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Gepubliceerd in: Journal of Child and Family Studies 2/2020

25-09-2019 | Original Paper

Stress, Coping, and Quality of Life in Families with a Child with ASD Living Regionally

Auteurs: Dave Parsons, Reinie Cordier, Hoe Lee, Torbjorn Falkmer, Sharmila Vaz

Gepubliceerd in: Journal of Child and Family Studies | Uitgave 2/2020

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Abstract

Objectives

The present study aimed to explore whether regionality is associated with differing stress levels, coping, QOL and daily routines for parents and families of a child with ASD (aged 2–18 years) in Western Australia using validated outcome measures and compare the stress levels and QOL of this group to population norms.

Methods

A sample of 278 families living in Western Australia who have a child or adolescent (2–18 years old) with a clinical diagnosis of ASD participated in a cross-sectional survey. Multivariate logistic regression modelling was conducted to determine key factors associated between regionality and demographic variables, quality of life, coping styles, time use, and stress levels.

Results

Parents living in low densely populated areas were more likely to adopt avoidant coping mechanisms, compared to those living in densely populated areas. Fathers with children on the autism spectrum were less likely to be educated above diploma level in regional and remote areas. Stress, QOL or daily routines did not differ by regionality; however, the total sample (i.e., parents from both LDP and DP areas) experienced significantly higher levels of stress and lower QOL when compared to the general population.

Conclusions

The findings suggest that despite having higher levels of stress and lower QOL compared to the general population, residing in a geographically LDP area in Western Australia has a small association on preferred coping style preference and has no association on stress levels, QOL or daily routines for parents who have a child with ASD.
Literatuur
go back to reference American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders: DSM-5. 5th Edn Washington, D.C.: American Psychiatric Association. American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders: DSM-5. 5th Edn Washington, D.C.: American Psychiatric Association.
go back to reference Antezana, L., Scarpa, A., Valdespino, A., Albright, J., & Richey, J. A. (2017). Rural trends in diagnosis and services for autism spectrum disorder. Frontiers in Psychology, 8, 590.PubMedPubMedCentral Antezana, L., Scarpa, A., Valdespino, A., Albright, J., & Richey, J. A. (2017). Rural trends in diagnosis and services for autism spectrum disorder. Frontiers in Psychology, 8, 590.PubMedPubMedCentral
go back to reference Australian Bureau of Statistics. (2003). ASGC remoteness classification: purpose and use. Canberra, Australia: Commonwealth of Australia. Australian Bureau of Statistics. (2003). ASGC remoteness classification: purpose and use. Canberra, Australia: Commonwealth of Australia.
go back to reference Australian Bureau of Statistics. (2008). Australian social trends. (4102). Canberra, Australia: Commonwealth of Australia. Australian Bureau of Statistics. (2008). Australian social trends. (4102). Canberra, Australia: Commonwealth of Australia.
go back to reference Australian Bureau of Statistics. (2011a). Australian Standard Geographical Classification System (ASGC). Canberra: Commonwealth of Australia. Australian Bureau of Statistics. (2011a). Australian Standard Geographical Classification System (ASGC). Canberra: Commonwealth of Australia.
go back to reference Australian Bureau of Statistics. (2011b). Health services: use and patient experience. Canberra, Australia: Australian Bureau of Statistics. Australian Bureau of Statistics. (2011b). Health services: use and patient experience. Canberra, Australia: Australian Bureau of Statistics.
go back to reference Baker-Ericzén, M. J., Brookman-Frazee, L., & Stahmer, A. (2005). Stress levels and adaptability in parents of toddlers with and without autism spectrum disorders. Research and Practice for Persons with Severe Disabilities, 30(4), 194–204. Baker-Ericzén, M. J., Brookman-Frazee, L., & Stahmer, A. (2005). Stress levels and adaptability in parents of toddlers with and without autism spectrum disorders. Research and Practice for Persons with Severe Disabilities, 30(4), 194–204.
go back to reference Benson, P. R. (2010). Coping, distress, and well-being in mothers of children with autism. Research in Autism Spectrum Disorders, 4(2), 217–228. Benson, P. R. (2010). Coping, distress, and well-being in mothers of children with autism. Research in Autism Spectrum Disorders, 4(2), 217–228.
go back to reference Burgess, A. F., & Gutstein, S. E. (2007). Quality of life for people with autism: raising the standard for evaluating successful outcomes. Child and Adolescent Mental Health, 12(2), 80–86.PubMed Burgess, A. F., & Gutstein, S. E. (2007). Quality of life for people with autism: raising the standard for evaluating successful outcomes. Child and Adolescent Mental Health, 12(2), 80–86.PubMed
go back to reference Carver, C. S. (1997). You want to measure coping but your protocol’s too long: consider the brief cope. International Journal of Behavioral Medicine, 4(1), 92–100.PubMed Carver, C. S. (1997). You want to measure coping but your protocol’s too long: consider the brief cope. International Journal of Behavioral Medicine, 4(1), 92–100.PubMed
go back to reference Carver, C. S., Scheier, M. F., & Weintraub, J. K. (1989). Assessing coping strategies: a theoretically based approach. Journal of Personality and Social Psychology, 56(2), 267.PubMed Carver, C. S., Scheier, M. F., & Weintraub, J. K. (1989). Assessing coping strategies: a theoretically based approach. Journal of Personality and Social Psychology, 56(2), 267.PubMed
go back to reference Chen, C., Liu, C., Su, W., Huang, S., & Lin, K. (2008). Urbanicity-related variation in help-seeking and services utilization among preschool-age children with autism in Taiwan. Journal of Autism and Developmental Disorders, 38(3), 489–497.PubMed Chen, C., Liu, C., Su, W., Huang, S., & Lin, K. (2008). Urbanicity-related variation in help-seeking and services utilization among preschool-age children with autism in Taiwan. Journal of Autism and Developmental Disorders, 38(3), 489–497.PubMed
go back to reference Compas, B. E., Connor-Smith, J. K., Saltzman, H., Thomsen, A. H., & Wadsworth, M. E. (2001). Coping with stress during childhood and adolescence: problems, progress, and potential in theory and research. Psychological Bulletin, 127(1), 87–127.PubMed Compas, B. E., Connor-Smith, J. K., Saltzman, H., Thomsen, A. H., & Wadsworth, M. E. (2001). Coping with stress during childhood and adolescence: problems, progress, and potential in theory and research. Psychological Bulletin, 127(1), 87–127.PubMed
go back to reference Dabrowska, A., & Pisula, E. (2010). Parenting stress and coping styles in mothers and fathers of pre‐school children with autism and Down syndrome. Journal of Intellectual Disability Research, 54(3), 266–280.PubMed Dabrowska, A., & Pisula, E. (2010). Parenting stress and coping styles in mothers and fathers of pre‐school children with autism and Down syndrome. Journal of Intellectual Disability Research, 54(3), 266–280.PubMed
go back to reference Dardas, L. A., & Ahmad, M. M. (2015). Coping strategies as mediators and moderators between stress and quality of life among parents of children with autistic disorder. Stress and Health, 31(1), 5–12.PubMed Dardas, L. A., & Ahmad, M. M. (2015). Coping strategies as mediators and moderators between stress and quality of life among parents of children with autistic disorder. Stress and Health, 31(1), 5–12.PubMed
go back to reference Dawson, G., Rogers, S., Munson, J., Smith, M., Winter, J., Greenson, J., & Varley, J. (2010). Randomized, controlled trial of an intervention for toddlers with autism: the Early Start Denver Model. Pediatrics, 125(1), e17–e23.PubMed Dawson, G., Rogers, S., Munson, J., Smith, M., Winter, J., Greenson, J., & Varley, J. (2010). Randomized, controlled trial of an intervention for toddlers with autism: the Early Start Denver Model. Pediatrics, 125(1), e17–e23.PubMed
go back to reference Dew, A., Veitch, C., Lincoln, M., Brentnall, J., Bulkeley, K., Gallego, G., & Griffiths, S. (2012). The need for new models for delivery of therapy intervention to people with a disability in rural and remote areas of Australia. Journal of Intellectual and Developmental Disability, 37(1), 50–53.PubMed Dew, A., Veitch, C., Lincoln, M., Brentnall, J., Bulkeley, K., Gallego, G., & Griffiths, S. (2012). The need for new models for delivery of therapy intervention to people with a disability in rural and remote areas of Australia. Journal of Intellectual and Developmental Disability, 37(1), 50–53.PubMed
go back to reference Duarte, C. S., Bordin, I. A., Yazigi, L., & Mooney, J. (2005). Factors associated with stress in mothers of children with autism. Autism, 9(4), 416–427.PubMed Duarte, C. S., Bordin, I. A., Yazigi, L., & Mooney, J. (2005). Factors associated with stress in mothers of children with autism. Autism, 9(4), 416–427.PubMed
go back to reference Field, A. (2013). Discovering statistics using IBM SPSS statistics. London, UK: Sage. Field, A. (2013). Discovering statistics using IBM SPSS statistics. London, UK: Sage.
go back to reference Gevir, D., Goldstand, S., Weintraub, N., & Parush, S. (2006). A comparison of time use between mothers of children with and without disabilities. OTJR: Occupation, Participation and Health, 26(3), 117–127. Gevir, D., Goldstand, S., Weintraub, N., & Parush, S. (2006). A comparison of time use between mothers of children with and without disabilities. OTJR: Occupation, Participation and Health, 26(3), 117–127.
go back to reference Gray, D. E. (1994). Coping with autism: stresses and strategies. Sociology of Health and Illness, 16(3), 275–300. Gray, D. E. (1994). Coping with autism: stresses and strategies. Sociology of Health and Illness, 16(3), 275–300.
go back to reference Happé, F., & Ronald, A. (2008). The ‘fractionable autism triad’: a review of evidence from behavioural, genetic, cognitive and neural research. Neuropsychology Review, 18(4), 287–304.PubMed Happé, F., & Ronald, A. (2008). The ‘fractionable autism triad’: a review of evidence from behavioural, genetic, cognitive and neural research. Neuropsychology Review, 18(4), 287–304.PubMed
go back to reference Hastings, R. P., Kovshoff, H., Brown, T., Ward, N. J., Espinosa, F. D., & Remington, B. (2005). Coping strategies in mothers and fathers of preschool and school-age children with autism. Autism, 9(4), 377–391.PubMed Hastings, R. P., Kovshoff, H., Brown, T., Ward, N. J., Espinosa, F. D., & Remington, B. (2005). Coping strategies in mothers and fathers of preschool and school-age children with autism. Autism, 9(4), 377–391.PubMed
go back to reference Hawthorne, G., Herrman, H., & Murphy, B. (2006). Interpreting the WHOQOL-BREF: preliminary population norms and effect sizes. Social Indicators Research, 77(1), 37–59. Hawthorne, G., Herrman, H., & Murphy, B. (2006). Interpreting the WHOQOL-BREF: preliminary population norms and effect sizes. Social Indicators Research, 77(1), 37–59.
go back to reference Hayes, S. A., & Watson, S. L. (2013). The impact of parenting stress: a meta-analysis of studies comparing the experience of parenting stress in parents of children with and without autism spectrum disorder. Journal of Autism and Developmental Disorders, 43(3), 629–642.PubMed Hayes, S. A., & Watson, S. L. (2013). The impact of parenting stress: a meta-analysis of studies comparing the experience of parenting stress in parents of children with and without autism spectrum disorder. Journal of Autism and Developmental Disorders, 43(3), 629–642.PubMed
go back to reference Higgins, D. J., Bailey, S. R., & Pearce, J. C. (2005). Factors associated with functioning style and coping strategies of families with a child with an autism spectrum disorder. Autism, 9(2), 125–137.PubMed Higgins, D. J., Bailey, S. R., & Pearce, J. C. (2005). Factors associated with functioning style and coping strategies of families with a child with an autism spectrum disorder. Autism, 9(2), 125–137.PubMed
go back to reference Hoogsteen, L., & Woodgate, R. L. (2013a). Embracing autism in Canadian rural communities. Australian Journal of Rural Health, 21(3), 178–182.PubMed Hoogsteen, L., & Woodgate, R. L. (2013a). Embracing autism in Canadian rural communities. Australian Journal of Rural Health, 21(3), 178–182.PubMed
go back to reference Hoogsteen, L., & Woodgate, R. L. (2013b). The lived experience of parenting a child with autism in a rural area: making the invisible, visible. Pediatric Nursing, 39(5), 233–237.PubMed Hoogsteen, L., & Woodgate, R. L. (2013b). The lived experience of parenting a child with autism in a rural area: making the invisible, visible. Pediatric Nursing, 39(5), 233–237.PubMed
go back to reference Horlin, C., Falkmer, M., Parsons, R., Albrecht, M. A., & Falkmer, T. (2014). The cost of autism spectrum disorders. PLoS ONE, 9(9), e106552.PubMedPubMedCentral Horlin, C., Falkmer, M., Parsons, R., Albrecht, M. A., & Falkmer, T. (2014). The cost of autism spectrum disorders. PLoS ONE, 9(9), e106552.PubMedPubMedCentral
go back to reference Hutton, A. M., & Caron, S. L. (2005). Experiences of families with children with autism in rural New England. Focus on Autism and Other Developmental Disabilities, 20(3), 180–189. Hutton, A. M., & Caron, S. L. (2005). Experiences of families with children with autism in rural New England. Focus on Autism and Other Developmental Disabilities, 20(3), 180–189.
go back to reference Iacono, T., Humphreys, J., Davis, R., & Chandler, N. (2004). Health care service provision for country people with developmental disability: an Australian perspective. Research in Developmental Disabilities, 25(3), 265–284.PubMed Iacono, T., Humphreys, J., Davis, R., & Chandler, N. (2004). Health care service provision for country people with developmental disability: an Australian perspective. Research in Developmental Disabilities, 25(3), 265–284.PubMed
go back to reference IBM Corp. (2016). SPSS statistics, version 24. Armonk, NY: IBM Corp. IBM Corp. (2016). SPSS statistics, version 24. Armonk, NY: IBM Corp.
go back to reference Johnson, N., Frenn, M., Feetham, S., & Simpson, P. (2011). Autism spectrum disorder: parenting stress, family functioning and health-related quality of life. Families, Systems, and Health, 29(3), 232.PubMed Johnson, N., Frenn, M., Feetham, S., & Simpson, P. (2011). Autism spectrum disorder: parenting stress, family functioning and health-related quality of life. Families, Systems, and Health, 29(3), 232.PubMed
go back to reference Khanna, R., Madhavan, S. S., Smith, M. J., Patrick, J. H., Tworek, C., & Becker-Cottrill, B. (2011). Assessment of health-related quality of life among primary caregivers of children with autism spectrum disorders. Journal of Autism and Developmental Disorders, 41(9), 1214–1227.PubMed Khanna, R., Madhavan, S. S., Smith, M. J., Patrick, J. H., Tworek, C., & Becker-Cottrill, B. (2011). Assessment of health-related quality of life among primary caregivers of children with autism spectrum disorders. Journal of Autism and Developmental Disorders, 41(9), 1214–1227.PubMed
go back to reference Lai, W. W., Goh, T. J., Oei, T. P., & Sung, M. (2015). Coping and well-being in parents of children with autism spectrum disorders (ASD). Journal of Autism and Developmental Disorders, 45(8), 2582–2593.PubMed Lai, W. W., Goh, T. J., Oei, T. P., & Sung, M. (2015). Coping and well-being in parents of children with autism spectrum disorders (ASD). Journal of Autism and Developmental Disorders, 45(8), 2582–2593.PubMed
go back to reference Lai, W. W., & Oei, T. P. S. (2014). Coping in parents and caregivers of children with autism spectrum disorders (ASD): a review. Review Journal of Autism and Developmental Disorders, 1(3), 207–224. Lai, W. W., & Oei, T. P. S. (2014). Coping in parents and caregivers of children with autism spectrum disorders (ASD): a review. Review Journal of Autism and Developmental Disorders, 1(3), 207–224.
go back to reference Lazarus, R., & Folkman, S. (1984). Stress, appraisal and coping. New York, NY: Springer Publishing Company. Lazarus, R., & Folkman, S. (1984). Stress, appraisal and coping. New York, NY: Springer Publishing Company.
go back to reference Lecavalier, L., Leone, S., & Wiltz, J. (2006). The impact of behaviour problems on caregiver stress in young people with autism spectrum disorders. Journal of Intellectual Disability Research, 50(3), 172–183.PubMed Lecavalier, L., Leone, S., & Wiltz, J. (2006). The impact of behaviour problems on caregiver stress in young people with autism spectrum disorders. Journal of Intellectual Disability Research, 50(3), 172–183.PubMed
go back to reference Lee, G. K., Lopata, C., Volker, M. A., Thomeer, M. L., Nida, R. E., Toomey, J. A., & Smerbeck, A. M. (2009). Health-related quality of life of parents of children with high-functioning autism spectrum disorders. Focus on Autism and Other Developmental Disabilities, 24(4), 227–239. Lee, G. K., Lopata, C., Volker, M. A., Thomeer, M. L., Nida, R. E., Toomey, J. A., & Smerbeck, A. M. (2009). Health-related quality of life of parents of children with high-functioning autism spectrum disorders. Focus on Autism and Other Developmental Disabilities, 24(4), 227–239.
go back to reference McAuliffe, T., Cordier, R., Vaz, S., Thomas, Y., & Falkmer, T. (2017). Quality of life, coping atyles, stress levels, and time use in mothers of children with autism spectrum disorders: comparing single versus coupled households. Journal of Autism and Developmental Disorders, 47(10), 3189–3203.PubMed McAuliffe, T., Cordier, R., Vaz, S., Thomas, Y., & Falkmer, T. (2017). Quality of life, coping atyles, stress levels, and time use in mothers of children with autism spectrum disorders: comparing single versus coupled households. Journal of Autism and Developmental Disorders, 47(10), 3189–3203.PubMed
go back to reference McAuliffe, T., Vaz, S., Falkmer, T., & Cordier, R. (2016). A comparison of families of children with autism spectrum disorders in family daily routines, service usage, and stress levels by regionality. Developmental Neurorehabilitation, 20(8), 483–490.PubMed McAuliffe, T., Vaz, S., Falkmer, T., & Cordier, R. (2016). A comparison of families of children with autism spectrum disorders in family daily routines, service usage, and stress levels by regionality. Developmental Neurorehabilitation, 20(8), 483–490.PubMed
go back to reference McCann, D., Bull, R., & Winzenberg, T. (2012). The daily patterns of time use for parents of children with complex needs: a systematic review. Journal of Child Health Care, 16(1), 26–52.PubMed McCann, D., Bull, R., & Winzenberg, T. (2012). The daily patterns of time use for parents of children with complex needs: a systematic review. Journal of Child Health Care, 16(1), 26–52.PubMed
go back to reference Montes, G., & Halterman, J. S. (2007). Psychological functioning and coping among mothers of children with autism: a population-based study. Pediatrics, 119(5), e1040–e1046.PubMed Montes, G., & Halterman, J. S. (2007). Psychological functioning and coping among mothers of children with autism: a population-based study. Pediatrics, 119(5), e1040–e1046.PubMed
go back to reference Murphy, M. A., & Ruble, L. A. (2012). A comparative study of rurality and urbanicity on access to and satisfaction with services for children with autism spectrum disorders. Rural Special Education Quarterly, 31(3), 3–11. Murphy, M. A., & Ruble, L. A. (2012). A comparative study of rurality and urbanicity on access to and satisfaction with services for children with autism spectrum disorders. Rural Special Education Quarterly, 31(3), 3–11.
go back to reference Osborne, J. W., & Costello, A. B. (2009). Best practises in exploratory factor analysis: four recommendations for getting the most from your anlaysis. Pan-Pacific Management Review, 12(2), 131–146. Osborne, J. W., & Costello, A. B. (2009). Best practises in exploratory factor analysis: four recommendations for getting the most from your anlaysis. Pan-Pacific Management Review, 12(2), 131–146.
go back to reference Parsons, D., Cordier, R., Lee, H., Falkmer, T., & Vaz, S. (2019). A randomised controlled trial of an information communication technology delivered intervention for children with autism spectrum disorder living in regional Australia. Journal of Autism and Developmental Disorders, 49(2), 569–581.PubMed Parsons, D., Cordier, R., Lee, H., Falkmer, T., & Vaz, S. (2019). A randomised controlled trial of an information communication technology delivered intervention for children with autism spectrum disorder living in regional Australia. Journal of Autism and Developmental Disorders, 49(2), 569–581.PubMed
go back to reference Parsons, D., Cordier, R., Vaz, S., & Lee, H. C. (2017). Parent-mediated intervention training delivered remotely for children with autism spectrum disorder living outside of urban areas: systematic review. Journal of Medical Internet Research, 19(8), e198.PubMedPubMedCentral Parsons, D., Cordier, R., Vaz, S., & Lee, H. C. (2017). Parent-mediated intervention training delivered remotely for children with autism spectrum disorder living outside of urban areas: systematic review. Journal of Medical Internet Research, 19(8), e198.PubMedPubMedCentral
go back to reference Pisula, E., & Kossakowska, Z. (2010). Sense of coherence and coping with stress among mothers and fathers of children with autism. Journal of Autism and Developmental Disorders, 40(12), 1485–1494.PubMed Pisula, E., & Kossakowska, Z. (2010). Sense of coherence and coping with stress among mothers and fathers of children with autism. Journal of Autism and Developmental Disorders, 40(12), 1485–1494.PubMed
go back to reference Rao, P. A., & Beidel, D. C. (2009). The impact of children with high-functioning autism on parental stress, sibling adjustment, and family functioning. Behavior Modification, 33(4), 437–451.PubMed Rao, P. A., & Beidel, D. C. (2009). The impact of children with high-functioning autism on parental stress, sibling adjustment, and family functioning. Behavior Modification, 33(4), 437–451.PubMed
go back to reference Schieve, L. A., Blumberg, S. J., Rice, C., Visser, S. N., & Boyle, C. (2007). The relationship between autism and parenting stress. Pediatrics, 119(Supplement 1), S114–S121.PubMed Schieve, L. A., Blumberg, S. J., Rice, C., Visser, S. N., & Boyle, C. (2007). The relationship between autism and parenting stress. Pediatrics, 119(Supplement 1), S114–S121.PubMed
go back to reference Silva, L. M., & Schalock, M. (2012a). Autism parenting stress index: initial psychometric evidence. Journal of Autism and Developmental Disorders, 42(4), 566–574.PubMed Silva, L. M., & Schalock, M. (2012a). Autism parenting stress index: initial psychometric evidence. Journal of Autism and Developmental Disorders, 42(4), 566–574.PubMed
go back to reference Silva, L. M., Schalock, M., & Gabrielsen, K. (2011). Early intervention for autism with a parent-delivered qigong massage program: a randomized controlled trial. American Journal of Occupational Therapy, 65(5), 550–559. Silva, L. M., Schalock, M., & Gabrielsen, K. (2011). Early intervention for autism with a parent-delivered qigong massage program: a randomized controlled trial. American Journal of Occupational Therapy, 65(5), 550–559.
go back to reference Silva, L. M., Schalock, M., Gabrielsen, K. R., Budden, S. S., Buenrostro, M., & Horton, G. (2015). Early intervention with a parent-delivered massage protocol directed at tactile abnormalities decreases severity of autism and improves child-to-parent interactions: a replication study. Autism Research and Treatment, 2015, 1–16. https://doi.org/10.1155/2015/904585. Silva, L. M., Schalock, M., Gabrielsen, K. R., Budden, S. S., Buenrostro, M., & Horton, G. (2015). Early intervention with a parent-delivered massage protocol directed at tactile abnormalities decreases severity of autism and improves child-to-parent interactions: a replication study. Autism Research and Treatment, 2015, 1–16. https://​doi.​org/​10.​1155/​2015/​904585.
go back to reference Silva, L. M., & Schalock, M. (2012b). Austism Parenting Stress Index (APSI). Measurement instrument for the social science. Retrieved from www.midss.ie. Silva, L. M., & Schalock, M. (2012b). Austism Parenting Stress Index (APSI). Measurement instrument for the social science. Retrieved from www.​midss.​ie.
go back to reference Sim, A., Vaz, S., Cordier, R., Joosten, A., Parsons, D., Smith, C., & Falkmer, T. (2018). Factors associated with stress in families of children with autism spectrum disorder. Developmental Neurorehabilitation, 21(3), 155–165.PubMed Sim, A., Vaz, S., Cordier, R., Joosten, A., Parsons, D., Smith, C., & Falkmer, T. (2018). Factors associated with stress in families of children with autism spectrum disorder. Developmental Neurorehabilitation, 21(3), 155–165.PubMed
go back to reference Skevington, S. M., Lotfy, M., & O’Connell, K. A. (2004). The World Health Organization’s WHOQOL-BREF quality of life assessment: psychometric properties and results of the international field trial. A report from the WHOQOL group. Quality of Life Research, 13(2), 299–310.PubMed Skevington, S. M., Lotfy, M., & O’Connell, K. A. (2004). The World Health Organization’s WHOQOL-BREF quality of life assessment: psychometric properties and results of the international field trial. A report from the WHOQOL group. Quality of Life Research, 13(2), 299–310.PubMed
go back to reference Smith, K. B., Humphreys, J. S., & Wilson, M. G. (2008). Addressing the health disadvantage of rural populations: how does epidemiological evidence inform rural health policies and research? Australian Journal of Rural Health, 16(2), 56–66.PubMed Smith, K. B., Humphreys, J. S., & Wilson, M. G. (2008). Addressing the health disadvantage of rural populations: how does epidemiological evidence inform rural health policies and research? Australian Journal of Rural Health, 16(2), 56–66.PubMed
go back to reference Struber, J. (2004). Recruiting and retaining allied health professionals in rural Australia: why is it so difficult? The Internet Journal of Allied Health Sciences and Practice, 2(2), 1–8. Struber, J. (2004). Recruiting and retaining allied health professionals in rural Australia: why is it so difficult? The Internet Journal of Allied Health Sciences and Practice, 2(2), 1–8.
go back to reference Vasilopoulou, E., & Nisbet, J. (2016). The quality of life of parents of children with autism spectrum disorder: a systematic review. Research in Autism Spectrum Disorders, 23, 36–49. Vasilopoulou, E., & Nisbet, J. (2016). The quality of life of parents of children with autism spectrum disorder: a systematic review. Research in Autism Spectrum Disorders, 23, 36–49.
go back to reference Whalen, C., Liden, L., Ingersoll, B., Dallaire, E., & Liden, S. (2006). Behavioral improvements associated with computer-assisted instruction for children with developmental disabilities. The Journal of Speech and Language Pathology-Applied Behavior Analysis, 1(1), 11–26. Whalen, C., Liden, L., Ingersoll, B., Dallaire, E., & Liden, S. (2006). Behavioral improvements associated with computer-assisted instruction for children with developmental disabilities. The Journal of Speech and Language Pathology-Applied Behavior Analysis, 1(1), 11–26.
go back to reference WHOQOL Group. (1998). Development of the World Health Organization WHOQOL-BREF quality of life assessment. Psychological Medicine, 28(3), 551–558. WHOQOL Group. (1998). Development of the World Health Organization WHOQOL-BREF quality of life assessment. Psychological Medicine, 28(3), 551–558.
Metagegevens
Titel
Stress, Coping, and Quality of Life in Families with a Child with ASD Living Regionally
Auteurs
Dave Parsons
Reinie Cordier
Hoe Lee
Torbjorn Falkmer
Sharmila Vaz
Publicatiedatum
25-09-2019
Uitgeverij
Springer US
Gepubliceerd in
Journal of Child and Family Studies / Uitgave 2/2020
Print ISSN: 1062-1024
Elektronisch ISSN: 1573-2843
DOI
https://doi.org/10.1007/s10826-019-01585-4

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