in college: Results from a preliminary mixed method needs analysis. Research in Developmental Disabilities, 56, 29–40 CrossRef
- Students with Autism Spectrum Disorder and Their Parents in the Transition into Higher Education: Impact on Dynamics in the Parent–Child Relationship
Valérie Van Hees
Jan De Mol
- Springer US