Skip to main content
Top
Gepubliceerd in: Tijdschrift voor Gerontologie en Geriatrie 6/2007

01-12-2007 | Artikel

Sterven met dementie: wat weten wij ervan?

Auteurs: J. T. van der Steen, M. W. Ribbe

Gepubliceerd in: Tijdschrift voor Gerontologie en Geriatrie | Uitgave 6/2007

Log in om toegang te krijgen
share
DELEN

Deel dit onderdeel of sectie (kopieer de link)

  • Optie A:
    Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
  • Optie B:
    Deel de link per e-mail

Abstract

Dying with dementia: what do we know about it? Death with dementia is increasingly common, yet research on end of life with dementia and end-of-life care for such patients has been sparse. This article reviews recent studies in this area, most of which were done in US nursing homes. Research focused on five domains: prognosis, decision making, treatment, patient’s health and suffering, and family’s circumstances and satisfaction with care. Prognostication focused on developing risk scores for mortality within 6 months or a year, and while decision making was usually studied qualitatively, the other three domains were largely covered by a series of small, retrospective studies. Future direction in research is discussed, including the ongoing CASCADE project in Boston and the Dutch End of Life with Dementia Study (DEOLD). Both of these prospective studies in nursing home residents assess decision making, as well as factors associated with family’s satisfaction and patient suffering. These studies will provide insight into interventions that are most likely to improve end of life care of patients with dementia in the respective countries and elsewhere.
Tijdschr Gerontol Geriatr 2007; 38: 288-297
Literatuur
go back to reference Centraal Bureau voor de Statistiek, CBS. Sterfte aan dementie. Statistisch kwartaalblad over de demografie van Nederland 2003;51(2):24-8. Centraal Bureau voor de Statistiek, CBS. Sterfte aan dementie. Statistisch kwartaalblad over de demografie van Nederland 2003;51(2):24-8.
go back to reference Mitchell SL, Teno JM, Miller SC, Mor V. A national study of the location of death for older persons with dementia. J Am Geriatr Soc 2005;53:299-305.CrossRefPubMed Mitchell SL, Teno JM, Miller SC, Mor V. A national study of the location of death for older persons with dementia. J Am Geriatr Soc 2005;53:299-305.CrossRefPubMed
go back to reference World Health Organization. Better Palliative Care for Older People – The Solid Facts. WHO, 2004. ISBN 92890-1091-6. World Health Organization. Better Palliative Care for Older People – The Solid Facts. WHO, 2004. ISBN 92890-1091-6.
go back to reference Forbes S, Bern-Klug M, Gessert C. End-of-life decision making for nursing home residents with dementia. J Nurs Scholarsh 2000;32:251-8.CrossRefPubMed Forbes S, Bern-Klug M, Gessert C. End-of-life decision making for nursing home residents with dementia. J Nurs Scholarsh 2000;32:251-8.CrossRefPubMed
go back to reference Kayser-Jones J. The experience of dying: an ethnographic nursing home study. Gerontologist 2002;42(Spec No 3):11-9.PubMed Kayser-Jones J. The experience of dying: an ethnographic nursing home study. Gerontologist 2002;42(Spec No 3):11-9.PubMed
go back to reference Mezey M, Dubler NN, Mitty E, Brody AA. What impact do setting and transitions have on the quality of life at the end of life and the quality of the dying process? Gerontologist 2002;42(Spec No 3):54-67.PubMed Mezey M, Dubler NN, Mitty E, Brody AA. What impact do setting and transitions have on the quality of life at the end of life and the quality of the dying process? Gerontologist 2002;42(Spec No 3):54-67.PubMed
go back to reference Pinderhughes ST, Morrison RS. Evidence-based approach to management of fever in patients with end-stage dementia. J Palliat Med 2003;6:351-4.CrossRefPubMed Pinderhughes ST, Morrison RS. Evidence-based approach to management of fever in patients with end-stage dementia. J Palliat Med 2003;6:351-4.CrossRefPubMed
go back to reference Parker-Oliver D, Porock D, Zweig S. End-of-life care in U.S. nursing homes: a review of the evidence. J Am Med Dir Assoc 2005;6(3 Suppl):S21-30.CrossRef Parker-Oliver D, Porock D, Zweig S. End-of-life care in U.S. nursing homes: a review of the evidence. J Am Med Dir Assoc 2005;6(3 Suppl):S21-30.CrossRef
go back to reference Sampson EL, Ritchie CW, Lai R, Raven PW, Blanchard MR. A systematic review of the scientific evidence for the efficacy of a palliative care approach in advanced dementia. Int Psychogeriatr 2005;17:31-40.CrossRefPubMed Sampson EL, Ritchie CW, Lai R, Raven PW, Blanchard MR. A systematic review of the scientific evidence for the efficacy of a palliative care approach in advanced dementia. Int Psychogeriatr 2005;17:31-40.CrossRefPubMed
go back to reference Sachs GA, Shega JW, Cox-Hayley D. Barriers to excellent end-of-life care for patients with dementia. J Gen Intern Med 2004;19:1057-63.CrossRefPubMed Sachs GA, Shega JW, Cox-Hayley D. Barriers to excellent end-of-life care for patients with dementia. J Gen Intern Med 2004;19:1057-63.CrossRefPubMed
go back to reference Blasi ZV, Hurley AC, Volicer L. End-of-life care in dementia: a review of problems, prospects, and solutions in practice. J Am Med Dir Assoc 2002;3:57-65.PubMedCrossRef Blasi ZV, Hurley AC, Volicer L. End-of-life care in dementia: a review of problems, prospects, and solutions in practice. J Am Med Dir Assoc 2002;3:57-65.PubMedCrossRef
go back to reference Kettl P. Helping families with end-of-life care in Alzheimer’s disease. J Clin Psychiatry 2007;68:445-450.CrossRefPubMed Kettl P. Helping families with end-of-life care in Alzheimer’s disease. J Clin Psychiatry 2007;68:445-450.CrossRefPubMed
go back to reference Thomas RE, Wilson D, Sheps S. A literature review of randomized controlled trials of the organization of care at the end of life. Can J Aging 2006;25:271-93.CrossRefPubMed Thomas RE, Wilson D, Sheps S. A literature review of randomized controlled trials of the organization of care at the end of life. Can J Aging 2006;25:271-93.CrossRefPubMed
go back to reference Volicer L, Rheaume Y, Brown J, Fabiszewski K, Brady R. Hospice approach to the treatment of patients with advanced dementia of the Alzheimer type. JAMA 1986;256:2210-3.CrossRefPubMed Volicer L, Rheaume Y, Brown J, Fabiszewski K, Brady R. Hospice approach to the treatment of patients with advanced dementia of the Alzheimer type. JAMA 1986;256:2210-3.CrossRefPubMed
go back to reference Volicer L, Hurley AC, Blasi ZV. Scales for evaluation of End-of-Life Care in Dementia. Alzheimer Dis Assoc Disord 2001;15:194-200.CrossRefPubMed Volicer L, Hurley AC, Blasi ZV. Scales for evaluation of End-of-Life Care in Dementia. Alzheimer Dis Assoc Disord 2001;15:194-200.CrossRefPubMed
go back to reference Volicer L, Hurley AC, Blasi ZV. Characteristics of dementia end-of-life care across care settings. Am J Hosp Palliat Care 2003;20:191-200.CrossRefPubMed Volicer L, Hurley AC, Blasi ZV. Characteristics of dementia end-of-life care across care settings. Am J Hosp Palliat Care 2003;20:191-200.CrossRefPubMed
go back to reference Steen JT van der, Volicer L, Gerritsen DL, Kruse RL, Ribbe MW, Mehr DR. Defining severe dementia with the Minimum Data Set. Int J Geriatr Psychiatry 2006;21:1099-106.CrossRefPubMed Steen JT van der, Volicer L, Gerritsen DL, Kruse RL, Ribbe MW, Mehr DR. Defining severe dementia with the Minimum Data Set. Int J Geriatr Psychiatry 2006;21:1099-106.CrossRefPubMed
go back to reference Steen JT van der, Kruse RL, Ooms ME, Ribbe MW, van der Wal G, Heintz LL, et al. Treatment of nursing home residents with dementia and lower respiratory tract infection in the United States and The Netherlands: an ocean apart. J Am Geriatr Soc 2004;52:691-9.CrossRefPubMed Steen JT van der, Kruse RL, Ooms ME, Ribbe MW, van der Wal G, Heintz LL, et al. Treatment of nursing home residents with dementia and lower respiratory tract infection in the United States and The Netherlands: an ocean apart. J Am Geriatr Soc 2004;52:691-9.CrossRefPubMed
go back to reference Porock D, Oliver DP, Zweig S, Rantz M, Mehr D, Madsen R, et al. Predicting death in the nursing home: development and validation of the 6-month Minimum Data Set mortality risk index. J Gerontol A Biol Sci Med Sci 2005;60:491-8.PubMed Porock D, Oliver DP, Zweig S, Rantz M, Mehr D, Madsen R, et al. Predicting death in the nursing home: development and validation of the 6-month Minimum Data Set mortality risk index. J Gerontol A Biol Sci Med Sci 2005;60:491-8.PubMed
go back to reference Kruse RL, Mehr DR, Boles KE, Lave JR, Binder EF, Madsen R, et al. Does hospitalization impact survival after lower respiratory infection in nursing home residents? Med Care 2004;42:860-70.CrossRefPubMed Kruse RL, Mehr DR, Boles KE, Lave JR, Binder EF, Madsen R, et al. Does hospitalization impact survival after lower respiratory infection in nursing home residents? Med Care 2004;42:860-70.CrossRefPubMed
go back to reference Steen JT van der, van der Wal G, Mehr DR, Ooms ME, Ribbe MW. End-of-life decision making in nursing home residents with dementia and pneumonia: Dutch physicians' intentions regarding hastening death. Alzheimer Dis Assoc Disord 2005;19:148-55.CrossRefPubMed Steen JT van der, van der Wal G, Mehr DR, Ooms ME, Ribbe MW. End-of-life decision making in nursing home residents with dementia and pneumonia: Dutch physicians' intentions regarding hastening death. Alzheimer Dis Assoc Disord 2005;19:148-55.CrossRefPubMed
go back to reference Steen JT van der, Mehr DR, Kruse RL, Sherman AK, Madsen RW, D'Agostino RB, et al. Predictors of mortality for lower respiratory infections in nursing home residents with dementia were validated transnationally. J Clin Epidemiol 2006;59:970-9.CrossRefPubMed Steen JT van der, Mehr DR, Kruse RL, Sherman AK, Madsen RW, D'Agostino RB, et al. Predictors of mortality for lower respiratory infections in nursing home residents with dementia were validated transnationally. J Clin Epidemiol 2006;59:970-9.CrossRefPubMed
go back to reference Sloane PD, Zimmerman S, Hanson L, Mitchell CM, Riedel-Leo C, Custis-Buie V. End-of-life care in assisted living and related residential care settings: comparison with nursing homes. J Am Geriatr Soc 2003;51:1587-94.CrossRefPubMed Sloane PD, Zimmerman S, Hanson L, Mitchell CM, Riedel-Leo C, Custis-Buie V. End-of-life care in assisted living and related residential care settings: comparison with nursing homes. J Am Geriatr Soc 2003;51:1587-94.CrossRefPubMed
go back to reference Williams CS, Zimmerman S, Sloane PD, Reed PS. Characteristics associated with pain in long-term care residents with dementia. Gerontologist 2005;45 (Spec No 1):68-73.PubMed Williams CS, Zimmerman S, Sloane PD, Reed PS. Characteristics associated with pain in long-term care residents with dementia. Gerontologist 2005;45 (Spec No 1):68-73.PubMed
go back to reference Munn JC, Hanson LC, Zimmerman S, Sloane PD, Mitchell CM. Is hospice associated with improved end-of-life care in nursing homes and assisted living facilities? J Am Geriatr Soc 2006;54:490-5.CrossRefPubMed Munn JC, Hanson LC, Zimmerman S, Sloane PD, Mitchell CM. Is hospice associated with improved end-of-life care in nursing homes and assisted living facilities? J Am Geriatr Soc 2006;54:490-5.CrossRefPubMed
go back to reference Munn JC, Zimmerman S, Hanson LC, Williams CS, Sloane PD, Clipp EC, et al. Measuring the quality of dying in long-term care. J Am Geriatr Soc 2007;55:1371-9.CrossRefPubMed Munn JC, Zimmerman S, Hanson LC, Williams CS, Sloane PD, Clipp EC, et al. Measuring the quality of dying in long-term care. J Am Geriatr Soc 2007;55:1371-9.CrossRefPubMed
go back to reference Helton MR, Steen JT van der, Daaleman TP, Gamble GR, Ribbe MW. Een cultuurvergelijkend onderzoek naar behandelbesluiten van artsen met betrekking tot dementerende verpleeghuispatiënten met pneumonie. Tijdschr Gerontol Geriatr 2007;38:6-13.PubMed Helton MR, Steen JT van der, Daaleman TP, Gamble GR, Ribbe MW. Een cultuurvergelijkend onderzoek naar behandelbesluiten van artsen met betrekking tot dementerende verpleeghuispatiënten met pneumonie. Tijdschr Gerontol Geriatr 2007;38:6-13.PubMed
go back to reference Mitchell SL, Kiely DK, Hamel MB, Park PS, Morris JN, Fries BE. Estimating prognosis for nursing home residents with advanced dementia. JAMA 2004;291:2734-40.CrossRefPubMed Mitchell SL, Kiely DK, Hamel MB, Park PS, Morris JN, Fries BE. Estimating prognosis for nursing home residents with advanced dementia. JAMA 2004;291:2734-40.CrossRefPubMed
go back to reference Mitchell SL, Kiely DK, Hamel MB. Dying with advanced dementia in the nursing home. Arch Intern Med 2004;164:321-6.CrossRefPubMed Mitchell SL, Kiely DK, Hamel MB. Dying with advanced dementia in the nursing home. Arch Intern Med 2004;164:321-6.CrossRefPubMed
go back to reference Mitchell SL, Morris JN, Park PS, Fries BE. Terminal care for persons with advanced dementia in the nursing home and home care settings. J Palliat Med 2004;7:808-16.CrossRefPubMed Mitchell SL, Morris JN, Park PS, Fries BE. Terminal care for persons with advanced dementia in the nursing home and home care settings. J Palliat Med 2004;7:808-16.CrossRefPubMed
go back to reference Mitchell SL, Kiely DK, Jones RN, Prigerson H, Volicer L, Teno JM. Advanced dementia research in the nursing home: the CASCADE study. Alzheimer Dis Assoc Disord 2006;20:166-75.CrossRefPubMed Mitchell SL, Kiely DK, Jones RN, Prigerson H, Volicer L, Teno JM. Advanced dementia research in the nursing home: the CASCADE study. Alzheimer Dis Assoc Disord 2006;20:166-75.CrossRefPubMed
go back to reference Engel SE, Kiely DK, Mitchell SL. Satisfaction with End-of-Life Care for Nursing Home Residents with Advanced Dementia. J Am Geriatr Soc 2006;54:1567-72.CrossRefPubMed Engel SE, Kiely DK, Mitchell SL. Satisfaction with End-of-Life Care for Nursing Home Residents with Advanced Dementia. J Am Geriatr Soc 2006;54:1567-72.CrossRefPubMed
go back to reference Steen JT van der, Mitchell SL, Frijters DHM, Kruse RL, Ribbe MW. Prediction of six-month mortality in nursing home residents with advanced dementia: validity of a risk score. J Am Med Dir Assoc 2007;8:464-8.CrossRefPubMed Steen JT van der, Mitchell SL, Frijters DHM, Kruse RL, Ribbe MW. Prediction of six-month mortality in nursing home residents with advanced dementia: validity of a risk score. J Am Med Dir Assoc 2007;8:464-8.CrossRefPubMed
go back to reference Teno JM. Measuring end-of-life care outcomes retrospectively. J Palliat Med. 2005;8 (Suppl 1):S42-9.CrossRefPubMed Teno JM. Measuring end-of-life care outcomes retrospectively. J Palliat Med. 2005;8 (Suppl 1):S42-9.CrossRefPubMed
go back to reference Teno JM, Licks S, Lynn J, Wenger N, Connors AF Jr, Phillips RS, et al. Do advance directives provide instructions that direct care? SUPPORT Investigators. Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatment. J Am Geriatr Soc 1997;45:508-12.PubMed Teno JM, Licks S, Lynn J, Wenger N, Connors AF Jr, Phillips RS, et al. Do advance directives provide instructions that direct care? SUPPORT Investigators. Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatment. J Am Geriatr Soc 1997;45:508-12.PubMed
go back to reference Caron CD, Griffith J, Arcand M. Decision making at the end of life in dementia: how family caregivers perceive their interactions with health care providers in long-term care settings. Journal of Applied Gerontology 2005;24:231-47.CrossRef Caron CD, Griffith J, Arcand M. Decision making at the end of life in dementia: how family caregivers perceive their interactions with health care providers in long-term care settings. Journal of Applied Gerontology 2005;24:231-47.CrossRef
go back to reference Caron CD, Griffith J, Arcand M. End-of-life decision making in dementia. Dementia 2005;4:113-36.CrossRef Caron CD, Griffith J, Arcand M. End-of-life decision making in dementia. Dementia 2005;4:113-36.CrossRef
go back to reference Toscani F, Di Giulio P, Villani D, Brunelli C, Gentile S, Spadin S. Dying with advanced dementia in long-term care geriatric institutions: a retrospective study. Ingediend voor publicatie. Toscani F, Di Giulio P, Villani D, Brunelli C, Gentile S, Spadin S. Dying with advanced dementia in long-term care geriatric institutions: a retrospective study. Ingediend voor publicatie.
go back to reference Aminoff BZ, Adunsky A. Their last 6 months: suffering and survival of end-stage dementia patients. Age Ageing 2006;35:597-601.CrossRefPubMed Aminoff BZ, Adunsky A. Their last 6 months: suffering and survival of end-stage dementia patients. Age Ageing 2006;35:597-601.CrossRefPubMed
go back to reference Aminoff BZ, Purits E, Noy S, Adunsky A. Measuring the suffering of end-stage dementia: reliability and validity of the Mini-Suffering State Examination. Arch Gerontol Geriatr 2004;38:123-30.CrossRefPubMed Aminoff BZ, Purits E, Noy S, Adunsky A. Measuring the suffering of end-stage dementia: reliability and validity of the Mini-Suffering State Examination. Arch Gerontol Geriatr 2004;38:123-30.CrossRefPubMed
go back to reference Steen JT van der, Ooms ME, Muller MT, Wal G van der, Ribbe MW. Wel of niet curatief behandelen van een pneumonie bij psychogeriatrische patiënten: een ‘handreiking’ voor verpleeghuisartsen. Tijdschrift voor Verpleeghuisgeneeskunde 2003;27(2):6-8. Steen JT van der, Ooms ME, Muller MT, Wal G van der, Ribbe MW. Wel of niet curatief behandelen van een pneumonie bij psychogeriatrische patiënten: een ‘handreiking’ voor verpleeghuisartsen. Tijdschrift voor Verpleeghuisgeneeskunde 2003;27(2):6-8.
go back to reference Brandt HE, Deliens L, Ooms ME, van der Steen JT, van der Wal G, Ribbe MW. Symptoms, signs, problems, and diseases of terminally ill nursing home patients: a nationwide observational study in the Netherlands. Arch Intern Med 2005;165:314-20.CrossRefPubMed Brandt HE, Deliens L, Ooms ME, van der Steen JT, van der Wal G, Ribbe MW. Symptoms, signs, problems, and diseases of terminally ill nursing home patients: a nationwide observational study in the Netherlands. Arch Intern Med 2005;165:314-20.CrossRefPubMed
go back to reference Miller SC, Mor V, Teno J. Hospice enrollment and pain assessment and management in nursing homes. J Pain Symptom Manage 2003;26:791-9.CrossRefPubMed Miller SC, Mor V, Teno J. Hospice enrollment and pain assessment and management in nursing homes. J Pain Symptom Manage 2003;26:791-9.CrossRefPubMed
go back to reference Schonwetter RS, Han B, Small BJ, Martin B, Tope K, Haley WE. Predictors of six-month survival among patients with dementia: an evaluation of hospice Medicare guidelines. Am J Hosp Palliat Care 2003;20:105-13.CrossRefPubMed Schonwetter RS, Han B, Small BJ, Martin B, Tope K, Haley WE. Predictors of six-month survival among patients with dementia: an evaluation of hospice Medicare guidelines. Am J Hosp Palliat Care 2003;20:105-13.CrossRefPubMed
go back to reference Wallace JB, Prevost SS. Two methods for predicting limited life expectancy in nursing homes. J Nurs Scholarsh 2006;38:148-53.CrossRefPubMed Wallace JB, Prevost SS. Two methods for predicting limited life expectancy in nursing homes. J Nurs Scholarsh 2006;38:148-53.CrossRefPubMed
go back to reference Flacker JM, Kiely DK. Mortality-related factors and 1-year survival in nursing home residents. J Am Geriatr Soc 2003;51:213-21.CrossRefPubMed Flacker JM, Kiely DK. Mortality-related factors and 1-year survival in nursing home residents. J Am Geriatr Soc 2003;51:213-21.CrossRefPubMed
go back to reference Hertogh CM, Ribbe MW. Ethical aspects of medical decision-making in demented patients: a report from the Netherlands. Alzheimer Dis Assoc Disord 1996;10:11-9.CrossRefPubMed Hertogh CM, Ribbe MW. Ethical aspects of medical decision-making in demented patients: a report from the Netherlands. Alzheimer Dis Assoc Disord 1996;10:11-9.CrossRefPubMed
go back to reference Rurup ML, Onwuteaka-Philipsen BD, Pasman HR, Ribbe MW, van der Wal G. Attitudes of physicians, nurses and relatives towards end-of-life decisions concerning nursinghome patients with dementia. Patient Educ Couns 2006;61:372-80.CrossRefPubMed Rurup ML, Onwuteaka-Philipsen BD, Pasman HR, Ribbe MW, van der Wal G. Attitudes of physicians, nurses and relatives towards end-of-life decisions concerning nursinghome patients with dementia. Patient Educ Couns 2006;61:372-80.CrossRefPubMed
go back to reference Forbes S. This is Heaven's waiting room: end of life in one nursing home. J Gerontol Nurs 2001;27:37-45.PubMed Forbes S. This is Heaven's waiting room: end of life in one nursing home. J Gerontol Nurs 2001;27:37-45.PubMed
go back to reference Gessert CE, Elliott BA, Peden-McAlpine C. Family decision-making for nursing home residents with dementia: rural-urban differences. J Rural Health 2006;22:1-8.CrossRefPubMed Gessert CE, Elliott BA, Peden-McAlpine C. Family decision-making for nursing home residents with dementia: rural-urban differences. J Rural Health 2006;22:1-8.CrossRefPubMed
go back to reference The AM, Pasman R, Onwuteaka-Philipsen B, Ribbe M, van der Wal G. Withholding the artificial administration of fluids and food from elderly patients with dementia: ethnographic study. BMJ 2002;325:1326.CrossRefPubMed The AM, Pasman R, Onwuteaka-Philipsen B, Ribbe M, van der Wal G. Withholding the artificial administration of fluids and food from elderly patients with dementia: ethnographic study. BMJ 2002;325:1326.CrossRefPubMed
go back to reference Shield RR, Wetle T, Teno J, Miller SC, Welch L. Physicians "missing in action": family perspectives on physician and staffing problems in end-of-life care in the nursing home. J Am Geriatr Soc 2005;53:1651-7.CrossRefPubMed Shield RR, Wetle T, Teno J, Miller SC, Welch L. Physicians "missing in action": family perspectives on physician and staffing problems in end-of-life care in the nursing home. J Am Geriatr Soc 2005;53:1651-7.CrossRefPubMed
go back to reference Miller SC, Teno JM, Mor V. Hospice and palliative care in nursing homes. Clin Geriatr Med 2004;20:717-34.CrossRefPubMed Miller SC, Teno JM, Mor V. Hospice and palliative care in nursing homes. Clin Geriatr Med 2004;20:717-34.CrossRefPubMed
go back to reference Somogyi-Zalud E, Zhong Z, Lynn J, Hamel MB. Elderly persons' last six months of life: findings from the Hospitalized Elderly Longitudinal Project. J Am Geriatr Soc 2000;48(5 Suppl):S131-9.PubMed Somogyi-Zalud E, Zhong Z, Lynn J, Hamel MB. Elderly persons' last six months of life: findings from the Hospitalized Elderly Longitudinal Project. J Am Geriatr Soc 2000;48(5 Suppl):S131-9.PubMed
go back to reference Lubart E, Leibovitz A, Shapira A, Tischenko O, Peled Z, Baumoehl Y, et al. Satisfaction with the care of institutionalized psychogeriatric patients, as reflected by a survey of their relatives. Arch Gerontol Geriatr 2004;38:45-50.CrossRefPubMed Lubart E, Leibovitz A, Shapira A, Tischenko O, Peled Z, Baumoehl Y, et al. Satisfaction with the care of institutionalized psychogeriatric patients, as reflected by a survey of their relatives. Arch Gerontol Geriatr 2004;38:45-50.CrossRefPubMed
go back to reference DeSilva DL, Dillon JE, Teno JM. The quality of care in the last month of life among Rhode Island nursing home residents. Med Health R I. 2001;84:195-8.PubMed DeSilva DL, Dillon JE, Teno JM. The quality of care in the last month of life among Rhode Island nursing home residents. Med Health R I. 2001;84:195-8.PubMed
go back to reference Travis SS, Loving G, McClanahan L, Bernard M. Hospitalization patterns and palliation in the last year of life among residents in long-term care. Gerontologist 2001;41:153-60.PubMed Travis SS, Loving G, McClanahan L, Bernard M. Hospitalization patterns and palliation in the last year of life among residents in long-term care. Gerontologist 2001;41:153-60.PubMed
go back to reference Travis SS, Bernard M, Dixon S, McAuley WJ, Loving G, McClanahan L. Obstacles to palliation and end-of-life care in a long-term care facility. Gerontologist 2002;42:342-9.PubMed Travis SS, Bernard M, Dixon S, McAuley WJ, Loving G, McClanahan L. Obstacles to palliation and end-of-life care in a long-term care facility. Gerontologist 2002;42:342-9.PubMed
go back to reference Evers MM, Purohit D, Perl D, Khan K, Marin DB. Palliative and aggressive end-of-life care for patients with dementia. Psychiatr Serv 2002;53:609-13.CrossRefPubMed Evers MM, Purohit D, Perl D, Khan K, Marin DB. Palliative and aggressive end-of-life care for patients with dementia. Psychiatr Serv 2002;53:609-13.CrossRefPubMed
go back to reference Cohen-Mansfield J, Lipson S. Medical decision-making around the time of death of cognitively impaired nursing home residents: a pilot study. Omega (Westport) 2003-2004;48:103-14. Cohen-Mansfield J, Lipson S. Medical decision-making around the time of death of cognitively impaired nursing home residents: a pilot study. Omega (Westport) 2003-2004;48:103-14.
go back to reference Bekelman DB, Black BS, Shore AD, Kasper JD, Rabins PV. Hospice care in a cohort of elders with dementia and mild cognitive impairment. J Pain Symptom Manage 2005;30:208-14.CrossRefPubMed Bekelman DB, Black BS, Shore AD, Kasper JD, Rabins PV. Hospice care in a cohort of elders with dementia and mild cognitive impairment. J Pain Symptom Manage 2005;30:208-14.CrossRefPubMed
go back to reference Gessert CE, Haller IV, Kane RL, Degenholtz H. Rural-urban differences in medical care for nursing home residents with severe dementia at the end of life. J Am Geriatr Soc 2006;54:1199-205.CrossRefPubMed Gessert CE, Haller IV, Kane RL, Degenholtz H. Rural-urban differences in medical care for nursing home residents with severe dementia at the end of life. J Am Geriatr Soc 2006;54:1199-205.CrossRefPubMed
go back to reference Sampson EL, Gould V, Lee D, Blanchard MR. Differences in care received by patients with and without dementia who died during acute hospital admission: a retrospective case note study. Age Ageing 2006;35:187-9.CrossRefPubMed Sampson EL, Gould V, Lee D, Blanchard MR. Differences in care received by patients with and without dementia who died during acute hospital admission: a retrospective case note study. Age Ageing 2006;35:187-9.CrossRefPubMed
go back to reference Pautex S, Herrmann FR, Le Lous P, Ghedira M, Zulian GB, Michon A, Gold G. Symptom relief in the last week of life: is dementia always a limiting factor? J Am Geriatr Soc 2007;55:1316-7.CrossRefPubMed Pautex S, Herrmann FR, Le Lous P, Ghedira M, Zulian GB, Michon A, Gold G. Symptom relief in the last week of life: is dementia always a limiting factor? J Am Geriatr Soc 2007;55:1316-7.CrossRefPubMed
go back to reference Formiga F, Olmedo C, Lopez-Soto A, Navarro M, Culla A, Pujol R. Dying in hospital of terminal heart failure or severe dementia: the circumstances associated with death and the opinions of caregivers. Palliat Med 2007;21:35-40.CrossRefPubMed Formiga F, Olmedo C, Lopez-Soto A, Navarro M, Culla A, Pujol R. Dying in hospital of terminal heart failure or severe dementia: the circumstances associated with death and the opinions of caregivers. Palliat Med 2007;21:35-40.CrossRefPubMed
go back to reference Formiga F, Pujol R. Differences in end of life care in patients who died with dementia during acute hospital admissions. Age Ageing 2006;35:451-2; author reply 452.CrossRefPubMed Formiga F, Pujol R. Differences in end of life care in patients who died with dementia during acute hospital admissions. Age Ageing 2006;35:451-2; author reply 452.CrossRefPubMed
go back to reference Mitchell SL, Kiely DK, Miller SC, Connor SR, Spence C, Teno JM. Hospice care for patients with dementia. J Pain Symptom Manage 2007;34:7-16.CrossRefPubMed Mitchell SL, Kiely DK, Miller SC, Connor SR, Spence C, Teno JM. Hospice care for patients with dementia. J Pain Symptom Manage 2007;34:7-16.CrossRefPubMed
go back to reference Richardson SS, Sullivan G, Hill A, Yu W. Use of aggressive medical treatments near the end of life: differences between patients with and without dementia. Health Serv Res 2007;42(1 Pt 1):183-200.CrossRefPubMed Richardson SS, Sullivan G, Hill A, Yu W. Use of aggressive medical treatments near the end of life: differences between patients with and without dementia. Health Serv Res 2007;42(1 Pt 1):183-200.CrossRefPubMed
go back to reference Hanson LC, Eckert JK, Dobbs D, Williams CS, Caprio AJ, Sloane PD, Zimmerman S. Symptom Experience of Dying Long-Term Care Residents. J Am Geriatr Soc 2007 Aug 28; [Epub ahead of print]. Hanson LC, Eckert JK, Dobbs D, Williams CS, Caprio AJ, Sloane PD, Zimmerman S. Symptom Experience of Dying Long-Term Care Residents. J Am Geriatr Soc 2007 Aug 28; [Epub ahead of print].
go back to reference Keay TJ, Taler GA, Fredman L, Levenson SA. Assessing medical care of dying residents in nursing homes. Am J Med Qual 1997;12:151-6.CrossRefPubMed Keay TJ, Taler GA, Fredman L, Levenson SA. Assessing medical care of dying residents in nursing homes. Am J Med Qual 1997;12:151-6.CrossRefPubMed
go back to reference McCarthy M, Addington-Hall J, Altmann D. The experience of dying with dementia: a retrospective study. Int J Geriatr Psychiatry 1997;12:404-9.CrossRefPubMed McCarthy M, Addington-Hall J, Altmann D. The experience of dying with dementia: a retrospective study. Int J Geriatr Psychiatry 1997;12:404-9.CrossRefPubMed
go back to reference Pasman HR, Onwuteaka-Philipsen BD, Kriegsman DM, Ooms ME, Ribbe MW, van der Wal G. Discomfort in nursing home patients with severe dementia in whom artificial nutrition and hydration is forgone. Arch Intern Med 2005;165:1729-35.CrossRefPubMed Pasman HR, Onwuteaka-Philipsen BD, Kriegsman DM, Ooms ME, Ribbe MW, van der Wal G. Discomfort in nursing home patients with severe dementia in whom artificial nutrition and hydration is forgone. Arch Intern Med 2005;165:1729-35.CrossRefPubMed
go back to reference Steen JT van der, Ooms ME, Ader HJ, Ribbe MW, van der Wal G. Withholding antibiotic treatment in pneumonia patients with dementia: a quantitative observational study. Arch Intern Med 2002;162:1753-60.CrossRefPubMed Steen JT van der, Ooms ME, Ader HJ, Ribbe MW, van der Wal G. Withholding antibiotic treatment in pneumonia patients with dementia: a quantitative observational study. Arch Intern Med 2002;162:1753-60.CrossRefPubMed
go back to reference Black BS, Finucane T, Baker A, Loreck D, Blass D, Fogarty L, et al. Health problems and correlates of pain in nursing home residents with advanced dementia. Alzheimer Dis Assoc Disord 2006;20:283-90.CrossRefPubMed Black BS, Finucane T, Baker A, Loreck D, Blass D, Fogarty L, et al. Health problems and correlates of pain in nursing home residents with advanced dementia. Alzheimer Dis Assoc Disord 2006;20:283-90.CrossRefPubMed
go back to reference Steen JT van der, Ooms ME, van der Wal G, Ribbe MW. Pneumonia: the demented patient's best friend? Discomfort after starting or withholding antibiotic treatment. J Am Geriatr Soc 2002;50:1681-8.CrossRefPubMed Steen JT van der, Ooms ME, van der Wal G, Ribbe MW. Pneumonia: the demented patient's best friend? Discomfort after starting or withholding antibiotic treatment. J Am Geriatr Soc 2002;50:1681-8.CrossRefPubMed
go back to reference Koopmans RT, van der Sterren KJ, van der Steen JT. The 'natural' endpoint of dementia: death from cachexia or dehydration following palliative care? Int J Geriatr Psychiatry 2006 Oct 5; [Epub ahead of print] Koopmans RT, van der Sterren KJ, van der Steen JT. The 'natural' endpoint of dementia: death from cachexia or dehydration following palliative care? Int J Geriatr Psychiatry 2006 Oct 5; [Epub ahead of print]
go back to reference Verelst SG, Pasman HR, Onwuteaka-Philipsen BD, Ribbe MW, van der Wal G. Ervaringen van familie met de besluitvorming rond kunstmatige toediening van vocht en voedsel (ktvv) bij mensen met dementie in het verpleeghuis. Tijdschr Gerontol Geriatr 2006;37:51-8.PubMed Verelst SG, Pasman HR, Onwuteaka-Philipsen BD, Ribbe MW, van der Wal G. Ervaringen van familie met de besluitvorming rond kunstmatige toediening van vocht en voedsel (ktvv) bij mensen met dementie in het verpleeghuis. Tijdschr Gerontol Geriatr 2006;37:51-8.PubMed
go back to reference Schulz R, Boerner K, Shear K, Zhang S, Gitlin LN. Predictors of complicated grief among dementia caregivers: a prospective study of bereavement. Am J Geriatr Psychiatry 2006;14:650-8.CrossRefPubMed Schulz R, Boerner K, Shear K, Zhang S, Gitlin LN. Predictors of complicated grief among dementia caregivers: a prospective study of bereavement. Am J Geriatr Psychiatry 2006;14:650-8.CrossRefPubMed
go back to reference Hebert RS, Dang Q, Schulz R. Preparedness for the death of a loved one and mental health in bereaved caregivers of patients with dementia: findings from the REACH study. J Palliat Med 2006;9:683-93.CrossRefPubMed Hebert RS, Dang Q, Schulz R. Preparedness for the death of a loved one and mental health in bereaved caregivers of patients with dementia: findings from the REACH study. J Palliat Med 2006;9:683-93.CrossRefPubMed
go back to reference Maust DT, Blass DM, Black BS, Rabins PV. Treatment decisions regarding hospitalization and surgery for nursing home residents with advanced dementia: the CareAD Study. Int Psychogeriatr 2007 Sep 10;1-13 [Epub ahead of print]. Maust DT, Blass DM, Black BS, Rabins PV. Treatment decisions regarding hospitalization and surgery for nursing home residents with advanced dementia: the CareAD Study. Int Psychogeriatr 2007 Sep 10;1-13 [Epub ahead of print].
go back to reference Steinhauser KE. Measuring end-of-life care outcomes prospectively. J Palliat Med 2005;8 (Suppl 1):S30-41.CrossRefPubMed Steinhauser KE. Measuring end-of-life care outcomes prospectively. J Palliat Med 2005;8 (Suppl 1):S30-41.CrossRefPubMed
go back to reference Brandt HE, Deliens L, van der Steen JT, Ooms ME, Ribbe MW, van der Wal G. The last days of life of nursing home patients with and without dementia assessed with the palliative care outcome scale. Palliat Med 2005;19:334-42.CrossRefPubMed Brandt HE, Deliens L, van der Steen JT, Ooms ME, Ribbe MW, van der Wal G. The last days of life of nursing home patients with and without dementia assessed with the palliative care outcome scale. Palliat Med 2005;19:334-42.CrossRefPubMed
go back to reference Steel K, Ljunggren G, Topinkova E, Morris JN, Vitale C, Parzuchowski J, et al. The RAI-PC: an assessment instrument for palliative care in all settings. Am J Hosp Palliat Care 2003;20:211-9.CrossRefPubMed Steel K, Ljunggren G, Topinkova E, Morris JN, Vitale C, Parzuchowski J, et al. The RAI-PC: an assessment instrument for palliative care in all settings. Am J Hosp Palliat Care 2003;20:211-9.CrossRefPubMed
go back to reference Ahronheim JC, Morrison RS, Morris J, Baskin S, Meier DE. Palliative care in advanced dementia: a randomized controlled trial and descriptive analysis. J Palliat Med 2000;3:265-73.CrossRefPubMed Ahronheim JC, Morrison RS, Morris J, Baskin S, Meier DE. Palliative care in advanced dementia: a randomized controlled trial and descriptive analysis. J Palliat Med 2000;3:265-73.CrossRefPubMed
go back to reference Steen JT van der, Toscani F, Di Giulio P,Werner P, Boogaard JA, Zysberg A,Volicer L. Treatments in patients dying with dementia: a cross-cultural perspective. Journal of the American Geriatrics Society 2007. Geaccepteerd voor publicatie. [letter to the Editor]. Steen JT van der, Toscani F, Di Giulio P,Werner P, Boogaard JA, Zysberg A,Volicer L. Treatments in patients dying with dementia: a cross-cultural perspective. Journal of the American Geriatrics Society 2007. Geaccepteerd voor publicatie. [letter to the Editor].
Metagegevens
Titel
Sterven met dementie: wat weten wij ervan?
Auteurs
J. T. van der Steen
M. W. Ribbe
Publicatiedatum
01-12-2007
Uitgeverij
Bohn Stafleu van Loghum
Gepubliceerd in
Tijdschrift voor Gerontologie en Geriatrie / Uitgave 6/2007
Print ISSN: 0167-9228
Elektronisch ISSN: 1875-6832
DOI
https://doi.org/10.1007/BF03074863

Andere artikelen Uitgave 6/2007

Tijdschrift voor Gerontologie en Geriatrie 6/2007 Naar de uitgave

Boekbespreking

Boekbespreking

Signalementen

Signalementen

Recente onderzoeksliteratuur

Recente onderzoeksliteratuur