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Journal of Autism and Developmental Disorders

Gepubliceerd in:

10-07-2021 | Original Paper

“Sometimes I Feel Grateful…”: Experiences of the Adolescent Siblings of Children with Autism Spectrum Disorder in Malaysia

Auteurs: Shin Ying Chu, Siti Nur Zafirah binti Kassim, Chun Hong Gan, Veronica Fierro, Caryn Mei Hsien Chan, Deborah Hersh

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 2/2023

Abstract

Sibling relationships remain understudied in typically developing adolescents who have siblings with autism spectrum disorder (ASD). This study explored the lived experiences and perceptions of adolescents who have a brother or a sister with a diagnosis of ASD using semi-structured interviews. Using thematic analysis, the participants reported having difficulties communicating with their siblings. Feeling a mixture of emotions was common when interacting with their siblings with ASD and emotional self-regulation was a typical coping strategy utilized by these adolescents. Despite the challenges, having a sibling with ASD led to closer relationships between the siblings. These findings offer insights into these adolescents’ needs and how they may be best supported, informing the practice of speech-language pathology and other health professions.

vorige artikel COVID-19 Morbidity Among Individuals with Autistic Spectrum Disorder: A Matched Controlled Population-Based Study

volgende artikel Group Psychoeducational Intervention for Grandparents of Young Children with ASD: An Open Feasibility Study

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Titel: “Sometimes I Feel Grateful…”: Experiences of the Adolescent Siblings of Children with Autism Spectrum Disorder in Malaysia
Auteurs: Shin Ying Chu
Siti Nur Zafirah binti Kassim
Chun Hong Gan
Veronica Fierro
Caryn Mei Hsien Chan
Deborah Hersh
Publicatiedatum: 10-07-2021
Uitgeverij: Springer US
Gepubliceerd in: Journal of Autism and Developmental Disorders / Uitgave 2/2023
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI: https://doi.org/10.1007/s10803-021-05184-5

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