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Quality of Life Research
Gepubliceerd in:

01-03-2021

Social support and quality of life among rural family caregivers of persons with severe mental illness in Sichuan Province, China: mediating roles of care burden and loneliness

Auteurs: Baiyang Zhang, Kyaien O. Conner, Hongdao Meng, Naidan Tu, Danping Liu, Yeli Chen

Gepubliceerd in: Quality of Life Research | Uitgave 7/2021

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Abstract

Objective

To explore the relationship between social support and quality of life (QoL) among family caregivers of persons with severe mental illness (SMI) and examine the mediating roles of care burden and loneliness.

Methods

A cross-sectional study was carried out between December 2017 and May 2018. A random sample of 256 family caregivers of persons with SMI in rural areas of Sichuan Province, China was recruited for participation. Survey data on socio-demographics, social support, care burden, loneliness, and QoL were collected via in-person interviews. Multiple linear regression analysis and structural equation modeling (SEM) were used to test the hypothesized relationships.

Results

The majority (72.7%) of family caregivers of persons with SMI in this study reported having low QoL. Social support was positively associated with QoL and negatively associated with care burden and loneliness. The findings suggested the mediating roles of care burden and loneliness on the association between social support and QoL.

Conclusion

The hypothesized model was found to be a suitable model for predicting QoL among family caregivers of persons with SMI. The findings can help inform the design of future interventions aimed at enhancing social support, reducing care burden and loneliness, which may be helpful to improve caregivers’ QoL. Future study is required to find a causal path to promote QoL among family caregivers of persons with SMI.
vorige artikel Moving beyond family: unequal burden across mental health patients’ social networks
volgende artikel Comparison of the anxiety, depression and their relationship to quality of life among adult acute leukemia patients and their family caregivers: a cross-sectional study in China
Literatuur
1.
Excellence NIfHaC. (2015). Guideline scope. Severe mental illness and substance misuse (dual diagnosis): Community health and social care services. National Institute for Health and Care Excellence.
2.
3.
4.
Lam, P. C., Ng, P., & Tori, C. (2013). Burdens and psychological health of family caregivers of people with Schizophrenia in two Chinese Metropolitan Cities: Hong Kong and Guangzhou. Community Mental Health Journal, 49(6), 841–846.
5.
Huang, C., Sousa, V., Sj, H. M., Tsai, C., Huang, M., & Yao, S. (2010). Stressors, social support, depressive symptoms and general health status of Taiwanese caregivers of persons with stroke or Alzheimer’s disease. Journal of Clinical Nursing, 18(4), 502–511.
6.
Evridiki, P., Andreas, C., Haritini, T., & George, K. (2010). The cost of caring: The relative with schizophrenia. Scandinavian Journal of Caring Sciences, 24(4), 817–823.
7.
Dyck, D. G., Short, R., & Vitaliano, P. P. (1999). Predictors of burden and infectious illness in schizophrenia caregivers. Psychosomatic Medicine, 61(4), 411–419.PubMed
8.
Möller-Leimkühler, A. M., & Wiesheu, A. (2012). Caregiver burden in chronic mental illness: The role of patient and caregiver characteristics. European Archives of Psychiatry & Clinical Neuroscience, 262(2), 157–166.
9.
Perlick, D., Rosenheck, R., Jf, R. P., & Sirey, J. (2001). Impact of family burden and patient symptom status on clinical outcome in bipolar affective disorder. Journal of Nervous & Mental Disease, 189(1), 31–37.
10.
Shah, A. J., Wadoo, O., & Latoo, J. (2010). Psychological distress in carers of people with mental disorders. British Journal of Medical Practitioners, 3(3), a327.
11.
Li, J., & Lambert, C. V. (2010). Predictors of family caregivers’ burden and quality of life when providing care for a family member with schizophrenia in the People’s Republic of China. Nursing & Health Sciences, 9(3), 192–198.
12.
Wong, D. F. K., Lam, A. Y. K., Chan, S. K., & Chan, S. F. (2012). Quality of life of caregivers with relatives suffering from mental illness in Hong Kong: Roles of caregiver characteristics, caregiving burdens, and satisfaction with psychiatric services. Health & Quality of Life Outcomes, 10(1), 15–15.
13.
Group TW. (1994). The Development of the World Health Organization Quality of Life Assessment Instrument (the WHOQOL). Springer.
14.
Brigola, A. G., Luchesi, B. M., Tds, A., Inouye, K., Mioshi, E., & Sci, P. (2017). High burden and frailty: Association with poor cognitive performance in older caregivers living in rural areas. Trends in Psychiatry & Psychotherapy, 39(4), 257–263.
15.
Angermeyer, M. C., Kilian, R., Wilms, H. U., & Wittmund, B. (2006). Quality of life of spouses of mentally ill people. International Journal of Social Psychiatry, 52(3), 278–285.
16.
Ndikuno, C., Namutebi, M., Kuteesa, J., & Mukunya, D. (2016). Quality of life of caregivers of patients diagnosed with severe mental illness at the national referral hospitals in Uganda. BMC Psychiatry, 16(1), 400.PubMedPubMedCentral
17.
Malhotra, M. (2016). Burden among caregivers of mentally-ill patients: A review. International Journal of Multidisciplinary and Current Research, 4, 109–118.
18.
Ae-Ngibise, K. A., Doku, V. C. K., Asante, K. P., & Owusu-Agyei, S. (2015). The experience of caregivers of people living with serious mental disorders: A study from rural Ghana. Global Health Action, 8(1), 26957.PubMed
19.
Bademli, K., Lök, N., & Kılıc, A. K. (2017). Relationship between caregiving burden and anger level in primary caregivers of individuals with chronic mental illness. Archives of Psychiatric Nursing, 31(3), 263–268.PubMed
20.
Bademli, K., Neslihan, L., & Ayten, K. K. (2018). The relationship between the burden of caregiving, submissive behaviors and depressive symptoms in primary caregivers of patients with schizophrenia. Archives of Psychiatric Nursing, 32(2), 229–234.PubMed
21.
Ribé, J. M., Salamero, M., Pérez-Testor, C., Mercadal, J., Aguilera, C., & Cleris, M. (2018). Quality of life in family caregivers of schizophrenia patients in Spain: Caregiver characteristics, caregiving burden, family functioning, and social and professional support. International Journal of Psychiatry in Clinical Practice, 22(1), 25–33.PubMed
22.
Fan, C. C., & Chen, Y. Y. (2011). Factors associated with care burden and quality of life among caregivers of the mentally ill in Chinese Society. International Journal of Social Psychiatry, 57(2), 195–206.
23.
Lino, V. T., Portela, M. C., Camacho, L. A., Atie, S., & Lima, M. J. (2013). Assessment of social support and its association to depression, self-perceived health and chronic diseases in elderly individuals residing in an area of poverty and social vulnerability in Rio de Janeiro City, Brazil. PLoS ONE, 8(8), e71712.PubMedPubMedCentral
24.
Magliano, L., Fiorillo, A., Malangone, C., Rosa, C. D., & Maj, M. (2006). Social network in long-term diseases: A comparative study in relatives of persons with schizophrenia and physical illnesses versus a sample from the general population. Social Science & Medicine, 62(6), 1392–1402.
25.
Wai-Tong, C., Chan, S. W. C., & Jean, M. (2010). The perceived burden among Chinese family caregivers of people with schizophrenia. Journal of Clinical Nursing, 16(6), 1151–1161.
26.
Zeng, Y., Zhou, Y., & Lin, J. (2017). Perceived burden and quality of life in Chinese caregivers of people with serious mental illness: A comparison cross-sectional survey. Perspectives in Psychiatric Care, 53(3), 183–189.PubMed
27.
Kim, Y., Duberstein, P. R., Sörensen, S., & Larson, M. R. (2005). Levels of depressive symptoms in spouses of people with lung cancer: effects of personality, social support, and caregiving burden. Psychosomatics, 46(2), 123–130.PubMed
28.
29.
Grandón, P., Jenaro, C., & Lemos, S. (2008). Primary caregivers of schizophrenia outpatients: Burden and predictor variables. Psychiatry Research, 158(3), 335–343.PubMed
30.
Hawkley, L. C., & Cacioppo, J. T. (2010). Loneliness matters: A theoretical and empirical review of consequences and mechanisms. Annals of Behavioral Medicine, 40(2), 218–227.PubMed
31.
Yang, Y. J., Xu, Y. M., Chen, W. C., Zhu, J. H., Lu, J., & Zhong, B. L. (2015). Loneliness and its impact on quality of life in Chinese heroin-dependent patients receiving methadone maintenance treatment. Oncotarget, 8(45), 79803–79808.
32.
Ekwall, A. K., Bengt, S., & Hallberg, I. R. (2010). Loneliness as a predictor of quality of life among older caregivers. Journal of Advanced Nursing, 49(1), 23–32.
33.
Yildirim, Y., & Kocabiyik, S. (2010). The relationship between social support and loneliness in Turkish patients with cancer. Journal of Clinical Nursing, 19(5–6), 832–839.PubMed
34.
Zhang, B., Gao, Q., Fokkema, M., Alterman, V., & Liu, Q. (2015). Adolescent interpersonal relationships, social support and loneliness in high schools: Mediation effect and gender differences. Social Science Research, 53, 104–117.PubMed
35.
Ohen-Mansfield, J., Hazan, H., Lerman, Y., & Shalom, V. (2016). Correlates and predictors of loneliness in older-adults: A review of quantitative results informed by qualitative insights. International Psychogeriatrics, 28(04), 557–576.
36.
Kovaleva, M., Spangler, S., Clevenger, C., & Hepburn, K. (2018). Chronic stress, social isolation, and perceived loneliness in dementia caregivers. Journal of Psychosocial Nursing and Mental Health Services, 56(10), 1–8.
37.
Drageset, J., Kirkevold, M., & Espehaug, B. (2011). Loneliness and social support among nursing home residents without cognitive impairment: A questionnaire survey. Journal of Clinical Nursing, 48(5), 611–619.
38.
Kang, H. W., Park, M., & Wallace, J. P. (2018). The impact of perceived social support, loneliness, and physical activity on quality of life in South Korean older adults. Journal of Sport and Health Science, 7(2), 115–122.
39.
Shi-guo, B., Nian, X., & Yun, J. (2019). Mediating effect of loneliness on relationship between social support and quality of life in the elderly. Chinese Health Education, 35(2), 161–165.
40.
Goodridge, D. (2010). Using a quality framework to assess rural palliative care. Journal of Palliative Care, 26(3), 141–150.PubMed
41.
Xiao, S. (1994). The theoretical basis and application of social support questionnaire. Journal of Clinical Psychological Medicine, 2, 98–100.
42.
Ren, M., Liu, C., Chen, Y., & Li, S. (2019). The present situation and influencing factors of social support for the elderly in reclamation area of Shihezi. Occupation and Health, 35(5), 644–650.
43.
Bédard, M., Molloy, D. W., Squire, L., Dubois, S., Lever, J. A., & O’Donnell, M. (2001). The Zarit Burden Interview: A new short version and screening version. Gerontologist, 41(5), 652–657.PubMed
44.
Russell, D. W. (1996). UCLA Loneliness Scale (Version 3): Reliability, validity, and factor structure. Journal of Personality Assessment, 66(1), 20–40.PubMed
45.
Cacioppo, J. T., & Patrick, W. (2008). Loneliness: Human nature and the need for social connection. Library Journal, 19(3), 71–89.
46.
Skevington, S. M., Lotfy, M., & O’Connell, K. A. (2004). The World Health Organization’s WHOQOL-BREF quality of life assessment: Psychometric properties and results of the international field trial. A Report from the WHOQOL Group. Quality of Life Research, 13(2), 299–310.PubMed
47.
Lt, Hu., & Bentler, P. M. (1999). Cutoff criteria for fit indexes in covariance structure analysis: Conventional criteria versus new alternatives. Structural Equation Modeling, 6(1), 1–55.
48.
Mackinnon, D. P., Fritz, M. S., Williams, J., & Lockwood, C. M. (2007). Distribution of the product confidence limits for the indirect effect: Program PRODCLIN. Behavior Research Methods, 39(3), 384–389.PubMedPubMedCentral
49.
Kethy, E., Anne-Marie, B. M., Monir, M., Kristiina, H., & Azita, E. (2015). Family caregivers’ assessments of caring for a relative with dementia: A comparison of urban and rural areas. International Journal of Older People Nursing, 10(1), 27–37.
50.
Brazil, K., Kaasalainen, S., Williams, A., & Rodriguez, C. (2013). Comparing the experiences of rural and urban family caregivers of the terminally ill. Rural & Remote Health, 13(1), 2250.
51.
Kevin, B., Sharon, K., Allison, W., & Serge, D. (2013). A comparison of support needs between rural and urban family caregivers providing palliative care. American Journal of Hospice & Palliative Care, 31(1), 13–19.
52.
Navidian, A., & Bahari, F. (2008). Burden experienced by family caregivers of patients with mental disorders. Pakistan Journal of Psychological Research, 23(1–2), 19–28.
53.
Kumar, R., & Saini, R. (2012). Extent of burden and coping strategies among caregivers of mentally-ill patients. Nursing and Midwifery Research Journal, 8(4), 274–284.
54.
Qin, S., Ling, L. I., & Hospital, H. C. (2014). Study of burden and social support of caregivers of mental disorder patients. Journal of Medical Forum, 35, 35–39.
55.
Tristiana, R. D., Triantoro, B., Nihayati, H. E., Yusuf, A., & Abdullah, K. L. (2019). Relationship between caregivers’ burden of schizophrenia patient with their quality of life in Indonesia. Journal of Psychosocial Rehabilitation and Mental Health, 6, 141.
56.
Kate, N., Grover, S., Kulhara, P., & Nehra, R. (2013). Relationship of caregiver burden with coping strategies, social support, psychological morbidity, and quality of life in the caregivers of schizophrenia. Asian Journal of Psychiatry, 6(5), 380–388.PubMed
57.
Wong, C., Davidson, L., Anglin, D., et al. (2010). Stigma in families of individuals in early stages of psychotic illness: Family stigma and early psychosis. Early Intervention in Psychiatry, 3(2), 108–115.
58.
Zhang, Y., Subramaniam, M., Lee, S. P., Abdin, E., & Chong, S. A. (2018). Affiliate stigma and its association with quality of life among caregivers of relatives with mental illness in Singapore. Psychiatry Research, 265, 55–61.PubMed
59.
Tough, H., Brinkhof, M. W. G., Siegrist, J., & Fekete, C. (2018). The impact of loneliness and relationship quality on life satisfaction: A longitudinal dyadic analysis in persons with physical disabilities and their partners. Journal of Psychosomatic Research, 110, 61–67.PubMed
60.
Cacioppo, J. T., Hawkley, L. C., & Thisted, R. A. (2010). Perceived social isolation makes me sad: 5-year cross-lagged analyses of loneliness and depressive symptomatology in the Chicago Health, Aging, and Social Relations Study. Psychology and Aging, 25(2), 453–463.PubMedPubMedCentral
61.
Russell, D., Peplau, L. A., & Cutrona, C. E. (1980). The Revised UCLA Loneliness Scale: Concurrent and discriminate validity evidence. Journal of Personality and Social Psychology, 39(39), 472–480.PubMed
62.
Shye, D., Mullooly, J. P., Freeborn, D. K., & Pope, C. R. (1995). Gender differences in the relationship between social network support and mortality: A longitudinal study of an elderly cohort. Social Science & Medicine, 41(7), 935–947.
Metagegevens
Titel
Social support and quality of life among rural family caregivers of persons with severe mental illness in Sichuan Province, China: mediating roles of care burden and loneliness
Auteurs
Baiyang Zhang
Kyaien O. Conner
Hongdao Meng
Naidan Tu
Danping Liu
Yeli Chen
Publicatiedatum
01-03-2021
Uitgeverij
Springer International Publishing
Gepubliceerd in
Quality of Life Research / Uitgave 7/2021
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-021-02793-6

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