Skip to main content
main-content
Top

Tip

Swipe om te navigeren naar een ander artikel

Gepubliceerd in: Journal of Autism and Developmental Disorders 12/2014

01-12-2014 | Original Paper

Stress and Family Quality of Life in Parents of Children with Autism Spectrum Disorder: Parent Gender and the Double ABCX Model

Auteurs: Rebecca L. McStay, David Trembath, Cheryl Dissanayake

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 12/2014

Log in om toegang te krijgen
share
DELEN

Deel dit onderdeel of sectie (kopieer de link)

  • Optie A:
    Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
  • Optie B:
    Deel de link per e-mail

Abstract

Past research has supported the utility of the Double ABCX model of family adaptation for parents raising a child with autism spectrum disorder (ASD). What remains unclear is the impact of family-related variables on outcomes in both mothers and fathers within the same family. We explored the potential predictors of maternal and paternal stress and family quality of life in an Australian sample of 196 parents of children with ASD aged 3–16 years. Using a cross-sectional design, parents completed questionnaires assessing factors within the Double ABCX model attributed to family adaptation. Findings provide further evidence of the negative impact of child externalising behaviours and highlight the importance of family sense of coherence on positive parental outcomes.
Bijlagen
Alleen toegankelijk voor geautoriseerde gebruikers
Literatuur
go back to reference Abidin, R. R. (1995). Manual for the parenting stress index (3rd ed.). Charlottesville, VA: Pediatric Psychology Press. Abidin, R. R. (1995). Manual for the parenting stress index (3rd ed.). Charlottesville, VA: Pediatric Psychology Press.
go back to reference Allen, K. A., Bowles, T. V., & Weber, L. L. (2013). Mothers’ and fathers’ stress associated with parenting a child with autism spectrum disorder. Autism Insights, 5, 1–11. doi: 10.​4137/​AUI.​S11094. CrossRef Allen, K. A., Bowles, T. V., & Weber, L. L. (2013). Mothers’ and fathers’ stress associated with parenting a child with autism spectrum disorder. Autism Insights, 5, 1–11. doi: 10.​4137/​AUI.​S11094. CrossRef
go back to reference American Psychiatric Association (2000). Diagnostic and statistical manual of mental disorders (4th ed.; text rev). Washington, DC: Author. American Psychiatric Association (2000). Diagnostic and statistical manual of mental disorders (4th ed.; text rev). Washington, DC: Author.
go back to reference Anderson, K. H. (1998). The relationship between family sense of coherence and family quality of life after illness diagnosis. Collective and consensus views. In H. I. McCubbin, E. A. Thompson, A. I. Thompson, & J. E. Fromer (Eds.), Stress, coping, and health in families. Sense of coherence and resiliency. Thousand Oaks: SAGE Publications. Anderson, K. H. (1998). The relationship between family sense of coherence and family quality of life after illness diagnosis. Collective and consensus views. In H. I. McCubbin, E. A. Thompson, A. I. Thompson, & J. E. Fromer (Eds.), Stress, coping, and health in families. Sense of coherence and resiliency. Thousand Oaks: SAGE Publications.
go back to reference Antonovsky, A., & Sourani, T. (1988). Family sense of coherence and family adaptation. Journal of Marriage and the Family, 50, 79–92. CrossRef Antonovsky, A., & Sourani, T. (1988). Family sense of coherence and family adaptation. Journal of Marriage and the Family, 50, 79–92. CrossRef
go back to reference Baker-Ericzen, M. J., Brookman-Frazee, L., & Stahmer, A. (2005). Stress levels and adaptability in parents of toddlers with and without autism spectrum disorders. Research and Practice for Persons with Severe Disabilities, 30, 194–204. CrossRef Baker-Ericzen, M. J., Brookman-Frazee, L., & Stahmer, A. (2005). Stress levels and adaptability in parents of toddlers with and without autism spectrum disorders. Research and Practice for Persons with Severe Disabilities, 30, 194–204. CrossRef
go back to reference Bristol, M. M. (1984). Family resources and successful adaptation to autistic children. In E. S. & G. B. Meisbov (Eds.), The effects of autism on the family. New York: Plenum Press. Bristol, M. M. (1984). Family resources and successful adaptation to autistic children. In E. S. & G. B. Meisbov (Eds.), The effects of autism on the family. New York: Plenum Press.
go back to reference Bristol, M. M. (1987). Mothers of children with autism or communication disorders: Successful adaptation and the double ABCX model. Journal of Autism and Developmental Disorders, 14, 469–486. doi: 10.​1007/​BF01486964. CrossRef Bristol, M. M. (1987). Mothers of children with autism or communication disorders: Successful adaptation and the double ABCX model. Journal of Autism and Developmental Disorders, 14, 469–486. doi: 10.​1007/​BF01486964. CrossRef
go back to reference Brobst, J. B., Clopton, J. R., & Hendrick, S. S. (2009). Parenting children with autism spectrum disorders: The couple’s relationship. Focus on Autism and Other Developmental Disabilities, 24, 38–49. doi: 10.​1177/​1088357608323699​. CrossRef Brobst, J. B., Clopton, J. R., & Hendrick, S. S. (2009). Parenting children with autism spectrum disorders: The couple’s relationship. Focus on Autism and Other Developmental Disabilities, 24, 38–49. doi: 10.​1177/​1088357608323699​. CrossRef
go back to reference Davis, N. O., & Carter, A. S. (2008). Parenting stress in mothers and fathers of toddlers with autism spectrum disorders: Associations with child characteristics. Journal of Autism and Developmental Disorders, 38, 1278–1291. doi: 10.​1007/​s10803-007-0512-z. PubMedCrossRef Davis, N. O., & Carter, A. S. (2008). Parenting stress in mothers and fathers of toddlers with autism spectrum disorders: Associations with child characteristics. Journal of Autism and Developmental Disorders, 38, 1278–1291. doi: 10.​1007/​s10803-007-0512-z. PubMedCrossRef
go back to reference Dunst, C. J., Trivette, C. M., & Jenkins, V. (2007). Family support scale: Reliability and validity. Asheville, NC: Winterbury Press. Dunst, C. J., Trivette, C. M., & Jenkins, V. (2007). Family support scale: Reliability and validity. Asheville, NC: Winterbury Press.
go back to reference Estes, A., Munson, J., Dawson, G., Koehler, E., Xiao-Hua, Z., & Abbott, R. (2009). Parenting stress and psychological functioning among mothers of preschool children with autism and developmental delay. Autism, 13, 375–387. doi: 10.​1177/​1362361309105658​. PubMedCrossRef Estes, A., Munson, J., Dawson, G., Koehler, E., Xiao-Hua, Z., & Abbott, R. (2009). Parenting stress and psychological functioning among mothers of preschool children with autism and developmental delay. Autism, 13, 375–387. doi: 10.​1177/​1362361309105658​. PubMedCrossRef
go back to reference Gray, D. E. (2003). Gender and coping: The parents of children with high functioning autism. Social Science and Medicine, 56, 631–642. PubMedCrossRef Gray, D. E. (2003). Gender and coping: The parents of children with high functioning autism. Social Science and Medicine, 56, 631–642. PubMedCrossRef
go back to reference Greeff, A. P., & van der Walt, K. (2010). Resilience in families with an autistic child. Education and Training in Autism and Developmental Disabilities, 45, 347–355. Greeff, A. P., & van der Walt, K. (2010). Resilience in families with an autistic child. Education and Training in Autism and Developmental Disabilities, 45, 347–355.
go back to reference Hall, H. R., & Graff, J. C. (2011). The relationships among adaptive behaviours of children with autism, family support, parenting stress, and coping. Issues in Comprehensive Pediatric Nursing, 34(4–25), 2011. doi: 10.​3109/​01460862.​555270. Hall, H. R., & Graff, J. C. (2011). The relationships among adaptive behaviours of children with autism, family support, parenting stress, and coping. Issues in Comprehensive Pediatric Nursing, 34(4–25), 2011. doi: 10.​3109/​01460862.​555270.
go back to reference Hall, H. R., & Graff, J. C. (2012). Maladaptive behaviours of children with autism: Parent support, stress and coping. Issues in Comprehensive Pediatric Nursing, 35(194–214), 2012. doi: 10.​3109/​01460862.​734210. Hall, H. R., & Graff, J. C. (2012). Maladaptive behaviours of children with autism: Parent support, stress and coping. Issues in Comprehensive Pediatric Nursing, 35(194–214), 2012. doi: 10.​3109/​01460862.​734210.
go back to reference Hastings, R. P., Kovshoff, H., Ward, N. J., Espinosa, F. D., Brown, T., & Remington, B. (2005). Systems analysis of stress and positive perceptions in mothers and fathers of pre-school children with autism. Journal of Autism and Developmental Disorders, 35, 635–644. doi: 10.​1007/​s10803-005-0007-8. PubMedCrossRef Hastings, R. P., Kovshoff, H., Ward, N. J., Espinosa, F. D., Brown, T., & Remington, B. (2005). Systems analysis of stress and positive perceptions in mothers and fathers of pre-school children with autism. Journal of Autism and Developmental Disorders, 35, 635–644. doi: 10.​1007/​s10803-005-0007-8. PubMedCrossRef
go back to reference Hayes, S. A., & Watson, S. L. (2013). The impact of parenting stress: A meta-analysis of studies comparing the experience of parenting stress in parents of children with and without autism spectrum disorder. Journal of Autism and Developmental Disorders, 43, 629–642. doi: 10.​1007/​s10803-012-1604-y. PubMedCrossRef Hayes, S. A., & Watson, S. L. (2013). The impact of parenting stress: A meta-analysis of studies comparing the experience of parenting stress in parents of children with and without autism spectrum disorder. Journal of Autism and Developmental Disorders, 43, 629–642. doi: 10.​1007/​s10803-012-1604-y. PubMedCrossRef
go back to reference Herring, S., Gray, K., Taffe, J., Tonge, B., Sweeney, D., & Einfeld, S. (2006). Behaviour and emotional problems in toddlers with pervasive developmental disorders and developmental delay: Associations with parental mental health and family functioning. Journal of Intellectual Disability Research, 50, 874–882. doi: 10.​1111/​j.​1365-2788.​2006.​00904.​x. PubMedCrossRef Herring, S., Gray, K., Taffe, J., Tonge, B., Sweeney, D., & Einfeld, S. (2006). Behaviour and emotional problems in toddlers with pervasive developmental disorders and developmental delay: Associations with parental mental health and family functioning. Journal of Intellectual Disability Research, 50, 874–882. doi: 10.​1111/​j.​1365-2788.​2006.​00904.​x. PubMedCrossRef
go back to reference Jones, L., Totsika, V., Hastings, R. P., & Petalas, M. A. (2013). Gender differences when parenting children with autism spectrum disorders: A multilevel modelling approach. Journal of Autism and Developmental Disorders, 43, 2090–2098. doi: 10.​1007/​s10803-012-1756-9. PubMedCrossRef Jones, L., Totsika, V., Hastings, R. P., & Petalas, M. A. (2013). Gender differences when parenting children with autism spectrum disorders: A multilevel modelling approach. Journal of Autism and Developmental Disorders, 43, 2090–2098. doi: 10.​1007/​s10803-012-1756-9. PubMedCrossRef
go back to reference Little, L. (2002). Differences in stress and coping for mothers and fathers of children with asperger’s syndrome and nonverbal learning disorders. Pediatric Nursing, 28, 565–570. PubMed Little, L. (2002). Differences in stress and coping for mothers and fathers of children with asperger’s syndrome and nonverbal learning disorders. Pediatric Nursing, 28, 565–570. PubMed
go back to reference Lustig, D. C. (1999). Families with an adult with mental retardation: Predictors of family adjustment. Journal of Applied Rehabilitation Counseling, 30, 11–18. Lustig, D. C. (1999). Families with an adult with mental retardation: Predictors of family adjustment. Journal of Applied Rehabilitation Counseling, 30, 11–18.
go back to reference Manning, M. M., Wainwright, L., & Bennett, J. (2011). The double ABCX model of adaptation in racially diverse families with a school-age child with autism. Journal of Autism and Developmental Disorders, 41, 320–331. doi: 10.​1007/​s10803-010-1056-1. PubMedCrossRef Manning, M. M., Wainwright, L., & Bennett, J. (2011). The double ABCX model of adaptation in racially diverse families with a school-age child with autism. Journal of Autism and Developmental Disorders, 41, 320–331. doi: 10.​1007/​s10803-010-1056-1. PubMedCrossRef
go back to reference McCubbin, H. I., McCubbin, M. A., & Thompson, A. I. (1996). Family assessment: Resiliency, coping and adaptation–Inventories for research and practice. Madison, WI: University of Wisconsin System. McCubbin, H. I., McCubbin, M. A., & Thompson, A. I. (1996). Family assessment: Resiliency, coping and adaptation–Inventories for research and practice. Madison, WI: University of Wisconsin System.
go back to reference McCubbin, H., Olson, D., & Larsen, A. (1981). Family crisis oriented personal evaluation scales (F-COPES). In H. I. McCubbin, A. I. Thompson, & M. A. McCubbin (Eds.), Family assessment: Resiliency, coping and adaptation inventories for research and practice (pp. 455–507). Madison: University of Wisconsin. McCubbin, H., Olson, D., & Larsen, A. (1981). Family crisis oriented personal evaluation scales (F-COPES). In H. I. McCubbin, A. I. Thompson, & M. A. McCubbin (Eds.), Family assessment: Resiliency, coping and adaptation inventories for research and practice (pp. 455–507). Madison: University of Wisconsin.
go back to reference McCubbin, H. I., & Patterson, J. M. (1983). The family stress process. Marriage and Family Review, 6, 7–37. CrossRef McCubbin, H. I., & Patterson, J. M. (1983). The family stress process. Marriage and Family Review, 6, 7–37. CrossRef
go back to reference McStay, R. L., Dissanayake, C., Scheeren, A., Koot, H. M., & Begeer, S. (2013). Parenting stress and autism: The role of age, autism severity, quality of life and problem behaviour of children and adolescents with autism. Autism, 8, 1–9. doi: 10.​1177/​1362361313485163​. McStay, R. L., Dissanayake, C., Scheeren, A., Koot, H. M., & Begeer, S. (2013). Parenting stress and autism: The role of age, autism severity, quality of life and problem behaviour of children and adolescents with autism. Autism, 8, 1–9. doi: 10.​1177/​1362361313485163​.
go back to reference McStay, R. L., Trembath, D., & Dissanayake, C. (2014). Maternal stress and family quality of life in response to raising a child with autism: A developmental perspective. Manuscript submitted for publication. McStay, R. L., Trembath, D., & Dissanayake, C. (2014). Maternal stress and family quality of life in response to raising a child with autism: A developmental perspective. Manuscript submitted for publication.
go back to reference Moos, R. H., & Moos, B. S. (1986). Family environment scale manual (2nd ed.). Palo Alto, CA: Consulting Psychologists Press. Moos, R. H., & Moos, B. S. (1986). Family environment scale manual (2nd ed.). Palo Alto, CA: Consulting Psychologists Press.
go back to reference Paynter, J., Riley, E., Beamish, W., Davies, M., & Milford, T. (2013). The double ABCX model of family adaptation in families of a child with an autism spectrum disorder attending an Australian early intervention service. Research in Autism Spectrum Disorders, 7, 1183–1195. doi: 10.​1016/​j.​rasd.​2013.​07.​006. CrossRef Paynter, J., Riley, E., Beamish, W., Davies, M., & Milford, T. (2013). The double ABCX model of family adaptation in families of a child with an autism spectrum disorder attending an Australian early intervention service. Research in Autism Spectrum Disorders, 7, 1183–1195. doi: 10.​1016/​j.​rasd.​2013.​07.​006. CrossRef
go back to reference Pozo, P., Sarria, E., & Brioso, A. (2013). Family quality of life and psychological well-being in parents of children with autism spectrum disorders: A double ABCX model. Journal of Intellectual Disability Research. doi: 10.​1111/​jir.​12042. Pozo, P., Sarria, E., & Brioso, A. (2013). Family quality of life and psychological well-being in parents of children with autism spectrum disorders: A double ABCX model. Journal of Intellectual Disability Research. doi: 10.​1111/​jir.​12042.
go back to reference Reynolds, C. R., & Kamphaus, R. W. (2004). BASC-2 behavioral assessment system for children manual (2nd ed.). Circle Pines, MN: AGS Publishing. Reynolds, C. R., & Kamphaus, R. W. (2004). BASC-2 behavioral assessment system for children manual (2nd ed.). Circle Pines, MN: AGS Publishing.
go back to reference Rivard, M., Terroux, A., Parent-Boursier, C., & Mercier, C. (2014). Determinants of stress in parents of children with autism spectrum disorders. Journal of Autism and Developmental Disorders, In Press, doi: 10.​1007/​s10803-013-2028-x. Rivard, M., Terroux, A., Parent-Boursier, C., & Mercier, C. (2014). Determinants of stress in parents of children with autism spectrum disorders. Journal of Autism and Developmental Disorders, In Press, doi: 10.​1007/​s10803-013-2028-x.
go back to reference Rutter, M., Bailey, A., & Lord, C. (2003). The Social Communication Questionnaire manual. Los Angeles, CA: Western Psychological Services. Rutter, M., Bailey, A., & Lord, C. (2003). The Social Communication Questionnaire manual. Los Angeles, CA: Western Psychological Services.
go back to reference Sagy, S. (1998). Effects of personal, family and community characteristics of emotional reactions in a stress situation: The Golan Heights negotiations. Youth and Society, 29, 311–329. CrossRef Sagy, S. (1998). Effects of personal, family and community characteristics of emotional reactions in a stress situation: The Golan Heights negotiations. Youth and Society, 29, 311–329. CrossRef
go back to reference Sparrow, S. S., Balla, D. A., & Cicchetti, D. V. (1984). Vineland adaptive behavior scales. Circle Pine, MN: American Guidance Service. Sparrow, S. S., Balla, D. A., & Cicchetti, D. V. (1984). Vineland adaptive behavior scales. Circle Pine, MN: American Guidance Service.
Metagegevens
Titel
Stress and Family Quality of Life in Parents of Children with Autism Spectrum Disorder: Parent Gender and the Double ABCX Model
Auteurs
Rebecca L. McStay
David Trembath
Cheryl Dissanayake
Publicatiedatum
01-12-2014
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 12/2014
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-014-2178-7